Re: Plaquenile

August 1, 2008

Hi,

Plaquenil was my first medication, and I'm still on it along with 8 mtx

every thursday. I have never had any trouble with plaquenil. If you are having

stomach troubles have you tried maybe having a few crackers with it to help?

sometimes it works, sometimes it doesn't but give it a shot. The mtx will

help but it will take about 4 to 6 weeks to work, and i also recommend eating

something with it as well, especially if you think you might have some

stomach sensitivity. hope this was helpful!

heidi in mass.

In a message dated 8/1/2008 6:39:23 A.M. Pacific Daylight Time,

kmitch1966@... writes:

Question to all of you wonderful people. My Ra started me on 400ml of

plaquenile in May...after about 3 or 4 days of taking it I became

really nauseated, issues, etc. Now keep in mind there was a stomach

virus going around as well. This put me in a very terrible situation

for 3 weeks. My Ra took me off Plaquenile for a while until my stomach

issues had gotten better. I went Monday and she told me to start again

on 200ml. My stomach issues returned yesterday. Has anyone has stomach

issued with plaquenile. She told me the next step was MTX. For some

reason I am terrified of this drug...

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August 1, 2008

Hi! I started on Plaquenil 5 weeks ago. The very next day I started

to spend more time in the bathroom than I would like to. Nausea,

diarhea and headache. Two days later I could barely get out of bed.

Every joint in my body ached. And I do mean EVERY right down to the

joints in my little toe! That lasted for a couple of days but then

just my affected joints hurt everything else was fine. I still don't

have much of an appetite. In fact I lost 5lbs. I think I will market

it as the new " Plaquenil Diet " ! LOL Anyways it does pass.

Hang in there.

wendy

--- In , " kmitch1966 " <kmitch1966@...>

wrote:

>

> Question to all of you wonderful people. My Ra started me on 400ml

of

> plaquenile in May...after about 3 or 4 days of taking it I became

> really nauseated, issues, etc. Now keep in mind there was a stomach

> virus going around as well. This put me in a very terrible

situation

> for 3 weeks. My Ra took me off Plaquenile for a while until my

stomach

> issues had gotten better. I went Monday and she told me to start

again

> on 200ml. My stomach issues returned yesterday. Has anyone has

stomach

> issued with plaquenile. She told me the next step was MTX. For some

> reason I am terrified of this drug...

>

August 1, 2008

KMitch and our wonderful Group

I been taking plaquenile and methotrexiate, (please excuse the

aweful spelling,) for about 6 months, A lot of people say they help.

I didn't look up what they did or what the side affects was because

I knew it would scare the hell out of me. They haven't done anything

for me, to me or against me. I am taking them now to please my

rheumy. Yes, I told her they do not help over and over lol. She

finally gave me some prednisone. It is working wonderfully.

I have been sick for about 10 years with other illnesses. When I

looked up the side affects I was in horror. haaaaaaaa. However;

Thank God there was no problems. I did have problems with other RA

meds at first. Just itching, so she changed them to what I am on

now.

Try not to worry, As we all problably heard, worring don't

occomplish anything. Just listen to your doctor and follow all your

medication rules carefully. I forgot I couldnt take antibiotic with

my chemo pills. What a mess I got into for that. All is well that

ends well. I listen closer now. My husband goes with me to every

appointment, so he can listen too.

Gently hugs to everyone

Clora

August 1, 2008

If the Plaquenil is helping then I'd ask the doctor for an anti-nausea

drug which helps immensely (usually suppository). If you don't notice

any appreciable difference with the Plaquenil then you should tell your

doctor to try something else. Methotrexate is a love/hate drug - I

don't think you'll find anyone who doesn't hate it or love it. Just

make sure they check your liver function tests while on Methotrexate.

I had a problem with mouth ulcers on Methotrexate and because I didn't

have any kind of improvement in the RA or flare/pain I told the doctor

I wasn't taking it any longer. Unfortunately you've just gotta keep

trying to find the right " cocktail " that works.

Cheryl

August 1, 2008

I had the same thing happen, after 3 weeks my body just right out

rejected the Planquenil, lots of lower IG issues. But my rheummy

didn't ask met to try it again, he agreed that there was nothing else

causing it. That's when we went to MTX and it has been great for me,

the only side effect I really have had was at first I slept a LOT

starting the late afternoon the day after I took it. That lasted to

late morning the next day, then I was fine. I don't even do that

anymore. As scary as MTX can be, if you try it, just be aware and

report any issues. Remember that it is a milder immune suppresant

than the biologics. I am glad there are biologics in case I ever need

them, but they scare me *way* more than MTX. More possible side

effets that are stronger. MTX has me almost symptome free and there

are days I do not even think about having RA. Due to a dental

infection, this last dose of MTX I had to skip and my hands are just

starting up a bit late into the week, so I am actually looking

forward to taking it again this sat night! Root canal started, ICK!,

MTX in the body, it will be a pain free week next week and that will

be wonderful LOL!!

--- In , " kmitch1966 " <kmitch1966@...>

wrote:

>

> Question to all of you wonderful people. My Ra started me on 400ml

of

> plaquenile in May...after about 3 or 4 days of taking it I became

> really nauseated, issues, etc. Now keep in mind there was a stomach

> virus going around as well. This put me in a very terrible

situation

> for 3 weeks. My Ra took me off Plaquenile for a while until my

stomach

> issues had gotten better. I went Monday and she told me to start

again

> on 200ml. My stomach issues returned yesterday. Has anyone has

stomach

> issued with plaquenile. She told me the next step was MTX. For some

> reason I am terrified of this drug...

August 1, 2008

and my wonderful support Group

I had to respond to this. Bless your heart. Hon I know how you feel.

Me too. My toes ached too. I don't know if it was the plaquenile

cause I been taking it a very long time. I dont want to lose weight

from throwing up but if it would make me not hungry that would be a

good side effect for me. I got my husband to rub me down with bengay

even my toes, lol, I wanted to do my fingers but he said I might get

it in my eyes.

I get up in the morning and run to check my email from our group.

After I have my coffee anyway. Correction walk. That was 5 hours

ago. I spend off and on all day to hear from you guys. I know I dont

write to a lot of you. But every one has been helpful to me with

their encourgement, listening to me complain, listen to you guys

complain, knowing I am not alone, knowing this pain is not from my

evil ways, or its not from my weight, and my group cares.

No, I haven't been on here for a straight 5 hours. but when I get

time I come to read what else is going on. I dont finish all the

email till bedtime. Cause more keep coming in. I have to finsh

before I go to bed. I love to write as everyone can see. If I could

read straight through and not respond I could be done in a couple of

hours, but its such a joy to read and respond.

And yes, I can't take a bath. I sit on a plastic milk crate, with a

towel on it for comfort. Awe the hot water running down my back

feels so good. I use to take a baths everyday sometiimes twice a

day. I am so weak and in so much pain I take a bath every few days.I

did the same thing, the other lady did. I got stuck in the tub and

couldnt get out. I was to weak and hurt so bad. I thought it was my

weight that did it to me. People had me convinced I was this way

cause I am obese. TY everyone for clearing that up. At least for me.

I know I must lose weight for my heart. And for RA. And to be a

hottie again. lol

I am very sorry your meds put you through that. At least we

know now that everyone responds good or not so good. You tickle me

sweety when you said even your toes hurt, cause so did mine. I had

no reactions to the plaquenil. I am still taking it. I don't know

why cause it hasnt help at all. I told my rheumy too and she wants

me to take it a little longer.

gentle hugs

Clora

> >

> > Question to all of you wonderful people. My Ra started me on

400ml

> of

> > plaquenile in May...after about 3 or 4 days of taking it I

became

> > really nauseated, issues, etc. Now keep in mind there was a

stomach

> > virus going around as well. This put me in a very terrible

> situation

> > for 3 weeks. My Ra took me off Plaquenile for a while until my

> stomach

> > issues had gotten better. I went Monday and she told me to start

> again

> > on 200ml. My stomach issues returned yesterday. Has anyone has

> stomach

> > issued with plaquenile. She told me the next step was MTX. For

some

> > reason I am terrified of this drug...

> >

>

August 1, 2008

Cheryl and Group

HERE HERE !! Well said. I coudnt of said it better.

hugs

Clora

<cheryl_wegmann@...> wrote:

>

> If the Plaquenil is helping then I'd ask the doctor for an anti-

nausea

> drug which helps immensely (usually suppository). If you don't

notice

> any appreciable difference with the Plaquenil then you should tell

your

> doctor to try something else. Methotrexate is a love/hate drug -

I

> don't think you'll find anyone who doesn't hate it or love it.

Just

> make sure they check your liver function tests while on

Methotrexate.

> I had a problem with mouth ulcers on Methotrexate and because I

didn't

> have any kind of improvement in the RA or flare/pain I told the

doctor

> I wasn't taking it any longer. Unfortunately you've just gotta

keep

> trying to find the right " cocktail " that works.

>

> Cheryl

>

August 1, 2008

I had stomach issues with it too. I was taken off of it because of a

major neuromuscular reaction. However I had tummy issues with it too.

>

> Question to all of you wonderful people. My Ra started me on 400ml

of

> plaquenile in May...after about 3 or 4 days of taking it I became

> really nauseated, issues, etc. Now keep in mind there was a stomach

> virus going around as well. This put me in a very terrible situation

> for 3 weeks. My Ra took me off Plaquenile for a while until my

stomach

> issues had gotten better. I went Monday and she told me to start

again

> on 200ml. My stomach issues returned yesterday. Has anyone has

stomach

> issued with plaquenile. She told me the next step was MTX. For some

> reason I am terrified of this drug...

>

August 2, 2008

Hi Heidi: Got here in Mansfiled last night, had a great flight, and I feel so

good!! I am using my daughters computer, and she set it up so I could check my

e-mails.

I love the weather here, and I am glad to be home. Heading for the Cape in

a few minutes.

My thoughts and prayers are with you all. Wishing everyone pain free

days. You are the best group of people, and I am glad I found you.

My RA is good, no pain, etc. WooHoo!!!!!!!!!! I will be off all Pred.

this week..... I am still amazed at how good I feel..... a real miracle!!!!

Hugs to all, Barbara

From: sposy@... <sposy@...>

Subject: Re: [ ] Plaquenile

Date: Friday, August 1, 2008, 6:42 AM

Hi,

Plaquenil was my first medication, and I'm still on it along with 8 mtx

every thursday. I have never had any trouble with plaquenil. If you are having

stomach troubles have you tried maybe having a few crackers with it to help?

sometimes it works, sometimes it doesn't but give it a shot. The mtx will

help but it will take about 4 to 6 weeks to work, and i also recommend eating

something with it as well, especially if you think you might have some

stomach sensitivity. hope this was helpful!

heidi in mass.

In a message dated 8/1/2008 6:39:23 A.M. Pacific Daylight Time,

kmitch1966 (DOT) com writes: