Re: Colonoscopy and inflammation

[Guest guest]

Peta,

We ahd a colonoscopy and endoscopy about 5 years ago. Found nothing, probably only did it to shut me up.

Its very political, what Gastoenterologist in this country is going to say, yeah maybe that Dr Wakefield was right about this... Answer, No One, too scared of there own job.

Also they are not looking hard enough or for viruses nor do they think that Lymphoid Nodular Hyperplasia is unusual, my paed will say someone who has chronic constipation will have this, so its a difference in interpretation too.

As for drugs. We ahve just tried Singulair for . Its an astham medication which is also being trialled for other inflammatory conditions. Its working is in less pain, not posturing, screaming, stools great. Interestingly I have not been able to reduce the amount of Lactulose or senna that I give her, I mentioned this last week to our paed who said well yes you would expect that it will be helping with the Inflammation only... To which I replied what, eh... but you have always said theres no inflammtion which is why I am taking her to a F****** GI specialist in the states. Stupid woman!! She looked a bit embarrassed, but if you want sojme gopod advice forget this country and go see Wakefield or Krigsman, I am convinced if they offered to scope her agin they would still find nothing which is obviously not the case.

HTH

Caroline

xxx

[Guest guest]

Thanks Caroline

I will look up Lymphoid Nodular Hperlasia and ask dr about

singulair.We have been prescribed dulcolax to clear him out - nice

job for the weekend. He is having bad diarrohea every night now.

Consultant at the Royal Free at least admitted that they know there

is a problems with the bowels of a lot of autistic kids but they

don't know how to treat it.

When are you going to see Wakefield/ Krigsman. Are you seeing them

as well as another DAN dr?

Peta--

- In Autism Treatment , CarolineTraa@...

wrote:

>

> Peta,

> We ahd a colonoscopy and endoscopy about 5 years ago. Found

nothing,

> probably only did it to shut me up.

> Its very political, what Gastoenterologist in this country is

going to say,

> yeah maybe that Dr Wakefield was right about this... Answer, No

One, too

> scared of there own job.

> Also they are not looking hard enough or for viruses nor do they

think that

> Lymphoid Nodular Hyperplasia is unusual, my paed will say someone

who has

> chronic constipation will have this, so its a difference in

interpretation too.

> As for drugs. We ahve just tried Singulair for . Its an

astham

> medication which is also being trialled for other inflammatory

conditions. Its

> working is in less pain, not posturing, screaming, stools

great.

> Interestingly I have not been able to reduce the amount of

Lactulose or senna that I

> give her, I mentioned this last week to our paed who said well yes

you would

> expect that it will be helping with the Inflammation only... To

which I

> replied what, eh... but you have always said theres no inflammtion

which is why I

> am taking her to a F****** GI specialist in the states. Stupid

woman!! She

> looked a bit embarrassed, but if you want sojme gopod advice

forget this country

> and go see Wakefield or Krigsman, I am convinced if they offered

to scope

> her agin they would still find nothing which is obviously not the

case.

> HTH

> Caroline

> xxx

>

[Guest guest]

Naturals that you can use which are supposed to be very good are

boswellic acid and ashwaganda, but particularly boswellic acid.

Singulair (5-lox inhibitor)is limited by availability of glutathione I

believe - which obviously might be a problem for our kids.

The normally used anti-inflammatory drug of choice for bowel

inflammation is sulfasalazine but it is rx and has side effects.

Boswellic acid as far as I know has no side-effects and out performs

sulfasalazine.

Been reading too much lately ;-)

Mark

>

> Hi Has anyone here had their child scoped and found inflammation? If

> so what have you treated it with. Consultant at Royal Free says even

> if they find infammation don't know how to deal with it effectively

in

> our kids. How do you know if you have dealt with inflammation- normal

> stools? I feel I'm going round in circles. Is there any point in

> having a colonoscopy? Sorry very muddled!

> Thanks

> Peta

>

[Guest guest]

And where do you get Boswellic acid ?Geir FatabøOn 6/22/06, Mark Land <ml4nd@...> wrote:

Naturals that you can use which are supposed to be very good areboswellic acid and ashwaganda, but particularly boswellic acid.Singulair (5-lox inhibitor)is limited by availability of glutathione Ibelieve - which obviously might be a problem for our kids.

The normally used anti-inflammatory drug of choice for bowelinflammation is sulfasalazine but it is rx and has side effects.Boswellic acid as far as I know has no side-effects and out performssulfasalazine.

Been reading too much lately ;-)Mark

>> Hi Has anyone here had their child scoped and found inflammation? If> so what have you treated it with. Consultant at Royal Free says even> if they find infammation don't know how to deal with it effectively

in> our kids. How do you know if you have dealt with inflammation- normal> stools? I feel I'm going round in circles. Is there any point in> having a colonoscopy? Sorry very muddled!> Thanks

> Peta>

[Guest guest]

boswellic acid (boswellia/boswellin). If you do a search a lot of

places carry it solgar, biocare, nutricentre carry the biocare one.

Supposed to be synergistic with turmeric (curcummin) so you need less

if you use them together. Now foods do a line mixing both:

http://www.papanature.com/store/ProductDetails.aspx?c=Herbs & pid=NOW-

04614

> > >

> > > Hi Has anyone here had their child scoped and found

inflammation? If

> > > so what have you treated it with. Consultant at Royal Free says

even

> > > if they find infammation don't know how to deal with it

effectively

> > in

> > > our kids. How do you know if you have dealt with inflammation-

normal

> > > stools? I feel I'm going round in circles. Is there any point in

> > > having a colonoscopy? Sorry very muddled!

> > > Thanks

> > > Peta

> > >

> >

> >

> >

> >

> >

> >

> >

> > DISCLAIMER

> > No information contained in this post is to be construed as

medical

> > advice. If you need medical advice, please seek it from a

suitably qualified

> > practitioner.

> >

> >

[Guest guest]

Yes there is a point in having a colonoscopy, it might flag up

crohns disease or colitis. My son has ILNH but was also found to

have non-specific colitis in the colon. Many of our kids do have

these problems and this needs treatment. The treatment of choice for

bowel inflammation is not sulfasalazine but mesalazine which does

not have the same side effects. I found that 'Pentassa' was hard to

give but from another parent's advice tried Asacol which helped

enormously. It alleviated the terrible pain associated with the part

of the tract is affected.

The main thing with colonoscopy (especially if they want to look at

the illium) is to get someone competent to do it. The Royal Free

have made some big cock ups on this front. However they did used to

have good people. I can get you some names if you want. Which

consultant are you under?

Celia.

> >

> > Hi Has anyone here had their child scoped and found

inflammation? If

> > so what have you treated it with. Consultant at Royal Free says

even

> > if they find infammation don't know how to deal with it

effectively

> in

> > our kids. How do you know if you have dealt with inflammation-

normal

> > stools? I feel I'm going round in circles. Is there any point in

> > having a colonoscopy? Sorry very muddled!

> > Thanks

> > Peta

> >

>

[Guest guest]

Hi Celia

We are seeing Dr Heuschkel who seems decent enough - but then again

anyone does compared to my paed! If you know anything about him or

who is good would love to know.Blood tests showed CRP at 13 ( range

0-5) and platelets 408 ( upper limit 400). He did say that if

Charlie's diaorrhea continues after the dulcolax then that would

warrent further investigation.

Thanks Peta

-- In Autism Treatment , " celia4259 "

<C.Forrest@...> wrote:

>

> Yes there is a point in having a colonoscopy, it might flag up

> crohns disease or colitis. My son has ILNH but was also found to

> have non-specific colitis in the colon. Many of our kids do have

> these problems and this needs treatment. The treatment of choice

for

> bowel inflammation is not sulfasalazine but mesalazine which does

> not have the same side effects. I found that 'Pentassa' was hard

to

> give but from another parent's advice tried Asacol which helped

> enormously. It alleviated the terrible pain associated with the

part

> of the tract is affected.

>

> The main thing with colonoscopy (especially if they want to look

at

> the illium) is to get someone competent to do it. The Royal Free

> have made some big cock ups on this front. However they did used

to

> have good people. I can get you some names if you want. Which

> consultant are you under?

>

> Celia.

>

>

> > >

> > > Hi Has anyone here had their child scoped and found

> inflammation? If

> > > so what have you treated it with. Consultant at Royal Free

says

> even

> > > if they find infammation don't know how to deal with it

> effectively

> > in

> > > our kids. How do you know if you have dealt with inflammation-

> normal

> > > stools? I feel I'm going round in circles. Is there any point

in

> > > having a colonoscopy? Sorry very muddled!

> > > Thanks

> > > Peta

> > >

> >

>

[Guest guest]

a,

I was only 25 at the time, but I had all the symptoms of IBS. He did

blood work, and of course the colonoscopy. He diagnosed me, and put me

on medication. The med did help me, and I did take it for awhile. I

don't take any meds now, I just watch my diet. I get really sick when I

eat dairy products, so I try to avoid them.

With IBS, there isn't inflammation, you do have mucus in the stool, I

know sick, huh? I've never heard doing a biopsy for IBS. They do blood

work, colonoscopy, CT scan, sigmoidoscope, and lactose intolerance test.

With Crohn's you do have inflammation. I believe Crohn's goes right

along with RA. I know your worried, and its going to be a long weekend

for you.

Its been six years since having one. I'm surprised my doc isn't

complaining about it. I'm just not going there for awhile. You are

right, not a place for good looking guys:) Tawny(keep us posted)

>

> Hi Tawny....you poor thing....all those hunks! LOL

>

> How did they find your ibs? Was it found during colonoscopy?

Inflammation

> part of IBS? Does the dr do a biopsy to find ibs? How often do you

have to go

> back for your 'oscopies?

>

> What a funny story...I bet the guys in the recovery room recovered

really

> fast!!! lol What a good story but glad it wasn't me. There's a place

of hunky

> sexy men and it's not in the scope room while you're having a

procedure.

>

> Hugs..a

>

>

>