Guest guest Posted July 22, 2008 Report Share Posted July 22, 2008 Thanks and everyone who contacted me about ra and neuropathy. I got in with a new rheumatologist today. He evidently really really dislikes my old rheumatologist, but I do also. He thinks I have vasculitus. So something should show up in the nerve study / emg done? (BTW is the nerve conduction test supposed to hurt? It hurt some places, but I did not feel it in others?) He also says I will probably need a nerve biopsy. He also told me that my nerve damage is probably permanent, so we need to stop future problems. I am on a lovely dose of 60 mg prednisone daily tapering weekly by 10 mg unless I get worse. I was totally shocked when I left his office. I guess I still want to be in denial about all of this. That tomorrow I will wake up and this will be gone. I have been in touch with a dr birnbaum at s Hopkins. He is a rheumatologist / neurologist. You can read all about him and his clinic at http://www.sjogrensworld.org/forums/ . Look in the cns discuss group. Dr Birnbaum is seeing rheumatic patients with neurological complications. He contacted me today, and I have an appointment next week!!!! I hope and pray that I can get some real answers. Not more of the blame the last stupid dr I saw or well, it's just postpartum and we just don't know. My neighbor is a really sweet man. He is a family doc. He thinks most of this is stress. <big sigh> Does he really know how much stress that adds? I just can't believe the really stupid comments I get, even from drs. Friday I get a lumbar puncture. This is my final test to prove it is not MS. I am looking forward to having that done, as in already done! It will be great to here it really really is not ms. Thanks for letting me vent! G Quote Link to comment Share on other sites More sharing options...
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