Guest guest Posted January 27, 2002 Report Share Posted January 27, 2002 I am 48 and was diagnosed with a fibroid over two years ago. My fibroid has been diagnosed as a 5 week pregnancy size. I haven't had any problems until recently. And the problems haven't been major. I was told two years ago that I just have to wait, that they will shrink with menapause. I believe I am in menapause, although no doctor will tell you that. I just got my second opinion and he said I needed a hysterectomy. I am canceling the surgery on Monday, I do not feel that is the best choice. I have no pain, no cramps except when my period starts. Last weekend was pretty bad, but for the first time in months I only had a 5 day period and it wasn't even heavy. I am going to go for my third opinion, when I call the doctor on Monday. If there isn't any pain or problems should they be left alone? No one will answer that question. At 09:13 PM 1/27/2002 -0500, you wrote: >At 1/27/02 08:13 PM, coollady wrote: > > Loss of PC muscle control is a pretty significant, but > >not talked > >about symptom of fibroid tumors. The PC muscle is important for keeping you > >from > >experiencing urine leakage > >I'm glad you mentioned this because it is probably the most significant >symptom I have. Sometimes it is all I can do to make it to the bathroom. >Sometimes I have no control especially when my bladder is full. > >Only recently this was at its worst just before my period but it doesn't >seem to make much difference now. > >My fibroid was diagnosed as 20 wk size four months ago. I haven't gone back >to the gyn since because I was trying to hold off doing anything until I >secured a stable job. Well, I have a job now but they are going through >layoffs after experiencing a loss last year! Just my luck! Besides, their >benefits are awful. They just switched plans after I joined and the >hospitalization deductible is $1250! My COBRA deductible is zero so I think >I will see if I can stay on this when my 90 day period is up at the end of >Feb. > >I also believe that you need to be employed their six months before you are >entitled to sick leave but I need to check that. > >I am concerned I will need to do something sooner rather than later. > >I have also begun to experience some discomfort when I lie on my side in >bed at night but it depends on exactly what position I am lying in as to >whether I get problems. > >I used to be able to bend over without a problem to tie my tennis shoes but >not any more. I feel I am resting on a huge bulge - and I am! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2002 Report Share Posted January 27, 2002 I am 48 and was diagnosed with a fibroid over two years ago. My fibroid has been diagnosed as a 5 week pregnancy size. I haven't had any problems until recently. And the problems haven't been major. I was told two years ago that I just have to wait, that they will shrink with menapause. I believe I am in menapause, although no doctor will tell you that. I just got my second opinion and he said I needed a hysterectomy. I am canceling the surgery on Monday, I do not feel that is the best choice. I have no pain, no cramps except when my period starts. Last weekend was pretty bad, but for the first time in months I only had a 5 day period and it wasn't even heavy. I am going to go for my third opinion, when I call the doctor on Monday. If there isn't any pain or problems should they be left alone? No one will answer that question. At 09:13 PM 1/27/2002 -0500, you wrote: >At 1/27/02 08:13 PM, coollady wrote: > > Loss of PC muscle control is a pretty significant, but > >not talked > >about symptom of fibroid tumors. The PC muscle is important for keeping you > >from > >experiencing urine leakage > >I'm glad you mentioned this because it is probably the most significant >symptom I have. Sometimes it is all I can do to make it to the bathroom. >Sometimes I have no control especially when my bladder is full. > >Only recently this was at its worst just before my period but it doesn't >seem to make much difference now. > >My fibroid was diagnosed as 20 wk size four months ago. I haven't gone back >to the gyn since because I was trying to hold off doing anything until I >secured a stable job. Well, I have a job now but they are going through >layoffs after experiencing a loss last year! Just my luck! Besides, their >benefits are awful. They just switched plans after I joined and the >hospitalization deductible is $1250! My COBRA deductible is zero so I think >I will see if I can stay on this when my 90 day period is up at the end of >Feb. > >I also believe that you need to be employed their six months before you are >entitled to sick leave but I need to check that. > >I am concerned I will need to do something sooner rather than later. > >I have also begun to experience some discomfort when I lie on my side in >bed at night but it depends on exactly what position I am lying in as to >whether I get problems. > >I used to be able to bend over without a problem to tie my tennis shoes but >not any more. I feel I am resting on a huge bulge - and I am! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2002 Report Share Posted January 27, 2002 I am 48 and was diagnosed with a fibroid over two years ago. My fibroid has been diagnosed as a 5 week pregnancy size. I haven't had any problems until recently. And the problems haven't been major. I was told two years ago that I just have to wait, that they will shrink with menapause. I believe I am in menapause, although no doctor will tell you that. I just got my second opinion and he said I needed a hysterectomy. I am canceling the surgery on Monday, I do not feel that is the best choice. I have no pain, no cramps except when my period starts. Last weekend was pretty bad, but for the first time in months I only had a 5 day period and it wasn't even heavy. I am going to go for my third opinion, when I call the doctor on Monday. If there isn't any pain or problems should they be left alone? No one will answer that question. At 09:13 PM 1/27/2002 -0500, you wrote: >At 1/27/02 08:13 PM, coollady wrote: > > Loss of PC muscle control is a pretty significant, but > >not talked > >about symptom of fibroid tumors. The PC muscle is important for keeping you > >from > >experiencing urine leakage > >I'm glad you mentioned this because it is probably the most significant >symptom I have. Sometimes it is all I can do to make it to the bathroom. >Sometimes I have no control especially when my bladder is full. > >Only recently this was at its worst just before my period but it doesn't >seem to make much difference now. > >My fibroid was diagnosed as 20 wk size four months ago. I haven't gone back >to the gyn since because I was trying to hold off doing anything until I >secured a stable job. Well, I have a job now but they are going through >layoffs after experiencing a loss last year! Just my luck! Besides, their >benefits are awful. They just switched plans after I joined and the >hospitalization deductible is $1250! My COBRA deductible is zero so I think >I will see if I can stay on this when my 90 day period is up at the end of >Feb. > >I also believe that you need to be employed their six months before you are >entitled to sick leave but I need to check that. > >I am concerned I will need to do something sooner rather than later. > >I have also begun to experience some discomfort when I lie on my side in >bed at night but it depends on exactly what position I am lying in as to >whether I get problems. > >I used to be able to bend over without a problem to tie my tennis shoes but >not any more. I feel I am resting on a huge bulge - and I am! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2002 Report Share Posted January 27, 2002 In my opinion 5 weeks pregnancy uterus size is a small size. Some of us have 12 -16 weeks. You also stated that symptoms are not a major concern for you. Why would you consider hysterectomy or any other treatment in this matter. Why not just wait and observe what is happening with them. As you mentioned you may be entering menopause then why not to just simply WAIT. YOUR-EMAIL I am 48 and was diagnosed with a fibroid over two years ago. My fibroid has been diagnosed as a 5 week pregnancy size. I haven't had any problems until recently. And the problems haven't been major. I was told two years ago that I just have to wait, that they will shrink with menopause. I believe I am in menopause, although no doctor will tell you that. I just got my second opinion and he said I needed a hysterectomy. I am canceling the surgery on Monday, I do not feel that is the best choice. I have no pain, no cramps except when my period starts. Last weekend was pretty bad, but for the first time in months I only had a 5 day period and it wasn't even heavy. I am going to go for my third opinion, when I call the doctor on Monday. If there isn't any pain or problems should they be left alone? No one will answer that question. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2002 Report Share Posted January 27, 2002 In my opinion 5 weeks pregnancy uterus size is a small size. Some of us have 12 -16 weeks. You also stated that symptoms are not a major concern for you. Why would you consider hysterectomy or any other treatment in this matter. Why not just wait and observe what is happening with them. As you mentioned you may be entering menopause then why not to just simply WAIT. YOUR-EMAIL I am 48 and was diagnosed with a fibroid over two years ago. My fibroid has been diagnosed as a 5 week pregnancy size. I haven't had any problems until recently. And the problems haven't been major. I was told two years ago that I just have to wait, that they will shrink with menopause. I believe I am in menopause, although no doctor will tell you that. I just got my second opinion and he said I needed a hysterectomy. I am canceling the surgery on Monday, I do not feel that is the best choice. I have no pain, no cramps except when my period starts. Last weekend was pretty bad, but for the first time in months I only had a 5 day period and it wasn't even heavy. I am going to go for my third opinion, when I call the doctor on Monday. If there isn't any pain or problems should they be left alone? No one will answer that question. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 remember the fibroid never shrinks 100% from an UAE proceedure. i chose myomectomy because i am going to go home without these monsters inside me anymore. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 remember the fibroid never shrinks 100% from an UAE proceedure. i chose myomectomy because i am going to go home without these monsters inside me anymore. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 well all i know is what i was told by my doctor and that was that the common thing to do is leave fibroids alone unless the quality of the life of the patient is effected. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 well all i know is what i was told by my doctor and that was that the common thing to do is leave fibroids alone unless the quality of the life of the patient is effected. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 if i had a 5 week pregnancy sized uterus and were 48 and thought i might be entering menapause and i had no quality of life changes regarding my fibroids i would do nothing at all! i think most of us would feel the same way. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 if i had a 5 week pregnancy sized uterus and were 48 and thought i might be entering menapause and i had no quality of life changes regarding my fibroids i would do nothing at all! i think most of us would feel the same way. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 -What a coincidence, just today or in the last two days, I have decided that time has come for action. This wait and see is no longer good enough. This has always been the big question for me. It is now 8 years that I am coping with the mymoma. It started in 1994 6cm, remained there but grew in 1998 to 13cm and started to make problems. No pressures, but heavy bleeding. I landed in hospital, got a GNHR-treatment and am now since 6 months back on normal cycles. First bleeding was moderate but very long, sometimes the whole month. Friday, clots came out of my body, litteraly pluggin the bath tube drainage. I thought I am going to die. At the emergency station, I realized, because they told me, that there is no medication, nothing available to make such a bleeding stop, they would try D and C and if this does not work it is hyterectomie in urgency. My bloodlevels dropped from 12.8 Haemoglobin to 8,9 within 2 days. I am now back home again, and bleeding is reduced, but I can tell you, I have slowly but definitively had enough. This is no longer a life. Each month, this deadly fear, is the bleeding going to stop in time or not. Then these long bleedings, over a month. I was always scared by Hysterektomie to loose my sexuality, but currently, I have no sexuality at all. I was asked to do researches in the family regarding menopause. It is 50 from my mothers side and when I telephoned around, I found out everyone was suffering from Myoma. It is 52 from fathers side. I am not, I say it again, so I hear it by myself, I am not going to pass the next 4 years like that. I cannot go on psycologically anylonger. There is more to life than keeping a uterus. I am going to see my gyneco this afternoon to discuss what is to be done. I will, yes, this time, I will ask for help and assistance to come to a decision regarding this fibroid and regarding my life. My husband was deadly pale when he drove me to the emergency station on Friday. I sent him home, told him that I would handle this on my own. He could hardly speak. He is also suffering from this. Our whole relationship is currently suffering from my fear and this situation not knowing what will happen next. I was extremly lucky on Friday. I got treated by a male assistant doctor and he was shocked at my bleeding. His blouse got spoiled within seconds. Then suddenly the chief-surgeon appeared on the station and as we had talked already together regarding operation, embolization, he came over. And he took over, he gave orders, and when I touched his arm to thank him, he took my hand and held it and assured me and offered me help, and if I don't want hysterectomy, they have to propose me alternatives was what he said.We are here for you to do what you want. May be next time, things will not be going so well, he may not be there and what I really do not want at all, needs to be prevented at all costs, is a emergency hysterectomy, by the doctor who happens to be on service that day. To take action, from my experience therefore, depends on your side effects and your psycological strenght to go through all these situations, I am reading from other womens account as well. For years, I knew very deep inside me, no action is the right thing, now I suddenly now, again from deep inside me, it is time for action. Regards to all Irene -- In uterinefibroids@y..., sun4evr@y... wrote: > At 1/27/02 08:13 PM, coollady wrote: > > Loss of PC muscle control is a pretty significant, but > >not talked > >about symptom of fibroid tumors. The PC muscle is important for keeping you > >from > >experiencing urine leakage > > I'm glad you mentioned this because it is probably the most significant > symptom I have. Sometimes it is all I can do to make it to the bathroom. > Sometimes I have no control especially when my bladder is full. > > Only recently this was at its worst just before my period but it doesn't > seem to make much difference now. > > My fibroid was diagnosed as 20 wk size four months ago. I haven't gone back > to the gyn since because I was trying to hold off doing anything until I > secured a stable job. Well, I have a job now but they are going through > layoffs after experiencing a loss last year! Just my luck! Besides, their > benefits are awful. They just switched plans after I joined and the > hospitalization deductible is $1250! My COBRA deductible is zero so I think > I will see if I can stay on this when my 90 day period is up at the end of Feb. > > I also believe that you need to be employed their six months before you are > entitled to sick leave but I need to check that. > > I am concerned I will need to do something sooner rather than later. > > I have also begun to experience some discomfort when I lie on my side in > bed at night but it depends on exactly what position I am lying in as to > whether I get problems. > > I used to be able to bend over without a problem to tie my tennis shoes but > not any more. I feel I am resting on a huge bulge - and I am! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 Irene: I too have come to the conclusion that I must take action now. I do not want to end in an emergency room in the middle of a cold night. I will be making an appointment with my doctor to discuss my options. This group has helped me a lot. We are all strong women and it is too bad that we all have to suffer like this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 Well I have been going through this for 10 years. The treatment 10 years ago help me so much. But the last 2 years have been horrible and I just went through a myomectomy, laparoscopy for the removal of the fibroids. She only removed partial in the cervix, did the d & c but nothing to the fibroid in the back of the uterus. I am in so much pain and bleeding like you know what. I feel for you and am too very frustrated sick and tired of all the pain and no relief. I am very depressed and waiting again on the doctor to call. Good luck and if they suggest the hysterectomy I would do it. I am going to do it myself. That seems to be the only relief in sight. Libby Re: When to take action -What a coincidence, just today or in the last two days, I have decided that time has come for action. This wait and see is no longer good enough. This has always been the big question for me. It is now 8 years that I am coping with the mymoma. It started in 1994 6cm, remained there but grew in 1998 to 13cm and started to make problems. No pressures, but heavy bleeding. I landed in hospital, got a GNHR-treatment and am now since 6 months back on normal cycles. First bleeding was moderate but very long, sometimes the whole month. Friday, clots came out of my body, litteraly pluggin the bath tube drainage. I thought I am going to die. At the emergency station, I realized, because they told me, that there is no medication, nothing available to make such a bleeding stop, they would try D and C and if this does not work it is hyterectomie in urgency. My bloodlevels dropped from 12.8 Haemoglobin to 8,9 within 2 days. I am now back home again, and bleeding is reduced, but I can tell you, I have slowly but definitively had enough. This is no longer a life. Each month, this deadly fear, is the bleeding going to stop in time or not. Then these long bleedings, over a month. I was always scared by Hysterektomie to loose my sexuality, but currently, I have no sexuality at all. I was asked to do researches in the family regarding menopause. It is 50 from my mothers side and when I telephoned around, I found out everyone was suffering from Myoma. It is 52 from fathers side. I am not, I say it again, so I hear it by myself, I am not going to pass the next 4 years like that. I cannot go on psycologically anylonger. There is more to life than keeping a uterus. I am going to see my gyneco this afternoon to discuss what is to be done. I will, yes, this time, I will ask for help and assistance to come to a decision regarding this fibroid and regarding my life. My husband was deadly pale when he drove me to the emergency station on Friday. I sent him home, told him that I would handle this on my own. He could hardly speak. He is also suffering from this. Our whole relationship is currently suffering from my fear and this situation not knowing what will happen next. I was extremly lucky on Friday. I got treated by a male assistant doctor and he was shocked at my bleeding. His blouse got spoiled within seconds. Then suddenly the chief-surgeon appeared on the station and as we had talked already together regarding operation, embolization, he came over. And he took over, he gave orders, and when I touched his arm to thank him, he took my hand and held it and assured me and offered me help, and if I don't want hysterectomy, they have to propose me alternatives was what he said.We are here for you to do what you want. May be next time, things will not be going so well, he may not be there and what I really do not want at all, needs to be prevented at all costs, is a emergency hysterectomy, by the doctor who happens to be on service that day. To take action, from my experience therefore, depends on your side effects and your psycological strenght to go through all these situations, I am reading from other womens account as well. For years, I knew very deep inside me, no action is the right thing, now I suddenly now, again from deep inside me, it is time for action. Regards to all Irene -- In uterinefibroids@y..., sun4evr@y... wrote: > At 1/27/02 08:13 PM, coollady wrote: > > Loss of PC muscle control is a pretty significant, but > >not talked > >about symptom of fibroid tumors. The PC muscle is important for keeping you > >from > >experiencing urine leakage > > I'm glad you mentioned this because it is probably the most significant > symptom I have. Sometimes it is all I can do to make it to the bathroom. > Sometimes I have no control especially when my bladder is full. > > Only recently this was at its worst just before my period but it doesn't > seem to make much difference now. > > My fibroid was diagnosed as 20 wk size four months ago. I haven't gone back > to the gyn since because I was trying to hold off doing anything until I > secured a stable job. Well, I have a job now but they are going through > layoffs after experiencing a loss last year! Just my luck! Besides, their > benefits are awful. They just switched plans after I joined and the > hospitalization deductible is $1250! My COBRA deductible is zero so I think > I will see if I can stay on this when my 90 day period is up at the end of Feb. > > I also believe that you need to be employed their six months before you are > entitled to sick leave but I need to check that. > > I am concerned I will need to do something sooner rather than later. > > I have also begun to experience some discomfort when I lie on my side in > bed at night but it depends on exactly what position I am lying in as to > whether I get problems. > > I used to be able to bend over without a problem to tie my tennis shoes but > not any more. I feel I am resting on a huge bulge - and I am! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 Well I have been going through this for 10 years. The treatment 10 years ago help me so much. But the last 2 years have been horrible and I just went through a myomectomy, laparoscopy for the removal of the fibroids. She only removed partial in the cervix, did the d & c but nothing to the fibroid in the back of the uterus. I am in so much pain and bleeding like you know what. I feel for you and am too very frustrated sick and tired of all the pain and no relief. I am very depressed and waiting again on the doctor to call. Good luck and if they suggest the hysterectomy I would do it. I am going to do it myself. That seems to be the only relief in sight. Libby Re: When to take action -What a coincidence, just today or in the last two days, I have decided that time has come for action. This wait and see is no longer good enough. This has always been the big question for me. It is now 8 years that I am coping with the mymoma. It started in 1994 6cm, remained there but grew in 1998 to 13cm and started to make problems. No pressures, but heavy bleeding. I landed in hospital, got a GNHR-treatment and am now since 6 months back on normal cycles. First bleeding was moderate but very long, sometimes the whole month. Friday, clots came out of my body, litteraly pluggin the bath tube drainage. I thought I am going to die. At the emergency station, I realized, because they told me, that there is no medication, nothing available to make such a bleeding stop, they would try D and C and if this does not work it is hyterectomie in urgency. My bloodlevels dropped from 12.8 Haemoglobin to 8,9 within 2 days. I am now back home again, and bleeding is reduced, but I can tell you, I have slowly but definitively had enough. This is no longer a life. Each month, this deadly fear, is the bleeding going to stop in time or not. Then these long bleedings, over a month. I was always scared by Hysterektomie to loose my sexuality, but currently, I have no sexuality at all. I was asked to do researches in the family regarding menopause. It is 50 from my mothers side and when I telephoned around, I found out everyone was suffering from Myoma. It is 52 from fathers side. I am not, I say it again, so I hear it by myself, I am not going to pass the next 4 years like that. I cannot go on psycologically anylonger. There is more to life than keeping a uterus. I am going to see my gyneco this afternoon to discuss what is to be done. I will, yes, this time, I will ask for help and assistance to come to a decision regarding this fibroid and regarding my life. My husband was deadly pale when he drove me to the emergency station on Friday. I sent him home, told him that I would handle this on my own. He could hardly speak. He is also suffering from this. Our whole relationship is currently suffering from my fear and this situation not knowing what will happen next. I was extremly lucky on Friday. I got treated by a male assistant doctor and he was shocked at my bleeding. His blouse got spoiled within seconds. Then suddenly the chief-surgeon appeared on the station and as we had talked already together regarding operation, embolization, he came over. And he took over, he gave orders, and when I touched his arm to thank him, he took my hand and held it and assured me and offered me help, and if I don't want hysterectomy, they have to propose me alternatives was what he said.We are here for you to do what you want. May be next time, things will not be going so well, he may not be there and what I really do not want at all, needs to be prevented at all costs, is a emergency hysterectomy, by the doctor who happens to be on service that day. To take action, from my experience therefore, depends on your side effects and your psycological strenght to go through all these situations, I am reading from other womens account as well. For years, I knew very deep inside me, no action is the right thing, now I suddenly now, again from deep inside me, it is time for action. Regards to all Irene -- In uterinefibroids@y..., sun4evr@y... wrote: > At 1/27/02 08:13 PM, coollady wrote: > > Loss of PC muscle control is a pretty significant, but > >not talked > >about symptom of fibroid tumors. The PC muscle is important for keeping you > >from > >experiencing urine leakage > > I'm glad you mentioned this because it is probably the most significant > symptom I have. Sometimes it is all I can do to make it to the bathroom. > Sometimes I have no control especially when my bladder is full. > > Only recently this was at its worst just before my period but it doesn't > seem to make much difference now. > > My fibroid was diagnosed as 20 wk size four months ago. I haven't gone back > to the gyn since because I was trying to hold off doing anything until I > secured a stable job. Well, I have a job now but they are going through > layoffs after experiencing a loss last year! Just my luck! Besides, their > benefits are awful. They just switched plans after I joined and the > hospitalization deductible is $1250! My COBRA deductible is zero so I think > I will see if I can stay on this when my 90 day period is up at the end of Feb. > > I also believe that you need to be employed their six months before you are > entitled to sick leave but I need to check that. > > I am concerned I will need to do something sooner rather than later. > > I have also begun to experience some discomfort when I lie on my side in > bed at night but it depends on exactly what position I am lying in as to > whether I get problems. > > I used to be able to bend over without a problem to tie my tennis shoes but > not any more. I feel I am resting on a huge bulge - and I am! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 Well I have been going through this for 10 years. The treatment 10 years ago help me so much. But the last 2 years have been horrible and I just went through a myomectomy, laparoscopy for the removal of the fibroids. She only removed partial in the cervix, did the d & c but nothing to the fibroid in the back of the uterus. I am in so much pain and bleeding like you know what. I feel for you and am too very frustrated sick and tired of all the pain and no relief. I am very depressed and waiting again on the doctor to call. Good luck and if they suggest the hysterectomy I would do it. I am going to do it myself. That seems to be the only relief in sight. Libby Re: When to take action -What a coincidence, just today or in the last two days, I have decided that time has come for action. This wait and see is no longer good enough. This has always been the big question for me. It is now 8 years that I am coping with the mymoma. It started in 1994 6cm, remained there but grew in 1998 to 13cm and started to make problems. No pressures, but heavy bleeding. I landed in hospital, got a GNHR-treatment and am now since 6 months back on normal cycles. First bleeding was moderate but very long, sometimes the whole month. Friday, clots came out of my body, litteraly pluggin the bath tube drainage. I thought I am going to die. At the emergency station, I realized, because they told me, that there is no medication, nothing available to make such a bleeding stop, they would try D and C and if this does not work it is hyterectomie in urgency. My bloodlevels dropped from 12.8 Haemoglobin to 8,9 within 2 days. I am now back home again, and bleeding is reduced, but I can tell you, I have slowly but definitively had enough. This is no longer a life. Each month, this deadly fear, is the bleeding going to stop in time or not. Then these long bleedings, over a month. I was always scared by Hysterektomie to loose my sexuality, but currently, I have no sexuality at all. I was asked to do researches in the family regarding menopause. It is 50 from my mothers side and when I telephoned around, I found out everyone was suffering from Myoma. It is 52 from fathers side. I am not, I say it again, so I hear it by myself, I am not going to pass the next 4 years like that. I cannot go on psycologically anylonger. There is more to life than keeping a uterus. I am going to see my gyneco this afternoon to discuss what is to be done. I will, yes, this time, I will ask for help and assistance to come to a decision regarding this fibroid and regarding my life. My husband was deadly pale when he drove me to the emergency station on Friday. I sent him home, told him that I would handle this on my own. He could hardly speak. He is also suffering from this. Our whole relationship is currently suffering from my fear and this situation not knowing what will happen next. I was extremly lucky on Friday. I got treated by a male assistant doctor and he was shocked at my bleeding. His blouse got spoiled within seconds. Then suddenly the chief-surgeon appeared on the station and as we had talked already together regarding operation, embolization, he came over. And he took over, he gave orders, and when I touched his arm to thank him, he took my hand and held it and assured me and offered me help, and if I don't want hysterectomy, they have to propose me alternatives was what he said.We are here for you to do what you want. May be next time, things will not be going so well, he may not be there and what I really do not want at all, needs to be prevented at all costs, is a emergency hysterectomy, by the doctor who happens to be on service that day. To take action, from my experience therefore, depends on your side effects and your psycological strenght to go through all these situations, I am reading from other womens account as well. For years, I knew very deep inside me, no action is the right thing, now I suddenly now, again from deep inside me, it is time for action. Regards to all Irene -- In uterinefibroids@y..., sun4evr@y... wrote: > At 1/27/02 08:13 PM, coollady wrote: > > Loss of PC muscle control is a pretty significant, but > >not talked > >about symptom of fibroid tumors. The PC muscle is important for keeping you > >from > >experiencing urine leakage > > I'm glad you mentioned this because it is probably the most significant > symptom I have. Sometimes it is all I can do to make it to the bathroom. > Sometimes I have no control especially when my bladder is full. > > Only recently this was at its worst just before my period but it doesn't > seem to make much difference now. > > My fibroid was diagnosed as 20 wk size four months ago. I haven't gone back > to the gyn since because I was trying to hold off doing anything until I > secured a stable job. Well, I have a job now but they are going through > layoffs after experiencing a loss last year! Just my luck! Besides, their > benefits are awful. They just switched plans after I joined and the > hospitalization deductible is $1250! My COBRA deductible is zero so I think > I will see if I can stay on this when my 90 day period is up at the end of Feb. > > I also believe that you need to be employed their six months before you are > entitled to sick leave but I need to check that. > > I am concerned I will need to do something sooner rather than later. > > I have also begun to experience some discomfort when I lie on my side in > bed at night but it depends on exactly what position I am lying in as to > whether I get problems. > > I used to be able to bend over without a problem to tie my tennis shoes but > not any more. I feel I am resting on a huge bulge - and I am! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 Irene, Please keep us informed about your situation and your health. From what you described, I agree that you can't take the " wait and see " approach any longer. It sounds like both your physical and emotional health are at risk. It's hard to make the decision to have any kind of surgery. I went thru that a couple months ago. My largest fibroid had doubled in size in a year's time (to 10 cm). I was having severe pelvic pain during the middle of my cycle, besides the bladder, bowel and bloating problems, but more concerning to me was my anemia and the fact that my largest fibroid was causing urine to back up into my kidney. I decided that my blood volume and my kidneys were more important to my health and I chose to have a supracervical hysterectomy. I'm now 7 weeks post-op. I won't tell you that it's been a picnic, but it's been manageable and I don't regret my decision. I realize each of us have different circumstances to consider. I hope your Dr. carefully walks you thru all your treatments options so that it will be a little easier to make your decision. You are in my prayers. Joy --- klagelund wrote: > -What a coincidence, just today or in the last two > days, I have > decided that time has come for action. This wait and > see is no longer > good enough. This has always been the big question > for me. It is now 8 > years that I am coping with the mymoma. It started > in 1994 6cm, > remained there but grew in 1998 to 13cm and started > to make problems. > No pressures, but heavy bleeding. I landed in > hospital, got a > GNHR-treatment and am now since 6 months back on > normal cycles. First > bleeding was moderate but very long, sometimes the > whole month. > Friday, clots came out of my body, litteraly pluggin > the bath tube > drainage. I thought I am going to die. At the > emergency station, I > realized, because they told me, that there is no > medication, nothing > available to make such a bleeding stop, they would > try D and C and if > this does not work it is hyterectomie in urgency. My > bloodlevels > dropped from 12.8 Haemoglobin to 8,9 within 2 days. > > I am now back home again, and bleeding is reduced, > but I can tell you, > I have slowly but definitively had enough. This is > no longer a life. > Each month, this deadly fear, is the bleeding going > to stop in time or > not. Then these long bleedings, over a month. I was > always scared by > Hysterektomie to loose my sexuality, but currently, > I have no > sexuality at all. I was asked to do researches in > the family regarding > menopause. It is 50 from my mothers side and when I > telephoned around, > I found out everyone was suffering from Myoma. It is > 52 from fathers > side. I am not, I say it again, so I hear it by > myself, I am not going > to pass the next 4 years like that. I cannot go on > psycologically > anylonger. There is more to life than keeping a > uterus. > > I am going to see my gyneco this afternoon to > discuss what is to be > done. I will, yes, this time, I will ask for help > and assistance to > come to a decision regarding this fibroid and > regarding my life. > > My husband was deadly pale when he drove me to the > emergency station > on Friday. I sent him home, told him that I would > handle this on my > own. He could hardly speak. He is also suffering > from this. Our whole > relationship is currently suffering from my fear and > this situation > not knowing what will happen next. > > I was extremly lucky on Friday. I got treated by a > male assistant > doctor and he was shocked at my bleeding. His blouse > got spoiled > within seconds. Then suddenly the chief-surgeon > appeared on the > station and as we had talked already together > regarding operation, > embolization, he came over. And he took over, he > gave orders, and when > I touched his arm to thank him, he took my hand and > held it and > assured me and offered me help, and if I don't want > hysterectomy, they > have to propose me alternatives was what he said.We > are here for you > to do what you want. > > May be next time, things will not be going so well, > he may not be > there and what I really do not want at all, needs to > be prevented at > all costs, is a emergency hysterectomy, by the > doctor who happens to > be on service that day. > > To take action, from my experience therefore, > depends on your side > effects and your psycological strenght to go through > all these > situations, I am reading from other womens account > as well. For years, > I knew very deep inside me, no action is the right > thing, now I > suddenly now, again from deep inside me, it is time > for action. > > Regards to all > > Irene > > > > > > -- In uterinefibroids@y..., sun4evr@y... wrote: > > At 1/27/02 08:13 PM, coollady wrote: > > > Loss of PC muscle control is a pretty > significant, but > > >not talked > > >about symptom of fibroid tumors. The PC muscle > is important for > keeping you > > >from > > >experiencing urine leakage > > > > I'm glad you mentioned this because it is probably > the most > significant > > symptom I have. Sometimes it is all I can do to > make it to the > bathroom. > > Sometimes I have no control especially when my > bladder is full. > > > > Only recently this was at its worst just before my > period but it > doesn't > > seem to make much difference now. > > > > My fibroid was diagnosed as 20 wk size four months > ago. I haven't > gone back > > to the gyn since because I was trying to hold off > doing anything > until I > > secured a stable job. Well, I have a job now but > they are going > through > > layoffs after experiencing a loss last year! Just > my luck! > Besides, their > > benefits are awful. They just switched plans > after I joined and the > > hospitalization deductible is $1250! My COBRA > deductible is zero so > I think > > I will see if I can stay on this when my 90 day > period is up at the > end of Feb. > > > > I also believe that you need to be employed their > six months before > you are > > entitled to sick leave but I need to check that. > > > > I am concerned I will need to do something sooner > rather than later. > > > > I have also begun to experience some discomfort > when I lie on my > side in > > bed at night but it depends on exactly what > position I am lying in > as to > > whether I get problems. > > > > I used to be able to bend over without a problem > to tie my tennis > shoes but > > not any more. I feel I am resting on a huge bulge > - and I am! > > > > [Non-text portions of this message have been > removed] > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 I too am at a stage where I need to take action before the fibroids get worse. I was first diagnosed in January 1995, after only three months on bc pills, I had extreme pain-I had red degeration. As the pain subsided and I discontinued the pills my uterus seemed to recover. I took the wait & see approach for a very long time. Within the last year or so I have begun to experience bladder & bowel pressure, low pain pain, hemorroids (due to the pressure of fibroids) In 2000 I had urinary retention in part due to the fibroids. Thankfully my periods are too bad, but I worry that if something isn't done soon that I may end up in the emergency room. Tomorrow I am going to my regular dr to try to get a referral (required by my HMO) for an MRI. Then I will go to ob/gyn & plan to have UAE. I've had a lot of ob/gyns in the past who-not really wanting to take the time, or maybe just not knowing what to do-have just put me off. Also I moved not too long ago so I lost my previous dr & am starting over with finding a good dr who will support me & UAE. I am frustrated, and hope I don't have to jump through too many hoops before I can get help! Reading about someone else's trip to emergency rm reminds me it can get that bad. I don't want to get to that point. Sorry for rambling-it's been heavy on my mind for some time. -Elise, in MN. joy jones wrote: Irene, Please keep us informed about your situation and your health. From what you described, I agree that you can't take the " wait and see " approach any longer. It sounds like both your physical and emotional health are at risk. It's hard to make the decision to have any kind of surgery. I went thru that a couple months ago. My largest fibroid had doubled in size in a year's time (to 10 cm). I was having severe pelvic pain during the middle of my cycle, besides the bladder, bowel and bloating problems, but more concerning to me was my anemia and the fact that my largest fibroid was causing urine to back up into my kidney. I decided that my blood volume and my kidneys were more important to my health and I chose to have a supracervical hysterectomy. I'm now 7 weeks post-op. I won't tell you that it's been a picnic, but it's been manageable and I don't regret my decision. I realize each of us have different circumstances to consider. I hope your Dr. carefully walks you thru all your treatments options so that it will be a little easier to make your decision. You are in my prayers. Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 > Irene: > I too have come to the conclusion that I must take action now. I do not want > to end in an emergency room in the middle of a cold night. I will be making > an appointment with my doctor to discuss my options. This group has helped > me a lot. We are all strong women and it is too bad that we all have to > suffer like this.I am like you I need help now and am just getting it. Friday i had a D & C and a week before that I had a pelvic sonagram that showed a cyst on each ovary and a grapefruit size fibroid. I am just getting over the D & C and still am sore down there. I have pain with the cysts and the fibroid and I leak urine at the worst times an does anyone have bowle spasems? (sp) those are painful. I am 48 almost 49 and have had no period for 14 months and than I have one in july. That is when I went to a new GYN and he started tests and like I said the D & C. Can anyone give me some advice to.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 > Irene: > I too have come to the conclusion that I must take action now. I do not want > to end in an emergency room in the middle of a cold night. I will be making > an appointment with my doctor to discuss my options. This group has helped > me a lot. We are all strong women and it is too bad that we all have to > suffer like this.I am like you I need help now and am just getting it. Friday i had a D & C and a week before that I had a pelvic sonagram that showed a cyst on each ovary and a grapefruit size fibroid. I am just getting over the D & C and still am sore down there. I have pain with the cysts and the fibroid and I leak urine at the worst times an does anyone have bowle spasems? (sp) those are painful. I am 48 almost 49 and have had no period for 14 months and than I have one in july. That is when I went to a new GYN and he started tests and like I said the D & C. Can anyone give me some advice to.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 After a UAE, they say women usually return to work after 1-2 weeks. The fibroids and uterus (the fibroids make the uterus get bigger) start shrinking right away after a UAE and the shrinkage continues for up to a year. My IR used embospheres not the plastic PVA's. From: http://www.albanyvascular.com/healthtopics/healthtopic.cfm? " A new alternative to PVA is known as embospheres. Embospheres are gelatin-based sphere which are different from PVA in that they do not adhere to each other like PVA particles. When particles adhere to each other, they are unable to travel far enough into the circulation of the fibroids before causing clot to form; this may reduce the effectiveness of the embolization. Embospheres have the potential, therefore, to travel further into the circulation of the uterus, directly into the blood vessels supplying the uterine fibroids. The initial clinical results concerning the use of embospheres are positive and trials continue at centers throughout the United States to the effectiveness of both PVA and embospheres in the UFE procedure. " From: http://www.aafp.org/afp/20000615/3601.html " Following uterine fibroid embolization, total uterine volume decreases by an average of 50 percent, and fibroids shrink from 48 to 78 percent. " From: http://www.fibroidworld.com/UAE.htm The expected average reduction in the volume of the fibroids is 50% in three months, with reduction in the overall uterine volume of about 35%. " From: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=PubMed & list_ui ds=11408880 & dopt=Abstract " The mean decrease in uterine volume was 36%, and the mean decrease in the size of the dominant fibroid was 49%. " From: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=PubMed & list_ui ds=11382963 & dopt=Abstract " The size of the tumor decreased by 14% immediately after UFE and continued to decrease over a six-month period to 84%. " From: http://www.ufecenter.com/whatis_ufe.html " Average uterine volume is reduced by ~50%, with individual fibroid shrinkage of 40-70%. From: http://www.ufecenter.com/faq10.html " What happens to the PVA particles? Can they move to other parts of the body and cause problems? Polyvinyl alcohol (PVA) particles have been used for embolization procedures for over 20 years without reports of adverse or allergic reactions. The injected particles are too large to pass through the capillary bed of the uterus or fibroids. As the flow in the uterine artery becomes stagnant the particles become incorporated in a blood clot and they remain in the clot as it becomes organized. They do not dissolve or get absorbed and they cannot migrate to other parts of the body From: http://www.ufecenter.com/faq11.html " What happens to the fibroids following embolization? Once the fibroid blood supply is disrupted the tissue infarcts (dies), softens, and slowly shrinks as it is reabsorbed by the body. Eventually the fibroid is replaced by scar tissue, " good scar " . This tissue is no longer sensitive to hormonal changes during the menstrual cycle. RE: When to take action At 1/27/02 08:13 PM, coollady wrote: >UAE is the greatest thing since sliced bread! Thanks for all the info. How long is the recovery period from a UAE? I assume the fibroid shrinks, too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 After a UAE, they say women usually return to work after 1-2 weeks. The fibroids and uterus (the fibroids make the uterus get bigger) start shrinking right away after a UAE and the shrinkage continues for up to a year. My IR used embospheres not the plastic PVA's. From: http://www.albanyvascular.com/healthtopics/healthtopic.cfm? " A new alternative to PVA is known as embospheres. Embospheres are gelatin-based sphere which are different from PVA in that they do not adhere to each other like PVA particles. When particles adhere to each other, they are unable to travel far enough into the circulation of the fibroids before causing clot to form; this may reduce the effectiveness of the embolization. Embospheres have the potential, therefore, to travel further into the circulation of the uterus, directly into the blood vessels supplying the uterine fibroids. The initial clinical results concerning the use of embospheres are positive and trials continue at centers throughout the United States to the effectiveness of both PVA and embospheres in the UFE procedure. " From: http://www.aafp.org/afp/20000615/3601.html " Following uterine fibroid embolization, total uterine volume decreases by an average of 50 percent, and fibroids shrink from 48 to 78 percent. " From: http://www.fibroidworld.com/UAE.htm The expected average reduction in the volume of the fibroids is 50% in three months, with reduction in the overall uterine volume of about 35%. " From: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=PubMed & list_ui ds=11408880 & dopt=Abstract " The mean decrease in uterine volume was 36%, and the mean decrease in the size of the dominant fibroid was 49%. " From: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=PubMed & list_ui ds=11382963 & dopt=Abstract " The size of the tumor decreased by 14% immediately after UFE and continued to decrease over a six-month period to 84%. " From: http://www.ufecenter.com/whatis_ufe.html " Average uterine volume is reduced by ~50%, with individual fibroid shrinkage of 40-70%. From: http://www.ufecenter.com/faq10.html " What happens to the PVA particles? Can they move to other parts of the body and cause problems? Polyvinyl alcohol (PVA) particles have been used for embolization procedures for over 20 years without reports of adverse or allergic reactions. The injected particles are too large to pass through the capillary bed of the uterus or fibroids. As the flow in the uterine artery becomes stagnant the particles become incorporated in a blood clot and they remain in the clot as it becomes organized. They do not dissolve or get absorbed and they cannot migrate to other parts of the body From: http://www.ufecenter.com/faq11.html " What happens to the fibroids following embolization? Once the fibroid blood supply is disrupted the tissue infarcts (dies), softens, and slowly shrinks as it is reabsorbed by the body. Eventually the fibroid is replaced by scar tissue, " good scar " . This tissue is no longer sensitive to hormonal changes during the menstrual cycle. RE: When to take action At 1/27/02 08:13 PM, coollady wrote: >UAE is the greatest thing since sliced bread! Thanks for all the info. How long is the recovery period from a UAE? I assume the fibroid shrinks, too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 I guess I got my fingers crossed. I meant 5 month pregnancy. I got on the internet last night and found al sorts of information. I even emailed a doctor here. He actually called me back. I asked him if my fibroid was to big to do an UAE, and he said not that it wasn't a problem. I then asked why my latest gyn said that there wasn't any other treatment than hysterectomy. His answer was that the doctors either aren't interested in other options or don't know about them. He also said that the information is gotten out to the gyn's as soon as possible. I guess the regular gyn's aren't interested in any thing that would be lease complicated and drastic for their patients. At 06:57 AM 1/28/2002 -0500, you wrote: >In my opinion 5 weeks pregnancy uterus size is a small size. Some of us have >12 -16 weeks. You also stated that symptoms are not a major concern for you. >Why would you consider hysterectomy or any other treatment in this matter. >Why not just wait and observe what is happening with them. As you mentioned >you may be entering menopause then why not to just simply WAIT. > > > >YOUR-EMAIL >I am 48 and was diagnosed with a fibroid over two years ago. My fibroid has >been diagnosed as a 5 week pregnancy size. I haven't had any problems until >recently. And the problems haven't been major. > >I was told two years ago that I just have to wait, that they will shrink >with menopause. I believe I am in menopause, although no doctor will tell >you that. > >I just got my second opinion and he said I needed a hysterectomy. I am >canceling the surgery on Monday, I do not feel that is the best choice. > >I have no pain, no cramps except when my period starts. Last weekend was >pretty bad, but for the first time in months I only had a 5 day period and >it wasn't even heavy. > >I am going to go for my third opinion, when I call the doctor on Monday. > >If there isn't any pain or problems should they be left alone? No one will >answer that question. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 I guess I got my fingers crossed. I meant 5 month pregnancy. I got on the internet last night and found al sorts of information. I even emailed a doctor here. He actually called me back. I asked him if my fibroid was to big to do an UAE, and he said not that it wasn't a problem. I then asked why my latest gyn said that there wasn't any other treatment than hysterectomy. His answer was that the doctors either aren't interested in other options or don't know about them. He also said that the information is gotten out to the gyn's as soon as possible. I guess the regular gyn's aren't interested in any thing that would be lease complicated and drastic for their patients. At 06:57 AM 1/28/2002 -0500, you wrote: >In my opinion 5 weeks pregnancy uterus size is a small size. Some of us have >12 -16 weeks. You also stated that symptoms are not a major concern for you. >Why would you consider hysterectomy or any other treatment in this matter. >Why not just wait and observe what is happening with them. As you mentioned >you may be entering menopause then why not to just simply WAIT. > > > >YOUR-EMAIL >I am 48 and was diagnosed with a fibroid over two years ago. My fibroid has >been diagnosed as a 5 week pregnancy size. I haven't had any problems until >recently. And the problems haven't been major. > >I was told two years ago that I just have to wait, that they will shrink >with menopause. I believe I am in menopause, although no doctor will tell >you that. > >I just got my second opinion and he said I needed a hysterectomy. I am >canceling the surgery on Monday, I do not feel that is the best choice. > >I have no pain, no cramps except when my period starts. Last weekend was >pretty bad, but for the first time in months I only had a 5 day period and >it wasn't even heavy. > >I am going to go for my third opinion, when I call the doctor on Monday. > >If there isn't any pain or problems should they be left alone? No one will >answer that question. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 my doc told me that he would make $1000.00 performing a hysterectomy and that he wouldnt perform one on me unless it was necessary. unfortunatly this is another reason docs want to peform hysterectomys when other treatments are available. Quote Link to comment Share on other sites More sharing options...
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