Guest guest Posted October 6, 2008 Report Share Posted October 6, 2008 Tawny, Shirley, , Chriss, Doreen and all the Group; Every 2 weeks I been taking Humira injections.. So far it's been 3 injections.. It was like a miracle,, no more pain.. I got up this morning and every joint in my body hurt.. OMG.. is this a flare?? Did my humira quit working?? Panic,, fear,, my thought have gone wild.. Could this be a FLARE everyone talks about.. What should I do?? How long does it last?? I have sufferd so much in the last 5 years from RA pain and fibro.. I don't think its fibro because with fibro my muscles are tender to touch.. I saved some prednisone but I don't want to take that.. I go to my rhuemy in a few days and she takes blood test.. She may think I am getting it from somewhere else... I know with the prednisome start big than lower the dosage.. I saved about a month supply.. How long does a flare last??? Does this mean the humira don't work anymore.. I think I am sick to my stomache this morning from worry.. Is the humira injections not working anymore?? I don't know what to think.. You guys have helped me so much I hate complaining.. I guess this is a flare.. I read that we get them on occasions... I didnt think I would get one so fast.. I just been on the Humira a little over 6 weeks.. I am looking for responses from anyone that has had this problem with meds that worked than stopped.. gentle hugs Clora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2008 Report Share Posted October 6, 2008 Better to talk to your doc first about the prednisone. They often like to document the flares too so that they can see the patterns of them and can tell how you are doing with the medication. I would try to stick it ou with the Humira you are taking since it isn't in full effect and I agree with Lori, it could be weather and pressure changes, illness, stress, etc. that could bring on a flare.... just when I think I am doing great ( " what do they mean I have RA, they must have made a mistake? " ) I am humbled... I have a flare...even if it's on a smaller scale brought on by weather, stress, etc. I sleep, or do whatever I need to to try to get past it; call the doc if necessary or wait it out until the next appointment- but if you've been doing well- there's a lot to feel hopeful about!!! Abby In a message dated 10/6/2008 6:07:40 A.M. Pacific Daylight Time, queenstitcher@... writes: I wouldn't take prednisone without the doctor's approval. **************New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News & more. Try it out! (http://local.mapquest.com/?ncid=emlcntnew00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2008 Report Share Posted October 6, 2008 Hi Clora, Has your weather changed recently? Big changes in temperature or the pressure can make me feel pretty bad for a few days, but once my body adjusts, I'm back to normal. You've only had 3 injections, so I really don't think that the medication has stopped working. For me it took about 6 months to realize the full effect of the Humira. You could also just be getting sick. The first thing that I would do would not worry yourself sick(er). I know that's easier said than done, but I have yet to have an experience in life where the worrying has paid off for me. Since your seeing the Rheumotogist in a few days, I'd either just tough it out until the appointment, or try to have the appointment changed to an earlier date. If your note sure what to do, why don't you just call the office and see what they say? That certainly won't hurt anything and you won't have to worry about what's going on. I wouldn't take prednisone without the doctor's approval. You could always take a hot bath to see if that would help ease some of your discomfort. If you are having a flare, the doctor will probably put you on a short course of prednisone to try to stop it. HTH, Lori http://home.comcast.net/~queenstitcher/ http://stitchingqueen.multiply.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2008 Report Share Posted October 6, 2008 Aw (((((CLORA))))), I hear the fear and anxiety in your words. Hang in there, honey. Call your Rheumatologist. You could very well be having a flare up, but I don't think that would necessarily mean your Humira isn't working. I don't know how long a " flare " can last. My RA/FMS is still out of control in general. I hope you feel better soon. Keep us posted. Now BREATHE....Deep breath in through your nose, blow it slowly out of your mouth....repeat...........Doreen > > Tawny, Shirley, , Chriss, Doreen and all the Group; > > Every 2 weeks I been taking Humira injections.. So far it's been 3 > injections.. It was like a miracle,, no more pain.. I got up this > morning and every joint in my body hurt.. OMG.. is this a flare?? > Did my humira quit working?? Panic,, fear,, my thought have gone > wild.. Could this be a FLARE everyone talks about.. > > What should I do?? How long does it last?? I have sufferd so much > in the last 5 years from RA pain and fibro.. I don't think its > fibro because with fibro my muscles are tender to touch.. I saved > some prednisone but I don't want to take that.. I go to my rhuemy > in a few days and she takes blood test.. She may think I am getting > it from somewhere else... I know with the prednisome start big > than lower the dosage.. I saved about a month supply.. > > How long does a flare last??? Does this mean the humira don't work > anymore.. I think I am sick to my stomache this morning from > worry.. Is the humira injections not working anymore?? I don't > know what to think.. > > You guys have helped me so much I hate complaining.. I guess this > is a flare.. I read that we get them on occasions... I didnt think > I would get one so fast.. I just been on the Humira a little over > 6 weeks.. I am looking for responses from anyone that has had this > problem with meds that worked than stopped.. > > gentle hugs > Clora > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2008 Report Share Posted October 6, 2008 Clora, Honey, I am so sorry that you are in pain. The sad truth is that we do have flares. I hope that it doesn't last long and it's good you are seeing your rheummy in a few days. It dosen't mean that your Humira isn't working but your rheummy may want to look at what you are taking now and make an adjustment for flares. I hope you are feeling better soon. Shirley > > Tawny, Shirley, , Chriss, Doreen and all the Group; > > Every 2 weeks I been taking Humira injections.. So far it's been 3 > injections.. It was like a miracle,, no more pain.. I got up this > morning and every joint in my body hurt.. OMG.. is this a flare?? > Did my humira quit working?? Panic,, fear,, my thought have gone > wild.. Could this be a FLARE everyone talks about.. > > What should I do?? How long does it last?? I have sufferd so much > in the last 5 years from RA pain and fibro.. I don't think its > fibro because with fibro my muscles are tender to touch.. I saved > some prednisone but I don't want to take that.. I go to my rhuemy in > a few days and she takes blood test.. She may think I am getting it > from somewhere else... I know with the prednisome start big than > lower the dosage.. I saved about a month supply.. > > How long does a flare last??? Does this mean the humira don't work > anymore.. I think I am sick to my stomache this morning from > worry.. Is the humira injections not working anymore?? I don't > know what to think.. > > You guys have helped me so much I hate complaining.. I guess this > is a flare.. I read that we get them on occasions... I didnt think I > would get one so fast.. I just been on the Humira a little over 6 > weeks.. I am looking for responses from anyone that has had this > problem with meds that worked than stopped.. > > gentle hugs > Clora > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2008 Report Share Posted October 6, 2008 Doreen and group; Awe Doreen your such a sweety pie.. Yes I was so anxious.. You,, the group and my husband has soothed my fears.. I did everthing everyone said.. When I read the post I felt so much better.. ((breathe in)) ((breathe out)) ok thats better.. Bless your heart what relaxing words you say.. I will see my rhuemy the 13 this month.. If I got worse I would definately called her.. I heard that the full effects of the injections take longer to work sometimes.. I am so so sorry your RA/FMS is still out of controll.. I feel so helpless for you.. I can't hold you like my child or touch your hand and say how sorry I am that you hurt.. I have prayed intensely for you.. I remember your name a lot.. The more people post their name the more I can put it to the Lord.. I pray for the whole group but saying the name feels so much more when I pray.. Your suffering and yet you still reach out to comfort everyone.. You will be blessed just keep on hanging on Gods word and our prayers are heard.. God bless and take care. gentle gentle hugs Clora > Aw (((((CLORA))))), I hear the fear and anxiety in your words. Hang in > there, honey. Call your Rheumatologist. You could very well be having > a flare up, but I don't think that would necessarily mean your Humira > isn't working. I don't know how long a " flare " can last. My RA/FMS is > still out of control in general. I hope you feel better soon. Keep us > posted. > > Now BREATHE....Deep breath in through your nose, blow it slowly out of > your mouth....repeat...........Doreen > > > > > > Tawny, Shirley, , Chriss, Doreen and all the Group; > > > > Every 2 weeks I been taking Humira injections.. So far it's been 3 > > injections.. It was like a miracle,, no more pain.. I got up this > > morning and every joint in my body hurt.. OMG.. is this a flare?? > > Did my humira quit working?? Panic,, fear,, my thought have gone > > wild.. Could this be a FLARE everyone talks about.. > > > > What should I do?? How long does it last?? I have sufferd so much > > in the last 5 years from RA pain and fibro.. I don't think its > > fibro because with fibro my muscles are tender to touch.. I saved > > some prednisone but I don't want to take that.. I go to my rhuemy > > in a few days and she takes blood test.. She may think I am getting > > it from somewhere else... I know with the prednisome start big > > than lower the dosage.. I saved about a month supply.. > > > > How long does a flare last??? Does this mean the humira don't work > > anymore.. I think I am sick to my stomache this morning from > > worry.. Is the humira injections not working anymore?? I don't > > know what to think.. > > > > You guys have helped me so much I hate complaining.. I guess this > > is a flare.. I read that we get them on occasions... I didnt think > > I would get one so fast.. I just been on the Humira a little over > > 6 weeks.. I am looking for responses from anyone that has had this > > problem with meds that worked than stopped.. > > > > gentle hugs > > Clora > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2008 Report Share Posted October 6, 2008 Abby and group; I won't take the prednisone because I am going to see my rhuemy in a few days.. I never thought about documenting the flares,, your right.. Yes I agree with everyone.. I need to calm myself.. It's just I was in pain for so long I didnt want it to start again.. I love to humble myself before the Lord.. I can't think of anything better than that.. I can deal with a flare amen to that.. I am pretty dutiful to my rhuemy she has been helpful all the way.. I can count myself forutnate to have such a good rhuemy.. Some times she nerves me but I have to remember she has laws and medical science to abide by.. The weather has been colder and it has been storming.. I didnt take that into conserderation.. It was such a shock after 4 weeks of feeling good to get a flare... Mind you I am not painless,., I still live with osteo.CHF,, PAH,, Sleep apnea,, Migrains for 30 years of and on.. I don't freak out when that hurts real bad haaaaaaaaaaa. It's when something is doing so good for so short of time and than it hit me like a ton of bricks dropped on my head.. I know what that feels like to because a arm to a gaurds house dropped on my head and I thought the brick building was collasping on me for a minute.. I struggled against the arm but it brought me down fast and hard.. Indeed I feel hopeful talking to our group and family helping me out with their concern finally.. My family has finally come to terms with me having RA.. It was hard enough for me too but I did.,. My family (you guys) here has been encouraging every day.. thanks Abby I will be ok.. I am so glad I have friends here to talk about this.. God bless and take care.. gentle hugs Clora > Better to talk to your doc first about the prednisone. They often like to > document the flares too so that they can see the patterns of them and can tell > how you are doing with the medication. I would try to stick it ou with the > Humira you are taking since it isn't in full effect and I agree with Lori, it > could be weather and pressure changes, illness, stress, etc. that could bring > on a flare.... just when I think I am doing great ( " what do they mean I have > RA, they must have made a mistake? " ) I am humbled... I have a flare...even if > it's on a smaller scale brought on by weather, stress, etc. I sleep, or do > whatever I need to to try to get past it; call the doc if necessary or wait it > out until the next appointment- but if you've been doing well- there's a lot > to feel hopeful about!!! > > Abby > > > In a message dated 10/6/2008 6:07:40 A.M. Pacific Daylight Time, > queenstitcher@... writes: > > I wouldn't take prednisone without the doctor's approval. > > > > > **************New MapQuest Local shows what's happening at your destination. > Dining, Movies, Events, News & more. Try it out! > (http://local.mapquest.com/?ncid=emlcntnew00000001) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2008 Report Share Posted October 6, 2008 Shirley and group; Awe Shirley thanks for so gently telling me... I have read about so many flares.. I was a little shocked this morning about it but I am ok now.. I am a little sore but everyone told me it sometimes takes time for the full affects of humira... I was scared it wasnt going to keep working but I know it will.. Nothing else has helped so far but the humira injections.. My rheumy started me out on MXT but all it did was break me out into itching hives.. I heard so much good about the MXT too.. When I heard about the enbrel and humira I said thats for me.. I chose humira cause its every 2 weeks for the injections.. I am grateful there are other meds I can try also.. Thank you Shirley its always great to read your posts you are such a darling person.. God bless and take care.. gentle hugs Clora ************************************************ > Clora, > Honey, I am so sorry that you are in pain. The sad truth is that we > do have flares. I hope that it doesn't last long and it's good you > are seeing your rheummy in a few days. > It dosen't mean that your Humira isn't working but your rheummy may > want to look at what you are taking now and make an adjustment for > flares. > I hope you are feeling better soon. > Shirley > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2008 Report Share Posted October 6, 2008 Shirley and group; Awe Shirley thanks for so gently telling me... I have read about so many flares.. I was a little shocked this morning about it but I am ok now.. I am a little sore but everyone told me it sometimes takes time for the full affects of humira... I was scared it wasnt going to keep working but I know it will.. Nothing else has helped so far but the humira injections.. My rheumy started me out on MXT but all it did was break me out into itching hives.. I heard so much good about the MXT too.. When I heard about the enbrel and humira I said thats for me.. I chose humira cause its every 2 weeks for the injections.. I am grateful there are other meds I can try also.. Thank you Shirley its always great to read your posts you are such a darling person.. God bless and take care.. gentle hugs Clora ************************************************ > Clora, > Honey, I am so sorry that you are in pain. The sad truth is that we > do have flares. I hope that it doesn't last long and it's good you > are seeing your rheummy in a few days. > It dosen't mean that your Humira isn't working but your rheummy may > want to look at what you are taking now and make an adjustment for > flares. > I hope you are feeling better soon. > Shirley > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2008 Report Share Posted October 7, 2008 Thank you so much, Clora. I just speak (type) from my heart. You may not be able to physically hold me like a child or touch my hand, but I feel those things in your words as well as your prayers. Thank you so much, sweet lady. Together and by the Grace of God, we will ALL get through this.......Doreen > > Doreen and group; > > Awe Doreen your such a sweety pie.. Yes I was so anxious.. You,, > the group and my husband has soothed my fears.. I did everthing > everyone said.. When I read the post I felt so much better.. > ((breathe in)) ((breathe out)) ok thats better.. Bless your heart > what relaxing words you say.. > > I will see my rhuemy the 13 this month.. If I got worse I would > definately called her.. I heard that the full effects of the > injections take longer to work sometimes.. > > I am so so sorry your RA/FMS is still out of controll.. I feel so > helpless for you.. I can't hold you like my child or touch your > hand and say how sorry I am that you hurt.. I have prayed > intensely for you.. I remember your name a lot.. The more people > post their name the more I can put it to the Lord.. > > I pray for the whole group but saying the name feels so much more > when I pray.. Your suffering and yet you still reach out to > comfort everyone.. You will be blessed just keep on hanging on Gods > word and our prayers are heard.. God bless and take care. > > gentle gentle hugs > Clora > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2008 Report Share Posted October 8, 2008 Doreen and group; Your very welcome Doreen.. I love to read where people type from their hearts.. THe feeling comes through the post.. God bless gentle hugs Clora > Thank you so much, Clora. I just speak (type) from my heart. You may > not be able to physically hold me like a child or touch my hand, but I > feel those things in your words as well as your prayers. Thank you so > Quote Link to comment Share on other sites More sharing options...
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