Re: Afraid of my drug-switch OT

[Guest guest]

and Group;

Awe I am so sorry, I know exactly how you feel hon. I been

hurting for many years. In fact my entire adult life. I am 54 years

old. It really got bad 5 years ago when I was diagnosed with

fibro. I basically been in bed 5 years. I took morphine for 2 of

it and slept in bed day and night. One day my husband dragged me

out of bed fighting and kicking with what strength I had, and put

me on the living room chair.

I am glad he did. I went to a new doctor when SSD approved me. I

quit the morphine on my own. No problem. I was not addicted. I just

needed it for pain, however; not if it was going to make me sleep

all the time. About a year or so ago I got a new rhuemy, My RA got

really bad. I was in constant pain.

I met this support group here. ANd found out how to get the ball

moving again. In the mean time, I was in to much pain to do much of

anything. Taking a shower was a major deal for me. My husband took

over the house work. Many times I would lay in the bed and cry from

such aweful pain of RA. My husband would rub me down with bengay

and I would take my lortabs for headaches just to stop only some of

the pain.

I informed my rheumy very kindly and politely that I can't take this

aweful pain. I walked in very slowly and in much pain. Believe me

none of it was an act. Of course we started out with Methotrexiate

and other meds which did nothing a year has gone by. I start humira

injections the 28th this month. She (rheumy) has me on prednisone

10 mg a day. I can't believe I can stand up with out groaning in

pain. Wow wee, it feels great.

I have to go off of prednisone cause I have other diseases. I hope

the humira injections help as well. My group here has really

educated me on RA, Fibro and other illnesses. I love this group and

they are so kind and gentle to each other. I hope I gave you some

encouraging words. I know about the pain we are in. It is so very

very sad. I read the post everyday and someone here will have me

bursting in laughter or aching in my heart for them. I wish I can

take everyone's pain away. I can pray and that I do.

gentle hugs to everyone

Clora

[Guest guest]

Clora,

Thank you so much for sharing your experience! I love reading your

posts, you are a precious lady! I believe you have been through much

more than I have, your experience and insight is so valuable.

I believe Humira is similar to Enbrel, is it not? I will look

forward to hearing how it works for you...

I'll be taking my first does of Enbrel today..... E-gads! Wish me

luck!

Thanks again, Clora, for taking the time to answer my post... you

are precious!

>

> and Group;

>

> Awe I am so sorry, I know exactly how you feel hon. I been

> hurting for many years. In fact my entire adult life. I am 54

years

> old. It really got bad 5 years ago when I was diagnosed with

> fibro. I basically been in bed 5 years. I took morphine for 2 of

> it and slept in bed day and night. One day my husband dragged me

> out of bed fighting and kicking with what strength I had, and put

> me on the living room chair.

>

> I am glad he did. I went to a new doctor when SSD approved me. I

> quit the morphine on my own. No problem. I was not addicted. I

just

> needed it for pain, however; not if it was going to make me sleep

> all the time. About a year or so ago I got a new rhuemy, My RA got

> really bad. I was in constant pain.

>

> I met this support group here. ANd found out how to get the ball

> moving again. In the mean time, I was in to much pain to do much

of

> anything. Taking a shower was a major deal for me. My husband

took

> over the house work. Many times I would lay in the bed and cry

from

> such aweful pain of RA. My husband would rub me down with bengay

> and I would take my lortabs for headaches just to stop only some of

> the pain.

>

> I informed my rheumy very kindly and politely that I can't take

this

> aweful pain. I walked in very slowly and in much pain. Believe me

> none of it was an act. Of course we started out with Methotrexiate

> and other meds which did nothing a year has gone by. I start

humira

> injections the 28th this month. She (rheumy) has me on prednisone

> 10 mg a day. I can't believe I can stand up with out groaning in

> pain. Wow wee, it feels great.

>

> I have to go off of prednisone cause I have other diseases. I hope

> the humira injections help as well. My group here has really

> educated me on RA, Fibro and other illnesses. I love this group

and

> they are so kind and gentle to each other. I hope I gave you some

> encouraging words. I know about the pain we are in. It is so very

> very sad. I read the post everyday and someone here will have me

> bursting in laughter or aching in my heart for them. I wish I can

> take everyone's pain away. I can pray and that I do.

>

> gentle hugs to everyone

> Clora

>

[Guest guest]

and Group;

Thank you so kindly for commenting on my post. Sometimes I am

afraid I am talking to much. As I do in real life haaaaa. I don't

know anything about enbrel and humira except it helps a lot of us in

pain from RA.

I am glad I can convey my thoughts in writing. I wonder sometimes

if anyone understands what I am saying haaaaaaa. I have to go over

what I write about 3 or 4 times to get it right. I dont have a

spell check when replying so we cant cheat on spelling haaaaaa. I

love everyone here so much. When someone talks about their pain, I

begin to pray emmidiately. Can't wait for such an important

prayer. God can work really fast. I watch prayers being answered

everyday. I don't give up on anyone.

love everyone

Clora

> Clora,

> Thank you so much for sharing your experience! I love reading

your

> posts, you are a precious lady! I believe you have been through

much

> more than I have, your experience and insight is so valuable.

> I believe Humira is similar to Enbrel, is it not? I will look

> forward to hearing how it works for you...

> I'll be taking my first does of Enbrel today..... E-gads! Wish

me

> luck!

>

> Thanks again, Clora, for taking the time to answer my post...

you

> are precious!

>

>

>

>

>

>

>

> >

> > and Group;

> >

> > Awe I am so sorry, I know exactly how you feel hon. I

been

> > hurting for many years. In fact my entire adult life. I am 54

> years

> > old. It really got bad 5 years ago when I was diagnosed with

> > fibro. I basically been in bed 5 years. I took morphine for 2

of

> > it and slept in bed day and night. One day my husband dragged

me

> > out of bed fighting and kicking with what strength I had, and

put

> > me on the living room chair.

> >

> > I am glad he did. I went to a new doctor when SSD approved

me. I

> > quit the morphine on my own. No problem. I was not addicted. I

> just

> > needed it for pain, however; not if it was going to make me

sleep

> > all the time. About a year or so ago I got a new rhuemy, My RA

got

> > really bad. I was in constant pain.

> >

> > I met this support group here. ANd found out how to get the ball

> > moving again. In the mean time, I was in to much pain to do

much

> of

> > anything. Taking a shower was a major deal for me. My husband

> took

> > over the house work. Many times I would lay in the bed and cry

> from

> > such aweful pain of RA. My husband would rub me down with

bengay

> > and I would take my lortabs for headaches just to stop only some

of

> > the pain.

> >

> > I informed my rheumy very kindly and politely that I can't take

> this

> > aweful pain. I walked in very slowly and in much pain. Believe

me

> > none of it was an act. Of course we started out with

Methotrexiate

> > and other meds which did nothing a year has gone by. I start

> humira

> > injections the 28th this month. She (rheumy) has me on

prednisone

> > 10 mg a day. I can't believe I can stand up with out groaning

in

> > pain. Wow wee, it feels great.

> >

> > I have to go off of prednisone cause I have other diseases. I

hope

> > the humira injections help as well. My group here has really

> > educated me on RA, Fibro and other illnesses. I love this group

> and

> > they are so kind and gentle to each other. I hope I gave you

some

> > encouraging words. I know about the pain we are in. It is so

very

> > very sad. I read the post everyday and someone here will have

me

> > bursting in laughter or aching in my heart for them. I wish I

can

> > take everyone's pain away. I can pray and that I do.

> >

> > gentle hugs to everyone

> > Clora

> >

>

[Guest guest]

and Group;

Thank you sweety for commenting on the post. I love to see what

someone says about my post. When I first starting writing I would

grit my teeth and hope I didnt get in trouble for what I would say

lol. I only got in trouble once for making a remark about a

medicine I had read about. I said it cased cancer in half of the

study. OMG I thought I was going to be kicked out of the Group.

It was wrong. It didnt do that. There was a flood of post about

that comment. I just got fussed at. I am very careful what I say

about reactions from any meds. If I see anything on any meds I will

send the study first. Unless the reaction happens to me. I had to

quit methotrixate, I broke out in whelps. I even got that med

confused with another one. Now I know what I am taking since I

joined this group, I have been reading the names of all my meds.

when I hear how people hurt here sometimes I think omg, that

sounds like me. I had no idea so many other people are going

through the same things I am. I have learned how to cope since I

been in this wonderful group. I never liked support groups till I

found this one. I am sure support groups are great, I just thought

I didnt need any ole support group. How wrong I was. I was so

desperate I had to join a group. Luckily I found this one. I can't

say its better than any other since its the only support group I

ever joined. Now I would recomend a support group to one who is in

need of information.

I learned what RA was basically from the group here. I would read

all kinds of medical information when I found out I had RA. I was

only reading words, meaningless big words haaaa. With a support

group one is reading about the lives of others in the same

situations, knowing what and why we are feeling what we feel. Tons

of information on meds. I guess now I am a support group beleiver.

gentle hugs everyone

Clora