Re: Immune System and Enbrel

[Guest guest]

As one of my first rheums said, " you have to live your life. "

With time, I got more comfortable with managing the risk of infection while

taking Enbrel. Once you get over a few colds, have trips to the dentist, be

around sick people etc and end up ok, it builds your confidence. I have worked

in hospitals, been around injured patients, have small children who go to

preschool, had a baby etc, all while on Enbrel and have really done well. One

thing I like about Enbrel, is if you're worried about a budding cold, you just

wait a day or to before your next dose. I like that I can sort of " tailor " the

immune suppression.

HTH, Kate F

[ ] Immune System and Enbrel

To all of us on Enbrel:

How careful do we have to be with our Immune System being more

vulnerable?

The first thing on the patient information says " people have died from

serious infection. " But in reality...what steps do we have to take, to

make sure we don't get that " serious infection. "

I am in job search mode right now, and find myself reconsidering a lot

or prosepects because I don't want to be in contact with a whole lot of

people, or children or seniors or animals etc.

I asked my brother to please not bring anyone over to my house that is

sick, and especially, not his friend that had just returned from

Cambodia, until he was checked out. My brother called me a

hypochondriac and had that particular friend over the next day!

Am I overreacting? Seriously, I am just trying to be careful.

Also....can we still eat Sushi? I love sushi, but if my immune system

is not as strong as it was, can I still eat it?

I love the difference Enbrel has made just in this short time, but I

find myself thinking of all the limitations I have now that I am taking

it. But at the same time....it has opened up other aspects of my

life....like the ability to exercise! Am I looking into it too much?

Help! I am feeling confused, and a little upset.

-

[Guest guest]

I have noticed that since I have been on Enbrel I have had pain throughout my

mouth. It feels as if I have one giant toothache. It seems to happen in the

evening. I have no cavities and have been to the dentist. But other than that I

feel much better, and can walk again.

[Guest guest]

Hey . I do not know anything about that medicine but it sounds

like your brother was being a big jerk! Obviously he doesn't realize

the seriousness of this illness and the meds involved. I think he gets

the insensitive lout of the day award.

Hope I wasn't too harsh.

wendy

> I asked my brother to please not bring anyone over to my house that

is

> sick, and especially, not his friend that had just returned from

> Cambodia, until he was checked out. My brother called me a

> hypochondriac and had that particular friend over the next day!

> Am I overreacting? Seriously, I am just trying to be careful.

>

[Guest guest]

Totally! He was being a Jerk! and now my Hubby too...geeezzz. What a

girl to do? And I have to live with both of them!

But who gets the award for today?

Thanks for the support

>

> Hey . I do not know anything about that medicine but it

sounds

> like your brother was being a big jerk! Obviously he doesn't

realize

> the seriousness of this illness and the meds involved. I think he

gets

> the insensitive lout of the day award.

>

> Hope I wasn't too harsh.

> wendy

>

>

> > I asked my brother to please not bring anyone over to my house

that

> is

> > sick, and especially, not his friend that had just returned from

> > Cambodia, until he was checked out. My brother called me a

> > hypochondriac and had that particular friend over the next day!

> > Am I overreacting? Seriously, I am just trying to be careful.

> >

>

[Guest guest]

Any time . Any time.

wendy

>

> Totally! He was being a Jerk! and now my Hubby too...geeezzz. What a

> girl to do?

[Guest guest]

I am so glad this discussion was started.. My doctor put me on Enbrel

today, I was on Hydroxychloroquin, Sulfasalazine, and mtx. injections.

It wasn't helping much, my blood tests were not improving. So my rhumy

is keeping me on mtx injections once a week, taking me off the other

two, and putting me on Enbrel. I would like to know what effects this

has had on those of you on it, is it rare to get really sick on it? I

am reading about it right now on " Enbrel.com " and it says you can get

TB with it. I'm a bit nervous, though my Rheumatologist says it works

really well and he thinks I will feel like a whole new woman on it! ...

But I am still scared. I'm really looking forward to reading the

responses.

Thanks again,

>

> I have noticed that since I have been on Enbrel I have had pain

throughout my mouth. It feels as if I have one giant toothache. It

seems to happen in the evening. I have no cavities and have been to the

dentist. But other than that I feel much better, and can walk again.

>

[Guest guest]

When I was in chemo and radiation last year I couldn't be around two of my

grandkids because of the chance of catching something. That was the worst thing

about the whole process. All of my kids totally understood the situation.

Jere

[Guest guest]

,

I really really do feel like a whole new women. I feel like I got got

my body back... and I just started it, so I am looking forward to

feeling even better. Yesterday it felt like I had lost 80 lbs. It

doesn't hurt to walk up my stairs anymore, and I am not stiff in the

AM. At first I thought it was a placebo effect...but more and more I

am realizing it is the meds working. My wedding ring keeps turning

beause my hands aren't even swollen!

I can only hope that everyone has the same results as I have had so

far.

I am scared too, that is why I started this topic. We'll see what

people say about it.

So far the only side effects are a little tummy ache (I take Ginger

for it and it helps), a bit a of loose stools, and a sort of sleepy

feeling (not fatigue), my tiredness is different now.

Best wishes to ALL.

Yay!

-

--- In , " brendabennion " <bennion8@...>

wrote:

>

>

>

> I am so glad this discussion was started.. My doctor put me on

Enbrel

> today, I was on Hydroxychloroquin, Sulfasalazine, and mtx.

injections.

> It wasn't helping much, my blood tests were not improving. So my

rhumy

> is keeping me on mtx injections once a week, taking me off the

other

> two, and putting me on Enbrel. I would like to know what effects

this

> has had on those of you on it, is it rare to get really sick on it?

I

> am reading about it right now on " Enbrel.com " and it says you can

get

> TB with it. I'm a bit nervous, though my Rheumatologist says it

works

> really well and he thinks I will feel like a whole new woman on

it! ...

> But I am still scared. I'm really looking forward to reading the

> responses.

>

> Thanks again,

>

>

>

>

>

> --- In , Ortiz III <ortizd73@>

wrote:

> >

> > I have noticed that since I have been on Enbrel I have had pain

> throughout my mouth. It feels as if I have one giant toothache. It

> seems to happen in the evening. I have no cavities and have been to

the

> dentist. But other than that I feel much better, and can walk again.

> >

>

[Guest guest]

,

I've been on Enbrel for over five years, and haven't had a serious

infection during that time. I've had a few colds and stomach viruses,

but that's all. I realize that I've been very lucky in that respect.

All of us are different.

I do try to take care of myself and eat right. I also take a

multi-vitamin, plus extra C, E, B, and calcium with D.

I'm not around kids a lot, just my grandkids when I get a chance. I am

around seniors, since I am one, LOL.

I don't eat Sushi, anyway, so don't have to worry about that.

Sue

On Wednesday, July 30, 2008, at 04:19 PM, laurenrosepeters wrote:

> To all of us on Enbrel:

> How careful do we have to be with our Immune System being more

> vulnerable?

> The first thing on the patient information says " people have died from

> serious infection. " But in reality...what steps do we have to take, to

> make sure we don't get that " serious infection. "

[Guest guest]

and Group

OH wow lauren, I am so HAPPY for you.

gengle hugs to everyone.

Clora