Re: Fatigue & Ra

[Guest guest]

Tammy,

I feel drained all the time too, it's not just you. I had to go on SSDI

because my RA/fibro just was got worse. Sometimes, taking a shower

takes all the energy that I have. It's good to get some sort of

excerise...even if it's for a few minutes. I joined a gym and I have

been SLOWLY getting back into an excerise rotine. I am getting back

into yoga and pilates and I am working w/ a trainer since I have so

many health conditions.

My rheumy prescribed me provigil and I am waiting for it to be

delivered. (I got it from Canada since the price was $$$ here). I have

heard good things about it and I can't wait to try it to see if it

helps w/ the chronic fatigue. If it works, I will definately post it on

the web board. Hope humira works well for you.

--- In , " sunshine01098 " <tammy9692@...>

wrote:

>

> I know alot of people that work and go to school with RA, but I don't

> think that's an option for me, I am so weak I can't do my housework

> and so tired all time. Does anyone else feel drained all the time,

> that's how I feel. I need some energy to get something done, but its

> not there...How do you feel? I haven't taken anything for RA in a

> month since I stopped Enbrel, I just started Humira on Thursday.

>

> Tammy

>

[Guest guest]

Hi Tammy! I too suffered from debilitating fatigue. It was so bad that I just

kept falling asleep all day long. My doctor prescribed Provigil and it works.

I'm still tired, but I'm not falling asleep anymore. I'm glad I gave it a try.

Lori

http://home.comcast.net/~queenstitcher/

http://stitchingqueen.multiply.com

[Guest guest]

Tammy , group

Awe hon. I was like that for a few months. A few days ago I went on

prednisone. I can only stay on it till i start the humira in a few

weeks. This has been the wonderfullest time I can remember in so long

with this RA and Fibro.

May I ask, Why did you go off of Enbrel?

hugs , gently

Clora

> I know alot of people that work and go to school with RA, but I

don't

> think that's an option for me, I am so weak I can't do my housework

> and so tired all time. Does anyone else feel drained all the time,

> that's how I feel. I need some energy to get something done, but

its

> not there...How do you feel? I haven't taken anything for RA in a

> month since I stopped Enbrel, I just started Humira on Thursday.

>

> Tammy

>

[Guest guest]

I'm suffering from extreme fatigue but can't fall asleep easily. I'm just

tired out before I start anything. I'm going to look into my meds to see

what can help or hinder the problem, so I don't see that Provigil would help

my challenge. Any comments or ideas? I've had Extreme RA for almost 20 years

and hadn't been this bad until lately, it snuck in on me. Of course it

doesn't help with the 100+ degree days and dry as a desert. All my trees are

dying and the blueberries aren't doing well. They need constant moisture and

I can't afford to rework the well for irrigation. It seems to be worse all

the time.

Dennis in eastexas

On Sat, Aug 2, 2008 at 4:30 PM, Stitching Queen

<queenstitcher@...>wrote:

> Hi Tammy! I too suffered from debilitating fatigue. It was so bad that I

> just kept falling asleep all day long. My doctor prescribed Provigil and it

> works. I'm still tired, but I'm not falling asleep anymore. I'm glad I gave

> it a try.

> Lori

>

http://home.comcast.net/~queenstitcher/<http://home.comcast.net/%7Equeenstitcher\

/>

> http://stitchingqueen.multiply.com

>

>

[Guest guest]

I posted on this topic a while ago, since I was in the same situation.

I had lost my job, and was not on any treatment, and could bearly take

a shower! Before I started on my treatment(now), I started a vitamin

and supplement regimine (about 5 months ago). What I take for energy is

a weekly b-12 vitamin injection (perscription), tons of Coenzyme Q-10

(200-300 mg), it only works in higher doses with me, as well as Choline

and Inositol, which helps with the mental fatigue. Aside from that I

take other supplements that have balanced out my hormones and blood

pressure. I can actually drink coffee now (couldn't before because of

my hypertension), so I do almost everyday. It really is amazing what it

did for me. It seemed that starting my treatment (Enbrel) was just the

icing on the cake (took the pain away). I had already set up everything

so I could get through " most " of the day. With the Enbrel now, I think

I might get back to 100%. If you can, it could be very valuable to see

a naturopathic physician. Sometimes if you have a PPO your insurance

might pay for it. But even if you have to pay cash.... it is worth it.

My RA had progressed so much in the past year....and I just recently

(about 3 months ago) got my life back, and I owe " most " of it to my

supplement regimine. Enbrel just closed the deal!

Hope this helps!

-

--- In , " sunshine01098 " <tammy9692@...>

wrote:

>

> I know alot of people that work and go to school with RA, but I don't

> think that's an option for me, I am so weak I can't do my housework

> and so tired all time. Does anyone else feel drained all the time,

> that's how I feel. I need some energy to get something done, but its

> not there...How do you feel? I haven't taken anything for RA in a

> month since I stopped Enbrel, I just started Humira on Thursday.

>

> Tammy

>

[Guest guest]

Can you share your regiman with us what you take.

Jolene

In a message dated 8/3/2008 7:23:16 A.M. Eastern Daylight Time,

laurenrosepeters@... writes:

I posted on this topic a while ago, since I was in the same situation.

I had lost my job, and was not on any treatment, and could bearly take

a shower! Before I started on my treatment(now)a shower! Before I started

and supplement regimine (about 5 months ago). What I take for energy is

a weekly b-12 vitamin injection (perscription)a weekly b-12 vitamin inject

(200-300 mg), it only works in higher doses with me, as well as Choline

and Inositol, which helps with the mental fatigue. Aside from that I

take other supplements that have balanced out my hormones and blood

pressure. I can actually drink coffee now (couldn't before because of

my hypertension)my hypertension)<WBR>, so I do almost everyday. It really is

did for me. It seemed that starting my treatment (Enbrel) was just the

icing on the cake (took the pain away). I had already set up everything

so I could get through " most " of the day. With the Enbrel now, I think

I might get back to 100%. If you can, it could be very valuable to see

a naturopathic physician. Sometimes if you have a PPO your insurance

might pay for it. But even if you have to pay cash.... it is worth it.

My RA had progressed so much in the past year....and I just recently

(about 3 months ago) got my life back, and I owe " most " of it to my

supplement regimine. Enbrel just closed the deal!

Hope this helps!

-

--- In _ @groRA-SUPP_ (mailto: ) ,

" sunshine01098 " <tammy9692@.ta>

wrote:

>

> I know alot of people that work and go to school with RA, but I don't

> think that's an option for me, I am so weak I can't do my housework

> and so tired all time. Does anyone else feel drained all the time,

> that's how I feel. I need some energy to get something done, but its

> not there...How do you feel? I haven't taken anything for RA in a

> month since I stopped Enbrel, I just started Humira on Thursday.

>

> Tammy

>

**************Looking for a car that's sporty, fun and fits in your budget?

Read reviews on AOL Autos.

(http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017

)

[Guest guest]

I just keep writing -but never seem to see it posted.Anyway-I really understand

and sympathize with your chronic fatigue.Before RA ,I was always a very active

person-I had a great job (Operating Room Nurse) Loved what I did-Always very

busy.Than 5 years ago my husband got Lung Cancer,and had his left Lung removed

and has never really recovered-my hospital that I worked at for many years was

closed down,so I had to change jobs after 20 years(very stressful) and my mother

got Alzheimer's.One day after my life long Psoriasis cleared up suddenly,my feet

swelled up so badly,and it was almost impossible to walk .I went to my PCP and

he just looked at me (he's been practicing medicine for 40 years) and said I was

having a RA flair-up.I don't need to tell the rest-my life feels completely out

of my con troll.RA has totally changed everything.I can't work-which I loved-I

can't garden which I also loved.Cooking was kind of a hobby of mine too-some

days I still do

that-I do have some days that are better than others

I sure hope the Remacade works-i just stopped Enbril amd Meth because of my

Liver.Wish me luck-my best to everybody out there--Sue

[Guest guest]

C. and group;

sweetheart, I am so sorry what life has dished out to you. An

operating room nurse, wow. Honey that was my dream to be a nurse. I

made it to the program and circumstances changed and couldnt go. My

fault not any illness.

I didn't know I was so tired and weak from My RA. I thought it was

cause I felt like crap. Did your husband survive the cancer?? I am

assuming your husband is in bad shape. I am so sorry to hear that. I

love to do a lot of things you do. I can't do it eather. The pain is

to much and when I atempt anything I feel so weak. All of us in the

group has went through so much.

Since I been sick a lot during my life,(54 years so far) I didnt

attribute my fatigue to RA. OMG I feel so weak, not tired, but if I

lie down I end up going to sleep, and than my night sleep is messed

up. I am so sorry to hear about your mother's illness. My daddy

passed away suddenly 10 years ago. Almost destroyed me. He prayed

for when his time come to go suddenly and he did, 73 years young.

I thought it was me me me, that caused my sickness for many years. I

thought support groups was not for me since I do have a college

education in nursing. I learned more from this group than I have in

all my years of education. haaaaaaaaaaa. I seem to have a memory

problem. From my research, I figure it is the medicine or lack of

oxygen to my brain from the CHF.

I use to hate myself for not going into the nursing program; I was

going to later but later never came. My point is, I was overwhelmed

with sadness when I seen what illness has done to your family. I am

so very sorry for your grief and sadness due to diseases.

Especially since you did everything in life you was suppose to do.

The group keeps me going everyday. I can't wait each day to read the

post. A lot of the group gives encourgement to each other and shows

so much concern for each other. They have inspire me to go on. They

have told their stories. I understand where they are coming from. I

know if they can do it, I can too. They have taught me to enjoy the

good days and deal with the bad days.

Sorry everyone for my long post. as I learn from the group, I

want to tell you to grab each day and get what you can enjoy from

it. Mine is the tv shows, and the pc. One can find so much in this

time of RA a joy if they look. I dont say this is easy, I am just

saying it can be done. I also have my heavenly father to lead and

quide me. I hope I have said a few words of kindness to anyone

suffering. I love you all so very much. This love has a lot to do

with Jesus in my heart. God bless you all.

tender gentle hugs

Clora

> I just keep writing -but never seem to see it posted.Anyway-I

really understand and sympathize with your chronic fatigue.Before

RA ,I was always a very active person-I had a great job (Operating

Room Nurse) Loved what I did-Always very busy.Than 5 years ago my

husband got Lung Cancer,and had his left Lung removed and has never

really recovered-my hospital that I worked at for many years was

closed down,so I had to change jobs after 20 years(very stressful)

and my mother got Alzheimer's.One day after my life long Psoriasis

cleared up suddenly,my feet swelled up so badly,and it was almost

impossible to walk .I went to my PCP and he just looked at me (he's

been practicing medicine for 40 years) and said I was having a RA

flair-up.I don't need to tell the rest-my life feels completely out

of my con troll.RA has totally changed everything.I can't work-which

I loved-I can't garden which I also loved.Cooking was kind of a

hobby of mine too-some days I still do

> that-I do have some days that are better than others

> I sure hope the Remacade works-i just stopped Enbril amd Meth

because of my Liver.Wish me luck-my best to everybody out there--Sue

>

>

>

>

>

>

>

[Guest guest]

Hi Sue,

Is there a post gremlin out there? (I would have use the term noid,

but unless you are old enough to remember the pizza hut noid, you

might not get it.)

I sure hope that Remicade works for you. Your post sounds like you

are just so tired. You have had a lot to deal with. I pray it will

get better and you can carry a lighter load for a while.

Like you, I loved to garden. This year I gave in and did container

gardening. To my surprise, I like it. My girls tore out the old

flower beds, except for the hedges and azaleas, then put down pea

gravel and river rock. My large pots sit on pavers. No weeding and I

can get to everything to feed and water. I used drought resistant

plants, so they can survive when I can't get out there. I plan to

spend the winter daydreaming about what plants to put in them next

spring.

I still battle fatigue and the only thing that seems to help is

naps. Hard to do now that I have gone back to work after my surgery.

It must be some better though because I haven't cried on my way out

for a while. I used to look at my bed when leaving my room and sob

because I couldn't lay back down.

I hope you find something soon that you can do and enjoy. So much

has been taken away.

Keep posting, don't give up, this one came through.

Shirley

--- In , Connors <ssn_cnnrs@...>

wrote:

>

> I just keep writing -but never seem to see it posted.Anyway-I

really understand and sympathize with your chronic fatigue.Before

RA ,I was always a very active person-I had a great job (Operating

Room Nurse) Loved what I did-Always very busy.Than 5 years ago my

husband got Lung Cancer,and had his left Lung removed and has never

really recovered-my hospital that I worked at for many years was

closed down,so I had to change jobs after 20 years(very stressful)

and my mother got Alzheimer's.One day after my life long Psoriasis

cleared up suddenly,my feet swelled up so badly,and it was almost

impossible to walk .I went to my PCP and he just looked at me (he's

been practicing medicine for 40 years) and said I was having a RA

flair-up.I don't need to tell the rest-my life feels completely out

of my con troll.RA has totally changed everything.I can't work-which

I loved-I can't garden which I also loved.Cooking was kind of a

hobby of mine too-some days I still do

> that-I do have some days that are better than others

> I sure hope the Remacade works-i just stopped Enbril amd Meth

because of my Liver.Wish me luck-my best to everybody out there--Sue

>

>

>

>

>

>

>

[Guest guest]

Hi Tammy - you sound like me. The pain and fatigue are so overwhelming

at times that I don't know how people are able to continue to work with

this horrid disease. Before I quit working in 2005, I was finding

myself falling asleep at the wheel in the mornings after what I had

assumed to be a good nights sleep. That was totally creepy and I knew I

was a hazard on the roads. I take Sulfasalazine, MTX, Folic Acid,

Skelaxin and Oxycodone......Doreen

--- In , " sunshine01098 " <tammy9692@...>

wrote:

>

> I know alot of people that work and go to school with RA, but I don't

> think that's an option for me, I am so weak I can't do my housework

> and so tired all time. Does anyone else feel drained all the time,

> that's how I feel. I need some energy to get something done, but its

> not there...How do you feel? I haven't taken anything for RA in a

> month since I stopped Enbrel, I just started Humira on Thursday.

>

> Tammy

>

[Guest guest]

I posted in in a separate topic " don't dis natural medicine "

> >

> > I know alot of people that work and go to school with RA, but I

don't

> > think that's an option for me, I am so weak I can't do my

housework

> > and so tired all time. Does anyone else feel drained all the

time,

> > that's how I feel. I need some energy to get something done, but

its

> > not there...How do you feel? I haven't taken anything for RA in

a

> > month since I stopped Enbrel, I just started Humira on Thursday.

> >

> > Tammy

> >

>

>

>

>

>

>

>

> **************Looking for a car that's sporty, fun and fits in your

budget?

> Read reviews on AOL Autos.

> (http://autos.aol.com/cars-BMW-128-2008/expert-review?

ncid=aolaut00050000000017 )

>

>

>

[Guest guest]

I take 3 Neurotin and a Darvocet about an hour before I go to bed and it helps

me rest better...

[Guest guest]

The fatigue is awful for me also. I can totally relate to the shower

thing. Meaning, just a shower can wear me out so much that afterwards

I need a nap. I take ambien every night. It helps me get to sleep but

I usually wake up at 3 or 4am. The doctor also gave me ambien CR, but

it costs to much. ($5 per pill) Sometimes when I am desperate, I am

willing to swallow the 5 buck pill!---

> >

> > I know alot of people that work and go to school with RA, but I

don't

> > think that's an option for me, I am so weak I can't do my

housework

> > and so tired all time. Does anyone else feel drained all the

time,

> > that's how I feel. I need some energy to get something done, but

its

> > not there...How do you feel? I haven't taken anything for RA in

a

> > month since I stopped Enbrel, I just started Humira on Thursday.

> >

> > Tammy

> >

>

[Guest guest]

HI KELLY, I'M LIKE FREAKING OUT!!! 3 NEUROTIN + DARVOCET, WHAT R THE MGS. ON THE

NEUROTIN? I TAKE N

EUROTIN 3X'S DAILY BUT NOT ALL AT ONCE. THE DRS. SAY IT'S O.K. FOR U TO TAKE IT

LIKE THAT?????

I HAVE A HARD TIME SLEEPING AT NIGHT MAYBE I SHOULD TRY THAT BUT IT SOUNDS KINDA

SCARY TO ME.

PLEASE RESPOND TO MY QUESTION ON THE MGS. THANKS A BUNCH & GOD

BLESS,MELYNDAGAMEZ 8/5/08

[ ] Re: Fatigue & Ra

I take 3 Neurotin and a Darvocet about an hour before I go to bed and it helps

me rest better...

     

------------------------------------

[Guest guest]

She told me I could take up to 2400ml of Neurotin a day. When I first started

hurting bad she had me work up to (thats the key) 2 in the morning, 1 in the

afternoon and 3 at night. When I started to have memory problems, after a month

or so, I told her about it, and told her I was exhausted all day at

work,(literally falling asleep at my desk), she told me to take myself off the

day times one slowly...stop the afternoon pill one day...then the next day go to

one in the morning and then just keep the 3 at night...Some nights if I am

already really tired and feel I will have no trouble sleeping I will take

2...But never stop taking these

all at once, this is an antiseizure medication..go to WebMD and read up on

it...and talk to your doc first before increasing your dosage...but it does work

well for me at night..wishing all a pain free day...