Re: New to group & have Q re: how to get Doc to communicate more.

[Guest guest]

Sharon,

Maybe your rheumy is just too busy to spend much time with you. I know

that here in the US, there's a shortage of rheumies; I don't know what

the situation is in Australia. I would say that you did right by

researching the meds yourself, so maybe you can continue to do educate

yourself about your disease and the treatments available.

Since you are deaf, how does the rheumy communicate with you? Maybe

this makes it even more difficult and time consuming.

You can find out just about anything on the internet. Be so informed

that he'll realize that you're an informed, proactive patient. Maybe

this will help.

Sue

On Friday, June 27, 2008, at 01:43 PM, bon_mac18 wrote:

>

> Anyway my Question is how can I get my Rhuemy to discuss my treatment

> & prognosis

> with me instead of just brushing my enquires off without getting his

> back up? Or should I

> just try & find another Rhuemy even though he is the only one

> servicing our area, the next

> closest being at least 1000 km's away or possibly interstate?

[Guest guest]

When I say I'm deaf I technically mean hearing impaired, I have a severe hearing

impairment. " Deaf " is simply shorter & more easily understood. I wear 2 aids &

lip read

well, I was brought up in the " hearing world " , know only one person my age who

is deaf

(mildly) and I can only sign 'Hi' 'how are you?' & the alphabet. I say

" Sorry?.. " & " excuse

me?.. " a lot. My Rhuemy has an accent which doesn't help, but because I

generally know

the topic that is being discussed it narrows down the words my brain has to try

&

translate.

>Sharon

> Sharon,

>

> Maybe your rheumy is just too busy to spend much time with you. I know

> that here in the US, there's a shortage of rheumies; I don't know what

> the situation is in Australia. I would say that you did right by

> researching the meds yourself, so maybe you can continue to do educate

> yourself about your disease and the treatments available.

>

> Since you are deaf, how does the rheumy communicate with you? Maybe

> this makes it even more difficult and time consuming.

>

> You can find out just about anything on the internet. Be so informed

> that he'll realize that you're an informed, proactive patient. Maybe

> this will help.

>

> Sue

>

> On Friday, June 27, 2008, at 01:43 PM, bon_mac18 wrote:

> >

> > Anyway my Question is how can I get my Rhuemy to discuss my treatment

> > & prognosis

> > with me instead of just brushing my enquires off without getting his

> > back up? Or should I

> > just try & find another Rhuemy even though he is the only one

> > servicing our area, the next

> > closest being at least 1000 km's away or possibly interstate?

>