Guest guest Posted August 2, 2008 Report Share Posted August 2, 2008 Diane, Group Haaaaaaaaaa. It was about 20 years ago my toe did that. Now my whole foot does it. I got to walk it out. It usually happens when I am about to go to sleep. I learned what it was years ago. Kinda hard to explain. My husband calls it a musyle spasm. Or a charley horse. He says real cutely. Walk it off Clora. Walk it off Clora haaaaa. Cause I am in bed hollering its my foot again its my foot again. lol. Clora > New to the group....after last night I figured it was time to make some > connections with others who are also dealing with RA.... It was pretty > strange....I was sitting on the couch with my feet up when I started to > get a cramp in my left foot...actually, it was my middle toe. Usually > if I get a cramp, I can pull out of it by flexing my toes. This time, > it didn't work. In fact after releasing my toes from a flex, the > middle toe sort of popped out of alignment, not forward but almost > backwards...I guess hyperextension would be the best way to describe > it. I tried to push my toes against the coffee table (putting them > back into neutral alignment) but it happened again....It really freaked > me ....nothing like this has ever happened before. I ended up keep my > feet perfectly flat on the floor and after about 15 minutes, everything > was back to normal. > I have had RA for almost 2 years now and have been on Enbrel for one. > I have very little joint degradation (xrays) but lots of inflammation > that recently, makes walking, especially down stairs, a > challenge....Not all the time...some days are really good but some > days, like today, when it took everything I have to get down the > stairs. I really really hate this disease!!! > Diane > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2008 Report Share Posted August 2, 2008 Holy cow Diane! I get the same thing too. I thought I was going nuts because it is just the one toe, right next to the big toe and only that one. LOL Thanks for writing about it. And you are right this disease does suck! wendy --- In , " muddypotter1 " <muddypotter1@...> wrote: > > New to the group....after last night I figured it was time to make some > connections with others who are also dealing with RA.... It was pretty > strange....I was sitting on the couch with my feet up when I started to > get a cramp in my left foot...actually, it was my middle toe. Usually > if I get a cramp, I can pull out of it by flexing my toes. This time, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2008 Report Share Posted August 3, 2008 Diane and , I have this toe cramping also. Didn't post about it as I thought everyone would certify me insane. It started when I was taking a nap. First the great toe on the right foot....OUCH. Then the 4 toes on the left foot. It was the muscles that make me curl my toes. And boy did they ever curl under. So the only way to break the spasm was to pull my toes up toward my face. another ouch here. I got up and drank 3 glasses of water and ate a baked potatoe. I must have been either low on potassium or dehydrated. So figured I would cover both bases. It is nice to know that I am not nuts. Thanks to you both for sharing. Maxine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2008 Report Share Posted August 3, 2008 Maxine haaaaaaaaaaaaaaaaaaaaaa. yep I had that problem for many years. I end up eating cause I am hungry I thought. Low on sodium or potassium. Who knows lol?????????? I hate when it starts I am about to sleep and darn. I got to walk my toes off. THats what helps my toe cramps. haaaaaaaaaaaa. Anyone here knows what that is. I think its a autonaumic problem with the muscyles. When the fibers just work automatically. I remember my instructor said that when the muscyles go into spasms, its unknown why, Maybe they have figured it out since my college days decades ago. Clora > Diane and , > I have this toe cramping also. Didn't post about it as I thought > everyone would certify me insane. > > It started when I was taking a nap. First the great toe on the right > foot....OUCH. Then the 4 toes on the left foot. It was the muscles > that make me curl my toes. And boy did they ever curl under. So the > only way to break the spasm was to pull my toes up toward my face. > another ouch here. > > I got up and drank 3 glasses of water and ate a baked potatoe. I must > have been either low on potassium or dehydrated. So figured I would > cover both bases. > > It is nice to know that I am not nuts. Thanks to you both for sharing. > Maxine > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 Welcome, Diane. I have cramping in my toes and feet that I never had before, too. I'm sorry you are having this, but its good to know that its not just me. My rheumy suggests Gatorade or Seltzer Water to replace electrolytes. Bananas help, too. Stairs are a biggie for me, also. As if it weren't bad enough that I have a fear of heights, now its compounded with stepping down. I hate this disease as well. But, I guess the statement " that which does not kill us, makes us stronger " would apply to all of us. We may not be stronger physically, but emotionally we MUST have the market cornered! Doreen --- In , " muddypotter1 " <muddypotter1@...> wrote: > > New to the group....after last night I figured it was time to make > some connections with others who are also dealing with RA.... It > was pretty strange....I was sitting on the couch with my feet up > when I started to get a cramp in my left foot...actually, it was my > middle toe. Usually if I get a cramp, I can pull out of it by > flexing my toes. This time, it didn't work. In fact after > releasing my toes from a flex, the middle toe sort of popped out of > alignment, not forward but almost backwards...I guess > hyperextension would be the best way to describe it. I tried to > push my toes against the coffee table (putting them back into > neutral alignment) but it happened again....It really freaked > me ....nothing like this has ever happened before. I ended up keep > my feet perfectly flat on the floor and after about 15 minutes, > everything was back to normal. I have had RA for almost 2 years now > and have been on Enbrel for one. I have very little joint > degradation (xrays) but lots of inflammation that recently, makes > walking, especially down stairs, a challenge....Not all the > time...some days are really good but some days, like today, when it > took everything I have to get down the stairs. I really really > hate this disease!!! > Diane > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2008 Report Share Posted August 5, 2008 I have had that several times as well and it really hurts. and not (not sure if it is related)but my arches hurt if I am not my feet too much as well as my toes...my toes and fingers started hurting me before anything else...my RA gave me Lidoderm patches to put on them.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2008 Report Share Posted August 5, 2008 Thanks, Dorothy!! You are right - it was tonic water. That wonderful brain fog that comes with FMS causes me to mix up my words something horrible. Thank you for correcting me...........Doreen > > I'm not sure seltzer has any electrolytes. I do know that drinking > tonic water can help cramps since it has some quinine in it. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2008 Report Share Posted August 5, 2008 Before getting diaginosed this year with the ra and vit d deficiency..I used to get get cramps in my toes and arches...I could not figure it out because my electolytes was also fine....So, when I saw the rheumy the forst time and he did a vit d level and it eas low....After a week of being on prescription strengh vit d,,,My cramps are gone...I couldn't believe after all this time this is what it was...All in and short just wondering if you had a vit d level lately???? diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2008 Report Share Posted August 5, 2008 kelly and everyone; I use lidoderm patches for my lower back 2 of them. And one at the top of my neck is a hump I put it on. It hurts intensely the hump and lower lower back below the waist line. Hump could be from the weight gain or the osteo. Its a small hump. My rheumy said the lower pain is from osteo. I have the same type of toe cramping since I was a teenager, I am 54 now. My question is, How do you get patches on your hands and feet. I fingure you cut the patch out to fit like a forming band aid. Love you all gentle hugs to everyone; Clora > > I have had that several times as well and it really hurts. and not (not sure if it is related)but my arches hurt if I am not my feet too much as well as my toes...my toes and fingers started hurting me before anything else...my RA gave me Lidoderm patches to put on them.. > Quote Link to comment Share on other sites More sharing options...
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