Re: Severity

[Guest guest]

From what my ortho has told me...

4-9mm is mild

9-15mm is moderate

15mm+severe

She didn't show me a scale or anything, I think b/c plagio is

subjective and measurements are just a tool. If you son was 13mm(keep

in mind measurements aren't exact)then he is probably considered

Moderate. My son was 12mm and she said that was " gray area " b/c it was

mild/moderate and some people choose to treat and some don't. Hope

this helps! Bye, (Max DOCbanded 2/7)

>

> I have a question. I see people talking about mild/moderate/severe

> plagio. How do you know what the level is? One of my problems is

> that I do see flatness in the back of my son's head, but I don't

> really see much assymetry. They said he was at 13 mm, and that the

> normal level is only 2-3. Does that mean he is severe? Is there some

> kind of a scale published?

>

> Joanna

> Nate, 4 months - getting ready for DOC band

>

[Guest guest]

Everyplace kind of has their own severety chart, but I would say

that 13 most likely is moderate. My daughter started at 12 and we

were told that it was moderate

Sandy Willow's Mom (6-2-2003)

Torticollis resolved (02-2004)

Cranio Germany Grad (02-2004)

www.geocities.com/samipa74/Willow_Lanette.html

www.palmerfamily.armedforcesfamilies.com

www.drmy.net/spalmer

>

> I have a question. I see people talking about

mild/moderate/severe

> plagio. How do you know what the level is? One of my problems is

> that I do see flatness in the back of my son's head, but I don't

> really see much assymetry. They said he was at 13 mm, and that

the

> normal level is only 2-3. Does that mean he is severe? Is there

some

> kind of a scale published?

>

> Joanna

> Nate, 4 months - getting ready for DOC band

>

[Guest guest]

Hi this is - I am posting a few pic of to see what the opinion is of her situation - torticollis and plagio.

Thanks,

************************************** See what's free at http://www.aol.com.

[Guest guest]

I can't pretend to understand all of that; but it seems a frightening

condition. But what I had in mind is someone probably not so sick; just

someone who basically seems to not receive the expected benefit from

typical hypo treatment. Bob mentioned a survey of hypo patients wherein

78% seemed to be dissatisfied with their hypo treatment. We see a lot

of those it seems here and wherever hypothyroid patients discuss their

problems. Although many of them also have horrid symptoms that are

unrelieved.

Are you suggesting that hypo patients who do not respond appropriately

to T4/T3 treatment may have some condition, say " sub-clinical myxedema

coma " ? Or is it more likely to be unspecified organ damage?

Sorry if that's a silly question. I've just never been able to get a

good " feel " for why so many patients seem to continue to suffer after

getting T4; and others also who are treated with T4 and T3.

Regards,

>

> Posted by: " Chuck B " gumboyaya@...

> <mailto:gumboyaya@...?Subject=%20Re%3A%20Severity>

> gumbo482001 <gumbo482001>

>

>

> Mon Sep 1, 2008 12:29 am (PDT)

>

> wrote:

> >

> >

> > Chuck, are you aware of any credible research that indicates that long

> > term lack of treatment may cause the body to not respond in a typical

> > manner to hypothyroid treatment? Or is it considered to be more a

> > matter that the other damage that has occurred complicates treatment?

> > [i'm thinking maybe we discussed this somewhat?]

>

> Yes, lots. Just look under myxedema coma, which is the outcome of

> chronic hypoT. Here's a gentle introduction with citations to the more

> technical stuff:

> http://www.aafp.org/afp/20001201/2485.html

> <http://www.aafp.org/afp/20001201/2485.html>

[Guest guest]

Cheryl,

I have never heard of any such. Have you personally spoken with them?

I didn't have deformaties when I started treatment but there was no

problem with my insurance. I don't know about it being a trauma

claim though. Could it be that the claim was coded incorrectly?

Your rheummy would assess your RA through your x-rays, your

bloodwork and physical examination. Mine always puts moderate to

servere.

If it were me, I would first call my rheummy's office and explain

the denial then ask them about their coding and the claim. Doctor's

offices are very savvy about insurance now. They have to be in order

to get paid.

I hope you get to the bottom of it soon.

Shirley

--- In , " cheryl.dines " <cheryl.dines@...>

wrote:

>

> Hi everyone. I am having trouble with my insurer paying out on a

> trauma claim that covers Rheumatoid. Some of their criteria is

that

> I MUST have joint deformity and it must be SEVERE RHEUM. After

> reading their response, I have a couple of questions I am hoping

> someone can answer for me:

>

> My " dud " Rheumy (go to new one on Monday - hooray!) said in her

> report " potential to be severe " . What does this mean? Does this

> disease get worse over time or do you know how severe it is upon

> diagnosis? Does RA Factor indicate severity?

>

> With regard to joint deformity - aren't I taking all of these

drugs

> to prevent deformity? Can I still suffer deformity even with this

> cocktail I take?

>

> I would appreciate any information anyone has - not going to let

the

> insurer get away with this one.........

>

> Cheryl

>

[Guest guest]

Hi...

Been there, an experienced Rhuematologist can look at your blood tests and

x-rays and determine based on experience how extensive your RA can be. But, most

of them will not say postively how severely the desease may effect you. In may

case, to quote the doctor, " the results indicate it is more like to be

progressive than not " . But again, a lot of it is up to you terms of how you

respond to treatment and such so they really won't say conclusively. Hope this

helps.

Stan

-------------- Original message --------------

From: " cheryl.dines " <cheryl.dines@...>

Hi everyone. I am having trouble with my insurer paying out on a

trauma claim that covers Rheumatoid. Some of their criteria is that

I MUST have joint deformity and it must be SEVERE RHEUM. After

reading their response, I have a couple of questions I am hoping

someone can answer for me:

My " dud " Rheumy (go to new one on Monday - hooray!) said in her

report " potential to be severe " . What does this mean? Does this

disease get worse over time or do you know how severe it is upon

diagnosis? Does RA Factor indicate severity?

With regard to joint deformity - aren't I taking all of these drugs

to prevent deformity? Can I still suffer deformity even with this

cocktail I take?

I would appreciate any information anyone has - not going to let the

insurer get away with this one.........

Cheryl

[Guest guest]

Cheryl,

Nobody can predict the outcome for any individual who has RA. There

are certain markers which are associated with more severe disease

though: very high RF and/or high anti-CCP, the presence of early

erosions, extraarticular features such as rheumatoid nodules, and

disease which is very difficult to control.

And, yes, DMARDs are taken to prevent deformities; however, there is

no guarantee you won't develop any.

Not an MD

On Thu, Oct 9, 2008 at 4:07 PM, cheryl.dines <cheryl.dines@...> wrote:

> Hi everyone. I am having trouble with my insurer paying out on a

> trauma claim that covers Rheumatoid. Some of their criteria is that

> I MUST have joint deformity and it must be SEVERE RHEUM. After

> reading their response, I have a couple of questions I am hoping

> someone can answer for me:

>

> My " dud " Rheumy (go to new one on Monday - hooray!) said in her

> report " potential to be severe " . What does this mean? Does this

> disease get worse over time or do you know how severe it is upon

> diagnosis? Does RA Factor indicate severity?

>

> With regard to joint deformity - aren't I taking all of these drugs

> to prevent deformity? Can I still suffer deformity even with this

> cocktail I take?

>

> I would appreciate any information anyone has - not going to let the

> insurer get away with this one.........

>

> Cheryl

[Guest guest]

Cheryl and group;

Wow that is a good question.,, I am so sorry your having problems

with insurer.. I didnt know there had to be a level Of RA for an

insurer.. Yes what level do they go by??? RA factor or joint damage

or what????? I can't wait to see the answers.. Good luck hon..

gentle hugs

Clora

>

> Hi everyone. I am having trouble with my insurer paying out on a

> trauma claim that covers Rheumatoid. Some of their criteria is

that

> I MUST have joint deformity and it must be SEVERE RHEUM. After

> reading their response, I have a couple of questions I am hoping

> someone can answer for me:

>

> My " dud " Rheumy (go to new one on Monday - hooray!) said in her

> report " potential to be severe " . What does this mean? Does this

> disease get worse over time or do you know how severe it is upon

> diagnosis? Does RA Factor indicate severity?

>

> With regard to joint deformity - aren't I taking all of these drugs

> to prevent deformity? Can I still suffer deformity even with this

> cocktail I take?

>

> I would appreciate any information anyone has - not going to let

the

> insurer get away with this one.........

>

> Cheryl

>

[Guest guest]

Hi Clora

Thanks for your support. This is a trauma policy so they are very

specific about what you need to have to make a claim. I think it is

a little different to the insurance they have in the US. I am in Aus

so all treatment etc is covered, this is just another policy I bought

a few years ago - not thinking I would ever need it.

>

> Cheryl and group;

>

> Wow that is a good question.,, I am so sorry your having problems

> with insurer.. I didnt know there had to be a level Of RA for an

> insurer.. Yes what level do they go by??? RA factor or joint

damage

> or what????? I can't wait to see the answers.. Good luck hon..

>

> gentle hugs

> Clora

>

>

> >

> > Hi everyone. I am having trouble with my insurer paying out on a

> > trauma claim that covers Rheumatoid. Some of their criteria is

> that

> > I MUST have joint deformity and it must be SEVERE RHEUM. After

> > reading their response, I have a couple of questions I am hoping

> > someone can answer for me:

> >

> > My " dud " Rheumy (go to new one on Monday - hooray!) said in her

> > report " potential to be severe " . What does this mean? Does this

> > disease get worse over time or do you know how severe it is upon

> > diagnosis? Does RA Factor indicate severity?

> >

> > With regard to joint deformity - aren't I taking all of these

drugs

> > to prevent deformity? Can I still suffer deformity even with

this

> > cocktail I take?

> >

> > I would appreciate any information anyone has - not going to let

> the

> > insurer get away with this one.........

> >

> > Cheryl

> >

>