remecade infusion question

July 31, 2008

For those of you who have said you feel more pain before your scheduled

infusion date...

Did this happen right from the start of the infusions, or did it start

months after your first infusion?

I have never noticed much difference at all after infusions or before them,

but I am due for my next infusion this coming Monday, and this past

week-week and a half I have been in more and more pain each day. Even my

hands are hurting again, which had gone away pretty much over the past

months.

The reason I don't know which aches and pains are being effected by the

Remicade is that I have both RA and osteoarthritis. Everytime I mention a

particularly painful spot, the rheumy says that is osteo, or that I have

both and the Remicade is only helping the RA part.

So, is it possible that though I haven't felt the pain get worse previously,

before infusions, that now (my 5th infusion, I think) it has caught up and

maybe aren't working as long? I am currently on every 8 weeks for infusions,

and weekly I take 4 methotrexate on Sundays, and folic acid everyday.

August 1, 2008

and Group

Goodness gracious. My doctor just started saying that on my last

visit. My lower lower back hurts aweful. She said thats from osto.

Do I have to see an osteo doctor?? I use pain patches for that pain.

the prednisone didnt help it a lot.

Ok I will need more information about the infusions. My doctor has

talked about infusions. I was not very concerned about that, cause

I don't know what it is. I got an idea since she said I would have

to come in for it. I am hoping the humira will be enough to help me

when I start in 4 weeks.

I take 2 methrtexate each day, one in morning and one at supper. I

am going to ask the doctor about folic acid. She don't have me take

them anymore. I am taking them now on my own. but she should know I

am taking them. Thanks for the info.

gentle hugs for everyone

Clora

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