Re: Increase in pain since Humira

[Guest guest]

Kami

No problem I listen so I know whats up with RA. I am diagnosed with that and

also fibromyalgia. It seems like some meds help some people and not others ( so

far. ) I am going to mention the humira to my doc. Yes, I have been a big witch

from this pain. I pray a lot and try to be nice. My family are in denial, My

kids think RA is something that takes many years to affect you. It took about 6

months to break me down completely. My husband sees how much pain I am in. He is

so sweet. He does everything he can to help me.

Lots of luck hope you get the right meds that work.

 

Clora May

 

From: ~ Kami ~ <kamilleon@...>

Subject: [ ] Increase in pain since Humira

" " < >

Date: Sunday, July 20, 2008, 12:23 PM

Ugh.

So I went to the doctor on Tuesday and he noticed that there has been no

improvement with my hands during the 6 weeks of 20 mg MTX..... I brought my

Humira pens with me and did my first self-injection. I really REALLY had high

hopes for this medication!! !!!! Maybe I still do but good heavens.... I am in

more pain than normal today and one miserable umm..... lady. (And I am using

that term VERY loosely.... I am quite the witch with a Sooooo..... He told

me.... If I see no improvement in 2 weeks, I am to start another regime of

steroids.... . (12 days starting 20 for 3, 15 for 3, 10 for 3, and 5 for 3)

I want to start them NOW.

Being the good patient I am.... I think I am going to pop a Vicodin or 2 and

head to bed and see what it's like when I wake up... I am pretty sure I will be

calling him tomorrow and begging to start the steroids.... .

Thanks for listening! :-)

*~ Kami ~*

[Guest guest]

Kami

Vicodine does nothing for me from day one. Oh I take that back. It helps my

headaches. It don't make me tired. Glad it helps you some.

Clora May

 

From: ~ Kami ~ <kamilleon@...>

Subject: [ ] Increase in pain since Humira

" " < >

Date: Sunday, July 20, 2008, 12:23 PM

Ugh.

So I went to the doctor on Tuesday and he noticed that there has been no

improvement with my hands during the 6 weeks of 20 mg MTX..... I brought my

Humira pens with me and did my first self-injection. I really REALLY had high

hopes for this medication!! !!!! Maybe I still do but good heavens.... I am in

more pain than normal today and one miserable umm..... lady. (And I am using

that term VERY loosely.... I am quite the witch with a Sooooo..... He told

me.... If I see no improvement in 2 weeks, I am to start another regime of

steroids.... . (12 days starting 20 for 3, 15 for 3, 10 for 3, and 5 for 3)

I want to start them NOW.

Being the good patient I am.... I think I am going to pop a Vicodin or 2 and

head to bed and see what it's like when I wake up... I am pretty sure I will be

calling him tomorrow and begging to start the steroids.... .

Thanks for listening! :-)

*~ Kami ~*

[Guest guest]

It can take the Humira a while to work - my rheumy warned me that it

might take 2 or 3 doses before I really noticed a difference. It did

seem to help me after a couple of days, though. I've gone through

most of the various pain medications, and settle on Vicodin as about

the only one that didn't cause me major problems. I take it

sparingly, because more than a few a week and it does seem to quit

working, although my hubby will ask me if I need a Vicodin, and I know

that I'm getting realllly cranky!

Good luck to you, hope you can get that pain under control!

On Sun, Jul 20, 2008 at 11:23 AM, ~ Kami ~ <kamilleon@...> wrote:

> Ugh.

>

> So I went to the doctor on Tuesday and he noticed that there has been no

> improvement with my hands during the 6 weeks of 20 mg MTX..... I brought my

> Humira pens with me and did my first self-injection. I really REALLY had

> high hopes for this medication!!!!!! Maybe I still do but good heavens.... I

> am in more pain than normal today and one miserable umm..... lady. (And I am

> using that term VERY loosely.... I am quite the witch with a Sooooo.....

> He told me.... If I see no improvement in 2 weeks, I am to start another

> regime of steroids..... (12 days starting 20 for 3, 15 for 3, 10 for 3, and

> 5 for 3)

>

> I want to start them NOW.

>

> Being the good patient I am.... I think I am going to pop a Vicodin or 2 and

> head to bed and see what it's like when I wake up... I am pretty sure I will

> be calling him tomorrow and begging to start the steroids.....

>

> Thanks for listening! :-)

>

> *~ Kami ~*

>

--

South Pasadena, CA / Lilydale, MN

You can see my galleries at http://www.pbase.com/arenared986

M. Schulz - " All you need is love. But a little chocolate now

and then doesn't hurt. "

[Guest guest]

Give Humira at least 2 or 3 dozes. I noticed some difference after

my second injection (I was taking 1 every 14 days), but my rheumy

told me I should really notice a difference at 2 months....and I

did! I felt like I could take on the world and I tried to make up

for everything I had been missing. I was already on 15 mg MTX once

a week, 2 Celebrex per day and 1 Lyrica 75 mg each night. I was on

all that for about 2 months then started on Humira. After a high

liver level on my recent blood test my rheumy lowered my MTX to 12.5

mg per week and increased my Humira to 1 injection every 10 days

instead of 14 days. I really noticed a difference after 3 weeks off

of that ONE MTX ...really achy, no energy, pain where I hadn't had

pain in months. So tonight I take my Humira with the new one every

10 day regimen. I'm anxious to see how it will work. My doctor

says if I'm still having pain after being on all that meds it means

the RA is more agressive than he thought and increases the meds to

fight it! Whatever it takes to prevent me from being cripled like

my mom. She has mostly scoliosis and osteoarthritis and is 82 but

she's almost bent over in a 90 degree angle and in constant pain.

I'm hoping and praying all I'm taking now will serve as a preventive

method to help my future with RA. I know I have to live with it and

deal with it the best I can, so I'll continue to try. Good luck to

you with the Humira. Trust your rheumy but also BE INFORMED. Study

whats available to you and work with your doctor.

>

> Ugh.

>

> So I went to the doctor on Tuesday and he noticed that there has

been no improvement with my hands during the 6 weeks of 20 mg

MTX..... I brought my Humira pens with me and did my first self-

injection. I really REALLY had high hopes for this medication!!!!!!

Maybe I still do but good heavens.... I am in more pain than normal

today and one miserable umm..... lady. (And I am using that term

VERY loosely.... I am quite the witch with a Sooooo..... He told

me.... If I see no improvement in 2 weeks, I am to start another

regime of steroids..... (12 days starting 20 for 3, 15 for 3, 10 for

3, and 5 for 3)

>

> I want to start them NOW.

>

> Being the good patient I am.... I think I am going to pop a

Vicodin or 2 and head to bed and see what it's like when I wake

up... I am pretty sure I will be calling him tomorrow and begging to

start the steroids.....

>

> Thanks for listening! :-)

>

>

> *~ Kami ~*

>

>

>

>

>