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Re: big fibroids, no symptoms, no action?

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Mandy,

Sorry. In trying to not make my post too long, I left out that I now

live in Germany due to my husbands job. So my current gynecologist

is a local German doctor and my UAE will be performed in a German

hospital by a local IR.

So I cannot help you with UAE in Sdyney. Dr. Bradbury never

mentioned it to me although the last time I saw him was in 1998 and

it may not have been available then. I can only suggest you do as I

have done over here - talk to doctors, surf the web, contact local

hospitals and radiology departments and ask them do they have IRs

performing UAE, contact local professional organisations (is there an

Aussie Interventional Radiologists Assoc??), etc. Dr. Kirsch also

very kindly answered an e-mail I sent him asking for names of IRs in

Germany that performed UAE. You could also check conference papers to

see if any Aussie IRs attended. I generally found the gynecologists

to be poorly informed about UAE and IRs to be a better source of

information.

By the end of all of this I had an A4 ring binder full of data and

would bring it with me when seeing my gyne and the IR.

You ask what kind of fibroids I have. Without lapsing into rude

language, I have lots of small fibroids that make my uterus large and

bulky. Also have some 3 - 5 cm fibroids that can be identified on

the ultrasound.

If you are interested in UAE I also recommend the yahoo 'embo' chat

group as a great source of info, if you are not already a member

there. I cannot remember how bad your symptoms are though. It's

important to check out all the options.

Hope this helps, and good luck with the detective work,

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Hi ,

I did kind of wonder about the .de on your e address but didn't want to be nosy!

Thanks for all the advice on how to go about getting info over here. Will get

going on the research.

My symptoms of heavy bleeding and bladder pressure have eased quite a lot for me

in the past year (3 intramural fibroids largest 7.3cms) - whether due to onset

of menopause (missed a few periods) or just being in better health generally I'm

not sure - but I am sticking with no surgery is best until necessary. Since I

am 47 hopefully I can get through, but I know that problems can still hang

around post menopause so am trying to stay educated in case I have to make a

choice soon.

Hope things go well for you with your UAE.

All the best

Mandy

>Mandy,

Sorry. In trying to not make my post too long, I left out that I now

live in Germany due to my husbands job. So my current gynecologist

is a local German doctor and my UAE will be performed in a German

hospital by a local IR.

So I cannot help you with UAE in Sdyney. Dr. Bradbury never

mentioned it to me although the last time I saw him was in 1998 and

it may not have been available then. I can only suggest you do as I

have done over here - talk to doctors, surf the web, contact local

hospitals and radiology departments and ask them do they have IRs

performing UAE, contact local professional organisations (is there an

Aussie Interventional Radiologists Assoc??), etc. Dr. Kirsch also

very kindly answered an e-mail I sent him asking for names of IRs in

Germany that performed UAE. You could also check conference papers to

see if any Aussie IRs attended. I generally found the gynecologists

to be poorly informed about UAE and IRs to be a better source of

information.

By the end of all of this I had an A4 ring binder full of data and

would bring it with me when seeing my gyne and the IR.

You ask what kind of fibroids I have. Without lapsing into rude

language, I have lots of small fibroids that make my uterus large and

bulky. Also have some 3 - 5 cm fibroids that can be identified on

the ultrasound.

If you are interested in UAE I also recommend the yahoo 'embo' chat

group as a great source of info, if you are not already a member

there. I cannot remember how bad your symptoms are though. It's

important to check out all the options.

Hope this helps, and good luck with the detective work,

<

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Share on other sites

Hi ,

I did kind of wonder about the .de on your e address but didn't want to be nosy!

Thanks for all the advice on how to go about getting info over here. Will get

going on the research.

My symptoms of heavy bleeding and bladder pressure have eased quite a lot for me

in the past year (3 intramural fibroids largest 7.3cms) - whether due to onset

of menopause (missed a few periods) or just being in better health generally I'm

not sure - but I am sticking with no surgery is best until necessary. Since I

am 47 hopefully I can get through, but I know that problems can still hang

around post menopause so am trying to stay educated in case I have to make a

choice soon.

Hope things go well for you with your UAE.

All the best

Mandy

>Mandy,

Sorry. In trying to not make my post too long, I left out that I now

live in Germany due to my husbands job. So my current gynecologist

is a local German doctor and my UAE will be performed in a German

hospital by a local IR.

So I cannot help you with UAE in Sdyney. Dr. Bradbury never

mentioned it to me although the last time I saw him was in 1998 and

it may not have been available then. I can only suggest you do as I

have done over here - talk to doctors, surf the web, contact local

hospitals and radiology departments and ask them do they have IRs

performing UAE, contact local professional organisations (is there an

Aussie Interventional Radiologists Assoc??), etc. Dr. Kirsch also

very kindly answered an e-mail I sent him asking for names of IRs in

Germany that performed UAE. You could also check conference papers to

see if any Aussie IRs attended. I generally found the gynecologists

to be poorly informed about UAE and IRs to be a better source of

information.

By the end of all of this I had an A4 ring binder full of data and

would bring it with me when seeing my gyne and the IR.

You ask what kind of fibroids I have. Without lapsing into rude

language, I have lots of small fibroids that make my uterus large and

bulky. Also have some 3 - 5 cm fibroids that can be identified on

the ultrasound.

If you are interested in UAE I also recommend the yahoo 'embo' chat

group as a great source of info, if you are not already a member

there. I cannot remember how bad your symptoms are though. It's

important to check out all the options.

Hope this helps, and good luck with the detective work,

<

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Share on other sites

Hi ,

I did kind of wonder about the .de on your e address but didn't want to be nosy!

Thanks for all the advice on how to go about getting info over here. Will get

going on the research.

My symptoms of heavy bleeding and bladder pressure have eased quite a lot for me

in the past year (3 intramural fibroids largest 7.3cms) - whether due to onset

of menopause (missed a few periods) or just being in better health generally I'm

not sure - but I am sticking with no surgery is best until necessary. Since I

am 47 hopefully I can get through, but I know that problems can still hang

around post menopause so am trying to stay educated in case I have to make a

choice soon.

Hope things go well for you with your UAE.

All the best

Mandy

>Mandy,

Sorry. In trying to not make my post too long, I left out that I now

live in Germany due to my husbands job. So my current gynecologist

is a local German doctor and my UAE will be performed in a German

hospital by a local IR.

So I cannot help you with UAE in Sdyney. Dr. Bradbury never

mentioned it to me although the last time I saw him was in 1998 and

it may not have been available then. I can only suggest you do as I

have done over here - talk to doctors, surf the web, contact local

hospitals and radiology departments and ask them do they have IRs

performing UAE, contact local professional organisations (is there an

Aussie Interventional Radiologists Assoc??), etc. Dr. Kirsch also

very kindly answered an e-mail I sent him asking for names of IRs in

Germany that performed UAE. You could also check conference papers to

see if any Aussie IRs attended. I generally found the gynecologists

to be poorly informed about UAE and IRs to be a better source of

information.

By the end of all of this I had an A4 ring binder full of data and

would bring it with me when seeing my gyne and the IR.

You ask what kind of fibroids I have. Without lapsing into rude

language, I have lots of small fibroids that make my uterus large and

bulky. Also have some 3 - 5 cm fibroids that can be identified on

the ultrasound.

If you are interested in UAE I also recommend the yahoo 'embo' chat

group as a great source of info, if you are not already a member

there. I cannot remember how bad your symptoms are though. It's

important to check out all the options.

Hope this helps, and good luck with the detective work,

<

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