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Hi Ali  my name is Bev. I am a lurker but your email strikes a chord. I have

been diagnosed with Mixed connective tissue disease by 3 different rhemos. I am

on prednisone, celebrex, plaquenil and methotrexate.All of my lab work now is

always normal. My ana is negative. I was sent to a fourth for another opinion.

He disagreed with the others, giving " my condition " a something something pain

syndrome. He is not my normal rheumo. I have pain and sometimes swelling in most

joints and have had to take oxycontin and Capadex for the pain and sometimes

that doesn't work. I have an appointment with the pain clinic this afternoon to

see what they can suggest. I have been before and found them down to earth. My

GP who I saw this morning could not explain what this new condition was. I will

see my normal rheumo on the 18th Aug, I will be very interested in what she will

have to say. We have tried to get me off the prednisone, reduce the Methotrexate

and the

Celebrex but each time we have had a marked increased in the pain levels. I

will let you know what the pain clinic has to say.

 

Bev

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