Re: new post, Rheumatiod arthritis

[Guest guest]

dd and the group

I have Diabetes, Rheumatoid arthritis, Congestive heart failure, Fibromyalgia,

Pulmonary arterial hypertension. High blood pressure. Sleep apnea, Insomnia,

Depression, Said i was bipolar but i don't believe it lol, Obesity. I smoke,

Acid reflux, Irritable Bowel Syndrone, Headaches they kind you cant move with

lie in a dark room. Chronic fatigue Syndrone, Now I can only walk to the

bathroom or the kitchen, The pain starts on me if i walk and further. I cant

clean house.

 

OK right now I am getting all this under control. I am working on stop smoking.

Taking those fake cigarette holders. I don't even think of all the things I have

anymore. The worst things I have I found out last year all with in a month

period. I walked around in shock. I prepared to die. lol I can read. I can watch

TV. I can take a shower. I can dress myself. So I feel pretty good. Now if I can

get some medicine for this RA.

 

The Rheumatoid Arthritis is the worst thing that could happen to me. All the

other illnesses I can live with. Well I can live with RA. But it is hard. And

hopefully next Tuesday the 29TH I will get some relief from my rheumy. I feel

for all of you that have RA. I really glad to hear a lot of you guys are taking

meds that help. So I am looking forward to do better. Like one person said she

got the RA when her kids was all grown up. I am 54 and my kids are grown up. Oh

my goodness I can't imagine raising kids with RA, but a lot of you guys are

doing it. So thanks for telling me your stories. I feel better knowing we can

help each other and learn from each other.

hugs to all of you

Clora May

 

From: dgd301@... <dgd301@...>

Subject: Re: [ ] Re: Prednisone, etc

Date: Sunday, July 20, 2008, 9:06 PM

In a message dated 7/20/2008 5:54:36 P.M. Central Daylight Time,

bcreedon (DOT) com writes:

I have had bad problems with my voice, and voice box. I have acid

reflux, take 2 Prilosec a day. I have Polops on my vocal cords, and

have had months of hoarseness, when I couldn't even talk. Have seen a

ENT specialist, throat scoped, biopsies done, and the conclusion was all

from GERD. The 2 Prilosec a day has taken care of this totally.

Haven't had any trouble since.

I also have Crohn's Disease and was on mass amounts of prednisone about 30

years ago for that. It is mostly in remission right now, but I've been on meds

for reflux for a long time. Most recently two Nexium a day. Prilosec quit

working, then we did Prevacid. This worked, but the insurance company wanted me

to try Nexium (2 a day). It was ok until I started taking the RA drugs. Then

the reflux was awful. So my doctor added Ranitidine (2 a day). And I still

have occasional reflux, but not nearly as bad.

I'm supposed to have a colonscopy and endoscopy, but they aren't scheduled

soon.

So right now, I'm dealing with RA, reflux, past Crohn's, borderline

hyperthyroid and some skin stuff I haven't even bothered to schedule.

But before I was started on Prednisone, I was unable to get out of a chair,

couldn't take a bath, could barely get out of my car -- mostly because I

couldn't open the door. I went to the clinic and pushed the button for the

elevator and the door opened. I couldn't get in the door before it closed. He

gave

me a prescription for 25 mg of prednisone that day. He wasn't sure which

thing I had, but said that the beginning treatment for all the possibilities was

prednisone. I took the pills at 3:30 and by 6:00, I could teach my line

dancing class. There was one woman who saw me the night before and after I took

the

pills. She said it was a miracle.

I know it's not good to stay on a high dose for a long time. Previously, we

were told that anything over 5 mg a day can cause your body to stop producing

natural cortisone. So I'm glad I'm down to 5 mg.

I'd also like my cheeks and back to get less swollen again. But that's

pretty much cosmetic.

I just would like to have energy. Although the fatigue is not as bad as it

was before I was diagnosed, it's bad enough.

dd

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