Re: Neuropathy??

[Guest guest]

Hello and welcome . I found this group last year after I was

diagnosed with RA. I don't have any experience to help with your

questions, but this is a very knowledgable group. I hope someone

here has answers for you.

Congratulations on the new baby! I just wanted to welcome you into

the group.

Shirley

>

> Hi Everyone. I am new to the group, but I have had RA for 5

years, and

> Sjogren's for 2. Almost 2 years ago I took enbrel and had the

symptoms of

> MS. I did LOVE the enbrel though! When I stopped the enbrel I

got better,

> and I had a normal MRI. I had a baby in February and when she was

6 weeks I

> started getting this numb feeling. So back to the dr's again. I

still have

> normal MRI's of my head, neck and back. So they are saying no to

MS. The

> neurologist says he thinks my arthritis is the cause. I tripped

and now I

> am having major foot drop. They are saying that I have peripheral

> neuropathy. I have numbness in my lower legs, hands and forearms

and face.

> My rheumy refuses to see me for this saying I need to see the

neurologist.

> The neurologist STILL thinks it is arthritis either my ra or

Sjogren's. My

> RA is not bothering me, but my Sjogren's has flared in the last

few weeks.

> I just found out that my Sjogren's diagnosis is in question since

I am

> negative for the antibodies, and I never had a lip biopsy. Of

course I

> still have the sicca symptoms. Has anybody experienced this with

RA? I

> moved last year, and since this things have gone crazy for me. I

am looking

> for my THIRD rheumy since moving here. I never understood before

how

> difficult this could be.

>

> Thanks,

>

>

[Guest guest]

Hi ,

I have neuropathy and have the numbness of my hands and feet when I wake

up.I also have Fibromyalgia that can also have those same symptoms. If you

do find a new Rhu he/she should be able to help without a neurologist.

I was hospitalized with stroke 2 times over the last 4 years. It was the

numbness but all on my left side and I lost function. They called them

spinal infarction's as the head MRI showed no stroke. The Drs did decide

that it was some type of stroke as the signs were there The Neurologist

really didn't do much and I did not see him after I got out. The rhu gave me

the meds I needed and my Internist handles the Diabetes and the Blood

pressure.The Rhu and a pain mgmt Dr diagnosed the Fibro.

So you might want to ask about Fibro, Be aware that there are still a large

group of Drs that do not believe that Fibro is a disease.

On Sat, Jul 19, 2008 at 10:07 AM, nana2livi <s.p5315@...> wrote:

> Hello and welcome . I found this group last year after I was

> diagnosed with RA. I don't have any experience to help with your

> questions, but this is a very knowledgable group. I hope someone

> here has answers for you.

> Congratulations on the new baby! I just wanted to welcome you into

> the group.

> Shirley

>

>

>

> >

> > Hi Everyone. I am new to the group, but I have had RA for 5

> years, and

> > Sjogren's for 2. Almost 2 years ago I took enbrel and had the

> symptoms of

> > MS. I did LOVE the enbrel though! When I stopped the enbrel I

> got better,

> > and I had a normal MRI. I had a baby in February and when she was

> 6 weeks I

> > started getting this numb feeling. So back to the dr's again. I

> still have

> > normal MRI's of my head, neck and back. So they are saying no to

> MS. The

> > neurologist says he thinks my arthritis is the cause. I tripped

> and now I

> > am having major foot drop. They are saying that I have peripheral

> > neuropathy. I have numbness in my lower legs, hands and forearms

> and face.

> > My rheumy refuses to see me for this saying I need to see the

> neurologist.

> > The neurologist STILL thinks it is arthritis either my ra or

> Sjogren's. My

> > RA is not bothering me, but my Sjogren's has flared in the last

> few weeks.

> > I just found out that my Sjogren's diagnosis is in question since

> I am

> > negative for the antibodies, and I never had a lip biopsy. Of

> course I

> > still have the sicca symptoms. Has anybody experienced this with

> RA? I

> > moved last year, and since this things have gone crazy for me. I

> am looking

> > for my THIRD rheumy since moving here. I never understood before

> how

> > difficult this could be.

> >

> > Thanks,

> >

> >

>

>

>

[Guest guest]

,

I have neuropathy in my legs and feet since a spinal fusion in 2001.

Also have RA and " possible " lupus. The doctors believe my lupus is

drug induced from the Humira and Enbrel I was on for almost 7

months. The Enbrel worked incredibly well for me and even though my

ANA said I had lupus the docs suspected it was from the Enbrel so I'm

not able to take it any longer even though I actually felt much

better while I was taking it. So, given my own experience if someone

has symptoms made worse by Enbrel or Humira (neuropathy or MS-like

symptoms)I'd recommend requesting your doc to check ANA titers. Food

for thought.

Cheryl

>

> Hi Everyone. I am new to the group, but I have had RA for 5 years,

and

> Sjogren's for 2. Almost 2 years ago I took enbrel and had the

symptoms of

> MS. I did LOVE the enbrel though! When I stopped the enbrel I got

better,

> and I had a normal MRI. I had a baby in February and when she was

6 weeks I

> started getting this numb feeling. So back to the dr's again. I

still have

> normal MRI's of my head, neck and back. So they are saying no to

MS. The

> neurologist says he thinks my arthritis is the cause. I tripped

and now I

> am having major foot drop. They are saying that I have peripheral

> neuropathy. I have numbness in my lower legs, hands and forearms

and face.

> My rheumy refuses to see me for this saying I need to see the

neurologist.

> The neurologist STILL thinks it is arthritis either my ra or

Sjogren's. My

> RA is not bothering me, but my Sjogren's has flared in the last few

weeks.

> I just found out that my Sjogren's diagnosis is in question since I

am

> negative for the antibodies, and I never had a lip biopsy. Of

course I

> still have the sicca symptoms. Has anybody experienced this with

RA? I

> moved last year, and since this things have gone crazy for me. I

am looking

> for my THIRD rheumy since moving here. I never understood before

how

> difficult this could be.

>

> Thanks,

>

>