Guest guest Posted October 11, 2002 Report Share Posted October 11, 2002 , Welcome to the family! Rae 260/160/150 " If it is to be it is up to me " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2002 Report Share Posted October 12, 2002 is another of our members who is having a problem getting list mail. Anyone replying to her, please CC to her email address, craftylady711@... so she sees it. > Though I > think being home is not helping my weight..LOL! Gee, you *have* been reading the archives, haven't you? LOL We were just discussing how tough it is for us, being around food all the time. > I need to lose probably about 110 lbs. About 130 for me, if my weight keep going up instead of down. I don't have > the best willpower (I just love food) and my biggest downfall is junk > food...I'm a certified chocoholic!! lol! I'm not a sweets eater due to a problem with hypoglycemia, and only recently discovered some decent tasting sugar-free chocolate (50-50 brand), but I *do* go for the salty (Fritos are my downfall) and just real decent foods. I always say, my problems aren't from eating junk food, it's from eating too much of a good thing. Portion control just eludes me because no matter how much I eat, I'm always hungry for more. I'm one of those people who *could* sit there and eat an entire head of lettuce in a salad and a whole pound of pasta in one sitting and just about feel " satisfied " . This is one reason I couldn't lose weight on the McDougall or Ornish plans - they both say to " eat until satisfied " of low cal vegetarian foods, but I was never fully " satisfied " on what a normal person would eat. This is why I really have to get back into the FoodMover 100% of the time - drag out the spoons, cups and scale again and MEASURE everything. >I want to start the diet, and am > waiting to receive my food mover...can't wait!! Boy, are you in luck! I just spent a few hours yesterday cleaning up and adding some stuff to my site - http://members.tripod.com/sue_in_nj/rich.htm . It still needs a little more work, but I got a healthy start on it. Be sure to check out the FoodMover page - you can see the basics of the program and even copy the calorie card you'll be using to your computer and print it out a few times, crossing out each food as you eat it. You can get BlastOff week finished and well on oyur way with your calories card before your FoodMover even arrives. In the meantime I'm > keeping track of everything I eat Journalling is a good idea. It helps keep track of what we eat, when, and why, if we use it the right way. Sometimes I get sloppy and just write the foods but not the mood behind the eating. >and cutting out all the junk food. Well, as long as you count it, you *can* eat it. A lot of ladies here would literally die without their chocolate, so it's included. 12 chocolate chips, 1 Hershey Kiss, 1 package of regular hot chocolate, or 1 tablespoon of lite chocolate syrup all count as one Extra serving. Those 50-50 chocolate mini-bars I'm now buying has exchanges on the package, since it's primarily a produt for diabetics, and for that, 8 pieces count as 1 starch and 2 fat (140 calories). I limit myself to just one a day at certain times of the month, count it as half an Extra, and life (for hubby, at least) has been much better. > I sure hope I can be as successful as the members here. Heck! So do *I*!! LOL Sue in NJ ºoº Old crafter's never die, they just get more bazaar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2002 Report Share Posted October 12, 2002 Thanks for the welcome. I probably won't be too active until starts giving me my emails....reading at the website is such a pain in the butt, especially having a slow connection and having the extra steps involved to just read a message thanks to ads! One big reason I really need to try to cut out the chocolate and sweets is diabetes runs in my family, my mom and grandmothers on both sides have/had it. So it's 99.9% chance that I will wind up with diabetes. Sugar is my biggest problem, I really think if I cut it out completely the weight would probably fall off me....but I do need a little sugar fix every now and then just to survive, LOL ) I'm only on day 5 of my diet and just bought a scale today so now I'll know how it's working. I think I've lost about 3 lbs this week, I can just feel it...and I love that feeling! I do have to learn to drink lots of water...I'm not a big fluid person, but I know it's the best thing. Guess I better get that sports bottle out and sit it here on my desk, where I spend most of my day. Sue your RS site is great! I'll be spending lots of time there. I especially need recipes and ideas. Since I love to snack, I really have to find quick and easy things to snack on that aren't loaded with fat and calories. Well, hope gets their act together and starts sending me my emails soon, in the meantime, I'll try to remember to come here often and check the board. Michele http://www.tendercrafts.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 ---Hi , Your list of behaviors and traits you were not sure were AS could all be As related,...every single on...My son was showing the signs you described at 3yo too. I live in NC, and there is a developmental evaluation center (DEC) that tests preschool age children. Once they get school age, they are evaluated through the school system. I took my son to the DEC to have him tested, hearing, speech, and social, (my husband refused to get a psych eval for him because he was afraid of a ADHD diagnosis and meds.((I think he's an aspie too)). They picked up on the speech delay but did not pick up on any other autistic behaviors. I knew there was something more to it, that they were missing something. I got him speech therapy and he started talking better afterwards. Because my husband has been so insistant that my son's problems were my bad parenting skills,( and I believed him), he is just going through the evaluation process now at 8yo. How I regret the wasted years he could have gotten help, but we had no clue it was autism. Because you are doing something about it now, your son has great potential!!! There is alot of info on the web about asperger's, autistic spectrum disorder, PDD etc. Read, read, and read some more. One thing I have found out, nothing happens quickly, it takes timme to find someone to eval him. It takes weeks to get in to see them. Then it takes more weeks to evaluate them. Then more time to develop a prelimenary plan. There is no specific plan of care, all has to be fine tuned to your child's special needs, find out what works with him and what doesn't. It will also give you time to adjust. I feel overwhelmed with my 8yo and 6yo. I can imagine with three young-uns......We're all in this together....Gerri In , " " <noctisangelicus@g...> wrote: > > Hello! It's nice to join you all here. My name is , I have > three young boys ages 4, 3 and one year. My middle son Jonah, who > will be four years old in May, has been struggling with > developmental delays and emotional problems since birth. At first I > thought it was just a speech delay, but as time has gone things got > worse and worse...eventually his former ped as well as a new parent > support group advocate began to suspect that he had possible > Asperger's and or Sensory Integration issues. If anyone has any > advice for children as young as three getting diagnosed I would be > deeply grateful! Currently I am trying to find a psychologist that > will evaluate him, so far two have told me that they don't deal with > children so young. I feel its imparative that I get him in soon > before he starts school so that he can get the best start possible. > For those of you with children diganosed early on, what were they > symptoms that pointed to aspergers? > > These are some of Jonah's, which I am unsure are related to AS: > *A slow talker...did not speak in sentances until almost three years > old. Is difficult to understand today, although is vocabulary is > decent. Strangers often don't understand what he is saying. > *Fear of fast movements, terrified of swings at the park, being > roughed around with, or being held upside down or above anyone's > head in play. > *Inability to read social cues- Does not understand when someone is > upset, at him or in general. Shows no sympathy, and tunes you out if > you try to correct his behavior. Will not make eye contact. He does > not understand the flow of events...for example, if he wants > something to drink and I have to rinse out his cup, he will have a > meltdown because he thinks I am not going to fill it again as he > watches me just rinse it. Cannot predict what comes next. > *Becomes hysterical over things like: Zipper in his coat not being > zipped...one sock on, one off...shoes not on properly or tied, every > button must be buttoned all the way to the top. If one shoe comes > off, its the end of the world and he shuts down. > *Becomes hysterical over things not going his way, incrediably > impatient and hostile. > *Has a seemingly uncontrollable tick. He blinks his eyes very hard > over and over, especially when upset. > *Gets into everything, soaps, shampoos, anything gooey...nothing in > the house is safe unless it is locked up. > *Hits his brothers constantly, and the cats. Doesn't understand that > it's wrong. > *Doesn't register right from wrong...shows no reaction when he does > something really bad and is confronted on it. > *Cares little about other's feelings. He will repeat, " I have to be > nice? " but doesn't seem to register it, or how it relates to him. > *Is upset by change in schedules. Becomes withdrawn and Unhappy when > seperated from him older brother (whom he depends heavily on). > > Any advice is appreciated! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 ---Hi , Your list of behaviors and traits you were not sure were AS could all be As related,...every single on...My son was showing the signs you described at 3yo too. I live in NC, and there is a developmental evaluation center (DEC) that tests preschool age children. Once they get school age, they are evaluated through the school system. I took my son to the DEC to have him tested, hearing, speech, and social, (my husband refused to get a psych eval for him because he was afraid of a ADHD diagnosis and meds.((I think he's an aspie too)). They picked up on the speech delay but did not pick up on any other autistic behaviors. I knew there was something more to it, that they were missing something. I got him speech therapy and he started talking better afterwards. Because my husband has been so insistant that my son's problems were my bad parenting skills,( and I believed him), he is just going through the evaluation process now at 8yo. How I regret the wasted years he could have gotten help, but we had no clue it was autism. Because you are doing something about it now, your son has great potential!!! There is alot of info on the web about asperger's, autistic spectrum disorder, PDD etc. Read, read, and read some more. One thing I have found out, nothing happens quickly, it takes timme to find someone to eval him. It takes weeks to get in to see them. Then it takes more weeks to evaluate them. Then more time to develop a prelimenary plan. There is no specific plan of care, all has to be fine tuned to your child's special needs, find out what works with him and what doesn't. It will also give you time to adjust. I feel overwhelmed with my 8yo and 6yo. I can imagine with three young-uns......We're all in this together....Gerri In , " " <noctisangelicus@g...> wrote: > > Hello! It's nice to join you all here. My name is , I have > three young boys ages 4, 3 and one year. My middle son Jonah, who > will be four years old in May, has been struggling with > developmental delays and emotional problems since birth. At first I > thought it was just a speech delay, but as time has gone things got > worse and worse...eventually his former ped as well as a new parent > support group advocate began to suspect that he had possible > Asperger's and or Sensory Integration issues. If anyone has any > advice for children as young as three getting diagnosed I would be > deeply grateful! Currently I am trying to find a psychologist that > will evaluate him, so far two have told me that they don't deal with > children so young. I feel its imparative that I get him in soon > before he starts school so that he can get the best start possible. > For those of you with children diganosed early on, what were they > symptoms that pointed to aspergers? > > These are some of Jonah's, which I am unsure are related to AS: > *A slow talker...did not speak in sentances until almost three years > old. Is difficult to understand today, although is vocabulary is > decent. Strangers often don't understand what he is saying. > *Fear of fast movements, terrified of swings at the park, being > roughed around with, or being held upside down or above anyone's > head in play. > *Inability to read social cues- Does not understand when someone is > upset, at him or in general. Shows no sympathy, and tunes you out if > you try to correct his behavior. Will not make eye contact. He does > not understand the flow of events...for example, if he wants > something to drink and I have to rinse out his cup, he will have a > meltdown because he thinks I am not going to fill it again as he > watches me just rinse it. Cannot predict what comes next. > *Becomes hysterical over things like: Zipper in his coat not being > zipped...one sock on, one off...shoes not on properly or tied, every > button must be buttoned all the way to the top. If one shoe comes > off, its the end of the world and he shuts down. > *Becomes hysterical over things not going his way, incrediably > impatient and hostile. > *Has a seemingly uncontrollable tick. He blinks his eyes very hard > over and over, especially when upset. > *Gets into everything, soaps, shampoos, anything gooey...nothing in > the house is safe unless it is locked up. > *Hits his brothers constantly, and the cats. Doesn't understand that > it's wrong. > *Doesn't register right from wrong...shows no reaction when he does > something really bad and is confronted on it. > *Cares little about other's feelings. He will repeat, " I have to be > nice? " but doesn't seem to register it, or how it relates to him. > *Is upset by change in schedules. Becomes withdrawn and Unhappy when > seperated from him older brother (whom he depends heavily on). > > Any advice is appreciated! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 , I live in Chicago and my son was diagnosed at the age of four at the University of Chicago by a neuro developmental psych. It was his speality. Just so you know it may be hard to get a correct diagnosis this young. Although I was blessed to have Jordan diagnosed it was only due to the specialty of the doctor. Where do you live then maybe we can all brain storm and help you find where to go? Ann ( ) New here Hello! It's nice to join you all here. My name is , I have three young boys ages 4, 3 and one year. My middle son Jonah, who will be four years old in May, has been struggling with developmental delays and emotional problems since birth. At first I thought it was just a speech delay, but as time has gone things got worse and worse...eventually his former ped as well as a new parent support group advocate began to suspect that he had possible Asperger's and or Sensory Integration issues. If anyone has any advice for children as young as three getting diagnosed I would be deeply grateful! Currently I am trying to find a psychologist that will evaluate him, so far two have told me that they don't deal with children so young. I feel its imparative that I get him in soon before he starts school so that he can get the best start possible. For those of you with children diganosed early on, what were they symptoms that pointed to aspergers? These are some of Jonah's, which I am unsure are related to AS: *A slow talker...did not speak in sentances until almost three years old. Is difficult to understand today, although is vocabulary is decent. Strangers often don't understand what he is saying. *Fear of fast movements, terrified of swings at the park, being roughed around with, or being held upside down or above anyone's head in play. *Inability to read social cues- Does not understand when someone is upset, at him or in general. Shows no sympathy, and tunes you out if you try to correct his behavior. Will not make eye contact. He does not understand the flow of events...for example, if he wants something to drink and I have to rinse out his cup, he will have a meltdown because he thinks I am not going to fill it again as he watches me just rinse it. Cannot predict what comes next. *Becomes hysterical over things like: Zipper in his coat not being zipped...one sock on, one off...shoes not on properly or tied, every button must be buttoned all the way to the top. If one shoe comes off, its the end of the world and he shuts down. *Becomes hysterical over things not going his way, incrediably impatient and hostile. *Has a seemingly uncontrollable tick. He blinks his eyes very hard over and over, especially when upset. *Gets into everything, soaps, shampoos, anything gooey...nothing in the house is safe unless it is locked up. *Hits his brothers constantly, and the cats. Doesn't understand that it's wrong. *Doesn't register right from wrong...shows no reaction when he does something really bad and is confronted on it. *Cares little about other's feelings. He will repeat, " I have to be nice? " but doesn't seem to register it, or how it relates to him. *Is upset by change in schedules. Becomes withdrawn and Unhappy when seperated from him older brother (whom he depends heavily on). Any advice is appreciated! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Ann, I live in Washington state...southern part, near Portland, Oregon. So far I am having little luck finding anyone who will even be willing to see him due to his age. I had no idea it was this hard! On 12/2/05, Easter Seals <easterseals@...> wrote: > > , > > I live in Chicago and my son was diagnosed at the age of four at the > University of Chicago by a neuro developmental psych. It was his > speality. > Just so you know it may be hard to get a correct diagnosis this young. > Although I was blessed to have Jordan diagnosed it was only due to the > specialty of the doctor. Where do you live then maybe we can all brain > storm > and help you find where to go? > Ann > > ( ) New here > > Hello! It's nice to join you all here. My name is , I have > three young boys ages 4, 3 and one year. My middle son Jonah, who > will be four years old in May, has been struggling with > developmental delays and emotional problems since birth. At first I > thought it was just a speech delay, but as time has gone things got > worse and worse...eventually his former ped as well as a new parent > support group advocate began to suspect that he had possible > Asperger's and or Sensory Integration issues. If anyone has any > advice for children as young as three getting diagnosed I would be > deeply grateful! Currently I am trying to find a psychologist that > will evaluate him, so far two have told me that they don't deal with > children so young. I feel its imparative that I get him in soon > before he starts school so that he can get the best start possible. > For those of you with children diganosed early on, what were they > symptoms that pointed to aspergers? > > These are some of Jonah's, which I am unsure are related to AS: > *A slow talker...did not speak in sentances until almost three years > old. Is difficult to understand today, although is vocabulary is > decent. Strangers often don't understand what he is saying. > *Fear of fast movements, terrified of swings at the park, being > roughed around with, or being held upside down or above anyone's > head in play. > *Inability to read social cues- Does not understand when someone is > upset, at him or in general. Shows no sympathy, and tunes you out if > you try to correct his behavior. Will not make eye contact. He does > not understand the flow of events...for example, if he wants > something to drink and I have to rinse out his cup, he will have a > meltdown because he thinks I am not going to fill it again as he > watches me just rinse it. Cannot predict what comes next. > *Becomes hysterical over things like: Zipper in his coat not being > zipped...one sock on, one off...shoes not on properly or tied, every > button must be buttoned all the way to the top. If one shoe comes > off, its the end of the world and he shuts down. > *Becomes hysterical over things not going his way, incrediably > impatient and hostile. > *Has a seemingly uncontrollable tick. He blinks his eyes very hard > over and over, especially when upset. > *Gets into everything, soaps, shampoos, anything gooey...nothing in > the house is safe unless it is locked up. > *Hits his brothers constantly, and the cats. Doesn't understand that > it's wrong. > *Doesn't register right from wrong...shows no reaction when he does > something really bad and is confronted on it. > *Cares little about other's feelings. He will repeat, " I have to be > nice? " but doesn't seem to register it, or how it relates to him. > *Is upset by change in schedules. Becomes withdrawn and Unhappy when > seperated from him older brother (whom he depends heavily on). > > Any advice is appreciated! > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2005 Report Share Posted December 8, 2005 , It's Ann again. I wanted to get back to you. I am not familiar with that area much to advise you on where to find a good doctor for diagnosis. I can tell you some of the things Jordan my son did. Lined up toys, mostly videos his favorites, If one was moved out of place or switched he would know even though he couldn't read yet. He would memorize the order of them. When he was excited he would bounce allot and draw his mouth in the shape of an " o " . He hand flapped when he was two until now but not all the time. His talking was on schedule for his age. Very tempermental and very sensitive to haircuts. He would cry and said they hurt. At your sons age the biggest issue would be to try asnd find an OT to evaluate for Densory dysfunction issues. A PT can evaluate for Motor issues. A formal diagnosis is great early but the main issue is getting him help which these therapists can do. I hope this helps a little. Take Care, Ann ( ) New here > > Hello! It's nice to join you all here. My name is , I have > three young boys ages 4, 3 and one year. My middle son Jonah, who > will be four years old in May, has been struggling with > developmental delays and emotional problems since birth. At first I > thought it was just a speech delay, but as time has gone things got > worse and worse...eventually his former ped as well as a new parent > support group advocate began to suspect that he had possible > Asperger's and or Sensory Integration issues. If anyone has any > advice for children as young as three getting diagnosed I would be > deeply grateful! Currently I am trying to find a psychologist that > will evaluate him, so far two have told me that they don't deal with > children so young. I feel its imparative that I get him in soon > before he starts school so that he can get the best start possible. > For those of you with children diganosed early on, what were they > symptoms that pointed to aspergers? > > These are some of Jonah's, which I am unsure are related to AS: > *A slow talker...did not speak in sentances until almost three years > old. Is difficult to understand today, although is vocabulary is > decent. Strangers often don't understand what he is saying. > *Fear of fast movements, terrified of swings at the park, being > roughed around with, or being held upside down or above anyone's > head in play. > *Inability to read social cues- Does not understand when someone is > upset, at him or in general. Shows no sympathy, and tunes you out if > you try to correct his behavior. Will not make eye contact. He does > not understand the flow of events...for example, if he wants > something to drink and I have to rinse out his cup, he will have a > meltdown because he thinks I am not going to fill it again as he > watches me just rinse it. Cannot predict what comes next. > *Becomes hysterical over things like: Zipper in his coat not being > zipped...one sock on, one off...shoes not on properly or tied, every > button must be buttoned all the way to the top. If one shoe comes > off, its the end of the world and he shuts down. > *Becomes hysterical over things not going his way, incrediably > impatient and hostile. > *Has a seemingly uncontrollable tick. He blinks his eyes very hard > over and over, especially when upset. > *Gets into everything, soaps, shampoos, anything gooey...nothing in > the house is safe unless it is locked up. > *Hits his brothers constantly, and the cats. Doesn't understand that > it's wrong. > *Doesn't register right from wrong...shows no reaction when he does > something really bad and is confronted on it. > *Cares little about other's feelings. He will repeat, " I have to be > nice? " but doesn't seem to register it, or how it relates to him. > *Is upset by change in schedules. Becomes withdrawn and Unhappy when > seperated from him older brother (whom he depends heavily on). > > Any advice is appreciated! > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2008 Report Share Posted May 16, 2008 Welcome Lee Ann! This is a good group of people with some excellent information. You've come to a fantastic place to educate yourself and be a part of a like-minded community! I'm sorry to hear of how you discovered you have hyperthyroidism. That must have been frightening. I couldn't even imagine. Thank goodness for your cardiac nurse testing the thyroid levels! I couldn't think of positive results occurring for someone having a heart attack with undiagnosed hyperthyroidism. I'm only 28, but have lived through the white knuckled roller coaster of hyperthyroidism. I very well could have died last year without some help. ithyroid.com had information that saved my life... no joke. Working with that information and my doctor, I am now back within normal ranges all with supplement and diet modifications... I comfortably hold an extra five pounds on my frame after spending the better part of last year trying to gain weight. It can be scary (when those hormone levels get high, it messes with your head), it can be life threatening, but most importantly, it can be overcome. Feel free to write anytime to vent, look for support, advice, etc. Like I said, there is a variety of people on this group that have used all kinds of treatment modalities. Whatever you and your doctor decide, you'll probably find someone here who has followed that path, too! Take care, and good luck, -Tana > > Hello All!! > > I'm Lee Ann...I was just diagnoised with hyperthyroidism last week > after having a heart attack while driving to work! I have been told > that it was the thyroid that caused all this. I had been experiencing > horrible headaches in my eyes and terrible light sensitivity when all > this started to occure. I am only 46 and experienced the most > frightening thing ever when the heart attack hit when I was on the > expressway. I was able to get myself off the road and parked and call > 911. It was the cardiac nurse that was rounding in the emergency room > that added the thyroid testing to my labs, that is how we descovered > the high t3 and t4 and a low tsh level. > > This is all so new to me, any help or support you can give me would be > greatly appreciated! > > ~~Lee Ann~~ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2008 Report Share Posted May 16, 2008 Hi Lee Ann and welcome to the group. You are taking the right step in educating yourself. Too often doctors rush us into treatment that we don't really need. Radioactive Iodine does stop the hyperthyroidism. Unfortunately it also destroys your thryoid. There is no option/possibility of remission. With anti-thyroid drugs, stress management (a biggie, I think) beta blockers to protect your heart, and dietary modifications, you can be well on your way towards remission. This is not a fast process. But it does seem to work. How terrifying it must have been to have a heart attack. And while driving! Amazing how well you managed. And how lucky you were to be tested at the hospital. Www.ithyroid.com is a good place to start reading. There is a lot of material there and you may find it too much to absorb all at once. I know I did. But read and find out as much as you can. Ask any questions that occur to you. Kate New Here Hello All!! I'm Lee Ann...I was just diagnoised with hyperthyroidism last week after having a heart attack while driving to work! I have been told that it was the thyroid that caused all this. I had been experiencing horrible headaches in my eyes and terrible light sensitivity when all this started to occure. I am only 46 and experienced the most frightening thing ever when the heart attack hit when I was on the expressway. I was able to get myself off the road and parked and call 911. It was the cardiac nurse that was rounding in the emergency room that added the thyroid testing to my labs, that is how we descovered the high t3 and t4 and a low tsh level. This is all so new to me, any help or support you can give me would be greatly appreciated! ~~Lee Ann~~ ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.16/1434 - Release Date: 15/05/2008 7:24 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2008 Report Share Posted October 13, 2008 Hi everyone - I have a dual diagnosis of RA and Fibromyalgia. Does anyone else have dual diagnosis such as this and if so how do you deal with both? Take care, Kathi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2008 Report Share Posted October 13, 2008 Kathi I have the same dual diagnosis. Some days it is hard to know which pain you are dealing with. I take meds that work for both as well as my cancer pain. Such as Injectable MTX, Lyrica, Cymbalta, Humira, Ambien, Oxycontin and Vicodin. I also always keep a box of Nauzene from Wal-Mart on my kitchen counter as that help with stomach upset, whether it be from the meds, or one of the diseases and it also does not taste to bad. These are not miracle cures and believe me there are still days where I can barely get out of bed in the mornings. Vicki Iowa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2008 Report Share Posted October 13, 2008 What My doctor told me is, since for 2 years they diagnosed me with FMS., when there is FMS, it is there for a reason, he thinks it is a symptom of another problem, and that problem after waiting for a diagnosis, is RA Kathy [ ] new here Hi everyone - I have a dual diagnosis of RA and Fibromyalgia. Does anyone else have dual diagnosis such as this and if so how do you deal with both? Take care, Kathi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2008 Report Share Posted October 13, 2008 Thanks for the info, Vicki. I'm currently on MTX and have been trying Lyrica, but with the stress from work the Lyrica isn't helping. I also have upset stomach quite a bit, so I will try the Nauzene and see if that will give some relief. How is your doctor with your dual diagnosisi? My RA dr doesn't act like she agrees with Fibro so she will only treat me for the RA when I see her :/ > > Kathi > I have the same dual diagnosis. Some days it is hard to know which pain you are dealing with. I take meds that work for both as well as my cancer pain. Such as Injectable MTX, Lyrica, Cymbalta, Humira, Ambien, Oxycontin and Vicodin. I also always keep a box of Nauzene from Wal- Mart on my kitchen counter as that help with stomach upset, whether it be from the meds, or one of the diseases and it also does not taste to bad. These are not miracle cures and believe me there are still days where I can barely get out of bed in the mornings. > Vicki > Iowa > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2008 Report Share Posted October 13, 2008 I am lucky in that my rhuemy does treat me for both RA and fibromalgia. She doesn't agree with my gp foctor as far as the apin meds go, but I go but what helps me and right now they help. LOL. MTX can also cause stomach upset so if the Nauzene, which by the way is not expensive at all, does not help you may want to go to the injectable type. I use it and my stomach has gotten better. Vicki Iowa Meds are kicking in so think I will go lay down. Until Later " God Be With You All " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2008 Report Share Posted October 13, 2008 So far I've been on the highest pill form of MTX and dealing with the stomach and intestinal problems. But I've had so many flare ups with the Fibro that when I don't get rest thru those then the RA flare ups hit on top of all of that. Vicious cycyle ;/ > > I am lucky in that my rhuemy does treat me for both RA and fibromalgia. She doesn't agree with my gp foctor as far as the apin meds go, but I go but what helps me and right now they help. LOL. MTX can also cause stomach upset so if the Nauzene, which by the way is not expensive at all, does not help you may want to go to the injectable type. I use it and my stomach has gotten better. > Vicki > Iowa > > Meds are kicking in so think I will go lay down. Until Later " God Be With You All " > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2008 Report Share Posted October 13, 2008 Kathi, You're new, right? If you have posted before and I missed you, please forgive me. You have come to the right place to ask that question. I am sure you will get many responses. So many of the members here have both. I am so sorry for your diagnosis. I think that you will get some good support here. This is a very caring group of people. God bless, Shirley > > Hi everyone - I have a dual diagnosis of RA and Fibromyalgia. Does > anyone else have dual diagnosis such as this and if so how do you deal > with both? > > Take care, > Kathi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2008 Report Share Posted October 13, 2008 Hi Shirley - yes, I am new to the group. Thank you so much for the warm greeting, I really appreciate it. I've had RA for about 11 years and Fibro for about 16. I've been on MTX for the last year, previously on Prednisone (which I thought was my wonder drug, but turned into a nightmare for me physically). My doctor isn't a fan of the Fibro diagnosis, believing that it is just a symptom and not a disease. However, I know the difference in flare ups and she won't accept that...very frustrating. Kathi > > > > Hi everyone - I have a dual diagnosis of RA and Fibromyalgia. Does > > anyone else have dual diagnosis such as this and if so how do you > deal > > with both? > > > > Take care, > > Kathi > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2008 Report Share Posted October 14, 2008 Kathi, That is a real shame that your rheummy does not recognised your fibro. Honey, if this continues, you might want to consider a change in doctors. Listen to your body, you are the only expert in that area. I don't have fibro, but my rheummy absolutely does treat fibo also. Shirley > > Hi Shirley - yes, I am new to the group. Thank you so much for the > warm greeting, I really appreciate it. I've had RA for about 11 > years and Fibro for about 16. I've been on MTX for the last year, > previously on Prednisone (which I thought was my wonder drug, but > turned into a nightmare for me physically). My doctor isn't a fan of > the Fibro diagnosis, believing that it is just a symptom and not a > disease. However, I know the difference in flare ups and she won't > accept that...very frustrating. > > Kathi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2008 Report Share Posted October 14, 2008 Shirley - my husband and I have discussed my frustration with my RA's attitude and we are currently looking for a fibro doctor in our area (I'm in Grand Rapids MI). Sadly, the only doctor who took my illness seriously was a PA at my family doctor's office. > > > > Hi Shirley - yes, I am new to the group. Thank you so much for > the > > warm greeting, I really appreciate it. I've had RA for about 11 > > years and Fibro for about 16. I've been on MTX for the last year, > > previously on Prednisone (which I thought was my wonder drug, but > > turned into a nightmare for me physically). My doctor isn't a fan > of > > the Fibro diagnosis, believing that it is just a symptom and not a > > disease. However, I know the difference in flare ups and she > won't > > accept that...very frustrating. > > > > Kathi > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2008 Report Share Posted October 14, 2008 Kathi, I wish you all the luck in the world finding a great doctor that takes all of you illnesses seriously. Shirley > > > > > > Hi Shirley - yes, I am new to the group. Thank you so much for > > the > > > warm greeting, I really appreciate it. I've had RA for about 11 > > > years and Fibro for about 16. I've been on MTX for the last > year, > > > previously on Prednisone (which I thought was my wonder drug, but > > > turned into a nightmare for me physically). My doctor isn't a > fan > > of > > > the Fibro diagnosis, believing that it is just a symptom and not > a > > > disease. However, I know the difference in flare ups and she > > won't > > > accept that...very frustrating. > > > > > > Kathi > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2008 Report Share Posted October 14, 2008 Oh yes, I have both:( Its not easy to deal with. I take Neurontin for neuropathy pain, and it suppose to help with fibro pain. For the RA, I am on humira, methotrexate, naproxen. I do take Prednisone for a short time, when I'm in a flare. I also take Lortab for pain, along with Flexeril for my neck and shoulder pain. It isn't easy to deal with a chronic illness. Having pain all the time, changes a person. I just listen to my rheumy, and do what is necessary to live my life the best I can. I would love to wake up pain free, but that don't happen. Its tolerable, and that is all I expect now. Take care, and hope you find something that works for you, Tawny --- In , " grammcrackers2 " <grammcrackers2@...> wrote: > > Hi everyone - I have a dual diagnosis of RA and Fibromyalgia. Does > anyone else have dual diagnosis such as this and if so how do you deal > with both? > > Take care, > Kathi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2008 Report Share Posted October 14, 2008 Thanks Tawny. I'm not on as many drugs as many of you are, but I did have severe effects from Prednisone. Just recently my doctors added Flexeril and Xanax to my list, but that is still alot less than most. I think dealing with the ignorance of our diseases is a very hard part of trying to live with it. I am so thankful I found this group, though. All of you are so amazing ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2008 Report Share Posted October 15, 2008 Sorry you had side effects of the prednisone. I take it only for a very short time. I hope the Flexeril helps you, it helps me a lot. I have very limited movement in my neck. Like when I'm driving, I have a horrible time, thank God fo mirrors. The Flexeril makes me able to get by. I'm glad you found the group, you will find so much information. You take care, and know I'm here if you need to chat, Tawny --- In , " grammcrackers2 " <grammcrackers2@...> wrote: > > Thanks Tawny. I'm not on as many drugs as many of you are, but I did > have severe effects from Prednisone. Just recently my doctors added > Flexeril and Xanax to my list, but that is still alot less than most. > I think dealing with the ignorance of our diseases is a very hard part > of trying to live with it. I am so thankful I found this group, > though. All of you are so amazing ! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2008 Report Share Posted October 15, 2008 Hi Kathy - I have a dual diagnosis of RA and FMS. It took me quite a while to figure out which one it was that was flaring. I've learned when the FMS is flaring it feels like a huge V-shape area of pain up my whole back and when the RA is flaring, its my joints only. When they are both flaring at the same time, I could just bawl my eyes out, but I take my meds and hide out in bed until it passes or at least gets under control - moist heat helps some, too. I take Neurontin for the FMS; MTX, Folic Acid, Sulfasalazine and (since I quit participating in the clinical study)I am now back on 10mg Prednisone in the mornings all for the RA. I take Percocet for pain, Skelaxin for PLMS, Celexa in the morning and Xanax at night for anxiety and depression. Then there's Dyazide for HBP and Levoxyl for Hypothyroid. It always looks worse written out like this. If the economy wasn't so bad, I might buy stock in the pharmaceutical industry. Mostly I deal with it all one day at a time - one hour at a time when needed and sometimes even one minute at a time. I call my Rheumy if the meds he's given me aren't working after an acceptable length of time - the way I figure it is WE are paying for THEIR services and if we're not happy, then they need to know, right? Hope all my babble has helped to answer your question. Hang in there and keep posting. This group has been a lifeline to me.....Doreen > > Hi everyone - I have a dual diagnosis of RA and Fibromyalgia. Does > anyone else have dual diagnosis such as this and if so how do you > deal with both? > > Take care, > Kathi > Quote Link to comment Share on other sites More sharing options...
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