Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 Hello,Ive been reading quietly ,trying to pick up on ways to cope with my illness-es.As I read,I see how caring and genuinely concerned you are for one another.Ok, I just wanted to make that observation before going on. I know the severity and types of conditions vary in here, so someone somewhere will have to know what Im saying right? Things are a mess now and I have no idea what Im suppose to do,or how to go about it. I was diagnosed w/ Peripheral Neuropathy back in 97-98, in my left foot. Drs. said due to botched foot surgery, who knows? Befor even then, when I was 24 a Dr. told me I had Rheumatoid Arthritis. I dismissed his diagnosis and kinda forgot about it. Afterall I was only 24. Throughout the years since Id say Ive dealt with more than usual aches and pains. Then when my Neuropathy flared up really bad in 2005, I aplied for disability. SSI sent me to a Dr. of theirs and he diagnosed me also with severe FMS. SSI denied me. I felt overwhelmed and hopeless, so life went on. Struggling day after day. Oh a important factor here, I have no medical ins. which makes it impossible to get treatment. Last March my health took a giant nose dive, my knees have become swollen to the point of disfigurement, the pain is beyond words to descrie it. Then shortly after my knees, my feet became involved too. My daughter has to help me out of bed in the mornings and help me up and down throughout the day. Every morning gets worse than the one before. Ive refiled for disability, and was told if aproved medical will be covered. My question is what do I do in the meantime?My pain is unbearable. I am so tired of asking people to help me do things and it shows theyre tired of me asking too.I am absolutely scared to death that Im causing major damage by not getting treatment or worse yet, what if theres something else wrong with me? Thats how bad I hurt basically from the waist down, I fear losing the use of my legs. right this minute as I type my legs are swollen, tight and feel like 500 lbs each when I try to walk. Any advice is much appreciated. Sincerly a new member, RandeeLee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 Hi RandeeLee and Welcome. I don't post much either and mostly read as much as I can to learn as much as I can as well. I don't have health insurance either, so I understand what you're going through. You didn't mention how old your daughter is or whether you have a husband in the home. I'm wondering if you would qualify for Medicaid while you are waiting on Social Security Disability (SSD). You may also qualify for Supplemental Security Income (SSI). I've recently decided to take part in a clinical study through my rheumatologist because I can't afford the more expensive medications for my RA and the meds I take now just aren't cutting it. I'm 47 and have been waiting for around 3 years for SSD. We don't qualify for SSI or Medicaid, but we do qualify for Medically Needy with a Share of Cost, so hopefully that would cover us in an emergency. You may consider going to the ER since you are feeling so bad. It doesn't sound good that your legs feel like they weigh 500lbs each when you try to walk. Please know that my prayers are with you. Keep us posted on how you are doing. I care............Doreen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 Go to apply for medicaid, let them know you have filed for disability. You'll have to detail to them what the problems are. ASK for Medicaid to begin immediately. You can go back several months before actually being approved for medicaid. Find a doctor, both primary care and a rheumatologist that will bill on the understanding that medicaid will come through. Make sure that the doctor understands that you are seeking help from medicaid and disability, and you need his support for your case for payment. They will usually cooperate because they do want to get paid. In the mean time, I would suggest Aleeve for pain. It probably is not enough, but will help some. Good luck in your pursuit. > > Hello,Ive been reading quietly ,trying to pick up on ways to cope with > my illness-es.As I read,I see how caring and genuinely concerned you > are for one another.Ok, I just wanted to make that observation before > going on. > > I know the severity and types of conditions vary in here, so someone > somewhere will have to know what Im saying right? > Things are a mess now and I have no idea what Im suppose to do,or how > to go about it. I was diagnosed w/ Peripheral Neuropathy back in > 97-98, in my left foot. Drs. said due to botched foot surgery, who > knows? Befor even then, when I was 24 a Dr. told me I had Rheumatoid > Arthritis. I dismissed his diagnosis and kinda forgot about it. > Afterall I was only 24. Throughout the years since Id say Ive dealt > with more than usual aches and pains. Then when my Neuropathy flared > up really bad in 2005, I aplied for disability. SSI sent me to a Dr. > of theirs and he diagnosed me also with severe FMS. SSI denied me. I > felt overwhelmed and hopeless, so life went on. Struggling day after > day. Oh a important factor here, I have no medical ins. which makes it > impossible to get treatment. > > Last March my health took a giant nose dive, my knees have become > swollen to the point of disfigurement, the pain is beyond words to > descrie it. Then shortly after my knees, my feet became involved too. > My daughter has to help me out of bed in the mornings and help me up > and down throughout the day. Every morning gets worse than the one > before. Ive refiled for disability, and was told if aproved medical > will be covered. My question is what do I do in the meantime?My pain > is unbearable. I am so tired of asking people to help me do things and > it shows theyre tired of me asking too.I am absolutely scared to death > that Im causing major damage by not getting treatment or worse yet, > what if theres something else wrong with me? Thats how bad I hurt > basically from the waist down, I fear losing the use of my legs. right > this minute as I type my legs are swollen, tight and feel like 500 lbs > each when I try to walk. > > Any advice is much appreciated. > > Sincerly a new member, RandeeLee > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 HI RANDEELEE,WELCOME TO THE RA GROUP! I'M SOO SORRY FOR ALL YOUR MISFORTUNES & PAIN. I HOPE YOU GET HELP SOON SO U DON'T HAVE TO BE IN THE SEVERE PAIN THAT U R IN. GOD BLESS,MELYNDA GAMEZ 7/28/08 8:45P.M.CENTRAL [ ] Re: 1st Time Posting.. Hi RandeeLee and Welcome. I don't post much either and mostly read as much as I can to learn as much as I can as well. I don't have health insurance either, so I understand what you're going through. You didn't mention how old your daughter is or whether you have a husband in the home. I'm wondering if you would qualify for Medicaid while you are waiting on Social Security Disability (SSD). You may also qualify for Supplemental Security Income (SSI). I've recently decided to take part in a clinical study through my rheumatologist because I can't afford the more expensive medications for my RA and the meds I take now just aren't cutting it. I'm 47 and have been waiting for around 3 years for SSD. We don't qualify for SSI or Medicaid, but we do qualify for Medically Needy with a Share of Cost, so hopefully that would cover us in an emergency. You may consider going to the ER since you are feeling so bad. It doesn't sound good that your legs feel like they weigh 500lbs each when you try to walk. Please know that my prayers are with you. Keep us posted on how you are doing. I care............Doreen ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 Dear Randeelee  i am also having same problems in my knees but now i am better.after taking glucosamine and b-complex capsules everyday.hope this can help you also. nirja From: leigh <touch_4_health@...> Subject: [ ] 1st Time Posting.. Date: Monday, 28 July, 2008, 2:14 PM Hello,Ive been reading quietly ,trying to pick up on ways to cope with my illness-es.As I read,I see how caring and genuinely concerned you are for one another.Ok, I just wanted to make that observation before going on. I know the severity and types of conditions vary in here, so someone somewhere will have to know what Im saying right? Things are a mess now and I have no idea what Im suppose to do,or how to go about it. I was diagnosed w/ Peripheral Neuropathy back in 97-98, in my left foot. Drs. said due to botched foot surgery, who knows? Befor even then, when I was 24 a Dr. told me I had Rheumatoid Arthritis. I dismissed his diagnosis and kinda forgot about it. Afterall I was only 24. Throughout the years since Id say Ive dealt with more than usual aches and pains. Then when my Neuropathy flared up really bad in 2005, I aplied for disability. SSI sent me to a Dr. of theirs and he diagnosed me also with severe FMS. SSI denied me. I felt overwhelmed and hopeless, so life went on. Struggling day after day. Oh a important factor here, I have no medical ins. which makes it impossible to get treatment. Last March my health took a giant nose dive, my knees have become swollen to the point of disfigurement, the pain is beyond words to descrie it. Then shortly after my knees, my feet became involved too. My daughter has to help me out of bed in the mornings and help me up and down throughout the day. Every morning gets worse than the one before. Ive refiled for disability, and was told if aproved medical will be covered. My question is what do I do in the meantime?My pain is unbearable. I am so tired of asking people to help me do things and it shows theyre tired of me asking too.I am absolutely scared to death that Im causing major damage by not getting treatment or worse yet, what if theres something else wrong with me? Thats how bad I hurt basically from the waist down, I fear losing the use of my legs. right this minute as I type my legs are swollen, tight and feel like 500 lbs each when I try to walk. Any advice is much appreciated. Sincerly a new member, RandeeLee Unlimited freedom, unlimited storage. Get it now, on http://help./l/in//mail/mail/tools/tools-08.html/ Quote Link to comment Share on other sites More sharing options...
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