Burning, hot, cold, tingling, painful feet and hands..Anyone?

August 8, 2008

Hi Everyone,

My daughter, who is 31 yrs old, has many autoimmune problems as I do.

I was wondering if any of you have experienced the following: Say you

walked on all fours, feet and hands, in the snow for a while and your

hands and feet are feeling frozen numb. Then you go inside and put

them into cool/warm water to warn them up and they start this burning

tingling feeling that is very painful...but they never warm up and

just continue to feel this way for days and days and gets worse. The

sensations of freezing cold, tingling, burning become a single

sensations with pain. When touched the pain is get even greater.

Can't sleep from pain. After a couple of weeks this goes away and

doesn't return for months.

Anyone heard of anything like this? We are searching for answers and

she is waiting for her doc to call back.

Thanks, Stella

August 8, 2008

Stella and Group;

Stella the last time I felt that was in jr high school. I was so

cold I went straight to the girls bathroom and stuck my hands under

warm water. I knew you could'nt do this with frozen hands. When the

water first hit my hands how good it felt. All of a sudden I was in

so much pain I couldnt hold my body up, I just dropped to the tiles

on the floor whithing in absolute pain. Haaaaaaaaaa. I can laugh

now.

I get numbness in my hands. But it's not painful. I think its the

RA, because my rheumy keeps asking me if My hands or feet get numb

or tingly. I told her the last time. She said ok. That was it. So I

am guessing my case is the RA. I can't stand the numbness. It

worries me. I will ask the rhuemy next time what it's from.

Hugs

Clora

>

> Hi Everyone,

>

> My daughter, who is 31 yrs old, has many autoimmune problems as I

do.

> I was wondering if any of you have experienced the following: Say

you

> walked on all fours, feet and hands, in the snow for a while and

your

> hands and feet are feeling frozen numb. Then you go inside and put

> them into cool/warm water to warn them up and they start this

burning

> tingling feeling that is very painful...but they never warm up and

> just continue to feel this way for days and days and gets worse.

The

> sensations of freezing cold, tingling, burning become a single

> sensations with pain. When touched the pain is get even greater.

> Can't sleep from pain. After a couple of weeks this goes away and

> doesn't return for months.

>

> Anyone heard of anything like this? We are searching for answers

and

> she is waiting for her doc to call back.

> Thanks, Stella

>

August 8, 2008

Stella,

I am so sorry your daughter goes through that. I have never heard of

anything like it, but then there are lots of things that I have not

heard of. I must be very painful and terrifying! I hope someone here

can help.

Please, let us know what you find out and how she is doing.

Shirley

>

> Hi Everyone,

>

> My daughter, who is 31 yrs old, has many autoimmune problems as I

do.

> I was wondering if any of you have experienced the following: Say

you

> walked on all fours, feet and hands, in the snow for a while and

your

> hands and feet are feeling frozen numb. Then you go inside and put

> them into cool/warm water to warn them up and they start this

burning

> tingling feeling that is very painful...but they never warm up and

> just continue to feel this way for days and days and gets worse.

The

> sensations of freezing cold, tingling, burning become a single

> sensations with pain. When touched the pain is get even greater.

> Can't sleep from pain. After a couple of weeks this goes away and

> doesn't return for months.

>

> Anyone heard of anything like this? We are searching for answers

and

> she is waiting for her doc to call back.

> Thanks, Stella

>

August 8, 2008

I have been having some of those same issues but not as traumatic. The

" catch phrase " is Peripheral Neuropathy and I've been told that's my problem

according to my Rheumy. I'll see what my GP says next month when I visit

him. It seems to be biological that penicillin may cure it, I dunno'.

Dennis in eastexas

On Fri, Aug 8, 2008 at 10:59 AM, smf1mom <smf1mom@...> wrote:

>

> Hi Everyone,

>

> My daughter, who is 31 yrs old, has many autoimmune problems as I do.

> I was wondering if any of you have experienced the following: Say you

> walked on all fours, feet and hands, in the snow for a while and your

> hands and feet are feeling frozen numb. Then you go inside and put

> them into cool/warm water to warn them up and they start this burning

> tingling feeling that is very painful...but they never warm up and

> just continue to feel this way for days and days and gets worse. The

> sensations of freezing cold, tingling, burning become a single

> sensations with pain. When touched the pain is get even greater.

> Can't sleep from pain. After a couple of weeks this goes away and

> doesn't return for months.

>

> Anyone heard of anything like this? We are searching for answers and

> she is waiting for her doc to call back.

> Thanks, Stella

>

August 9, 2008

Stella,

I have times in the mornings when I wake up and my legs fron mid calf down

are burning like crazy, I try to move them, separate them ( I sleep with my

legs bent and I am on my side ) My hands get numb but they don't usually

burn. I have type 2 diabetes and so the Dr feels its Neuropathy. I also know

people who have neuropathy that do not have Diabetes. She should thell her

Dr what is going on but up to this point I haven't found anything that

helps. Thank God it doesn't happen daily. It goes away when I get up and am

on my feet for awhile. Hope she finds the answer. I will keep her in my

prayers.

Heidi M

On Fri, Aug 8, 2008 at 11:59 AM, smf1mom <smf1mom@...> wrote: