Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 Judy, Bless your heart.Listen sweetie,you cant blame yourself for hereditary issues.If we had our children based on what we might pass along,we would all be childless.Did that even make sense.LOL!Please dont be so hard on yourself.Try a leisurely walk or a bubble bath with candles.Sounds cheesy,right?!Pray,Pray,and Pray again.God will give you peace.Hey,maybe I should take my own advice.WOW!Anyway,have you seen Enchanted?Its a really cute movie.How about 27 Dresses?Funny movie.I wish I knew of a really good book,but nothing is coming to mind.Hope it gets better for you and your grandson. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 Dear Judy, there is absolutely no way that you are responsible for your child's or grandchild's RA. This is just a wicked disease. But it sounds like the three of you are getting the great care that you need. Just keep praying, you know God hears you. And maybe within your grandson's lifetime they will find a cure for this terrible curse. Bless you all. wendy If anyone out there has any > words of wisdom, I could sure use them. I am not doubting my faith, > or questioning God. I don't want any drugs to help me cope. I take > enough drugs now! Maybe somebody knows of a book, or a movie, or > just words of encouragement. > > Thanks in advance! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 Judy and group; Awe Judy sweetheart. Don't be broken hearted. Its not your fault babydoll. I am so sorry to hear your grandson has juvenile arthritis. We have a merciful God. You mentioned you are a christian lady. You asked for some advise about you giving this to your grandchild. You got it from someone and so on down the line. So please don't blame yourself. I know your love for your grandson. I have a grandson that I adore so much. It's not your fault so get that thought out of your mind hon. I can't say where this hideous disease comes from baby doll. God would never hurt us. He gave his son for us, dont forget. Imagine his love for his son. Sickness and disease is from down the ages of sin. Not you sweety. You must not think it's your fault. Your granson needs your energies for other things right now. Loving him, helping his mother care for him. And lets not forget to talk to our heavenly father. I believe in prayer with all my heart. Judy my heart goes out to you. Let us pray for this precious child. Don't lose your faith. Right now your faith is needed more than any thoughts of blaming yourself. Satan loves for us to suffer. Don't give satan that ability to see you feeling guilty for what he has caused from the start. Your post will have everyone here sobbing. I know I want to cry. Instead I am going to talk to my Lord. Hold on to your faith Judy and all of us that pray let us put it to our heavenly father. No more blaming yourself. You would never hurt your beautiful grandson and dont give satan that joy. Give God your love and devotion and lets pray for a miracle. very gentle hugs to everyone Clora > > I hope someone out there can help me to deal with feelings that are > causing me a lot of stress, which we all know is not good. I am 58, & > was dxd with RA about 4 years ago, although I've probably had it much > longer. My daughter was dxed with it about 10 years ago. I am > blessed that my medicine combination keeps my pain under control so > that I can maintain a pretty normal life. My daughter considers > herself in remission, although she occasionally has some issues. Her > firstborn was my first grandchild, & I love that little boy more than > I can explain in a posting. > > This precious grandson of mine is now 11 years old, & was dxed with > Juvenile RA a few months ago. He is getting the best of care,@ Texas > Children's Hospital in Houston. They are treating it aggressively, & > have him up to 8 units of MTX. My daughter says that the next step > would be Enbrel. > > I really am a strong Christian, & I know the obvious answers. I know > I can't BLAME myself. However, I am so heart broken that I somehow > feel responsible for what may be a crippling disease for him. A > grandmother wants to take credit for her grandchildren's beautiful > eyes, or smile, not a crippling disease! If anyone out there has any > words of wisdom, I could sure use them. I am not doubting my faith, > or questioning God. I don't want any drugs to help me cope. I take > enough drugs now! Maybe somebody knows of a book, or a movie, or > just words of encouragement. > > Thanks in advance! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2008 Report Share Posted August 12, 2008 Hello Judy,dear, Don't beat yourself up please! Oh my heart goes out to you, Of course we all genetically gift and 'hand down' from the hotch potch of our family gene pool 'or stew'?!, if we CAN procreate.(See below) The loving parent , as you so evidently are, is blessed  in automatically having  a hugely strong feeling of nurturing responsibility (healthy). Don't go down the closely related but totally inappropriate guilt path. UNhealthy.My very dear long suffering mother had this and we her children suffered her misplaced over-anxiety on our behalf.  This is a positive creative gift which you have proudly managed to achieve,continuing your family  (Though sadly not so for myself and husband, our much loved (now grown) children are by adoption, and brought their own unique identiprints that heredity (different birth parents, had gifted them)'  But really your mail puts in to words so clearly. I think you are working something through here and will see it straight, I ,a stranger, can see and feel from your post those lovely 'eyes' and other less visible family traits and strengths  that will trace from your dear grandson back to you.Feel rightly PROUD! Take Courage, my friend, in UK From: judyamcgee <judyamcgee@...> Subject: [ ] Heredity Issue Date: Monday, 11 August, 2008, 11:09 PM I hope someone out there can help me to deal with feelings that are causing me a lot of stress, which we all know is not good. I am 58, & was dxd with RA about 4 years ago, although I've probably had it much longer. My daughter was dxed with it about 10 years ago. I am blessed that my medicine combination keeps my pain under control so that I can maintain a pretty normal life. My daughter considers herself in remission, although she occasionally has some issues. Her firstborn was my first grandchild, & I love that little boy more than I can explain in a posting. This precious grandson of mine is now 11 years old, & was dxed with Juvenile RA a few months ago. He is getting the best of care,@ Texas Children's Hospital in Houston. They are treating it aggressively, & have him up to 8 units of MTX. My daughter says that the next step would be Enbrel. I really am a strong Christian, & I know the obvious answers. I know I can't BLAME myself. However, I am so heart broken that I somehow feel responsible for what may be a crippling disease for him. A grandmother wants to take credit for her grandchildren' s beautiful eyes, or smile, not a crippling disease! If anyone out there has any words of wisdom, I could sure use them. I am not doubting my faith, or questioning God. I don't want any drugs to help me cope. I take enough drugs now! Maybe somebody knows of a book, or a movie, or just words of encouragement. Thanks in advance! Send instant messages to your online friends http://uk.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2008 Report Share Posted August 12, 2008 Resending plain text sorry From: judyamcgee <judyamcgee@...> Subject: [ ] Heredity Issue Date: Monday, 11 August, 2008, 11:09 PM I hope someone out there can help me to deal with feelings that are causing me a lot of stress, which we all know is not good. I am 58, & was dxd with RA about 4 years ago, although I've probably had it much longer. My daughter was dxed with it about 10 years ago. I am blessed that my medicine combination keeps my pain under control so that I can maintain a pretty normal life. My daughter considers herself in remission, although she occasionally has some issues. Her firstborn was my first grandchild, & I love that little boy more than I can explain in a posting. This precious grandson of mine is now 11 years old, & was dxed with Juvenile RA a few months ago. He is getting the best of care,@ Texas Children's Hospital in Houston. They are treating it aggressively, & have him up to 8 units of MTX. My daughter says that the next step would be Enbrel. I really am a strong Christian, & I know the obvious answers. I know I can't BLAME myself. However, I am so heart broken that I somehow feel responsible for what may be a crippling disease for him. A grandmother wants to take credit for her grandchildren' s beautiful eyes, or smile, not a crippling disease! If anyone out there has any words of wisdom, I could sure use them. I am not doubting my faith, or questioning God. I don't want any drugs to help me cope. I take enough drugs now! Maybe somebody knows of a book, or a movie, or just words of encouragement. Thanks in advance! Send instant messages to your online friends http://uk.messenger. Send instant messages to your online friends http://uk.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2008 Report Share Posted August 12, 2008 Hi Judy. First of all {{{HUGS}}} and I know how you feel. But, if we all knew every little thing that was in our genetic makeup that " might " pop up, our world would come to an end as we know it. If I had known 30 years ago what I know now, I might not have had any children - but, then I would have been missing out on all of the joy I have had in raising my girls and enjoying my grandchildren. I used to worry about what my genes would pass on. My oldest has MS (so did my aunt), my middle grandson has Bipolar (so does my sister). I have RA/FMS (my mother had FMS). I would rather focus on the love that I have for my family and the love they give me in return. What I DO KNOW is that I have two beautiful daughters and three wonderful grandsons and I wouldn't trade them for anything in this world. I'm sorry to hear that your daughter and grandson have RA. Take heart in knowing that there are all kinds of treatments out there and finding the right combination is the key to a pain free life. God is our strength - hang onto prayers and your faith in Him - He will see you all through. And take all the credit for their beautiful eyes and great big smiles and know that the RA was just an unlucky roll of the dice. Be your grandson's inspiration and show him how to LIVE with RA. Be the blessing back to him as he is for you. Hang in there, Judy. God is with you..........Doreen --- In , " judyamcgee " <judyamcgee@...> wrote: > > I hope someone out there can help me to deal with feelings that > are causing me a lot of stress, which we all know is not good. I am > 58, & was dxd with RA about 4 years ago, although I've probably had > it much longer. My daughter was dxed with it about 10 years ago. I > am blessed that my medicine combination keeps my pain under control > so that I can maintain a pretty normal life. My daughter considers > herself in remission, although she occasionally has some issues. > Her firstborn was my first grandchild, & I love that little boy > more than I can explain in a posting. > > This precious grandson of mine is now 11 years old, & was dxed with > Juvenile RA a few months ago. He is getting the best of care,@ > Texas Children's Hospital in Houston. They are treating it > aggressively, & have him up to 8 units of MTX. My daughter says > that the next step would be Enbrel. > > I really am a strong Christian, & I know the obvious answers. I > know I can't BLAME myself. However, I am so heart broken that I > somehow feel responsible for what may be a crippling disease for > him. A grandmother wants to take credit for her grandchildren's > beautiful eyes, or smile, not a crippling disease! If anyone out > there has any words of wisdom, I could sure use them. I am not > doubting my faith, or questioning God. I don't want any drugs to > help me cope. I take enough drugs now! Maybe somebody knows of a > book, or a movie, or just words of encouragement. > > Thanks in advance! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2008 Report Share Posted August 12, 2008 Oh, Judy dear, don't do this to yourself! I understand, one of my sons and my daughter have psoriasis and had a terrible time in school. When I found out there were others in my family tree with psoriasis, I felt so awful. Now I look at my wonderful grandchildren (I didn't think it would be possible to love anyone, including my children, the way I love those babies!) and I pray they never have to deal with any of this autoimmune mess. But we have to remember that God refines us, like gold in the fire. He will never give us more than we can handle with His help. We don't know his purposes, but He does promise us that He will always help us and that everything will be ok in the end. I know my daughter came through h*ell, but she is now an extremely strong, bright young woman with a wonderful job and great friends. We can never understand, we just need to have faith and do our part. My prayers are with you and your family. Hang in there, and remember that you are never alone. You have friends here, and your have your faith. Feel free to contact me anytime if you want to talk, just email me and I'll give you my phone number. On Mon, Aug 11, 2008 at 3:09 PM, judyamcgee <judyamcgee@...> wrote: > I hope someone out there can help me to deal with feelings that are > causing me a lot of stress, which we all know is not good. I am 58, & > was dxd with RA about 4 years ago, although I've probably had it much > longer. My daughter was dxed with it about 10 years ago. I am > blessed that my medicine combination keeps my pain under control so > that I can maintain a pretty normal life. My daughter considers > herself in remission, although she occasionally has some issues. Her > firstborn was my first grandchild, & I love that little boy more than > I can explain in a posting. > > This precious grandson of mine is now 11 years old, & was dxed with > Juvenile RA a few months ago. He is getting the best of care,@ Texas > Children's Hospital in Houston. They are treating it aggressively, & > have him up to 8 units of MTX. My daughter says that the next step > would be Enbrel. > > I really am a strong Christian, & I know the obvious answers. I know > I can't BLAME myself. However, I am so heart broken that I somehow > feel responsible for what may be a crippling disease for him. A > grandmother wants to take credit for her grandchildren's beautiful > eyes, or smile, not a crippling disease! If anyone out there has any > words of wisdom, I could sure use them. I am not doubting my faith, > or questioning God. I don't want any drugs to help me cope. I take > enough drugs now! Maybe somebody knows of a book, or a movie, or > just words of encouragement. > > Thanks in advance! > -- South Pasadena, CA / Lilydale, MN You can see my galleries at http://www.pbase.com/arenared986 M. Schulz - " All you need is love. But a little chocolate now and then doesn't hurt. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2008 Report Share Posted August 12, 2008 One more thing - there is a Group that has daily devotionals for Christians coping with chronic illness. You might find it helpful chronicpaindevotional · Chronic Illness/Pain Daily Devotional chronicpaindevotional/ God Bless! On Mon, Aug 11, 2008 at 3:09 PM, judyamcgee <judyamcgee@...> wrote: > I hope someone out there can help me to deal with feelings that are > causing me a lot of stress -- South Pasadena, CA / Lilydale, MN You can see my galleries at http://www.pbase.com/arenared986 M. Schulz - " All you need is love. But a little chocolate now and then doesn't hurt. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2008 Report Share Posted August 12, 2008 Do you blame your parents and grandparents and great-grandparents and so on for the diseases they passed along to you? I give mine credit for giving me life, and some good things along with the diseases. As a genealogist, I tend to look at the big picture. Just think of all of the things that had to happen in the past in order for me to be born. I thank them, not blame them. You can't blame yourself for your grandson's RA. Just continue to give him love. With the new treatments available these days, maybe he'll be okay. I certainly hope so. Sue On Monday, August 11, 2008, at 06:09 PM, judyamcgee wrote: > > This precious grandson of mine is now 11 years old, & was dxed with > Juvenile RA a few months ago. He is getting the best of care,@ Texas > Children's Hospital in Houston. They are treating it aggressively, & > have him up to 8 units of MTX. My daughter says that the next step > would be Enbrel. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2008 Report Share Posted August 12, 2008 I know this wasn't addressed to me, but I'm going to answer it anyway. No, I sure don't. I know that these diseases have genetic dispositions, but I believe in a higher power. I also believe that for whatever reason, I was put here to get burned, to have Spondylitis, Lupus, RSD, Fibro, SJ and nerve damage. If it was to help others see that they are not alone and there is hope, well, then I'll do that. If it was to learn about compassion, well, I'll do that, too. I don't know what the reasons are, I just know that this is the hand I was dealt, and it does me no good to place blame. I must face my health conditions like a man, and live in a positive place instead of stewing in bitterness. Bitterness destroys the soul and thereby the body. -- Dodge An optimist thinks that this is the best possible world. A pessimist fears that this is true. Read my blog at: http://jumpthis.wordpress.com ---- Sue <marysue@...> wrote: ============= Do you blame your parents and grandparents and great-grandparents and so on for the diseases they passed along to you? I give mine credit for giving me life, and some good things along with the diseases. As a genealogist, I tend to look at the big picture. Just think of all of the things that had to happen in the past in order for me to be born. I thank them, not blame them. You can't blame yourself for your grandson's RA. Just continue to give him love. With the new treatments available these days, maybe he'll be okay. I certainly hope so. Sue Quote Link to comment Share on other sites More sharing options...
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