Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 Hi Ann, I was on Remicade from July 07 till May 08, I only stopped it because I got an infection after each treatment but one, so my new rheumy said let's try something else, I will be going to Orencia. As far as the treatments go, they were so easy, I never had one problem. I know three other people who have been on it for some time and it has been a lifesaver for them. I think you just have to try until you find the right one. I will only do an infusion biologic because I like the idea of an RN there if I have a problem (I'm a big chicken). As far as lymphoma goes, I asked my old rheumy that and his reply was that RA can cause cancer alone and the risks are small. Remember, it's the quality not the quantity. in PA [ ] remicade i am 56 years old had ra since i was 32.been on all meds. now doc wants me to go on remicade.is there any one over 50 on remicade.have you has any side effects. i read material on this med. it can cause lymphoma,or other cancers.need some input.i don't post much,but i read all. your help will be appreciated.thanks ann nj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2008 Report Share Posted August 25, 2008 I would talk to your rheumy. Mtx is normally used along w/ remicade; but there are other oral medications. When I was getting my remicade infusions, I took arava instead of mtx. It was a great combination for me. > > I just got back from seeing my GI Doc. She's thinking that even though my > Crohn's has been in remission or only causing a little trouble, that trying > Remicade would be a good idea. It might knock out both Crohn's and RA. > > She's going to call the Rheum and get his opinion. > > It sounds a little scary, but she said most people don't get sick from it > and I do get sick from Mtx. > > How many of you have had it? > > dd > > > > **************It's only a deal if it's where you want to go. Find your travel > deal here. > (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2008 Report Share Posted August 26, 2008 In a message dated 8/26/2008 11:01:07 A.M. Central Daylight Time, megan_hartman@... writes: >I started Remicade at the beginning of the summer, after 6 months of Enbrel did nothing for me. It took a few treatments and some adjusting to the dose, but Remicade is the first thing that has treated all of my symptoms. I take it along with weekly MTX injections. > If it took care of the pain AND the fatigue, I think I would feel like normal again. dd **************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2008 Report Share Posted August 26, 2008 DD - I started Remicade at the beginning of the summer, after 6 months of Enbrel did nothing for me. It took a few treatments and some adjusting to the dose, but Remicade is the first thing that has treated all of my symptoms. I take it along with weekly MTX injections. Let us know what your RA doc says! > > I just got back from seeing my GI Doc. She's thinking that even though my > Crohn's has been in remission or only causing a little trouble, that trying > Remicade would be a good idea. It might knock out both Crohn's and RA. > > She's going to call the Rheum and get his opinion. > > It sounds a little scary, but she said most people don't get sick from it > and I do get sick from Mtx. > > How many of you have had it? > > dd > > > > **************It's only a deal if it's where you want to go. Find your travel > deal here. > (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2008 Report Share Posted August 26, 2008 Good luck DD, I have not tried Remicade, but have heard great stories from other's. It does seem scary, but when you start feeling better, it's so worth it, keep us posted, Tawny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2008 Report Share Posted August 26, 2008 hi lisa oh my gosh i've been on prednisone for over 33yrs. mtx for9yrs.and last but least forteo inject. for 5yrs. i'm still in pain,have morning stiffness every single day of my life. there's more meds but they make me sick.my throat feels the same way, very dry hard to swallow. sinuses never had them before but i get it to thepoint i had to b put in the hospital. it sux but ideal........ god bless,melyndagamez 8/26/08 10:25p.m.central [ ] Remicade Hi everyone, I was diagnosed with RA last Jan, and started mtx. in April. Actually I've had the disease for 22 years but it was mild and undiagnosed. By last Jan. I was very sick and had already had two hip replacements. The mtx. did nothing for me so I moved on to Enbrel. It was better than nothing but I still was not functioning well and had loads of pain. So I finally got Remicade and boy did I feel a difference. My throat feels raw and my sinuses are blocked but I'll take it for pain-free joints. The bummer is this: Every site I read seems to indicate that Remicade will only last for a time. After a year or two or five, people build up antibodies to the med. Is there anyone here who has been on a therapy longer than five years? Thanks, ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2008 Report Share Posted August 26, 2008 Hi Melynda, Prednisone worked pretty well for me but of course the docs push us to get off ASAP. Glad to hear that you can still take it even if not ideal. > > hi lisa oh my gosh i've been on prednisone for over 33yrs. mtx for9yrs.and last but least forteo inject. for > 5yrs. i'm still in pain,have morning stiffness every single day of my life. there's more meds but they make > me sick.my throat feels the same way, very dry hard to swallow. sinuses never had them before but i get it to thepoint i had to b put in the hospital. it sux but ideal........ > god bless,melyndagamez 8/26/08 10:25p.m.central > > > > [ ] Remicade > > Hi everyone, > > I was diagnosed with RA last Jan, and started mtx. in April. Actually > I've had the disease for 22 years but it was mild and undiagnosed. By > last Jan. I was very sick and had already had two hip replacements. > The mtx. did nothing for me so I moved on to Enbrel. It was better > than nothing but I still was not functioning well and had loads of > pain. So I finally got Remicade and boy did I feel a difference. My > throat feels raw and my sinuses are blocked but I'll take it for > pain-free joints. > > The bummer is this: Every site I read seems to indicate that Remicade > will only last for a time. After a year or two or five, people build > up antibodies to the med. Is there anyone here who has been on a > therapy longer than five years? > > Thanks, > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2008 Report Share Posted October 3, 2008 dd and group; I am so happy your Remicade has been approved.. I waited about 2 months before they approved my humirra.. I began to worry... I just took my third shot this evening.. It's like a rush for a junky haaaaaaaaaaaaa. No I don't get a rush but just a figure of speech.. gentle hugs Clora > I got a call today that Remicade has been approved. My first infusion is > October 14th. I also got the blood work back from my RA doc. He didn't seem to > excited about giving me Remicade when he did it. It was recommended by my GI > doc and PC. > > But he wrote a note on the blood work and said my inflammation level is high > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2008 Report Share Posted October 4, 2008 Hi dd, Glad your approved for Remicade, and your getting it soon! I've heard it does help with Crohn's too. I pray it will work well for you, and able to stay on it for awhile. They should keep a watch on your lab work. It sounds like you have some super docs. Let us know how it works for you, Tawny > > I got a call today that Remicade has been approved. My first infusion is > October 14th. I also got the blood work back from my RA doc. He didn't seem to > excited about giving me Remicade when he did it. It was recommended by my GI > doc and PC. > > But he wrote a note on the blood work and said my inflammation level is high > again and it is a good thing I am starting Remicade. CRP was 7.6 and high > should be .9. Liver is still ok. Hemoglobin is back in normal range. > > I'm anxious to see if the Remicade will alleviate some Crohn's symptoms and > take away fatigue. That would be a miracle. > > btw, I'm O positive and have never had the drug you are talking about. > > dd > > > > **************New MapQuest Local shows what's happening at your destination. > Dining, Movies, Events, News & more. Try it out! > (http://local.mapquest.com/?ncid=emlcntnew00000001) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2008 Report Share Posted October 14, 2008 I had my first infusion today. It didn't take as long as I thought it would -- I still had to watch the end of the movie they gave me. I'm really tired tonight and don't know if it's related or not. At one point, I got a weird taste in my mouth -- no other problems. The only bad thing was the music the nurse was playing. I usually like classical music, but this was more like new age. The stuff that is supposed to calm you down? I find it so annoying it cranks me up. She gave me earphones for my movie to drown it out and that helped. I had forgotten my library book and that would never have worked. Next time I will stop by Red Box and get a current movie that I really would like to see and I will bring the kind of headphones you use for shooting in case I want to read. I will also ask for the chair away from the music if it's available. Will let you know if my symptoms get better -- so far no change. dd **************New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News & more. Try it out (http://local.mapquest.com/?ncid=emlcntnew00000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2008 Report Share Posted October 14, 2008 dd, I hope anything negative will stary far away from you. Get some good rest tonight. Shirley > > I had my first infusion today. It didn't take as long as I thought it would > -- I still had to watch the end of the movie they gave me. > > I'm really tired tonight and don't know if it's related or not. At one > point, I got a weird taste in my mouth -- no other problems. > > The only bad thing was the music the nurse was playing. I usually like > classical music, but this was more like new age. The stuff that is supposed to > calm you down? I find it so annoying it cranks me up. She gave me earphones for > my movie to drown it out and that helped. I had forgotten my library book and > that would never have worked. > > Next time I will stop by Red Box and get a current movie that I really would > like to see and I will bring the kind of headphones you use for shooting in > case I want to read. I will also ask for the chair away from the music if > it's available. > > Will let you know if my symptoms get better -- so far no change. > > dd > **************New MapQuest Local shows what's happening at your destination. > Dining, Movies, Events, News & more. Try it out > (http://local.mapquest.com/?ncid=emlcntnew00000002) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 DD, Question... Should you take your Remicade and MTX on the same day? Isn't that too much on one day? I know it's different for everyone, just curious. I take my Enbrel on Monday, and MTX on Thursday. Heidi in Mass. In a message dated 10/26/2008 9:05:22 P.M. Eastern Daylight Time, dgd301@... writes: I'm supposed to get my 2nd Remicade infusion tomorrow. I've had a runny nose this week, so will tell the nurse about it and see what she says. I also take my Mtx tomorrow. It still makes me feel icky for a couple of days. I wonder about injections, but haven't brought it up yet. So far the Remicade has improved my intestinal problems, but my main problem from RA right now is fatigue and it hasn't helped that so much. Now that I'm down to 5 mg of Prednisone, my heart is not beating as fast as it was, so I'm gradually getting better. dd ************************<WBR>**Play online games for FREE at Games.com! All of no registration required and great graphics – check it out! (_http://pr.atwola.http://pr.atwhttp://pr.atwolahttp://pr.atwolahttp://pr._ (http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir=) _http://www.games.http://wwhttp://www.gameshttp_ (http://www.games.com/?ncid=emlcntusgame00000001) ) [Non-text portions of this message have been removed] **************Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! (http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir= http://www.games.com?ncid=emlcntusgame00000001) Quote Link to comment Share on other sites More sharing options...
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