Re: Wanna know what sucks more than having RA?

[Guest guest]

Kami,

I know you are stressed!!!!

I pray the bloodwork is wrong. Please do let us know.

Shirley

>

> Having a doctor tell you that he thinks your 14 year old DAUGHTER

has psoriatic arthritis.....

>

> This is why I have not been online long enough to reply to posts.

I will get around to typing the story of what led to this potential

diagnosis but I just wanted to remind everyone that while having RA

sucks, the thought of your child having something equally if not

more severe SUCKS MORE!

>

> We are repeating bloodwork this week (CRP was elevated 2 weeks

ago) as well as screening for Lyme Disease. She started with

psoriasis of the nails last year and symptoms have progressed. There

is some definite signs of psoriatic arthritis, though.

>

> I will keep you all updated.... Til then.... Take care!

>

>

> ****~**** Kami ****~****

>

>

>

[Guest guest]

I'm so sorry Kami! Enbrel has worked well in young people with PA. Take care!

Steph in VA

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ The 2008 Charlottesville

Arthritis Walk was Sat. May 3 at UVA's Stadium The Walk raises both

awareness of the prevalence of arthritis and money for research & programs for

people with arthritis!  The Cville walk raised over $25,000!   " Never

underestimate the power of a small, dedicated group of people to change the

world -- indeed, it's the only thing that ever has. " (Margaret Mead) AmeriCorps

Alums -- Still Getting Things Done

[Guest guest]

Kami and group;

Kami I worry about that now.. My children are in their 30s and I

don't want them to get RA.. I hope it's not genetic.. Me and

grandma are the only ones that got RA in my whole family... I have 9

brothers and sisters and none of them has RA (thank God)..

Kami I am so sorry you have to deal with this .. I know from your

post that you would rather have it than to see your young child with

it.. I remember over the years reading about juvenile arthritis..

We can accept it with a sorrow when we get it,, but not our babies..

My adult children will always be my babies..

We try to protect our children from everything and anything.. Your

dealing with a nasty cruel disease on your child.. I pray my kids

don't get it even in their old age.. I pray that she has pain free

days.. Yes that sucks and it don't seem fair.. RA is suppose to be

an elderly disease.. I can take it now.. THanks

gentle hugs

Clora

> Having a doctor tell you that he thinks your 14 year old DAUGHTER

has psoriatic arthritis.....

>

> This is why I have not been online long enough to reply to posts.

I will get around to typing the story of what led to this potential

diagnosis but I just wanted to remind everyone that while having RA

sucks, the thought of your child having something equally if not

more severe SUCKS MORE!

>

> We are repeating bloodwork this week (CRP was elevated 2 weeks

ago) as well as screening for Lyme Disease. She started with

psoriasis of the nails last year and symptoms have progressed. There

is some definite signs of psoriatic arthritis, though.

>

> I will keep you all updated.... Til then.... Take care!

>

>

> ****~**** Kami ****~****

>

>

>

[Guest guest]

Oh, Kami,

So sorry. Keep your head up.

 

What a lot on your plate.But you will cope.

 

Life is just not FAIR.

People do not bring illnesses on themselves,or somehow deserve them as some

would have us believe. I remember learning that lesson so early when I worked in

paediatrics.....No answer to the why.

 

Hope you have good support for you and your daughter.

Best wishes,

Chris

UK

From: nana2livi <s.p5315@...>

Subject: [ ] Re: Wanna know what sucks more than having RA?

Date: Monday, 6 October, 2008, 11:37 PM

Kami,

I know you are stressed!!!!

I pray the bloodwork is wrong. Please do let us know.

Shirley

>

> Having a doctor tell you that he thinks your 14 year old DAUGHTER

has psoriatic arthritis... ..

>

> This is why I have not been online long enough to reply to posts.

I will get around to typing the story of what led to this potential

diagnosis but I just wanted to remind everyone that while having RA

sucks, the thought of your child having something equally if not

more severe SUCKS MORE!

>

> We are repeating bloodwork this week (CRP was elevated 2 weeks

ago) as well as screening for Lyme Disease. She started with

psoriasis of the nails last year and symptoms have progressed. There

is some definite signs of psoriatic arthritis, though.

>

> I will keep you all updated.... Til then.... Take care!

>

>

> ****~**** Kami ****~****

>

>

>

[Guest guest]

Wow (((((Kami))))), my prayers are with you and your daughter. As Moms

we want to do everything we can to protect our children, but when they

get something like this, we feel especially helpless and inadequate

(my daughter has Multiple Sclerosis). My prayers are that your

daughter will be put into remission soon so that her life is not

interrupted anymore by this disease. May God Bless you and your

family........Doreen

Having a doctor tell you that he thinks your 14 year old DAUGHTER has

psoriatic arthritis.....

This is why I have not been online long enough to reply to posts. I

will get around to typing the story of what led to this potential

diagnosis but I just wanted to remind everyone that while having RA

sucks, the thought of your child having something equally if not more

severe SUCKS MORE!

We are repeating bloodwork this week (CRP was elevated 2 weeks ago)

as well as screening for Lyme Disease. She started with psoriasis of

the nails last year and symptoms have progressed. There is some

definite signs of psoriatic arthritis, though.

I will keep you all updated.... Til then.... Take care!

****~**** Kami ****~****

[Guest guest]

Sorry to hear this, Kami.

I hope she doesn't have psoriatic arthritis.

I'm not sure if you would consider going to NY, but Lehman has

a good reputation:

http://www.goldscout.com/

Not an MD

On Mon, Oct 6, 2008 at 5:21 PM, ~ Kami ~ <kamilleon@...> wrote:

> Having a doctor tell you that he thinks your 14 year old DAUGHTER has

> psoriatic arthritis.....

>

> This is why I have not been online long enough to reply to posts. I will get

> around to typing the story of what led to this potential diagnosis but I

> just wanted to remind everyone that while having RA sucks, the thought of

> your child having something equally if not more severe SUCKS MORE!

>

> We are repeating bloodwork this week (CRP was elevated 2 weeks ago) as well

> as screening for Lyme Disease. She started with psoriasis of the nails last

> year and symptoms have progressed. There is some definite signs of psoriatic

> arthritis, though.

>

> I will keep you all updated.... Til then.... Take care!

>

> ****~**** Kami ****~****