Guest guest Posted June 10, 2008 Report Share Posted June 10, 2008 I know what you mean about taking all of these meds. I asked my Rheumatologist about all that when he added Neurontin to my list. He said some of his patients take 4 different meds. Not too encouraging, but I guess that's the nature of this disease. I've had to resign myself to the fact of " whatever works " although there are days when I still question whether any of this is doing any good - especially when a storm front is moving in. One day at a time HAS to be my new motto. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2008 Report Share Posted June 10, 2008 Mimi, I know what you mean. Storms and low pressure are hell. I want to crawl into a hole. Does neurontin help? I have a glove and tocking -like tingling in arms and legs. > > I know what you mean about taking all of these meds. I asked my > Rheumatologist about all that when he added Neurontin to my list. He > said some of his patients take 4 different meds. Not too encouraging, > but I guess that's the nature of this disease. I've had to resign > myself to the fact of " whatever works " although there are days when I > still question whether any of this is doing any good - especially when > a storm front is moving in. One day at a time HAS to be my new motto. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2008 Report Share Posted June 10, 2008 That's a huge dose of Prednisone! I'm sure you know that. I hate that I have ever had to take it and have managed to stay on low doses for 20+ years not without damage but I'm concerned that they have Rxed such a high dose for you. Is that temporary? Suz --- In , " savannahhipchick " <lfriedman5@...> wrote: > > I went to the rheummy today. The inflammation, stiffness and fatigue are worse by the > day. I can't believe this. My doctor told me to go on 40mg pred a day and continue with > the other drugs and Celebrex is okay if I need it. Wow, I'm in pain for sure and it's getting > hard to open my hands but I hate having to take all these meds. Boo hoo (; > > > LIsa > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2008 Report Share Posted June 10, 2008 I know just what you are going through right now, and I am sure the high dose of Pred. will soon begin to help you get through this bad flare up. I too have had to take high dose's of Pred. at times, but it sure did the trick for me. We all have to do what we can to help us through the bad, painfull days. etc. Remember, we all care, and will pray you are soon feeling better, and your pain less and less. God Bless you, and here is extra hugs for you. Barbara From: savannahhipchick <lfriedman5@...> Subject: [ ] okaay... Date: Monday, June 9, 2008, 10:25 PM I went to the rheummy today. The inflammation, stiffness and fatigue are worse by the day. I can't believe this. My doctor told me to go on 40mg pred a day and continue with the other drugs and Celebrex is okay if I need it. Wow, I'm in pain for sure and it's getting hard to open my hands but I hate having to take all these meds. Boo hoo (; LIsa > > From: OM Shanti nk_laurie@.. . > Subject: [ ] Please help! > @gro ups.com > Date: Saturday, June 7, 2008, 2:23 PM > > > > > > > My mom has unidentifiable arthritis. She has been seeing a > reumatologist who says it is one of the most aggressive cases she has > ever seen. > > It is completely destroying her joints. She has no joints left in her > index fingers, they are entirely fused together. Doctor has ruled out > RA but assumed it was autoimmune and has been using chemo-like IV > drugs on her for over a year. Instead of getting better, it has gotten > MUCH MUCH worse. > > Her doc says she only has 3 patients who are like my mom. She has > recommended for my mom to get a second opinion, because she doesn't > know if she is " missing " something. > > Now the doctor thinks it is inflammatory arthritis and is going to d/c > the IVs soon, and start her on antibiotics contintuously. And maybe > steroids. My mom doesn't want to take steroids, she will only take > them as a last resort. IN the meantime her arthritis has gotten > horrendous over the past two years. She went from having red nodules > on her joints, to having no joints. > > Has anyone heard of a case like this, where doctors could not identify > the type of arthritis, and treatment has not helped. > > Also, I am wondering if this is hereditary. Because I started having > joint pains at 27, then I got pregnant after I turned 28 and the pains > went away during the fourth month of pregnancy. Now my son is four > months old, and I think I have full blown arthritis in my fingers and > toes. > > Thanks, > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2008 Report Share Posted June 10, 2008 I was on low dose pred (10 mg.) for about 3 years. when my bone density numbers started getting a little on the low side of normal, my doc took me off of it. Personally, I felt WAY better when I was on it, less flares, better mobility, more energy. I have a list of my meds saved in the computer so when I go to a new doc I can just bust it out and let them tack it on the chart. Saves a lot of time and cuts down on the explaining. I had to have an abdominal ultrasound yesterday, with a fibro flare, no meds, no food until afternoon. I was NOT a happy girl. Went home and curled up with a heating pad and a trashy novel. ) > > > > From: OM Shanti nk_laurie@ > > Subject: [ ] Please help! > > > > Date: Saturday, June 7, 2008, 2:23 PM > > > > > > > > > > > > > > My mom has unidentifiable arthritis. She has been seeing a > > reumatologist who says it is one of the most aggressive cases she has > > ever seen. > > > > It is completely destroying her joints. She has no joints left in her > > index fingers, they are entirely fused together. Doctor has ruled out > > RA but assumed it was autoimmune and has been using chemo-like IV > > drugs on her for over a year. Instead of getting better, it has gotten > > MUCH MUCH worse. > > > > Her doc says she only has 3 patients who are like my mom. She has > > recommended for my mom to get a second opinion, because she doesn't > > know if she is " missing " something. > > > > Now the doctor thinks it is inflammatory arthritis and is going to d/c > > the IVs soon, and start her on antibiotics contintuously. And maybe > > steroids. My mom doesn't want to take steroids, she will only take > > them as a last resort. IN the meantime her arthritis has gotten > > horrendous over the past two years. She went from having red nodules > > on her joints, to having no joints. > > > > Has anyone heard of a case like this, where doctors could not identify > > the type of arthritis, and treatment has not helped. > > > > Also, I am wondering if this is hereditary. Because I started having > > joint pains at 27, then I got pregnant after I turned 28 and the pains > > went away during the fourth month of pregnancy. Now my son is four > > months old, and I think I have full blown arthritis in my fingers and > > toes. > > > > Thanks, > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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