Guest guest Posted August 6, 2008 Report Share Posted August 6, 2008 Shirley, As a needlephobe, the move to biologics was not an easy one for me. I dreaded the thought of monthly infusions and injecting myself was just..... queasy. I pass out at the THOUGHT of a needle. A friend of mine does Humira so I turned to her for guidance. Humira comes in needle and PEN form. I got the PENS and they are sooooooooooo EASY and NOT PAINFUL! The most difficult thing bout them is how LOUD they are when they inject. My rheumy's office gave me a " dummy " pen and teaching instructions and so far, so good. After my second injection, I can honestly say I have had 2-3 pain free days and even the days I HAVE had pain, it is less than normal. (Gosh I cant wait until NORMAL is NONE!) Best of luck to you tomorrow! *~ Kami ~* [ ] infusion or injection? Group, I have an appoitment with my rheummy's physician assistant tomorrow. I have tried MTX and Arava. We are to move on to a biologic. I am not sure if I want to do infusions or injections. I don't like the idea of sticking myself, but do like the convenience, yet I am not sure about the infusions either. What a baby! I would love some of your input. Thanks, Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2008 Report Share Posted August 6, 2008 I wasn't keen on self injections, either, but now I don't mind it at all. I've become an old pro, and it didn't take that long. I inject into my tummy, where there's lots of territory, and it doesn't hurt at all. When I consider how much the Enbrel is helping me, I don't mind at all. Sue On Wednesday, August 6, 2008, at 08:08 PM, nana2livi wrote: > Group, > I have an appoitment with my rheummy's physician assistant tomorrow. I > have tried MTX and Arava. We are to move on to a biologic. I am not > sure if I want to do infusions or injections. I don't like the idea of > sticking myself, but do like the convenience, yet I am not sure about > the infusions either. What a baby! > I would love some of your input. > Thanks, > Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 Sue, Thanks. I needed a push on this and I don't understand why. Shirley > > > Group, > > I have an appoitment with my rheummy's physician assistant tomorrow. I > > have tried MTX and Arava. We are to move on to a biologic. I am not > > sure if I want to do infusions or injections. I don't like the idea of > > sticking myself, but do like the convenience, yet I am not sure about > > the infusions either. What a baby! > > I would love some of your input. > > Thanks, > > Shirley > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 Kami, Thanks so much for the input. I knew that I was being a baby, but I also knew that this group could help me push past uncertainty. It sounds like Humira is working for you, or at the least has greatly reduced what you were going through. I am so glad to hear that. Shirley > > Shirley, > > As a needlephobe, the move to biologics was not an easy one for me. I dreaded the thought of monthly infusions and injecting myself was just..... queasy. I pass out at the THOUGHT of a needle. > > A friend of mine does Humira so I turned to her for guidance. Humira comes in needle and PEN form. I got the PENS and they are sooooooooooo EASY and NOT PAINFUL! The most difficult thing bout them is how LOUD they are when they inject. My rheumy's office gave me a " dummy " pen and teaching instructions and so far, so good. After my second injection, I can honestly say I have had 2-3 pain free days and even the days I HAVE had pain, it is less than normal. (Gosh I cant wait until NORMAL is NONE!) > > Best of luck to you tomorrow! > > > *~ Kami ~* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 Group I start humira injections in a few weeks. My rheumy said I can also have infusions. I didnt know one can have infusions and injections. Did I misunderstand her can one have infusions and be taking injections? What exactly is infusions??? Thank you gentle hugs Clora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 > > Group, > > have tried MTX and Arava. We are to move on to a biologic. I am not I am not sure > What a baby! > I would love some of your input. > Thanks, > Shirley Hi Shirley, Good luck tomorrow.You are not a baby! Transitions and decisions are never easy,are they, especially where there are no 'right' answers, but it is good to see the group as ever has come up with great encouraging support and practical imput to help you make your informed choice. Hope you don't mind me adding my thoughts. Seeing this also in my friend,I was relating so much to the difficulty making next step decisions,concerning one's health even when armed with 'best info'.For obvious reasons it isn't always the rational self that is in charge,at this time, especially when anticipating 'sticking oneself',on a regular basis,not what one would normally chose to do! Also the same self is aware of entering an area of new risks.(of course with the target of previously unachieved gains and relief as the rational self would say).More general anxieties about the illness and the future also cloud the individual step making smaller decisions I think.I know my friend is scared of the options and running out of options,it is a circuitous worry loop. But as Abraham Lincoln said 'the good thing about the future is it only comes one day at a time'!!Trust tommorow goes well. Best wishes Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 Shirley - I did Enbrel for 5 months and while I didn't mind doing the shots once a week (I also inject MTX weekly as well), Enbrel didn't do much for me. I switched to Remicade infusions about 3 months ago and I quite prefer it to giving myself a shot. For me, once I started Remicade I realized how psychologically draining doing the shots every week had been. Plus, there's something quite comforting in being somewhere else for a few hours where I a) am in the safety of medical professionals and always meet and talk with someone else living with RA or a different auto-immune disease. My job is almost constant chaos and so it's also a few hours of refuge for me. If I'm going to have to live with this disease, I don't mind that the medication benefits me in more ways than one! This is just my experience, but I hope you find what works best for you. Good luck! > > > > > Group, > > > > have tried MTX and Arava. We are to move on to a biologic. I am not > I am not sure > > What a baby! > > I would love some of your input. > > Thanks, > > Shirley > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 Everyone, Thank you so much for your advice and encouragement. I am so afraid of making the wrong decision and yet I know this is no different from the other meds, except I had no input before taking them. We all know that it is trial and error until we find what works for us. I truly appreciate this support group, what a blessing to me! Shirley -- In , " megan_hartman " <megan_hartman@...> wrote: > > Shirley - > > I did Enbrel for 5 months and while I didn't mind doing the shots > once a week (I also inject MTX weekly as well), Enbrel didn't do much > for me. I switched to Remicade infusions about 3 months ago and I > quite prefer it to giving myself a shot. For me, once I started > Remicade I realized how psychologically draining doing the shots > every week had been. Plus, there's something quite comforting in > being somewhere else for a few hours where I a) am in the safety of > medical professionals and always meet and talk with someone else > living with RA or a different auto-immune disease. My job is almost > constant chaos and so it's also a few hours of refuge for me. If I'm > going to have to live with this disease, I don't mind that the > medication benefits me in more ways than one! > > This is just my experience, but I hope you find what works best for > you. Good luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 Shirley, I was on humira injections for awhile. I have used enbrel pen, and now on humira pen. The pen is very easy for me. The humira burns a little, but well worth it, if it helps me. I have never tried the infusion, so can't help you there. I was very scared when starting the shot, but I did it. My hubby would inject me, and then one day I just started doing it myself, its not that bad. Good luck, let us know what you decide. Have a bless day, Tawny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 Good luck, Shirley! Let us know how it goes. Sue On Thursday, August 7, 2008, at 03:57 AM, nana2livi wrote: > Sue, > Thanks. I needed a push on this and I don't understand why. > Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 My fellow groupies, It will be Enbrel pens. I have to get an OK from my surgeon since it could cause the bone fusions not to heal. It has probably has been enough time, but my rheummy wants his approval. I also need approval from my insurance, but don't expect a problem and a TB test. I expect my first injection next Wednesday or Thursday. I am glad the decision is over. Whew! What a mountain I created for myself. LOL. I was really surprised how well informed I was from reading everyones post and 's wonderful information, so was my rheummy. She said, " It seems you have done some research. " I replied, " Nope, my RA support group on . " I am so blessed to be a part of this group of knowledgeable and caring people. Thanks again, Shirley > > > Sue, > > Thanks. I needed a push on this and I don't understand why. > > Shirley > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 Shirley I give myself the Humera and I gave the Enbrel before that. After the first stick you won't mind or at least that was my experience. I give them in my abd and the only part I feel is the medicine when it goes in if I give it too fast. Heidi M On Wed, Aug 6, 2008 at 8:08 PM, nana2livi <s.p5315@...> wrote: > Group, > I have an appoitment with my rheummy's physician assistant tomorrow. I > have tried MTX and Arava. We are to move on to a biologic. I am not > sure if I want to do infusions or injections. I don't like the idea of > sticking myself, but do like the convenience, yet I am not sure about > the infusions either. What a baby! > I would love some of your input. > Thanks, > Shirley > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 Shirley, I hope that Enbrel works as well for you as it does for me. I cannot tell that I have RA. Even my morning stiffness is gone. Sue On Thursday, August 7, 2008, at 05:24 PM, nana2livi wrote: > My fellow groupies, > It will be Enbrel pens. Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2008 Report Share Posted August 8, 2008 Heidi, Thanks! It seems all of you on injections are pros! Well, I may not ever be a pro, but thanks to you wonderful people, I know that I can do this. Shirley > > > Group, > > I have an appoitment with my rheummy's physician assistant tomorrow. I > > have tried MTX and Arava. We are to move on to a biologic. I am not > > sure if I want to do infusions or injections. I don't like the idea of > > sticking myself, but do like the convenience, yet I am not sure about > > the infusions either. What a baby! > > I would love some of your input. > > Thanks, > > Shirley > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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