Guest guest Posted July 7, 2008 Report Share Posted July 7, 2008 Believe me I have been fighting it because of stories just like yours. > > > > > > I take 1,000 mg in the morning and 1,000 mg in the evening. I > > started > > > slowly and added 500 mg a day each week. I don't feel that this > > will be > > > sufficient for me. I continue to have considerable inflammation > > and pain. > > > > > > > > > > > > I had been on Plaquenil for several years until I developed eye > > issues so I > > > was taken off that. I've been on Prednisone up to 60 mg a day and > > that was > > > terrific!! I was superwoman...did all the spring cleaning...but > > I'm down to > > > 5 mg a day now and all the symptoms have returned. If they could > > just > > > develop a drug that acted like Prednisone without all the negative > > sides! > > > > > > > > > > > > My gastro has been reluctant to treat me more aggressively since I > > have > > > liver problems. I see him again in 2 weeks and will have to press > > him on a > > > better treatment. > > > > > > > > > > > > I will say that I have had no stomach problems at all. > > > > > > > > > > > > _____ > > > > > > From: < %40> [mailto: > > RA- > > SUPPORT <SUPPORT%40>] On > > > Behalf Of ktandtm > > > Sent: Saturday, July 05, 2008 7:08 PM > > > < %40> > > > Subject: [ ] Sulfasalazine > > > > > > > > > > > > Ok I hope someone will reply to this. Does anyone have any > > experience > > > with Sulfasalazine? Looks like my doc wants to try this drug if > > things > > > don't improve. Would love to hear anyones experiences with it. Also > > > how large of a dose do/did you take. > > > > > > Thanks, > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2009 Report Share Posted October 28, 2009 Hi Dennis: I was sorry to read that you are having Fibro. pain and suffering. If it is not one thing, it is another. How could we ever forget the pain? It reminds us all the time!!! Wishing you better pain free days ahead. Keep up your good spirit. Hugs to you and Betty, Barbara > > > > > Dennis, big smooches. Kick that cancer in the booty. Rest when you can, > gentle exercise when you feel up to it. Have Betty help you with the VA > stuff as she's able. They've got some good prostate cancer resources. And > don't worry about salty posts. I think everyone understands that sometimes > we get grouchy or have a raw nerve touched. Heck, we can always bring back > the " did I cause my RA " debate and I can jump up and down for a while. Hugs, > Kate F > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2010 Report Share Posted November 12, 2010 Hi Dennis.  I was sorry to read that you are still in awful pain. I hope you can get on Enbrel and that it works wonders for you. You have suffered much too long in pain.  I think of you a lot, and figured since you haven't posted much, that you were in lots of pain. I was sorry to read that it is true.  I pray you will have many pain free days ahead. You so deserve it.  Hugs,  Barbara > Quote Link to comment Share on other sites More sharing options...
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