Guest guest Posted May 6, 1999 Report Share Posted May 6, 1999 I know I have been reading alot from you all about bone density etc. I went to the dr. today. He set me up for bone density test. He said he wanted to see what condition I was in (bonewise) so that if I needed treatment before the transplant and the dreaded prednisone he could start now to help prevent some of the problems later. I had taken prednisone for about 20 years previously and already know the damage it can do. I had developed severe arthritis, diabetes, kidney problems etc. not to mention the weight. I remember at Christmas 85, our photos show me at my worst. My eyes were almost shut my face was so Huuuuuuuge! Also got the news I need another ERCP, he thinks I need my gall bladder out on top of everything else. Is there no end? Hey, at least my kidney tests were fine! , PSC Waiting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 1999 Report Share Posted July 5, 1999 Yes, I have heard that thyroid conditions play havoc on the bones, but I am now menopausal and found that I had very good bone density results in spite of the fact that I've been HyperT for 5 years...so maybe it has something to do with genetics, as well as thyroid. I am not taking HRT (estrogen), but some people think it's a good idea if you're menopausal, since it prevents osteoporosis. Esther ------------------------------------------------------------------------ eGroups.com home: hyperthyroidism - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 1999 Report Share Posted July 5, 1999 Esther, Although thyroid disease can waste both muscle and bone, I would caution against HRT if it involves that horse urine stuff that the medical profession is pushing. Calcium, regular weight bearing exercise, and, if necessary, natural estrogens, which are prescribed by alternative practitioners, are much safer, and more effective. After my hyperT, my dr. insisted that I go for a bone scan, which also yielded good results. I'm kind of sorry now that I had the scan, as I'm sure it involved some radiation. There must be more benign tests to measure bone density, but I don't know what they are. The medical establishment loves to prescribe expensive tests that use lots of radiation--from now on, if I need to test anything, I'll check w/an alternative dr. first. AntJoan ------------------------------------------------------------------------ eGroups.com home: hyperthyroidism - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 1999 Report Share Posted July 5, 1999 I was taking PROGEST for awhile which is natural progesterone but discovered that it stimulates the thyroid, so I'm afraid to take it. Right now I have no hot flashes, etc., (thank goodness), but I do hope my bone density remains in good condition. I know many peri-menopausal and menopausal women who have thyroid problems...I don't think it's a coincidence. Esther ------------------------------------------------------------------------ eGroups.com home: hyperthyroidism - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 1999 Report Share Posted July 6, 1999 Dear Esther, Many women who are perimenopausal, menopausal, or just had a baby have hyperT, so I'm sure that it is related to our hormones. With men, it seems to be related to diet, or some kind of nutritional deficiency--it seems that many men who develop hyperT are vegetarians, eat low fat, etc. I also eat that way, so maybe for women it's related to diet as well. seems to think that nutritional deficiencies, mineral imbalances, etc., are the underlying factors, and I think he's probably right. Maybe our hormone fluctuations cause mineral and other imbalances. I was taking the Progest when I developed hyperT, and my osteopath told me to discontinue it for a while, as it stimulates the thyroid. Now that I'm better, I use it regularly again. AntJoan ------------------------------------------------------------------------ eGroups.com home: hyperthyroidism - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 1999 Report Share Posted December 1, 1999 Great news: Then I would suggest you not do HRT, but consider the more natural approach. Of course, it's up to you. Visit your local health food store and check out Dr. Lee's website. Good luck. Esther Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2000 Report Share Posted December 11, 2000 In a message dated 12/10/00 9:02:26 PM Pacific Standard Time, gefox@... writes: << To all ....I think what my gastroligist was saying is he believes too many drugs are often more detrimental than helpful...so many side-efects and juggling drug interaction ... he said he probably was being old fashioned plus I have myeloma which is weaking my bones already... I see my oncologist Jan. 5 and my gastro told me to ask him for a referal to bone specialist since the oncologist probably knew more than he about it...... oh well I could drive up to the Clinic to get one.... I wasn`t really aware of meds. for osteo.... thanks for educating me. >> For most people, Fosamax doesn't seem to have a lot of side effects other than chewing up your esophagus if you take it other than as directed. The negative is that your bones don't show an improvement for at least a couple of years, I'm told. Take everything I say with a grain of salt; I'm not an expert, much less a professional, in medical areas. Take good care of yourself. Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2002 Report Share Posted November 18, 2002 According to my doctor, the spinal BMD test is not accurate in people with RA--he never really explained, and I didn't question. And yes, RA puts people at higher risk for osteoporosis--meds, lack of exercise, inflammation. My BMD is similar. (RA 25+ years, AP since Nov. 97) rheumatic Bone density > > Hello group: > I recently had a bone density scan and got weird results. My spine is as > strong as a 20-year-old's (I'm 54) but my hip has deteriorated enough to be > labeled borderline osteoporosis! > My doc says RA, which I've had for a little over three years, does not > affect bones. Has anyone had a similar result on a bone density test, or > does anyone have any thoughts? Thanks in advance. > Rhonda > > > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2002 Report Share Posted November 19, 2002 I always take calcium with my multivitamin and usually wash it down with a glass of milk. Both are heavy with vitamin D. My bone density after 8 years of prednisone is +1.5...extremely good with little chance of breakage if I fall down. Part of this is due to the good advise of my doc in taking extra calcium, and part...lets face it...is pure heredity. My bones may be just heavier or denser than some. I am aware of many people who in spite of good diet and extra calcium are fighting off the effects of osterporosis. Not a good thing but one we must all watch for, especially us women after menopause. Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 Low testosterone (androgens), will cause bone to be less dense. Testosterone is needed to keep bones/teeth etc. healthy. Your shots were way to low for a long time, so there is a chance that your bone density will also be low. The good thing is, low bone density can be partially (possibly fully), reversed with proper androgen treatment. Armyguy > Included in the battery of $500 in blood tests my endo ordered prior > to agreeing to put me on HCG, was a test for bone density. > Apparently this can be a health issue. However I cannot remember > the reason why, if it was because of the years of depo testosterone > shots, or what. Anyone educate me on this? > thanks > nort828 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 .. The good thing is, low bone density can be >partially (possibly fully), reversed with proper androgen treatment. > Unfortunately, I do not think that is true. All of your bone density is gained in your youth, and the most you can do is to slow the loss. There are a couple drugs, fosamax in particular, that have been able to build very small amounts of bone back, mostly in women- but not much. No man should believe that he can go decades with low bone density and then reverse it with testosterone. That is one one of the problems when men let their T stay low simply because it didnt give them the libido or the erections they wanted - they wake up some day with an aged body and brain and realize that it was needed for other things. When men take the drug Lupron to purposely kill their T as part of prostate cancer treatment, they lose the equivalent of a decades worth of bone in the following two years. I will leave it to others to contemplate what it does to go decades with a T reading of 200 or less and how much different that is in the long run. Got my MRI bone density test back a month ago. It said my density falls in the range of " a young adult " . I am 54 )))) Winter _________________________________________________________________ Click, drag and drop. My MSN is the simple way to design your homepage. http://click.atdmt.com/AVE/go/onm00200364ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2004 Report Share Posted February 28, 2004 > > > > i am unclear on this post.bone denisty refers to the hardness and >actual weight of the bone right? not the length and size ,if it >refers to length and size i dont think i want to increase mine as i >am over 6'2 " now and have a large bone structure. > > Right, it refers to hardness and density. T will not increase bone size (for a post-pubescent person). It will help to prevent the loss of bone size which comes from a loss of bone density over time - in other words shrinkage. Winter _________________________________________________________________ Get fast, reliable access with MSN 9 Dial-up. Click here for Special Offer! http://click.atdmt.com/AVE/go/onm00200361ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2005 Report Share Posted May 5, 2005 Hi Steve Glad you have had your DEXA scan now. It has been shown that a DEXA scan of ca L4, hip are best sites to compare people. If you bone density is lower than normal for your age then you will probably be considered to have some treatment to improve bone regeneration but at least asked to ensure your diet has enough calcium etc. The UK's National Osteoporosis site is at: http://www.nos.org.uk/ Do say what your consultant says. In the UK it is normally a Rheumatologist who interprets the DEXA scans and related problems I think. Best wishes _________________________________________ Randle _________________________________________ Bone Density > Hi there, > > Have many people here had their bone density checked? > > I was scanned last week, they checked my lower spine, lower left forearm > and > Left hip. I don't know why these sites were picked but the result showed > below average density in arm and spine. Not to sure what this means but > seeing consultant next week. > > Also getting blood results for T levels and Uric acid (due to foot pain) > > Steve > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2005 Report Share Posted May 5, 2005 Steve I thought it might help both you and others, as everyone who has low T is at risk of Osteoporosis, that I copy the list of information easily available at the NOS: http://www.nos.org.uk/public.asp [NB: You need to visit NOS to click on the files!!] a.. ALENDRONATE | Word | PDF | a.. ANOREXIA NERVOSA AND OSTEOPOROSIS | Word | PDF | a.. ANTICONVULSANT DRUGS AND OSTEOPOROSIS | Word | a.. BONE DENSITY | Word | a.. CALCITONIN | Word | PDF | a.. CALCITRIOL | Word | PDF | a.. CALCIUM | Word | PDF | a.. COELIAC CONDITION | Word | PDF | a.. CONTINUOUS COMBINED HORMONE REPLACEMENT THERAPY | Word | PDF | a.. CYCLICAL ETIDRONATE | Word | PDF | a.. DEEP VEIN THROMBOSIS AND HORMONE REPLACEMENT THERAPY | Word | PDF | a.. DEPO PROVERA | Word | a.. ENDOMETRIOSIS | Word | PDF | a.. FLUORIDE | Word | PDF | a.. GLUCO-CORTICOID INDUCED OSTEOPOROSIS | PDF | a.. HIP PROTECTORS | Word | PDF | a.. HYPERTHYROIDISM AND OSTEOPOROSIS | Word | PDF | a.. NATURAL PROGESTERONE | Word | PDF | a.. NICE INFORMATION SHEET | Word | a.. OSTEOARTHRITIS AND OSTEOPOROSIS | Word | PDF | a.. OSTEOGENESIS IMPERFECTA | Word | PDF | a.. PERCUTANEOUS VERTEBROPLASTY | Word | a.. PHYTOESTROGENS | Word | PDF | a.. RALOXIFENE | Word | PDF | a.. REFLEX SYMPATHETIC DYSTROPHY SYNDROME | Word | PDF | a.. RISEDRONATE | Word | PDF | a.. STRONTIUM | Word | a.. SUPPLEMENTS OF CALCIUM AND VITAMIN D | Word | a.. TAMOXIFEN | Word | PDF | a.. TENs | Word | PDF | a.. TERIPARATIDE (Forsteo) | Word | PDF | a.. TESTOSTERONE | Word | PDF | a.. TIBOLONE | Word | PDF | a.. TRANSSEXUALISM AND OSTEOPOROSIS | Word | a.. TURNERS SYNDROME | Word | PDF | a.. ULTRASOUND | Word | PDF | a.. URINE TESTS FOR OSTEOPOROSIS | Word | PDF | a.. VITAMIN D | Word | PDF | http://www.nos.org.uk/public.asp Hope this helps? Kind regards, _________________________________________ Randle _________________________________________ Bone Density > Hi there, > > Have many people here had their bone density checked? > > I was scanned last week, they checked my lower spine, lower left forearm > and > Left hip. I don't know why these sites were picked but the result showed > below average density in arm and spine. Not to sure what this means but > seeing consultant next week. > > Also getting blood results for T levels and Uric acid (due to foot pain) > > Steve > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2005 Report Share Posted May 8, 2005 > > The UK's National Osteoporosis site is at: > > http://www.nos.org.uk/ > > Best wishes > > > Hi , thanks for this link, very useful especially the files that explain the DXA scan. I am seeing my Endo on Tuesday and I think its him who will be going through all of my results etc. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2005 Report Share Posted May 8, 2005 > Steve > > I thought it might help both you and others, as everyone who has low T is at > risk of Osteoporosis, that I copy the list of information easily available > at the NOS: > http://www.nos.org.uk/public.asp [NB: You need to visit NOS to click on > the files!!] > > a.. ALENDRONATE | Word | PDF | > a.. ANOREXIA NERVOSA AND OSTEOPOROSIS | Word | PDF | > a.. ANTICONVULSANT DRUGS AND OSTEOPOROSIS | Word | > a.. BONE DENSITY | Word | > a.. CALCITONIN | Word | PDF | > a.. CALCITRIOL | Word | PDF | > a.. CALCIUM | Word | PDF | > a.. COELIAC CONDITION | Word | PDF | > a.. CONTINUOUS COMBINED HORMONE REPLACEMENT THERAPY | Word | PDF | > a.. CYCLICAL ETIDRONATE | Word | PDF | > a.. DEEP VEIN THROMBOSIS AND HORMONE REPLACEMENT THERAPY | Word | PDF | > > a.. DEPO PROVERA | Word | > a.. ENDOMETRIOSIS | Word | PDF | > a.. FLUORIDE | Word | PDF | > a.. GLUCO-CORTICOID INDUCED OSTEOPOROSIS | PDF | > a.. HIP PROTECTORS | Word | PDF | > a.. HYPERTHYROIDISM AND OSTEOPOROSIS | Word | PDF | > a.. NATURAL PROGESTERONE | Word | PDF | > a.. NICE INFORMATION SHEET | Word | > a.. OSTEOARTHRITIS AND OSTEOPOROSIS | Word | PDF | > a.. OSTEOGENESIS IMPERFECTA | Word | PDF | > a.. PERCUTANEOUS VERTEBROPLASTY | Word | > a.. PHYTOESTROGENS | Word | PDF | > a.. RALOXIFENE | Word | PDF | > a.. REFLEX SYMPATHETIC DYSTROPHY SYNDROME | Word | PDF | > a.. RISEDRONATE | Word | PDF | > a.. STRONTIUM | Word | > a.. SUPPLEMENTS OF CALCIUM AND VITAMIN D | Word | > a.. TAMOXIFEN | Word | PDF | > a.. TENs | Word | PDF | > a.. TERIPARATIDE (Forsteo) | Word | PDF | > a.. TESTOSTERONE | Word | PDF | > a.. TIBOLONE | Word | PDF | > a.. TRANSSEXUALISM AND OSTEOPOROSIS | Word | > a.. TURNERS SYNDROME | Word | PDF | > a.. ULTRASOUND | Word | PDF | > a.. URINE TESTS FOR OSTEOPOROSIS | Word | PDF | > a.. VITAMIN D | Word | PDF | > > http://www.nos.org.uk/public.asp > > Hope this helps? > > Kind regards, > > > Thanks great help Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2005 Report Share Posted May 8, 2005 Hi Steve Good luck for Tuesday. Try and get your actual score/result. When talking with Osteoporosis specialists it is far more helpful to have the %age rather than a " normal " comment! It sounds common sense to patients but I telephoned my local referring hospital as I had eventually been told I was Vitamin D and Calcium deficient so needed to discuss and understand where my bone density is now. " Well it's normal " ! Ah May I suggest as you are seeing your endo and I remember you said your DEXA scan is " below normal " that you ask about Parathyroid Function? The Parathyroid glands are involved with calcium balance and Vitamin D. Good luck _________________________________________ Randle _________________________________________ Re: Bone Density > >> >> The UK's National Osteoporosis site is at: >> >> http://www.nos.org.uk/ >> > >> Best wishes >> >> >> > > Hi , thanks for this link, very useful especially the files > that explain the DXA scan. > > I am seeing my Endo on Tuesday and I think its him who will be going > through all of my results etc. > > Steve > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 Don't recall any mention of bone loss from all the meds we all take. It's important to have regular bone density tests done, particularly if you're taking prednisone. My bone density wasn't terrific 3 years ago, but my latest test showed osteoporosis in my hip and osteopenia in my spine. I was started on Boniva, the once-a-month pill to improve bone density....the Sally Field one!! If you don't go for these exams, please make an appointment soon. They probably can do it where you go for your mammograms - you'd all better be doing those!!! Dorothy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 I agree with you Dorothy.  In Nov of 2006 while having a mammogram done I also had a bone density test and found out I have osteoporosis in my hips and worse in my spine. I was put on Evista 60mg daily, Calcium 600mg 2x daily, D and Magagnesium. I'm on and have been on plenty of RA meds in almost 5 years but have never taken prednisone, something I just refuse to do. My Dr. said she wanted to start me on Evista for the osteoporosis rather than Boniva because of my known stomach issues. The Irony in this is I take Prilosec each morning because of the problems the other meds I take cause to my stomach But... long tirm use of Prilosec is known to be bad for bone density. It's always something isn't it? ~lol~ Anyway..... Be sure to get those Bone Density test done everyone, their the only ones you have.  Judy in OK From: Dorothy <dorv@...> Subject: [ ] Bone Density Date: Monday, August 11, 2008, 10:31 AM Don't recall any mention of bone loss from all the meds we all take. It's important to have regular bone density tests done, particularly if you're taking prednisone. My bone density wasn't terrific 3 years ago, but my latest test showed osteoporosis in my hip and osteopenia in my spine. I was started on Boniva, the once-a-month pill to improve bone density....the Sally Field one!! If you don't go for these exams, please make an appointment soon. They probably can do it where you go for your mammograms - you'd all better be doing those!!! Dorothy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 Judy - has your bone density improved with the Evista? I like the Boniva since it's only once a month! _____ From: [mailto: ] On Behalf Of Freebird Sent: Monday, August 11, 2008 1:52 PM Subject: Re: [ ] Bone Density I agree with you Dorothy. In Nov of 2006 while having a mammogram done I also had a bone density test and found out I have osteoporosis in my hips and worse in my spine. I was put on Evista 60mg daily, Calcium 600mg 2x daily, D and Magagnesium. I'm on and have been on plenty of RA meds in almost 5 years but have never taken prednisone, something I just refuse to do. My Dr. said she wanted to start me on Evista for the osteoporosis rather than Boniva because of my known stomach issues. The Irony in this is I take Prilosec each morning because of the problems the other meds I take cause to my stomach But... long tirm use of Prilosec is known to be bad for bone density. It's always something isn't it? ~lol~ Anyway..... Be sure to get those Bone Density test done everyone, their the only ones you have. Judy in OK From: Dorothy <dorvoptonline (DOT) <mailto:dorv%40optonline.net> net> Subject: [ ] Bone Density @gro <mailto: %40> ups.com Date: Monday, August 11, 2008, 10:31 AM Don't recall any mention of bone loss from all the meds we all take. It's important to have regular bone density tests done, particularly if you're taking prednisone. My bone density wasn't terrific 3 years ago, but my latest test showed osteoporosis in my hip and osteopenia in my spine. I was started on Boniva, the once-a-month pill to improve bone density....the Sally Field one!! If you don't go for these exams, please make an appointment soon. They probably can do it where you go for your mammograms - you'd all better be doing those!!! Dorothy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 Dorothy, I have read that Bisphosphonates should not be taken if you have RA. I'd post the site that has this info but I'm not sure I'm allowed. If you want to email me directly, I'll forward you the site. in PA [ ] Bone Density Don't recall any mention of bone loss from all the meds we all take. It's important to have regular bone density tests done, particularly if you're taking prednisone. My bone density wasn't terrific 3 years ago, but my latest test showed osteoporosis in my hip and osteopenia in my spine. I was started on Boniva, the once-a-month pill to improve bone density....the Sally Field one!! If you don't go for these exams, please make an appointment soon. They probably can do it where you go for your mammograms - you'd all better be doing those!!! Dorothy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 I get a bone density test done every two years. In 2006 it showed I have osteopenia. This year no worsening of it though. Debbie L > > Don't recall any mention of bone loss from all the meds we all take. It's > important to have regular bone density tests done, particularly if you're > taking prednisone. > > > > My bone density wasn't terrific 3 years ago, but my latest test showed > osteoporosis in my hip and osteopenia in my spine. I was started on Boniva, > the once-a-month pill to improve bone density....the Sally Field one!! > > > > If you don't go for these exams, please make an appointment soon. They > probably can do it where you go for your mammograms - you'd all better be > doing those!!! > > > > Dorothy > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 I have read a few things about it as well and will speak to my rheumy next time. There's been a lot of press lately about these meds. Thanks for bringing it up. _____ From: [mailto: ] On Behalf Of McNally Sent: Monday, August 11, 2008 7:34 PM Subject: Re: [ ] Bone Density Dorothy, I have read that Bisphosphonates should not be taken if you have RA. I'd post the site that has this info but I'm not sure I'm allowed. If you want to email me directly, I'll forward you the site. in PA [ ] Bone Density Don't recall any mention of bone loss from all the meds we all take. It's important to have regular bone density tests done, particularly if you're taking prednisone. My bone density wasn't terrific 3 years ago, but my latest test showed osteoporosis in my hip and osteopenia in my spine. I was started on Boniva, the once-a-month pill to improve bone density....the Sally Field one!! If you don't go for these exams, please make an appointment soon. They probably can do it where you go for your mammograms - you'd all better be doing those!!! Dorothy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 I can't really say how well the Evista is doing Dorothy, my next test isn't until late Nov. I haven't had a problem taking it everyday though, just put it in with the rest of my morning meds. From: Dorothy <dorv@...> Subject: RE: [ ] Bone Density Date: Monday, August 11, 2008, 3:18 PM Judy - has your bone density improved with the Evista? I like the Boniva since it's only once a month! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 In February I had a bone density test and also my annual mammogram. I still have osteopenia in my lumbar spine, but my T-scores had actually improved some since the bone density test in 2002. I have been taking Evista, so I guess it must be working. Sue On Monday, August 11, 2008, at 01:51 PM, Freebird wrote: >  > In Nov of 2006 while having a mammogram done I also had a bone density > test and found out I have osteoporosis in my hips and worse in my > spine. > I was put on Evista 60mg daily, Calcium 600mg 2x daily, D and > Magagnesium. Quote Link to comment Share on other sites More sharing options...
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