Re: New Member <Phemme@...>

Posted September 10, 2000 · September 10, 2000

Welcome to the crew cherita

It is great to have you,and I mean REALLY GREAT.There has been like " no "

mail on this list today,so you have saved my sanity.

Jimmy

New Member

> Hi Everyone,

>

> Welcome Cherita to the Crew! If any of you know new 2's who'd like to

> join us, please send them my way! Here is Cherita's bio and thanks to

> Sally and Harold for emailing me.

>

> ~~~

> My name is Cherita , I'm 24, and I was diagnosed with NF2 in April

> of 1997. I have had skin lesions on various areas of my body for as

> long as I can remember, but none of my doctors had ever given me a

> diagnosis as to why they were present. In 1994, I discovered that I had

> a significant hearing loss in my right ear. I saw an ENT who thought I

> had suffered some sort of sudden hearing loss. He gave me drops to put

> in my nose, and sent me on my way.

>

> In April of 1997, one day before I was to begin my senior year finals, I

> had a grand mal seizure in my sleep. Prior to this, I had a terrible

> headache. One of my professors suggested that I drink something with

> caffeine. I thought to myself, " what has more caffeine than Vivarin . "

> I went to the store, took two pills, and was asleep after maybe an hour.

> I woke up in the hospital surrounded by doctors. They told me what had

> happened, and then proceeded to tell me that I had a brain tumor which

> was approximately the size of a small orange, and that it had to be

> removed. Now I have a pretty strange sense of humor; the first thing I

> said was, " cool, no finals! " They also told me about the bilateral

> acoustic neuromas as well as a neuroma which has paralyzed one of my

> vocal cords, and several other small lesions in my brain. At last the

> mystery was solved.

>

> I was in Virginia at the time, and I knew that no one was going to cut

> my head open except for the doctors at s Hopkins in my homestate of

> land. I went home for a consult a week later, went back to Virginia

> to graduate college, and then went back to land to be admitted into

> the hospital for surgery that next day. That was a pretty wild couple of

> weeks.

>

> My recovery was quick. I did, however have to take Dilantin for three

> months, and undergo radiosurgery a few months after that.

>

> I have been living in New Jersey with my fiance since March of 1998.

> Everything since then has been fine except for a mild setback this past

> June, when I had another seizure. That was probably the first time I

> really began to get annoyed with this disease. Now, I'm back on

> medication, but living what I consider to be a pretty happy, and normal

> life.

>

> No one else in my family has shown any signs of having NF2, therefore I

> look forward to meeting more people who are willing to share their

> experiences. We're such an " exclusive " bunch, that I find it very

> interesting to see how such a rare disease can manifest itself in so

> many different ways.

>

> I look forward to being a part of the crew. Hope to hear from you soon.

>

> Cherita

>

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Posted September 10, 2000 · September 10, 2000

Hi Cherita,

Welcome to the crew! Looking forward to your posts.

Mikeabi42

Posted September 10, 2000 · September 10, 2000

CARLA,

I HAVE BEEN TRYING TO FIND OUT HOW MY 3 DAUGHTERS CAN JOIN THE CREW DO I

JUST GIVE THEM YOUR ADDRESS AND THEY EMAIL YOU?

REBECCA AND CAROLYN WOULD LIKE TO JOIN NOW AND SARAH LATER AS SHE IS GOING

TO HEI FOR THE MENINGIOMA SURGERY.

WE WILL BE FLYING TO LA SUNDAY THE 17TH OF SET AND THE SURGERY THAT WEEK.

PLEASE LET ME KNOW HOW MY DAUGHTERS GO ABOUT JOINING THE CREW.

THANKS,

CATHERINE

> New Member