Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 Joanna: To view the assymetry hold him up in a mirror. You can usually see it then. My son had 18 mm of assymetry and was considered in the mod to severe category. I don't remember the ranges. I could only really see it in pictures or when I held him up in front of a mirror. Jack - DOCBand (2) Grad --- joag95 <joag95@...> wrote: > I have a question. I see people talking about > mild/moderate/severe > plagio. How do you know what the level is? One of > my problems is > that I do see flatness in the back of my son's head, > but I don't > really see much assymetry. They said he was at 13 > mm, and that the > normal level is only 2-3. Does that mean he is > severe? Is there some > kind of a scale published? > > Joanna > Nate, 4 months - getting ready for DOC band > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 We just got measurements for my son last week and he is at 15. The ortho told us he is still in the moderate range. Maybe that will give you an idea. As for a scale, there probably is one the orthos use, but I'm not sure what it is. Amy (SC) On 4/10/06, joag95 <joag95@...> wrote: I have a question. I see people talking about mild/moderate/severe plagio. How do you know what the level is? One of my problems is that I do see flatness in the back of my son's head, but I don't really see much assymetry. They said he was at 13 mm, and that the normal level is only 2-3. Does that mean he is severe? Is there some kind of a scale published?JoannaNate, 4 months - getting ready for DOC band For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2006 Report Share Posted April 11, 2006 This is what I have heard from the orthos: Normal 0-3mm very mild <6 mm mild (but warrants banding) 6-10mm moderate (definite banding) 10-15 mm severe (even the clueless drs get it) 15+ mm Molly California Nicolas, 6 months, tort & plagio, getting STARband in April (10mm) , 3 , 6 severity I have a question. I see people talking about mild/moderate/severe plagio. How do you know what the level is? One of my problems is that I do see flatness in the back of my son's head, but I don't really see much assymetry. They said he was at 13 mm, and that the normal level is only 2-3. Does that mean he is severe? Is there some kind of a scale published? Joanna Nate, 4 months - getting ready for DOC band For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2006 Report Share Posted April 11, 2006 > > > > I have a question. I see people talking about mild/moderate/severe > > plagio. How do you know what the level is? One of my problems is > > that I do see flatness in the back of my son's head, but I don't > > really see much assymetry. They said he was at 13 mm, and that the > > normal level is only 2-3. Does that mean he is severe? Is there some > > kind of a scale published? > > > > Joanna > > Nate, 4 months - getting ready for DOC band > > > > > > > > > > > > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2008 Report Share Posted August 31, 2008 Chuck, are you aware of any credible research that indicates that long term lack of treatment may cause the body to not respond in a typical manner to hypothyroid treatment? Or is it considered to be more a matter that the other damage that has occurred complicates treatment? [i'm thinking maybe we discussed this somewhat?] Thanks, .. .. > OTOH, being hypoT for a long time can create damage to other systems. In > that sense, high TSH is an indicator of severity, just severity of damage. > > Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2008 Report Share Posted August 31, 2008 My assumption is the longer one has been hypothyroid, the longer it will take to recover, once adequately treated. Any 'trial' under any 'conditions' relating to this situation would be absurd and dishonest in the extreme and unlikely to be approved by any credible ethics committee. Bob > > Chuck, are you aware of any credible research that indicates that Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2008 Report Share Posted August 31, 2008 ...contd] for example, how would you write a research proposal? show what you mean? then consider if it's at all credible ? Bob > Chuck, are you aware of any credible research that indicates that Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2008 Report Share Posted August 31, 2008 wrote: > > > Chuck, are you aware of any credible research that indicates that long > term lack of treatment may cause the body to not respond in a typical > manner to hypothyroid treatment? Or is it considered to be more a > matter that the other damage that has occurred complicates treatment? > [i'm thinking maybe we discussed this somewhat?] Yes, lots. Just look under myxedema coma, which is the outcome of chronic hypoT. Here's a gentle introduction with citations to the more technical stuff: http://www.aafp.org/afp/20001201/2485.html Here's a list of the clinical findings that go with long term lack of treatment, many of which can be fatal: Anemia Elevated CPK Elevated creatinine Elevated transaminases Hypercapnia Hyperlipidemia Hypoglycemia Hyponatremia Hypoxia Leukopenia Respiratory acidosis This describes how the system adapts in chronic hypoT, so the result is that TSH looks normal, but they still have symptoms. Where have we heard of that before? Skinner GRB, Holmes D, Ahmad A, Davies J, Benitez J. Clinical response to thyroxine sodium in clinically hypothyroid but biochemically euthyroid patients. J Nutri. Environ Med 10:115-- 124, 2000. This one says it is most severe in hypoT children, but the distortion improves with time (under treatment): The Journal of Clinical Endocrinology & Metabolism Vol. 85, No. 8 2722-2727, " The Hypothalamic-Pituitary-Thyroid Negative Feedback Control Axis in Children with Treated Congenital Hypothyroidism, " D. A. Fisher, E. J. Schoen, S. LA Franchi, S. H. Mandel, J. C. , E. I. Carlton and J. H. Goshi. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 You and your "credible research" ! I think Bob said it all. "Any 'trial' under any 'conditions' relating to this situation would be absurd and dishonest in the extreme and unlikely to be approved by any credible ethics committee. Sheila Chuck, are you aware of any credible research that indicates that long term lack of treatment may cause the body to not respond in a typical manner to hypothyroid treatment? Or is it considered to be more a matter that the other damage that has occurred complicates treatment? [i'm thinking maybe we discussed this somewhat?]Thanks,. .. No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.14/1643 - Release Date: 30/08/2008 17:18 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Sheila, You wrote: > > > You and your " credible research " ! > > I think Bob said it all. " Any 'trial' under any 'conditions' relating to > this situation would be absurd and dishonest in the extreme and unlikely > to be approved by any credible ethics committee. Deliberately inflicting a potentially dangerous or damaging condition on people to determine an outcome is indeed unethical, but it is quite possible to extract credible demographic data from cases where circumstances outside the experimenter's control caused the condition in question. There have been many people found in a state of myxedema coma, and the literature I posted showed that they do, indeed, have many treatment complications, including resistance to the thyroid meds they need. These results are both credible and ethical. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Hmmm; I hadn't thought of that. I guess the only possible ethical pool would consist of those who had credoble evidence indicating they were hypo some time in the past, but did not receive treatment... It probably happens, but not frequently enough where there's documentation to form the pool. I guess... Thanks, > My assumption is the longer one has been hypothyroid, the longer it > will take to recover, once adequately treated. > > Any 'trial' under any 'conditions' relating to this situation would be > absurd and dishonest in the extreme and unlikely to be approved by any > credible ethics committee. > > Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Bob, I know nothing of writing a research proposal. But if you have to detail where you're going to get a pool of subjects I suspect that alone would shoot down the whole project. > for example, how would you write a research proposal? > show what you mean? > then consider if it's at all credible ? > > Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2008 Report Share Posted October 9, 2008 Hi everyone. I am having trouble with my insurer paying out on a trauma claim that covers Rheumatoid. Some of their criteria is that I MUST have joint deformity and it must be SEVERE RHEUM. After reading their response, I have a couple of questions I am hoping someone can answer for me: My " dud " Rheumy (go to new one on Monday - hooray!) said in her report " potential to be severe " . What does this mean? Does this disease get worse over time or do you know how severe it is upon diagnosis? Does RA Factor indicate severity? With regard to joint deformity - aren't I taking all of these drugs to prevent deformity? Can I still suffer deformity even with this cocktail I take? I would appreciate any information anyone has - not going to let the insurer get away with this one......... Cheryl Quote Link to comment Share on other sites More sharing options...
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