Guest guest Posted July 6, 2008 Report Share Posted July 6, 2008 I hope I can tolerate it well and it works. I don't want the evil prednisone that is for sure. > > I take 1,000 mg in the morning and 1,000 mg in the evening. I started > slowly and added 500 mg a day each week. I don't feel that this will be > sufficient for me. I continue to have considerable inflammation and pain. > > > > I had been on Plaquenil for several years until I developed eye issues so I > was taken off that. I've been on Prednisone up to 60 mg a day and that was > terrific!! I was superwoman...did all the spring cleaning...but I'm down to > 5 mg a day now and all the symptoms have returned. If they could just > develop a drug that acted like Prednisone without all the negative sides! > > > > My gastro has been reluctant to treat me more aggressively since I have > liver problems. I see him again in 2 weeks and will have to press him on a > better treatment. > > > > I will say that I have had no stomach problems at all. > > > > _____ > > From: [mailto:RA- SUPPORT ] On > Behalf Of ktandtm > Sent: Saturday, July 05, 2008 7:08 PM > > Subject: [ ] Sulfasalazine > > > > Ok I hope someone will reply to this. Does anyone have any experience > with Sulfasalazine? Looks like my doc wants to try this drug if things > don't improve. Would love to hear anyones experiences with it. Also > how large of a dose do/did you take. > > Thanks, > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2008 Report Share Posted July 6, 2008 I don't want the " evil prednisone " either. I've been trying to get lower or quit completely for the last 2 months, with no success! I've been taking 10mg per day starting in 1990, sometimes an extra one or five. I easily got down to 7.5mg last time, and to 7mg this try. I couldn't deal with the pain but held at that level for a month and the pain and other problemscaused by the lower med, but finally gave up and am back at 8mg and will likely have to go up to 10mg before long. I just can't get down or off, so I have to live with it. So, , try your best to not start that " evil prednisone " . Dennis On Sun, Jul 6, 2008 at 1:27 PM, ktandtm <ktandtm@...> wrote: > I hope I can tolerate it well and it works. I don't want the evil > prednisone that is for sure. > > > > > > > > I take 1,000 mg in the morning and 1,000 mg in the evening. I > started > > slowly and added 500 mg a day each week. I don't feel that this > will be > > sufficient for me. I continue to have considerable inflammation > and pain. > > > > > > > > I had been on Plaquenil for several years until I developed eye > issues so I > > was taken off that. I've been on Prednisone up to 60 mg a day and > that was > > terrific!! I was superwoman...did all the spring cleaning...but > I'm down to > > 5 mg a day now and all the symptoms have returned. If they could > just > > develop a drug that acted like Prednisone without all the negative > sides! > > > > > > > > My gastro has been reluctant to treat me more aggressively since I > have > > liver problems. I see him again in 2 weeks and will have to press > him on a > > better treatment. > > > > > > > > I will say that I have had no stomach problems at all. > > > > > > > > _____ > > > > From: < %40> [mailto: > RA- > SUPPORT <SUPPORT%40>] On > > Behalf Of ktandtm > > Sent: Saturday, July 05, 2008 7:08 PM > > < %40> > > Subject: [ ] Sulfasalazine > > > > > > > > Ok I hope someone will reply to this. Does anyone have any > experience > > with Sulfasalazine? Looks like my doc wants to try this drug if > things > > don't improve. Would love to hear anyones experiences with it. Also > > how large of a dose do/did you take. > > > > Thanks, > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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