Has this happen to anybody else

[Guest guest]

I have been dx with inflammatory arthritis...rheumotoid factor

positive..I just took my 9th dose of mtx and find that pain is somewhat

worst...I just dont understand why my sedrate is coming down finally

and Im not feeling any better with the pain and fatigue..I wasnt

sleeping so. I got sleeping pill and trying to get more rest with my

job and taking care of my 3 children...but this helping a little with

the fatigue...even my motrin and darvocet would help, but not any

more..I just wanted to know if anybody else experienced this with labs

improving but not feeling any better...any help please..As always take

care ..diane

[Guest guest]

Hi diane,

I was recently diagnosed with RA and started on mtx in feb but had lots

of weird sensations on it like burning in my joints, chills, etc. Then

the doc started me on enbrel injections along with the mtx and i

started throwing up for 2 days a week. Now he is taking me off of

everything and basically starting over. I am very frustrated with the

whole thing and trying to find the right meds. the swelling in my

hands was actually going down and the pain and fatigue got better but

the other side effects were worse. i also noticed that the fatigue was

much worse after an injection for at least 48 hrs. we're still

searching for the right treatment. i go back in 3 weeks if i can stand

the pain that long. i feel for you.

--- In , " diane crawford " <nuttynurse25@...>

wrote:

>

> I have been dx with inflammatory arthritis...rheumotoid factor

> positive..I just took my 9th dose of mtx and find that pain is

somewhat

> worst...I just dont understand why my sedrate is coming down finally

> and Im not feeling any better with the pain and fatigue..I wasnt

> sleeping so. I got sleeping pill and trying to get more rest with my

> job and taking care of my 3 children...but this helping a little with

> the fatigue...even my motrin and darvocet would help, but not any

> more..I just wanted to know if anybody else experienced this with

labs

> improving but not feeling any better...any help please..As always

take

> care ..diane

>

[Guest guest]

Thanks brenda for your support..I dont post much,but read the post much

of time..I have my second appt next week with the rheumy...I have so

much to ask him that I dont understand, esp my diagnosis..I saw him

then he ordred all this blood work..than he diagnosed me after all my

lab work came back and percribed the mtx over the phone. diane

[Guest guest]

Diane,

I know it's very frustrating. I have tried plaquenil and broke out in

a rash, then methotrexate and Enbrel. both of those made me throw-up.

I don't know what's next. More blood work and then we'll see. I

sometimes wonder which is worse - the disease or the treatment. Does

anyone else feel that way? I don't mean to be such a whiner, i am just

really frustrated with my options right now. I'm still searching for

the right drug. My forties have been pretty rough. Open heart surgery

in 03 for an unexplained mass growing in my heart, then i found out i

have a blood clotting disorder but it still doesn't explain the heart

thing. I now have asthma and heart rhythm issues along with the

fibromyalgia and RA, but my doc said it could be lupus instead of RA

because i am seronegative. I guess i have a tendency to ask what next?

I know it could always be worse. Thanks for letting me vent. it's nice

to share with people who have been there and still are there. I guess

we all just have to hang in there together

--- In , " diane crawford " <nuttynurse25@...>

wrote:

>

> Thanks brenda for your support..I dont post much,but read the post

much

> of time..I have my second appt next week with the rheumy...I have so

> much to ask him that I dont understand, esp my diagnosis..I saw him

> then he ordred all this blood work..than he diagnosed me after all my

> lab work came back and percribed the mtx over the phone. diane

>

[Guest guest]

and the group

I am sure it's happen to others, its happen to me. I take nausea pills

from the doctor for some nausea, also I eat before I take my meds

unless the scrips says not to.

I don't think your venting or whining. It sounds like an informative

message. And I like details, besides if you was venting or whinning,

good, cause we are here to listen and help. I haven't thougt any one

has been venting or whining so far lol. Everyone has been really

interesting about their life on meds and RA..

Clora