Guest guest Posted October 4, 2008 Report Share Posted October 4, 2008 Hi Amber. I'm currently taking the MTX pills, but will be switching to the injectable as soon as my Rheumy gives me the script. I've heard that along with little to no side effects with the shots, they are more effective as they don't have to go through the digestive tract like the pills. Were you taking the Minocycline 100mg twice daily as outlined at the www.roadback.org site? How long had you been doing the Antibiotic Protocol (AP)? I've been seriously looking into trying that protocol and would love to hear more about your experience before the migraines started. Best of luck to you........Doreen > > Hello everyone- > > My minocycline is no more- was causing migraines. > > So now they're talking about injectable MTX. I was on oral MTX for > 8 weeks, weeks that I spent in bed from nausea and vomiting. They > took me off of that, but think the injectable might work better. > > Any advice? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2008 Report Share Posted October 4, 2008 hi doreen i had 3 very good year on the road back protocol but it's very important to take strong probiotics along with it and drop back to a maint dose of 100 mg MWF once you hit remission otherwise it can knock out all your good flora and you can get sick and have to stop the minocin like i did. monique Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2008 Report Share Posted October 4, 2008 My doctor is going to do the same for me Amber. Because it bypasses the stomach when injected, it's supposed to help out with some of those side effects. I get really bad nausea too. Lori http://home.comcast.net/~queenstitcher/ http://stitchingqueen.multiply.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2008 Report Share Posted October 4, 2008 Doreen and All- The short answer is yes. I was following the protocol. My rheumy is an old fan of AP, and wanted to put me on it for a while. There were other complications, so we waited until summer (late May) to start my scrip. I was on mino for about two months when the headaches started. At first I thought it was allergies or complications from my other meds, but they got worse. Then I started having upper stomach pain that radiated around to my back. Finally, I ended up in bed for 72 hours with a migraine so bad that I could not walk without falling down. That Monday I called the doc, and headaches were gone within 48 hours fo quitting the meds. As for what it was doing before the headaches, I am not sure. I don't think I was on long enough to know how effective it was in total, but it did stop the pain in my elbows I think. Hope that helps, and let me know if you have other questions. > > Hi Amber. I'm currently taking the MTX pills, but will be switching to > the injectable as soon as my Rheumy gives me the script. I've heard > that along with little to no side effects with the shots, they are > more effective as they don't have to go through the digestive tract > like the pills. > > Were you taking the Minocycline 100mg twice daily as outlined at the > www.roadback.org site? How long had you been doing the Antibiotic > Protocol (AP)? I've been seriously looking into trying that protocol > and would love to hear more about your experience before the migraines > started. Best of luck to you........Doreen > > --- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2008 Report Share Posted October 4, 2008 Hi Amber, I am on mtx injections, and it works great. I use to take it, but went off it, cause I got tired of shots. But, would rather give the shot, then all the nasty side effects from the pills. I started the first shot last Sunday, no side effects. My fatigue is SO much better, and I could tell the liquid works much faster, for me. I'm also taking the folic, and my doctor told me to take B-12, and something is sure helping. My second shot is tomorrow, and so happy to take it, I'm starting to hurt really bad today. Its also time for Humira today, so with both of those meds, my pain is a little better. It would be nice to have a miracle, and have NO pain, but I'm just happy living with less pain. The meds all work different for all of us. I hope it works well for you, and you can start feeling better. You keep us posted, Tawny > > Hello everyone- > > My minocycline is no more- was causing migraines. > > So now they're talking about injectable MTX. I was on oral MTX for 8 > weeks, weeks that I spent in bed from nausea and vomiting. They took > me off of that, but think the injectable might work better. > > Any advice? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2008 Report Share Posted October 5, 2008 TAwny, You do not have problems with the Humira burning when you inject it or with skin reactions afterward? I am just curious. I was also on MTX injections and pills about 4 yrs ago. I stopped cause I was having far too many side effects. Then MTX injectable got in short supply and I got tired of trying to find it. so I gave up. I think its hard to stay on a med and be compliant when the side effects made daily life hard. Maybe my pain and RA symptoms are no as bad as others so I can fore go the meds with the side effects and just live with the disease. Toni **************New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News & more. Try it out! (http://local.mapquest.com/?ncid=emlcntnew00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2008 Report Share Posted October 5, 2008 Hi Toni, The Humira does burn a little, but its only for a few seconds. It might get a little swollen at the site, but gone by morning. To me, those little side effects are worth it. I started hurting Friday, and knew it was time for the Humira. I also had problems with the mtx pills. I have no side effects on the mtx shots, I guess I'm lucky. I do have severe RA, so I have to fight the disease with all I got. I do have low vit d, but getting that in control. My fatigue is down right now, and I'm thankful for that. I'm taking the folic and B-12. It is very hard to stay on a med, when you feel like crap all the time. There are different meds, and I know you've taken most. I already have joint damage, and I am praying it don't get worse. I am a very strong minded person, and I will do all I can, to be able to enjoy my family, and take care of myself. I have changed my diet, a lot of the diet change, is because I really don't feel like eating like I use to, because of the pain I have with RA. I believe, I'm dealing with my disease, the best I can now. Before, I just didn't get it, now I understand my body more. We all deal with this horrible disease differently, and I respect everyone's choice of method to help them deal with it. Tawny > > TAwny, > You do not have problems with the Humira burning when you inject it or with skin reactions afterward? I am just curious. > > I was also on MTX injections and pills about 4 yrs ago. I stopped cause I was having far too many side effects. Then MTX injectable got in short supply and I got tired of trying to find it. so I gave up. > > I think its hard to stay on a med and be compliant when the side effects made daily life hard. > > Maybe my pain and RA symptoms are no as bad as others so I can fore go the meds with the side effects and just live with the disease. > > Toni > > > > **************New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News & more. Try it out! (http://local.mapquest.com/?ncid=emlcntnew00000001) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2008 Report Share Posted October 5, 2008 Tawny, You are lucky. A few seconds of burning would not be bad. I was not that lucky. I am sensitive to preservatives. Mine would burn like acid for hours! Then leave HUGE golf to orange size read swollen very painful knots. It was an obvious reaction to me. My rheummy pretty much ignored my complaints and it was not until I saw a few others post of serious reactions. One person posted they ended up loosing a chunk of flesh of their thigh that I realized I too was onto something far more serious that a minor skin reaction. It was getting worst with each injection. It is a difficult disease to treat to balance the disease with the meds the side effects of those meds. I think will all the preservatives we get in small doses from everything we consume or absorb is one of the reasons I had such horrible reactions to some of the meds. I am looking at med options now because my kids are grown and in college. I am running my own business and looking to persue a full time working career for a few years until my business can support me. That combo of stressors is more than I can control at this point without meds. Even though I have flares only about 4 times a year or so...those times when I do are enough to really slow me down and keep me from doing some of the things I want to do. So I will go the meds route only for a short period of time until I find my balance again with the hope of getting rid of meds for good...or at least for a long time. I take B complex, multi-vitamin and evening primrose oil daily. That seems to work well for me. I am suppose to add a calcium supplement to that....so far I have found calcium carbonate(tums) 4 at bedtime work well for me. Its good to see you posting again. Toni > > > > TAwny, > > You do not have problems with the Humira burning when you inject > it or with skin reactions afterward? I am just curious. > > > > I was also on MTX injections and pills about 4 yrs ago. I stopped > cause I was having far too many side effects. Then MTX injectable > got in short supply and I got tired of trying to find it. so I gave > up. > > > > I think its hard to stay on a med and be compliant when the side > effects made daily life hard. > > > > Maybe my pain and RA symptoms are no as bad as others so I can > fore go the meds with the side effects and just live with the > disease. > > > > Toni > > > > > > > > **************New MapQuest Local shows what's happening at your > destination. Dining, Movies, Events, News & more. Try it out! > (http://local.mapquest.com/?ncid=emlcntnew00000001) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2008 Report Share Posted October 5, 2008 I am lucky in many ways. The meds are working at this time, and so will continue taking them as long as I can. I have an appointment to see a pulmonary doctor next month, and I hope that goes well. I don't need anymore problems. I remember when you had the horrible side effects from the humira. The mtx injections have the preservatives, but don't they have it without it too? I know after experencing all the problems with meds, I can understand how you feel. Yes, I remember the message where she lost a big chunk out of her thigh. I'm glad you stopped taking it when you did, my God something could have happened to you. I am also looking into taking more vitamins and herbs. Just make sure you know what your taking, some of the herbs can be harmful. I am going to start cooking with turmeric, I've heard it helps quite a bit, and its really good. I love Indian food, need to start making some dishes again. There is another one, I can't put my finger on that people use in India, and it helps also. You take care, and keep us posted what you decide, Tawny > > Tawny, > You are lucky. A few seconds of burning would not be bad. I was not > that lucky. I am sensitive to preservatives. Mine would burn like > acid for hours! Then leave HUGE golf to orange size read swollen very > painful knots. It was an obvious reaction to me. > > My rheummy pretty much ignored my complaints and it was not until I > saw a few others post of serious reactions. One person posted they > ended up loosing a chunk of flesh of their thigh that I realized I too > was onto something far more serious that a minor skin reaction. It > was getting worst with each injection. > > It is a difficult disease to treat to balance the disease with the > meds the side effects of those meds. > > I think will all the preservatives we get in small doses from > everything we consume or absorb is one of the reasons I had such > horrible reactions to some of the meds. > > I am looking at med options now because my kids are grown and in > college. I am running my own business and looking to persue a full > time working career for a few years until my business can support me. > That combo of stressors is more than I can control at this point > without meds. Even though I have flares only about 4 times a year or > so...those times when I do are enough to really slow me down and keep > me from doing some of the things I want to do. > > So I will go the meds route only for a short period of time until I > find my balance again with the hope of getting rid of meds for > good...or at least for a long time. > > I take B complex, multi-vitamin and evening primrose oil daily. That > seems to work well for me. I am suppose to add a calcium supplement > to that....so far I have found calcium carbonate(tums) 4 at bedtime > work well for me. > > Its good to see you posting again. > > Toni > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2008 Report Share Posted October 5, 2008 I would love to hear more about minocin. Is it like doxycycline? I was on that my doc wanted me to try it because its very inexpensive. Doxy tore my stomach up. I would love to hear your experience with it. I can ask my doc about it when I see him on Tuesday. Toni > > Hello everyone- > > My minocycline is no more- was causing migraines. > > So now they're talking about injectable MTX. I was on oral MTX for 8 > weeks, weeks that I spent in bed from nausea and vomiting. They took > me off of that, but think the injectable might work better. > > Any advice? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2008 Report Share Posted October 6, 2008 Hi Toni - check out www.roadback.org . They talk all about an Antibiotic Protocol to help with RA that includes the use of Minocin. Best of luck to you.......Doreen > > I would love to hear more about minocin. Is it like doxycycline? > I was on that my doc wanted me to try it because its very > inexpensive. Doxy tore my stomach up. > > I would love to hear your experience with it. I can ask my doc > about it when I see him on Tuesday. > > Toni > Quote Link to comment Share on other sites More sharing options...
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