Re: Orencia working 3 instead or 4 weeks? & OT/Dalanne

[Guest guest]

Dalanne,

I am relieved to hear that hubby's heart issue has been diagnosed and treatment

isn't far away! :-) Please continue to keep us updated!

You drive a DUMP TRUCK? How cool is that! After reading all you have been doing

during the day thanks to Orencia, I WANT SOME!

(I think I am on my way to remission with Humira but it seems to only last 7-10

days with me) I have a lower pain amount but my energy level stinks!!!!

How long have you been on Orencia? If it is short term, perhaps you might need a

couple more infusions so that you have enough in your body to last 4 weeks? I

hope you get some answers this week!

*~ Kami ~*

[ ] Orencia working 3 instead or 4 weeks? & OT

I'll hit my short Off Topic quickly- My husband's heart issue has been

diagnosed. He has Paroxysmal supraventricular tachycardia. I am going

to make his appt to see a cardiologist Monday. We are excited to know

it's name and that it can be treated. That is a HUGE steaming load of

stress off my heart. (No pun intended there)

Now for the real topic: Orencia has been working very well for me to

the point where I could drive my dump truck all day, come home to fix

supper and start doing housework afterwards. But, and it is a big But,

I can physically tell a week before I'm due for the next infusion. For

a full week before I'm due it's like I am having a flare with all the

bells & whistles. You know...redness, worse pain, stiffness, no energy,

etc.

Is this normal? Has anyone else had this happen to them? Not that I'm

complaining...I'm just curious. I get my infusion on Wednesday and am

going to tell them about this 'week long lag time'.

.

[Guest guest]

Hi, My name is Don. I have had RA for about 6 years and have not had any success

with any meds untill I used Orencia. I was pain free, went back to teaching

(sub) kept house and enjoyed life with my three young sons and wife. However the

cost was covered  by a drug program and then by my insurance once that ended,

but the copay was 450.00 (which I could not afford) and I have had to stop

taking orencia. Now I am back to being exhausted, hurting and depressed.

From: ~ Kami ~ <kamilleon@...>

Subject: Re: [ ] Orencia working 3 instead or 4 weeks? & OT/Dalanne

Date: Sunday, October 12, 2008, 3:39 PM

Dalanne,

I am relieved to hear that hubby's heart issue has been diagnosed and treatment

isn't far away! :-) Please continue to keep us updated!

You drive a DUMP TRUCK? How cool is that! After reading all you have been doing

during the day thanks to Orencia, I WANT SOME!

(I think I am on my way to remission with Humira but it seems to only last 7-10

days with me) I have a lower pain amount but my energy level stinks!!!!

How long have you been on Orencia? If it is short term, perhaps you might need a

couple more infusions so that you have enough in your body to last 4 weeks? I

hope you get some answers this week!

*~ Kami ~*

[ ] Orencia working 3 instead or 4 weeks? & OT

I'll hit my short Off Topic quickly- My husband's heart issue has been

diagnosed. He has Paroxysmal supraventricular tachycardia. I am going

to make his appt to see a cardiologist Monday. We are excited to know

it's name and that it can be treated. That is a HUGE steaming load of

stress off my heart. (No pun intended there)

Now for the real topic: Orencia has been working very well for me to

the point where I could drive my dump truck all day, come home to fix

supper and start doing housework afterwards. But, and it is a big But,

I can physically tell a week before I'm due for the next infusion. For

a full week before I'm due it's like I am having a flare with all the

bells & whistles. You know...redness, worse pain, stiffness, no energy,

etc.

Is this normal? Has anyone else had this happen to them? Not that I'm

complaining. ..I'm just curious. I get my infusion on Wednesday and am

going to tell them about this 'week long lag time'.

..

[Guest guest]

Don,

Please call your insurance and see if it could be covered under

major medical. Also, Orencia.com has a financial tab that might give

you more information.

I hope you get something to help you really soon.

Shirley

>

> From: ~ Kami ~ <kamilleon@...>

> Subject: Re: [ ] Orencia working 3 instead or 4 weeks? &

OT/Dalanne

>

> Date: Sunday, October 12, 2008, 3:39 PM

>

>

>

>

>

>

> Dalanne,

>

> I am relieved to hear that hubby's heart issue has been diagnosed

and treatment isn't far away! :-) Please continue to keep us updated!

>

> You drive a DUMP TRUCK? How cool is that! After reading all you

have been doing during the day thanks to Orencia, I WANT SOME!

> (I think I am on my way to remission with Humira but it seems to

only last 7-10 days with me) I have a lower pain amount but my

energy level stinks!!!!

>

> How long have you been on Orencia? If it is short term, perhaps

you might need a couple more infusions so that you have enough in

your body to last 4 weeks? I hope you get some answers this week!

>

> *~ Kami ~*

>

> [ ] Orencia working 3 instead or 4 weeks? & OT

>

> I'll hit my short Off Topic quickly- My husband's heart issue has

been

> diagnosed. He has Paroxysmal supraventricular tachycardia. I am

going

> to make his appt to see a cardiologist Monday. We are excited to

know

> it's name and that it can be treated. That is a HUGE steaming load

of

> stress off my heart. (No pun intended there)

>

> Now for the real topic: Orencia has been working very well for me

to

> the point where I could drive my dump truck all day, come home to

fix

> supper and start doing housework afterwards. But, and it is a big

But,

> I can physically tell a week before I'm due for the next infusion.

For

> a full week before I'm due it's like I am having a flare with all

the

> bells & whistles. You know...redness, worse pain, stiffness, no

energy,

> etc.

>

> Is this normal? Has anyone else had this happen to them? Not that

I'm

> complaining. ..I'm just curious. I get my infusion on Wednesday

and am

> going to tell them about this 'week long lag time'.

> .

>

>

>

[Guest guest]

Thank you for your help! This disease is unfair. The fatigue is unbearable. I

can take  enough pain medicine to ease the pain but then I'm useless for

anything else.

 

I am sorry for ranting, but it has been a rough day.

Don  

From: nana2livi <s.p5315@...>

Subject: [ ] Re: Orencia working 3 instead or 4 weeks? & OT/Dalanne

Date: Monday, October 13, 2008, 6:01 PM

Don,

Please call your insurance and see if it could be covered under

major medical. Also, Orencia.com has a financial tab that might give

you more information.

I hope you get something to help you really soon.

Shirley

>

> From: ~ Kami ~ <kamilleon@. ..>

> Subject: Re: [ ] Orencia working 3 instead or 4 weeks? &

OT/Dalanne

> @gro ups.com

> Date: Sunday, October 12, 2008, 3:39 PM

>

>

>

>

>

>

> Dalanne,

>

> I am relieved to hear that hubby's heart issue has been diagnosed

and treatment isn't far away! :-) Please continue to keep us updated!

>

> You drive a DUMP TRUCK? How cool is that! After reading all you

have been doing during the day thanks to Orencia, I WANT SOME!

> (I think I am on my way to remission with Humira but it seems to

only last 7-10 days with me) I have a lower pain amount but my

energy level stinks!!!!

>

> How long have you been on Orencia? If it is short term, perhaps

you might need a couple more infusions so that you have enough in

your body to last 4 weeks? I hope you get some answers this week!

>

> *~ Kami ~*

>

> [ ] Orencia working 3 instead or 4 weeks? & OT

>

> I'll hit my short Off Topic quickly- My husband's heart issue has

been

> diagnosed. He has Paroxysmal supraventricular tachycardia. I am

going

> to make his appt to see a cardiologist Monday. We are excited to

know

> it's name and that it can be treated. That is a HUGE steaming load

of

> stress off my heart. (No pun intended there)

>

> Now for the real topic: Orencia has been working very well for me

to

> the point where I could drive my dump truck all day, come home to

fix

> supper and start doing housework afterwards. But, and it is a big

But,

> I can physically tell a week before I'm due for the next infusion.

For

> a full week before I'm due it's like I am having a flare with all

the

> bells & whistles. You know...redness, worse pain, stiffness, no

energy,

> etc.

>

> Is this normal? Has anyone else had this happen to them? Not that

I'm

> complaining. ..I'm just curious. I get my infusion on Wednesday

and am

> going to tell them about this 'week long lag time'.

> .

>

>

>

[Guest guest]

Don,

Ranting is allowed and most people here find it very useful at

times.

I hope today is a better day for you and I totally understand where

you are coming from.

Shirley

>

> Thank you for your help! This disease is unfair. The fatigue is

unbearable. I can take  enough pain medicine to ease the pain but then

I'm useless for anything else.

>  

> I am sorry for ranting, but it has been a rough day.

> Don  

>

>

[Guest guest]

I have been on Orencia, including the initial 3 that i got every 2

weeks, for 3.5 months. My infusion tomorrow will be month #4.5 .

Don, my insurance is fighting me on the orencia also. BlueCross is

refusing to pay for my infusions by saying that it is a cancer

treatment that needs to be pre-approved and that i did not get that

treatment cleared. My RA office is trying to help me. B.C. has been

good coverage for us until this. My Dr also helped me get enrolled in

Commence, a program thru Orencias maker to help but if my insur wins

and doesn't have to pay then all the Commence program will pay is

$500 per treatment. Each treatment is being billed at $3200 plus the

lab fees.

Oh, Kami...I not only drive a dump truck but I am a farm wife and ran

both of our semis back and forth to the elevator on Friday. We are in

the midst of soybean harvest. Wedn. after my infusion i have to

return to the farm to drive the grain cart until our 11 yr son gets

home- he loves running the grain cart. We are driving a huge 4 wheel

drive tractor with a CD player so it's a cushy thing!

[Guest guest]

Dalanne,

You go girl!

Shirley

--- In , " Dalanne " <tombstone1968@...>

wrote:

>

> I have been on Orencia, including the initial 3 that i got every 2

> weeks, for 3.5 months. My infusion tomorrow will be month #4.5 .

>

> Don, my insurance is fighting me on the orencia also. BlueCross is

> refusing to pay for my infusions by saying that it is a cancer

> treatment that needs to be pre-approved and that i did not get

that

> treatment cleared. My RA office is trying to help me. B.C. has

been

> good coverage for us until this. My Dr also helped me get enrolled

in

> Commence, a program thru Orencias maker to help but if my insur

wins

> and doesn't have to pay then all the Commence program will pay is

> $500 per treatment. Each treatment is being billed at $3200 plus

the

> lab fees.

>

> Oh, Kami...I not only drive a dump truck but I am a farm wife and

ran

> both of our semis back and forth to the elevator on Friday. We are

in

> the midst of soybean harvest. Wedn. after my infusion i have to

> return to the farm to drive the grain cart until our 11 yr son

gets

> home- he loves running the grain cart. We are driving a huge 4

wheel

> drive tractor with a CD player so it's a cushy thing!

>