Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 They had tried me on methotrexate first and it didn't help me. Plaquenil has been a life saver for me so far. I haven't ever tried Orencia. Sorry I don't know anything about that. I have the lupus overlap (MCTD) so I can't do the biologics either. Anyway he is thinking about Sulfasalazine with me and he has also mentioned Imuran. Just thought I would throw out a few options you man mention. Good luck to you. > > Dear Group, > > I see my rheumatologist in two weeks to see what treatment I can > FINALLY start again. As you may recall I can't go back on Enbrel or > Humira (boooo!!!) because of the possible drug induced lupus with me > and the TNFs, so once I get my readings back on my ANA he and I > discussed possibly starting Orencia to get off the Prednisone, or > perhaps even Plaquenil whether or not there is a lupus overlap. Has > anyone had any positive results with Orencia? Has Plaquenil helped > anyone with RA? I can't take Methotrexate because it gave me horrible > mouth ulcers (even with folic acid) and it really didn't help my RA at > all. > > Thanks very much! > Cheryl > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 I have had wonderful results with plaquenil and minocycline. At my last visit in early July my rheumatologist could find no clinical signs in me anymore -- no swelling. I still have some early morning stiffness, a little residual pain in my right hand, and a little fatigue. But that's it. I have more energy that most healthy people. So definitely give plaquenil a try. It's really a very benign drug if you are not one of the rare cases with eye complications. And also ask about minocycline. I am down to just 200 mg of plaquenil daily, and 100 mg minocycline MWF. It is also an approved DMARD on the arthritis foundation website, and whether its the anti-inflammatory effect or the antibiotic effect, it is helping me. And it also has almost no side effects -- they have been giving it to teenagers for acne for years. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 Bonnie, Thanks very much for the advice. I'm going to talk to rheumy about these DMARDS! I didn't have much success with the Methotrexate and I really miss the Enbrel (sniff, sniff). Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2009 Report Share Posted December 16, 2009 These kids are great at knowing what is working and what is not. I hope you get into the doctor soon. My daughter has gone through about 4 " cocktails " .. eventually something will work. We are on Remicade and Arava right now and she is doing pretty good. Hard to know for how long but keep trying. She needs to button her pants!! ________________________________ From: Anne Bacon <annebacon@...> Sent: Tue, December 15, 2009 5:36:09 PM Subject: what's next Hi all, Just a recap: was diagnosed last January with poly. She started with mtx and hydroxychloriquine (sp?) she did not improve so they increased the mtx. Still no improvement, so she was put on Enbrel in August. She is still not under control and seems to be getting worse.. Today she couldn't button or unbutton her pants and she asked me to call her dr (isn't it terrible when a 10 year old ASKS you to call the doc?) Anyway, what is typically next? Any guesses? Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2009 Report Share Posted December 16, 2009 Humira, Remicade infusions??? We have not been down that route they have to find the right mix for her. I am sorry. I have been there before call and make appointment everyone has the right to be painfree.....I hope she gets some relief soon. Terri B From: Anne Bacon Sent: Tuesday, December 15, 2009 6:36 PM Subject: what's next Hi all, Just a recap: was diagnosed last January with poly. She started with mtx and hydroxychloriquine (sp?) she did not improve so they increased the mtx. Still no improvement, so she was put on Enbrel in August. She is still not under control and seems to be getting worse. Today she couldn't button or unbutton her pants and she asked me to call her dr (isn't it terrible when a 10 year old ASKS you to call the doc?) Anyway, what is typically next? Any guesses? Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2009 Report Share Posted December 17, 2009 When this happened to my son, they started Humira. It is supposed to be every 2 weeks, but we have to do it weekly. Our doctor says that Orencia (IV drug) is next for us. is having a rough month. Hopefully we can stay on the Humira. > > Hi all, > > Just a recap: was diagnosed last January with poly. She started with > mtx and hydroxychloriquine (sp?) she did not improve so they Quote Link to comment Share on other sites More sharing options...
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