Guest guest Posted September 25, 2000 Report Share Posted September 25, 2000 Hi Cherita!! I'm Jayne- though everyone calls me JJ- I was diagnosed way back in 1987 when I was 17... WELCOME!! will look forward to your posts! ) JJ ------------------------------------------ >> Hi Everyone,>>>> Welcome Cherita to the Crew! If any of you know new 2's who'd like to>> join us, please send them my way! Here is Cherita's bio and thanks to>> Sally and Harold for emailing me.>>>> ~~~>> My name is Cherita , I'm 24, and I was diagnosed with NF2 in April>> of 1997. I have had skin lesions on various areas of my body for as>> long as I can remember, but none of my doctors had ever given me a>> diagnosis as to why they were present. In 1994, I discovered that I had>> a significant hearing loss in my right ear. I saw an ENT who thought I>> had suffered some sort of sudden hearing loss. He gave me drops to put>> in my nose, and sent me on my way.>>>> In April of 1997, one day before I was to begin my senior year finals, I>> had a grand mal seizure in my sleep. Prior to this, I had a terrible>> headache. One of my professors suggested that I drink something with>> caffeine. I thought to myself, " what has more caffeine than Vivarin .">> I went to the store, took two pills, and was asleep after maybe an hour.>> I woke up in the hospital surrounded by doctors. They told me what had>> happened, and then proceeded to tell me that I had a brain tumor which>> was approximately the size of a small orange, and that it had to be>> removed. Now I have a pretty strange sense of humor; the first thing I>> said was, " cool, no finals! " They also told me about the bilateral>> acoustic neuromas as well as a neuroma which has paralyzed one of my>> vocal cords, and several other small lesions in my brain. At last the>> mystery was solved.>>>> I was in Virginia at the time, and I knew that no one was going to cut>> my head open except for the doctors at s Hopkins in my homestate of>> land. I went home for a consult a week later, went back to Virginia>> to graduate college, and then went back to land to be admitted into>> the hospital for surgery that next day. That was a pretty wild couple of>> weeks.>>>> My recovery was quick. I did, however have to take Dilantin for three>> months, and undergo radiosurgery a few months after that.>>>> I have been living in New Jersey with my fiance since March of 1998.>> Everything since then has been fine except for a mild setback this past>> June, when I had another seizure. That was probably the first time I>> really began to get annoyed with this disease. Now, I'm back on>> medication, but living what I consider to be a pretty happy, and normal>> life.>>>> No one else in my family has shown any signs of having NF2, therefore I>> look forward to meeting more people who are willing to share their>> experiences. We're such an "exclusive" bunch, that I find it very>> interesting to see how such a rare disease can manifest itself in so>> many different ways.>>>> I look forward to being a part of the crew. Hope to hear from you soon.>> Quote Link to comment Share on other sites More sharing options...
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