Guest guest Posted October 8, 2000 Report Share Posted October 8, 2000 hi Crew - a msg from Jordan's Mom - hugs, LynnBK Hi Lynn, Please forward this to the crew. It's from Annette, Jordan's mom. Thanks. Hugs, Amber October 6, 2000 For Jordan's friends on the Crew, It is raining today and will soon be cold. This was not Jordan's favorite type of weather, but she knew I soared when presented with these blustery days and would call me, " Nanook of the North! " Actually, I remember her loving the rain when she could hear and, so, I listened for two rather than one. How do I begin to tell you what your friendship meant to her? Where are the words in our English language that can convey who she was and what you are? Jordan had a marvelous sense of " timing " about her NF2. She seemed to work always toward God's " Quality of Time. " When the moment came, she died at 5:00 on Wednesday morning, October the 4th. Her death occurred after six days in a small fishing village in Maine where she had been visiting a friend. Ben and I had tagged along to carry the luggage! Jordan was in her own bed, in her own home, at the time she passed away. That was terribly important to her. She treasured her upstairs home area, the place where she kept her communication equipment, her braille books, and pictures of friends, family, and Winston, her cocker spaniel; where she welcomed her friends for visits and conversations and laughter. As we visited on the flight home, we continued a discussion that had begun two weeks prior to our Maine journey. The thrust of the discussion revolved around the changes we would need to make in our home to provide the safety she needed. She had lots of good ideas. And although her conversation was open and direct, I felt a sense of sorrow and saw sadness in what could easily result in the last vestiges of independence. It was not a place she wished to go---she told many of us that, time and time again. Jordan was often subtle, but she was not so subtle when it came to her desire for independence. She fought very, very hard for that. And she won! When I think about the relationship she and I had, I marvel at how we managed our love, our space, our friendships, our faith. What mother do we know who would be privy to their daughter's most personal and intimate feelings? As she became blind, she gave me a precious gift when she allowed me to act as the messenger between you and she in your letters and correspondence. I accepted that as the most precious of gifts--for she gave me your thoughts and fears and dreams. Hopefully, I was able to honor you and your love for Jordan each day, each week, each month. We come now to the time when we must allow Jordan to be pain-free, to dance and sing, and to enjoy, hearing and seeing, those with NF2 who have preceded her. For Jordan, the " NF2 Monster " is no more. Jordan asked that she be cremated and that she have a memorial service at her church, St. s's Presbyterian in Lake , Louisiana. We will celebrate her " freedom in grace " on Sunday, October 15th at 3:00 in the afternoon. Should you come, there will be a place for you with my family. One more request Jordan made is that if anyone wished to recognize her in some way, that, rather than flowers, a small donation be sent to The National Neurofibromatosis Foundation, Inc. (NNFF) located at 95 Pine Street, 16th Floor, New York, New York 10005. My family will also establish a memorial fund in Jordan's name for people with disabilities at McNeese State University. Those funds will provide equipment and services to students at McNeese who need special assistance. We must always remember that " Love bears all things, believes all things, hopes all things, endures all things. " (1 Corinthians, 13:7) Good night, Annette Harlow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2000 Report Share Posted October 25, 2000 WOW! Thank you so much for forwarding Annette's letter to us! We now know where Jordan got her spirit. . .They are very special and quite an inspiration! bentoak4@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2000 Report Share Posted October 25, 2000 WOW! Thank you so much for forwarding Annette's letter to us! We now know where Jordan got her spirit. . .They are very special and quite an inspiration! bentoak4@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2000 Report Share Posted October 25, 2000 WOW! Thank you so much for forwarding Annette's letter to us! We now know where Jordan got her spirit. . .They are very special and quite an inspiration! bentoak4@... Quote Link to comment Share on other sites More sharing options...
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