Guest guest Posted June 9, 2008 Report Share Posted June 9, 2008 I went to the rheummy today. The inflammation, stiffness and fatigue are worse by the day. I can't believe this. My doctor told me to go on 40mg pred a day and continue with the other drugs and Celebrex is okay if I need it. Wow, I'm in pain for sure and it's getting hard to open my hands but I hate having to take all these meds. Boo hoo (; LIsa > > From: OM Shanti nk_laurie@... > Subject: [ ] Please help! > > Date: Saturday, June 7, 2008, 2:23 PM > > > > > > > My mom has unidentifiable arthritis. She has been seeing a > reumatologist who says it is one of the most aggressive cases she has > ever seen. > > It is completely destroying her joints. She has no joints left in her > index fingers, they are entirely fused together. Doctor has ruled out > RA but assumed it was autoimmune and has been using chemo-like IV > drugs on her for over a year. Instead of getting better, it has gotten > MUCH MUCH worse. > > Her doc says she only has 3 patients who are like my mom. She has > recommended for my mom to get a second opinion, because she doesn't > know if she is " missing " something. > > Now the doctor thinks it is inflammatory arthritis and is going to d/c > the IVs soon, and start her on antibiotics contintuously. And maybe > steroids. My mom doesn't want to take steroids, she will only take > them as a last resort. IN the meantime her arthritis has gotten > horrendous over the past two years. She went from having red nodules > on her joints, to having no joints. > > Has anyone heard of a case like this, where doctors could not identify > the type of arthritis, and treatment has not helped. > > Also, I am wondering if this is hereditary. Because I started having > joint pains at 27, then I got pregnant after I turned 28 and the pains > went away during the fourth month of pregnancy. Now my son is four > months old, and I think I have full blown arthritis in my fingers and > toes. > > Thanks, > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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