Aches and pains

[Guest guest]

No, no chance. I live in Washington state. Sorry.

Ann B.

> >

> > I finally found a D.O. who is a member of WAPF, and he got me off all

> > the pills and onto strict WAPF -- my insulin needs have already been

> > cut by 2/3. The D.O. can prescribe insulin if I need it, but he

> > thinks I can get off it in time with good nutrition. What a relief to

> > finally find a doctor like this! It took me 12 years!

> >

> > Ann

> >

>

>

>

[Guest guest]

I asked the guy who has my cowshare, because he attends the meetings

of the local chapters. I also asked a local chapter leader. They

both knew the same doctor, because he happens to be a co-leader of

another local chapter of WAPF.

I think you just have to keep asking around. It took me a long time

to find him.

Ann B.

>

>

> I finally found a D.O. who is a member of WAPF, and he got me off all

> the pills and onto strict WAPF --

>

> --->How did you find him? I'd love to find a good doctor. ct

>

>

[Guest guest]

does that too sometimes. Had him all checked out & he gets a complete

physical every year. I just give him a tylenol & he's go to go.

Take care,Betty

Hall Melinda <mlndhall@...> wrote:

Do any of you have children who have mysterious aches

and/or pains that come on for no reason-or so it

appears?

has done this for years and it really grates on

my nerves. I don't understand why he has these

" episodes " of an ache or pain. They are pretty much

the same over and over and we've had him checked, but

now and then he'll come up with a new one. Used to be

an avoidance issue, but there are days when I really

don't know if it's something or not. They normally go

away on their own with no further discussion until the

next time it shows up.

I know kids with AS feel things sometimes at a

magnification than most people, but I just don't get

it. We discovered he has a bit of reflux, so we manage

what he eats to minimize they symptoms of that because

he is afraid he's having heart problems. He aways

claims his heart hurts. We had him checked, and his

heart is fine. It was just reflux. We figured it was,

but he had to have the doctor's confirmation to

believe it.

Today's issue was his muscle under his collarbone.

First day of P.E. for awhile. He thinks he needs to go

to the doctor's. Then he says, " If it's still hurting

tomorrow, I think I need to go to the doctor. " Most

of the time we can come up with a possible reason for

his ache/pain and he will believe it and it will go

away.

He is fine otherwise. He moves around with no effort.

He said he could barely lift his arms today. (Casey's

had her collarbone broken, so I know the symptoms of a

fractured collarbone.) But he's been running around

here and doing everything-including picking up his

baby brother, Zachary who probably weighs close to 10

pounds now, so he seems fine here. He's forgotten all

about the pain.

I know he has a project due next week and exams coming

up the 22nd-25th. So I don't know if it's an avoidance

issue or anxiety because of getting the project done

and the exams coming up. But it drives me nuts

sometimes. I don't get why he does this. Where the

" symptoms " come from. I know he believes they are real

and he feels something and it's more than what we

would feel. But then he focuses on it and it

escalates.

Any feedback would be helpful.

Thanks,

Melinda, 37 ( was asked if Zachary was my grandchild!

and later was told by someone else I

looked like I was 27! Go figure!)

Mom to 14, AS,ADHD,OCD

Casey, 12 going on 16! AAAAHHHHHHH!!!

, 6, speech delay (yet very demanding!)

Zachary, 1 month on Friday!

__________________________________________________

[Guest guest]

Are you in my house listening to my just-turned-6 yos??

We've seen a doctor several times -- we usually say 'rest for 20

minutes, if it still hurts, we'll talk Tylenol' or something. Sometimes

it goes away, sometimes it doesn't. We had blood tests run for arthritis

(which runs in the family) and I'm probably going to talk to the neuro

when we go next about the headaches, as he does seem to really be having

them more often than I think he should be. His 11 yo sister has had

migraines for 6 years now, and has grand mal seizures aka seizure

disorder. I also get migraines, so it worries me but it's so hard to tell.

Donna

Hall Melinda wrote:

>

> Do any of you have children who have mysterious aches

> and/or pains that come on for no reason-or so it

> appears?

>

> has done this for years and it really grates on

> my nerves. I don't understand why he has these

> " episodes " of an ache or pain. They are pretty much

> the same over and over and we've had him checked, but

> now and then he'll come up with a new one. Used to be

> an avoidance issue, but there are days when I really

> don't know if it's something or not. They normally go

> away on their own with no further discussion until the

> next time it shows up.

>

> I know kids with AS feel things sometimes at a

> magnification than most people, but I just don't get

> it. We discovered he has a bit of reflux, so we manage

> what he eats to minimize they symptoms of that because

> he is afraid he's having heart problems. He aways

> claims his heart hurts. We had him checked, and his

> heart is fine. It was just reflux. We figured it was,

> but he had to have the doctor's confirmation to

> believe it.

>

> Today's issue was his muscle under his collarbone.

> First day of P.E. for awhile. He thinks he needs to go

> to the doctor's. Then he says, " If it's still hurting

> tomorrow, I think I need to go to the doctor. " Most

> of the time we can come up with a possible reason for

> his ache/pain and he will believe it and it will go

> away.

>

> He is fine otherwise. He moves around with no effort.

> He said he could barely lift his arms today. (Casey's

> had her collarbone broken, so I know the symptoms of a

> fractured collarbone.) But he's been running around

> here and doing everything-including picking up his

> baby brother, Zachary who probably weighs close to 10

> pounds now, so he seems fine here. He's forgotten all

> about the pain.

>

> I know he has a project due next week and exams coming

> up the 22nd-25th. So I don't know if it's an avoidance

> issue or anxiety because of getting the project done

> and the exams coming up. But it drives me nuts

> sometimes. I don't get why he does this. Where the

> " symptoms " come from. I know he believes they are real

> and he feels something and it's more than what we

> would feel. But then he focuses on it and it

> escalates.

>

> Any feedback would be helpful.

>

> Thanks,

>

> Melinda, 37 ( was asked if Zachary was my grandchild!

> and later was told by someone else I

> looked like I was 27! Go figure!)

>

> Mom to 14, AS,ADHD,OCD

> Casey, 12 going on 16! AAAAHHHHHHH!!!

> , 6, speech delay (yet very demanding!)

> Zachary, 1 month on Friday!

>

>

[Guest guest]

My boys (18) complain of stomach aches all the time. I have found that they

will just say their stomach hurts and I have to question them: Do you have

diarrhea?, gas pains (pooting),have you eaten? They can't seem to tell

exactly why they are hurting, just that they are hurting and both of them

complain of headaches often.Same thing with that. One will say I have a

migraine ( I have them too) and they will be playing loud video games with

flashing characters and I'm thinking if you have a migraine you can't sit

there with that loud music and flashing, you would be laying down in a

dark,quiet room. I think the main thing with my boys is that they know they

are hurting they just don't know how to explain why or KNOW why...Also my

kids complain of stomach aches and headaches when something (tests) is going

on at school or if n is just too overwhelmed by " going " to school , he

will say he has to stay home because he has a bad headache. In other words,

I don't have any answers for you... Sorry Just that we have ailments

here just about everyday... Toni

>

>

>

>

> Hall Melinda <mlndhall@...> wrote:

> Do any of you have children who have mysterious aches

> and/or pains that come on for no reason-or so it

> appears?

>

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

My daughter was always like this before starting the gfcf diet and

still a little now. At 5 she can tell me where it is and I

identified that she gets heartburn, stomach gas, and headaches. She

sometimes can eat some nitrates but other times gets headaches. The

heartburn would be from something her body can not deal with that I

have not identified yet. Before the diet she had a bloated belly

all the time and constipation. She was always burping and crying in

pain. When I removed milk she immediately stopped being constipated

and complained of less stomach pain. Also food dyes cause headaches

and stomach pain in some people.

> > Do any of you have children who have mysterious aches

> > and/or pains that come on for no reason-or so it

> > appears?

> >

> >

> >

> >

> >

> >

> > __________________________________________________

> >

[Guest guest]

THANKS, I'll do my best to keep them away from gluten and stuff but they are

both hooked on caffeine,pdoc knows this and it calms them down whereas it

would make me jittery. Had I known all this when they were younger it would

be easier to start the gfcf diet As it is, I'm doing good to get them to

eat much of " other " foods and take their meds daily... Mine rarely " do " milk

products, an occasional yogurt. I'll see if next time they eat milk products

they get a tummy ache...

Toni

Re: ( ) " Aches and pains "

> My daughter was always like this before starting the gfcf diet and

> still a little now. At 5 she can tell me where it is and I

> identified that she gets heartburn, stomach gas, and headaches. She

> sometimes can eat some nitrates but other times gets headaches. The

> heartburn would be from something her body can not deal with that I

> have not identified yet. Before the diet she had a bloated belly

> all the time and constipation. She was always burping and crying in

> pain. When I removed milk she immediately stopped being constipated

> and complained of less stomach pain. Also food dyes cause headaches

> and stomach pain in some people.

>

>

>> > Do any of you have children who have mysterious aches

>> > and/or pains that come on for no reason-or so it

>> > appears?

>> >

>> >

>> >

>> >

>> >

>> >

>> > __________________________________________________

>> >

[Guest guest]

Hi Marie, you have my sympathy as I am in the same boat. Just

increased my meds and feel worse rather than better. Hope we both feel

better soon.

Lynne

>

> Hi All not been to good the last week aches and pains getting worse

as

> the days go on. i increased my armour to 4 grms because of pains and

i

> was feeling tired .I realise now the tiredness was through pain

killers

> (tramadol) which have made me constipated slightly but enough to

annoy

> me in my get well campaign. dont know wether it is the rain causing

it

> or what , yesterday was awful and to day my back is very painful plus

> every thing else connected to it. i do not seem to have any effects

> from upping my dose a few days early. Had my moan bye for now Marie

>

[Guest guest]

Are you taking any adrenal supplements Lynne?

Luv - Sheila

Hi Marie, you have my sympathy as I am in the same boat. Just increased my meds and feel worse rather than better. Hope we both feel better soon.Lynne

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[Guest guest]

Funny you should say that I have just increased my meds, well 3 weeks ago and I seem to be feeling worse rather than better but now Know its my adrenal that are preventing me from getting as well as I should and I have just started NAE and hoping it will help

From: sheilaturner <sheilaturner@...>Subject: Re: Re: aches and painsthyroid treatment Date: Sunday, 6 July, 2008, 6:20 PM

Are you taking any adrenal supplements Lynne?

Luv - Sheila

Hi Marie, you have my sympathy as I am in the same boat. Just increased my meds and feel worse rather than better. Hope we both feel better soon.Lynne

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[Guest guest]

Ditto

I am suffering terribly from pain at the mo and it is all adrenal,

starts usually about 5 or 6 days after my dose was raised. OUCHY

Other symptoms definately point to adrenals. So needing more support

methinks and had to go back down on my Armour.

Take care and good luck with those adrenals, please let me know if

your pains ease off.

luv Dawnx

[Guest guest]

HI Dawn

Remind us what you are taking for your adrenals, how long you have been taking it and when was your last increase/decrease? Are you taking whatever you are on a regular basis - and do you increase at the same time as you try to increase Armour - or before.

Luv - Sheila

DittoI am suffering terribly from pain at the mo and it is all adrenal,starts usually about 5 or 6 days after my dose was raised. OUCHYOther symptoms definately point to adrenals. So needing more supportmethinks and had to go back down on my Armour.Take care and good luck with those adrenals, please let me know ifyour pains ease off.luv DawnxNo virus found in this incoming message.

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[Guest guest]

Hi Shiela

I had to go to 'on demand' with hc cream as it was making my numb

emotionally (like an automaton) and in 15mg was still hard for me to

be accurate measuring as it leaked out into my bag from the syring so

I started doing it when I felt anxious.

I reverted to ACE 4 times a day BIOMAX which was quite good but when I

ran out I ordered some more liquid ACE from US but it got held up at

customs for about 3 weeks and I was without it for at least 14 days

during which time I was just using hc cream when I felt rotton. I

suppose this did not help things. Looks like I will run out again in

about another 8 days of Adrenal Aide but don't want to go through all

that waiting again and also cannot afford the same thing (customs) so

I am not sure what I will be suppoprting with next, maybe more hc

cream again titrated better but I am getting little bruises with it.

I have been supplementing like this since I found I could not tolerate

NAE after a couple of weeks in the beginning of my treatment.

To summerise

ACE liquid adnrenail aide 6 drops 4x daily

500 mg vit C with bioflavs (some more c in other tabs I take too)

b comp

b 12

hc cream on demand

I don't put it up when I raise Armour, should I?

I am still afraid of oral steroids on my stomach so have not gone that

route yet, I am considering prednisalone but if I couldn't get hold of

them at any time that would be dangerous to suddenly come off so that

scares me as my doc doesn't prescribe it and I am afraid, it involves

planning ahead lol, not my best at that right now.

I know I sound hopeless and disorganised, that is probably true of me

and is probably one reason why I am still not well. However I have

read a lot of people who are much more organised and on oral HC who

are still having same problems as me so I don't know which way to turn

really Shiela. The armour alone would be easy, it is the rest that is

complicated aghhhh.

lotsa luv and God bless

Dawnx

>

> HI Dawn

>

> Remind us what you are taking for your adrenals, how long you have

been taking it and when was your last increase/decrease? Are you

taking whatever you are on a regular basis - and do you increase at

the same time as you try to increase Armour - or before.

>

> Luv - Sheila

>

>

[Guest guest]

>

> Are you taking any adrenal supplements Lynne?

>

> Luv - Sheila

>

>

>

> Hi Sheila, No all I take at the moment is Levothyroxine 50mcg

daily. I was diagnosed by my GP who was concerned that one of my eyes

seemed to be bulging. So far have seen nobody else at all. I think if

my angina continues at this level I may contact the cardiology clinic

at the local hospital to see if I need to be checked over again.

I really do appreciate the help and advice you have all given me so far.

Lynne

[Guest guest]

Hi Dawn,

Try isocort

http://www.forresthealth.com

> http://www.forresthealth.com

http://www.wellnessworks.com

You may feel more comfortable with deltacortril if you can get it as it is

buffered so it does not upset the stomach.

I am concerned for your skin with using hc cream all the time even if you

rotate the places. I have just had 6 weeks of unpleasant treatment for an

anal fissure which the doc told me was probably caused by using pile cream

with hydrocortisone in too often (but if they had treated the piles quicker

then I wouldn't have had to use the cream).

thyroid treatment

Subject: Re: aches and pains

Hi Shiela

I had to go to 'on demand' with hc cream as it was making my numb

emotionally (like an automaton) and in 15mg was still hard for me to

be accurate measuring as it leaked out into my bag from the syring so

I started doing it when I felt anxious.

lotsa luv and God bless

Dawnx

>

> HI Dawn

>

> Remind us what you are taking for your adrenals, how long you have

been taking it and when was your last increase/decrease? Are you

taking whatever you are on a regular basis - and do you increase at

the same time as you try to increase Armour - or before.

>

> Luv - Sheila

>

>

------------------------------------

Messages are not a substitute for professional medical advice. Always

consult with a suitably qualified practitioner before changing

medication.

[Guest guest]

Hi dawn,

Yes, HC with a coating to prevent gastric problems.

I too had problems with Echinacea- foul copious wind so bad you wouldn't

believe- my family asked me to stop taking it as I was so foul- couldn't go

into public enclosed spaces!!!

Subject: Re: aches and pains

Thanks

Was worried about Isocort due to the echinacea content and my antibodies.

What is deltacortril? Is that pure hc?

Lotsa luv

Dawnx

------------------------------------

Messages are not a substitute for professional medical advice. Always

consult with a suitably qualified practitioner before changing

medication.

[Guest guest]

Greetings all! As I wrote yesterday the searing pain in my wrists

subsided. And for that I am so thankful. But today I am left with achy

arms. I do not know if it is the muscles that hurt or the ligaments or

tendons. It feels like I have the flu. I do not know what is going on.

Anyone have any ideas?

Blessings to everyone

wendy

[Guest guest]

Hi !

do you know if you have FMS with your inflammatory arthritis? It's a very

typical symptom to get the sharp stabbing pain in an area and then to have

constant flu like symptoms.  There are several other symptoms as well as a

criteria of trigger points that need to be met.

From: <wendymp@...>

Subject: [ ] Aches and pains

Date: Tuesday, July 29, 2008, 10:10 PM

Greetings all! As I wrote yesterday the searing pain in my wrists

subsided. And for that I am so thankful. But today I am left with achy

arms. I do not know if it is the muscles that hurt or the ligaments or

tendons. It feels like I have the flu. I do not know what is going on.

Anyone have any ideas?

Blessings to everyone

wendy

[Guest guest]

Hi ! Thanks for replying. I don't know if I have FMS. Is

that fibromyalgia? I was just diagnosed with ra last month and up

until the other day had constant pain in my wrists. It felt like an

ice pick was jamming through there. In varying degrees though. lol

wendy

>

> From: <wendymp@...>

> Subject: [ ] Aches and pains

>

> Date: Tuesday, July 29, 2008, 10:10 PM

>

>

>

>

>

>

> Greetings all! As I wrote yesterday the searing pain in my wrists

> subsided. And for that I am so thankful. But today I am left with

achy

> arms. I do not know if it is the muscles that hurt or the ligaments

or

> tendons. It feels like I have the flu. I do not know what is going

on.

> Anyone have any ideas?

>

> Blessings to everyone

> wendy

>

>

>

>

>

>

>

>

>

>

>

>

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>