re: perphrial neuropathy

[Guest guest]

Hi ,

I did a post earlier #116490 regarding this subject. Please read it

and let me know if you have any similarities. I need to find out what

all this is about.

Stella

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[Guest guest]

I have peripheral neuropathy in one foot and leg. I don't believe that

there is a so-called " cure. " It is common in diabetics.

I take Neurontin (gabapentin) and was on pain meds. It's the main reason

for my filing for permanent disability.

I started with a local neurologist, then went to a large teaching hospital

nearby and ended up at The Neurological Institute of New York at Columbia

University. They could not pinpoint any cause of my neuropathy. I think my

diagnosis was lumbar plexitis - an inflammation of a nerve plexis or a group

of nerves I think. Why? Who knows!

It can be quite debilitating and I was using a walker at first, then a cane.

I had to be extremely careful since I was falling down and it took me months

before I could walk down a flight of stairs..I used to sit at the top step

and go down one step at a time on my butt..LOL. I have a flight of stairs

to get in or out of my apartment. With physical therapy, I gained strength

in the leg so that I was able to walk unassisted.

If you have any other questions, please let me know.

Dorothy

_____

From: [mailto: ] On

Behalf Of

Sent: Friday, August 08, 2008 12:43 PM

Subject: [ ] Perphrial neuropathy

I'm sure I spelled that wrong. Anyways I have this bad in my hands and feet

and it's moving up my legs. What do you all take to help this. My

understanding is the only way to stop it is to find what is wrong with me

and help that, is that true? I'm really concerned about permanent damage.

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[Guest guest]

Hi Stella,

I found the post and remember reading it. I have the burning and tingling in my

back along my spine when I stand for more than 10 mins but my hands and feet are

just numb. It's hard to explain. I also noticed that my legs are getting numb

when my husband was scratching my thigh and I could not feel it very well. I was

told by a neurologist that my nerves are fine and it's peripheral (sorry, I know

I'm spelling it wrong) neuropathy and talked about a med for it but then that

was all I heard about. What other auto immunes does your daughter have. I have

Celiac Disease and the rheumy's first thought is it is all related to that and

that I am not responding completely to the diet. I'm still waiting for test

results to come back to get a course of action from him. I really don't know

where to go from here. I know my internist is going to send me to a surgeon

because I have 2 bulging disks in my lower back and maybe that is it but the

report says they are not pinching any nerves and it does not explain the hands

and those were the first things to go numb. Sorry, I know I'm not being any help

to you.

,,,,,,,,,,,,,,,,,,

Hi ,

I did a post earlier #116490 regarding this subject. Please read it

and let me know if you have any similarities. I need to find out what

all this is about.

Stella

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[Guest guest]

I have an Unlar nerve leasion that causes it. I take b-6.It helps

with nerve function. I haven't had any " zingers " - what I call them -

since I started taking it. Docs say I need surgery....but so far I

have had no pain or numbness or zingers, so I don't think I am going

that direction anytime soon.

I don't think it could hurt anyone to try it. I noticed that it

worked when I started back drinking redbulls. Now I take it as an

injection. But you can take it as pill form also, no Rx needed.

>

> I'm sure I spelled that wrong. Anyways I have this bad in my hands

and feet and it's moving up my legs. What do you all take to help

this. My understanding is the only way to stop it is to find what is

wrong with me and help that, is that true? I'm really concerned about

permanent damage.

>

>

>

>

> ____________________________________________________________

> Orlando Vacations - Click Here!

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