Re: Welcome to our humble group

[Guest guest]

Jen and group;

Welcome to our humble group... I do hope you enjoy it as much as I

have... Glad to have ya.. So sorry you have fibro and all the

others.. God bless and take care.

gentle hugs

Clora

> Hi everyone,

>

> I'm a new member. I have had inflammatory (not rheumatoid, I

tested

> negative for the rheumatoid factor) arthritis and chronic

urticaria

> for almost two years now. I also tested negative for ANA, ruling

out

> a lot of other things like lupus, etc. My x-rays show erosive

changes

> in my hands so my doctor has me on methotrexate now.

>

> I'm on a dose of 12.5 mg of mtx and 200 mg daily of plaquenil (for

> six months now) and am seeing NO results for either the

> swelling/joint pain or the hives. I'm sort of at a loss.

>

> Here are my questions. Do a lot of people not see any results

from

> these meds? Also, how atypical is it that my doctors haven't

> specifically categorized my arthritis yet? Shouldn't I at least

have

> a diagnosis? Also, I just ordered The New Arthritis Breakthrough

> about antibiotic treatments. Is anyone on this board doing this

with

> any success?

>

> Any help would be greatly appreciated.

>

> Thanks,

>

> Jen

>

[Guest guest]

Cheryl and group;

Welcom to our group Cheryl.. Sorry I am kinda later on welcoming

you.. I am so sorry you have this hideous disease,,, I had to com

to terms with it myself... I sufferd so much untill I found this

group.... I didn't realize there was other meds out there to help

me..

The plagunil and sulfalzaline I have been taking for a year and the

pain got worse,,, I am sure its not the meds fault,,,, but I

thought that this was it... I begin to read about biologics,,,

injections and so on... I marched or lets say limped into my rheumy

and told her my pain level was a 10..

I am taking Humira injections now and it is great my pain level has

dropped to a 1 for RA.. I started them about 4 weeks ago and I felt

the change with in 24 hours.. I still have osteo to contend with

but its not half as bad as the RA.

I didnt know that we had to make our complaints to the doctor.. I

thought this was it.. I think talking about it helps a lot.. So

don't feel bad if you want to complain or vent while your here we

understand completely... Praying that we all have pain free days and

a cure someday... God bless and take care..

gentle hgus

Clora

>

> Hi all. I am new to this group and was diagnosed with RA in Dec

07.

> Being 37 and quite healthy and relatively fit, I have struggled so

much

> with the thought of having this hideous disease. I take mtx,

arava,

> plaquenil, sulphasalazine and other supplements to offset the side-

> effects. What is next? Surely they can't make me take more? I

still

> experience pain with this past week having it in my shoulders in

> addition to hands, feet, knees and ankles! I am so new to all

of

> this I still don't recognise it until I have pain for several

days.

> Then I have to take prednisone to try and bring it under control.

I

> tried Mobic but it doesn't seem to work for me.

>

> Just wondering if anyone can give me any advice on how to cope

> mentally. I can take the pain, but the thought of deformed joints

and

> a life of managing a condition just doesn't seem possible.

>