Hi Group!

[Guest guest]

Ade-

Welcome to the group! I'm so sorry to hear that it took a while for you to

get diagnosed with a thyroid problem ... unfortunately many people here,

including myself, can relate to you. It is also terrible that you had to wait

so

long after your treatments to get the proper medication. On the bright side

there are many smart, nice, etc. people here who I know have helped me a lot

:-) Good luck and once again welcome!

Best wishes,

In a message dated 11/28/07 11:58:39 AM, afaleti@... writes:

>

> My name is Ade, a 42 year old male of african decent that was

> diagonized with hyperthyroidism about 4-1/2 years ago. I had the

> radioactive treatment (2 Times) 2005 and 2006 that removed my thyroid

> gland, this changed my condition from hyper to hypo.

>

> I have had several bad experiences with these diseases:

>

> 1. My hyperthroid condition was not diagonised by my primary care

> physician, despite the fact that I always reported the different

> symptoms to her. In the summer of 2003, I lost about 40 pounds, my

> blood pressure and heart rate went off the roof.

>

> 2. After taking out my thyroid gland in 2006, my doctor did not put me

> on the thyroid replacement medecine until I experienced very painful

> lower back muscle complications; it was so bad that I could not walk

> for more than a few yards at a time.

>

> Ade

>

>

>

**************************************

Check out AOL's list of 2007's hottest

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[Guest guest]

Here is some information I just found regarding Thyroid et al.

http://faculty.smu.edu/jbuynak/1062_april/Thyroid%20and%20Anti-Thyroid%20Drugs.p\

pt#268,13,TSH Replacement Drugs

Roni

bear339@... wrote:

Ade-

Welcome to the group! I'm so sorry to hear that it took a while for you to

get diagnosed with a thyroid problem ... unfortunately many people here,

including myself, can relate to you. It is also terrible that you had to wait so

long after your treatments to get the proper medication. On the bright side

there are many smart, nice, etc. people here who I know have helped me a lot

:-) Good luck and once again welcome!

Best wishes,

In a message dated 11/28/07 11:58:39 AM, afaleti@... writes:

>

> My name is Ade, a 42 year old male of african decent that was

> diagonized with hyperthyroidism about 4-1/2 years ago. I had the

> radioactive treatment (2 Times) 2005 and 2006 that removed my thyroid

> gland, this changed my condition from hyper to hypo.

>

> I have had several bad experiences with these diseases:

>

> 1. My hyperthroid condition was not diagonised by my primary care

> physician, despite the fact that I always reported the different

> symptoms to her. In the summer of 2003, I lost about 40 pounds, my

> blood pressure and heart rate went off the roof.

>

> 2. After taking out my thyroid gland in 2006, my doctor did not put me

> on the thyroid replacement medecine until I experienced very painful

> lower back muscle complications; it was so bad that I could not walk

> for more than a few yards at a time.

>

> Ade

>

>

>

**************************************

Check out AOL's list of 2007's hottest

products.

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[Guest guest]

That's the kind of docs we talk about around here....idiot. If you don't

have a thyroid how do they expect you to have thyroid hormones? You need

Armour. www.stopthethyroidmadness.com

-- Hi Group!

My name is Ade, a 42 year old male of african decent that was

diagonized with hyperthyroidism about 4-1/2 years ago. I had the

radioactive treatment (2 Times) 2005 and 2006 that removed my thyroid

gland, this changed my condition from hyper to hypo.

I have had several bad experiences with these diseases:

1. My hyperthroid condition was not diagonised by my primary care

physician, despite the fact that I always reported the different

symptoms to her. In the summer of 2003, I lost about 40 pounds, my

blood pressure and heart rate went off the roof.

2. After taking out my thyroid gland in 2006, my doctor did not put me

on the thyroid replacement medecine until I experienced very painful

Lower back muscle complications; it was so bad that I could not walk

for more than a few yards at a time.

Ade

[Guest guest]

I don't get it. I thought no thyroid you slip into a coma and die.

How long did you go without a thyroid?

>

> My name is Ade, a 42 year old male of african decent that was

> diagonized with hyperthyroidism about 4-1/2 years ago. I had the

> radioactive treatment (2 Times) 2005 and 2006 that removed my

thyroid

> gland, this changed my condition from hyper to hypo.

>

>

> I have had several bad experiences with these diseases:

>

> 1. My hyperthroid condition was not diagonised by my primary care

> physician, despite the fact that I always reported the different

> symptoms to her. In the summer of 2003, I lost about 40 pounds, my

> blood pressure and heart rate went off the roof.

>

> 2. After taking out my thyroid gland in 2006, my doctor did not

put me

> on the thyroid replacement medecine until I experienced very

painful

> lower back muscle complications; it was so bad that I could not

walk

> for more than a few yards at a time.

>

> Ade

>

[Guest guest]

hary722001 wrote:

>

>

> I don't get it. I thought no thyroid you slip into a coma and die.

> How long did you go without a thyroid?

Radiation ablation does not destroy thyroid function all at once. With a

modest dose, or in this case two doses separated in time, the complete

process can take quite awhile. The result is gradually decreasing

function, a difficult to treat moving target, much like Hashimoto's.

Chuck

[Guest guest]

You are correct, Chuck. It can take up to a few months, and then it

also takes a modest amount of time before remaining stored hormone to

be depleated after ablation is complete. After that, without any type

of supplementation, death follows.

Those of us that are thyroidless have to always keep in mind that at

any point in time, there will be a doctor somewhere who is going to

refuse to give us thyroid supplementation. It's happened to me twice

so far. That's why it's very handy to wear a medic alert bracelet and

to also stock up on thyroid meds, just in case our lives are ever put

in danger that way.

By the way, there are a number of patient assistant programs thru

various pharmaceutical companies that just give needy patients meds.

Forest Labs (www.armourthyroid.com) Here is the link for a geat one:

http://www.needymeds.com/

Sam

(thyroidless since 1990)

thyroidless

>

> Radiation ablation does not destroy thyroid function all at once.

With a

> modest dose, or in this case two doses separated in time, the

complete

> process can take quite awhile. The result is gradually decreasing

> function, a difficult to treat moving target, much like Hashimoto's.

>

> Chuck

>

[Guest guest]

Hello Ade,

So sorry to hear what the doctors put you thru.  It is amazing that they

removed your thyroid then did not give you replacement meds.  I had my thyroid

taken out at an Army hospital and was put on thyroid meds pretty soon after the

surgery.  Also had radiation scans to check for any problems. Hopefully you are

doing all right now?-lenosan

Re: Hi Group!

hi Ade

hyperthyroidism is actually iodine deficiency--it would be good to find a doc

who knows this.

http://www.helpmythyroid.com

http://www.optimox.com

Gracia

My name is Ade, a 42 year old male of african decent that was

diagonized with hyperthyroidism about 4-1/2 years ago. I had the

radioactive treatment (2 Times) 2005 and 2006 that removed my thyroid

gland, this changed my condition from hyper to hypo.

I have had several bad experiences with these diseases:

1. My hyperthroid condition was not diagonised by my primary care

physician, despite the fact that I always reported the different

symptoms to her. In the summer of 2003, I lost about 40 pounds, my

blood pressure and heart rate went off the roof.

2. After taking out my thyroid gland in 2006, my doctor did not put me

on the thyroid replacement medecine until I experienced very painful

lower back muscle complications; it was so bad that I could not walk

for more than a few yards at a time.

Ade

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11:10 AM

[Guest guest]

Woke up this morning thinking I could pack up a few things, grab the

little money I have, and just go somewhere with the idea I could

outrun Rhematoid Arthritis. For me, things started going bad about

three months ago, of course there were signs before, but when those

first acute episodes hit I knew something was seriously wrong. My

physician calls these flare-ups. & $@^%#! A flare up is something the

sun does some 92 million miles away! It's got nothing to do with me

not being in pain and unable to move for two days. So the diagnosis

came in two weeks ago and has been confirmed, RA. Take it easy, learn

to manage your medication, and don't do antyhing physical. " ? " Don't

do antyhing physical! What does that mean? I'm not a jock but I got

things to do. I just started to renovate my bathroom (a process which

may have lead to the diagnosis). My mind said I was going to finish

this project but my body said no you're not. I said yes I am, no

you're not. I guess I'm not. What I most hate is that right now I

don't know how I'm going to be from day to day. How are you suppose

to handle a job when you don't know if you can walk or move your arms

from one day to the next? And any job I think I could do (and only on

a part time basis right now) is specifically mentioned in Dantes'

fifth ring of hell! It's all overwhelming. Got a lot of changes to

make, got a lot of decisions to make. So I'm thinking you can't

outrun life or progressive Rheumatoid Athritis and joined this group.

[Guest guest]

Hey Detour,

I giggled all through your post while being able to relate the whole

time! Too Funny but at same time not funny at all I know.

My Doc asked me if I was working and I told her yes but hard to do

she said that they prefer RA patients to remain active.

I'm very careful because I've learned what body movements to avoid

those 3 days and nights of pure agony.

I still hurt but certain things I've learn do set me off in a bad

way.

I'm so sure there are others here that feel your story as well!

You're not alone. We are all in this together.

BTW..I too am newly diagnosed and see a specialist for the first time

at end of the month.

You ever need someone to talk to I am here.

Michigan

>

> Woke up this morning thinking I could pack up a few things, grab

the

> little money I have, and just go somewhere with the idea I could

> outrun Rhematoid Arthritis. For me, things started going bad about

> three months ago, of course there were signs before, but when those

> first acute episodes hit I knew something was seriously wrong. My

> physician calls these flare-ups. & $@^%#! A flare up is something

the

> sun does some 92 million miles away! It's got nothing to do with me

> not being in pain and unable to move for two days. So the diagnosis

> came in two weeks ago and has been confirmed, RA. Take it easy,

learn

> to manage your medication, and don't do antyhing physical. " ? "

Don't

> do antyhing physical! What does that mean? I'm not a jock but I got

> things to do. I just started to renovate my bathroom (a process

which

> may have lead to the diagnosis). My mind said I was going to finish

> this project but my body said no you're not. I said yes I am, no

> you're not. I guess I'm not. What I most hate is that right now I

> don't know how I'm going to be from day to day. How are you suppose

> to handle a job when you don't know if you can walk or move your

arms

> from one day to the next? And any job I think I could do (and only

on

> a part time basis right now) is specifically mentioned in Dantes'

> fifth ring of hell! It's all overwhelming. Got a lot of changes to

> make, got a lot of decisions to make. So I'm thinking you can't

> outrun life or progressive Rheumatoid Athritis and joined this

group.

>

[Guest guest]

I really liked your post, you definately got me laughing. Of course,

it's not really funny in the reality of it all, but sure is close.

It's great that you have such a sense of humor, after all, laughter

is good medicine. You will feel better once you are on the right

meds for your RA. Then, maybe you can finish your remodeling, maybe

with some help. Not to do anything physical is hard, we all have

things we need and want to do. Besides, it is better to try and stay

mobile. You'll just have to do things easier and at slower pace than

normal.

>

> Woke up this morning thinking I could pack up a few things, grab

the

> little money I have, and just go somewhere with the idea I could

> outrun Rhematoid Arthritis. For me, things started going bad about

> three months ago, of course there were signs before, but when those

> first acute episodes hit I knew something was seriously wrong. My

> physician calls these flare-ups. & $@^%#! A flare up is something

the

> sun does some 92 million miles away! It's got nothing to do with me

> not being in pain and unable to move for two days. So the diagnosis

> came in two weeks ago and has been confirmed, RA. Take it easy,

learn

> to manage your medication, and don't do antyhing physical. " ? "

Don't

> do antyhing physical! What does that mean? I'm not a jock but I got

> things to do. I just started to renovate my bathroom (a process

which

> may have lead to the diagnosis). My mind said I was going to finish

> this project but my body said no you're not. I said yes I am, no

> you're not. I guess I'm not. What I most hate is that right now I

> don't know how I'm going to be from day to day. How are you suppose

> to handle a job when you don't know if you can walk or move your

arms

> from one day to the next? And any job I think I could do (and only

on

> a part time basis right now) is specifically mentioned in Dantes'

> fifth ring of hell! It's all overwhelming. Got a lot of changes to

> make, got a lot of decisions to make. So I'm thinking you can't

> outrun life or progressive Rheumatoid Athritis and joined this

group.

[Guest guest]

Thanks for your comment, I really appreciate it and the support. I've been

feeling very isolated lately, you know you're isolated when the mail truck seems

facinating. I've gone through a very rough six weeks but unlike many in this

group my physician was able to immediately diagnosis the problem, confirm it,

and prescribe proper medication, and of course we'll be going through the

" experiment " process. I am much better now. Of course, by the time all this went

down I was at the " please God, anything " stage. So like you, I am trying to

determine what I can do in terms of physical activity - so far nothing!

Everything I try seems to initiate an inflammation, especially in my right

shoulder, arm, wrist and hand. Which makes sense, being righted handed, that is

the most used part of my body on a daily basis. So I guess it's safe to assume

my brain will be completely unaffected. In terms of RA I refuse to budge on my

appreciation for life, my sense of humor, and coffee. Not necessarily

in that order. I was born in Pontiac, Michigan. did a movie about

it, er...not me...I mean Pontiac, Michigan!

[Guest guest]

Hi Detour,

I am fairly new to the group, but an oldie with RA.  I was diagnosed at 17 and

am now 42.  The onset of the disease is a really awful time.  The first

rheumatologist I saw told me at 17 that if I had 2 or 3 good days a week that

would be ok.  That was not ok and i didn't go back to him.  Find yourself a good

rheumatologist first and foremost.  There is not a cure, but there is control. 

I am a living example that when you get the right " cocktail' of drugs...you'd be

amazed at what you can do.

 

I have had both knees replaced (one of them also revised) and my right foot

reconstructed.  I have lived through a grueling divorce and am the mother to

twin 10 yr old boys.  A week from Tuesday, I will begin my 19th yr as an

elementary school teacher.  Don't get me wrong...there are days when old RA lets

me know that it's still alive and kicking.  And the fatigue is just overwhelming

most of the time.  Don't give up, you'll learn the difference between days when

you need to stay in bed and coddle a flare, and days when moving around is what

you need to shake off the stiffness. 

 

Hang in there.  We're all in this thing together.

Hugs,

Beth in MD

[Guest guest]

It's weird isn't it? My mother in law (so to speak) who retired early, claimed

and recieved her SSDI benefits BECAUSE of her arthritus told me to suck it up,

it's no big deal. In general she's a very nice person. But I think she's prone

to wearing a tin foil hat in secret!

[Guest guest]

Sounds like a real sweetie! LOL I had one just like her.

Shirley

>

> It's weird isn't it? My mother in law (so to speak) who retired

early, claimed and recieved her SSDI benefits BECAUSE of her arthritus

told me to suck it up, it's no big deal. In general she's a very nice

person. But I think she's prone to wearing a tin foil hat in secret!

>

>

[Guest guest]

I can really relate to your situation. My daughter has suffered with

fibro for about 4 years now. She stopped trying to keep a job about

2 1/2 years ago after repeatedly being let go for being out. Now no

one wants to hire her. She and my grand-daughter live with me and I

am the total support.

I was diagnosed a little over a year ago, and like most of us I can

now see that I had it long before that. Anyway, my daughter doesn't

understand how hard it is on me to continue to work with this crap.

We really get crossed signals. I know that she is in distress many,

many days, but to be able to lay down or take something for pain

seems like a luxury to me. I don't expect her to do anything on her

bad days. Some days my body is through being useful just getting

ready to go to work. It really is hard to come home and do housework

also.

I don't know how these women with young children can do it. I know

that neither my daughter or I could do it. My heart goes out to them,

they never get a slack day.

It's funny you mentioned Chester. When my left hip bothers me I

always think of Dennis Weaver.

Shirley

> On Sat, Aug 9, 2008 at 10:56 AM, <stanpfister@...> wrote:

>

> > Well, I am not a professional but it is my primary past time.

I've

> > invested a lot of time (too much) and a lot of money (too much)

in it. When

> > I watch that video I was struck with how normal people look like

> > when in actually the are dealing with a very painful, chronic,

and

> > progressive disorder. I don't think others really get it. One

day I'm

> > Chester from Gunsmoke because my leg doesn't work and a few days

later I'm

> > Ratso Rizo from Midnight Cowboy because my arm and shoulder are

not

> > cooperating. In the words of Homer Simpson's father, " I'm not

wise, but I

> > have seen a looooooooot of movies! " The point being that the

random nature

> > of the flares just means you have to learn to deal with

everything, and that

> > just makes it all the more difficult. My girlfriend (of nine

years) who has

> > dealt with a disability most of her adult life doesn't even get

it. I have

> > my flares catagorized, sore, painful, inflammed, and acute so I

can

> > communicate to her how I feel and my disposition about

> > it. Acute kind of being like Rambo pissed off at the Russians

state of

> > mind. Not that I am in a rage screaming at her, more like my

internal

> > perception at the time. I've decided I am not going to lie to

her about

> > where I am at on a day to day basis, regardless of how random it

might be.

> > I've spent a lot of time being patient and considerate in

dealing with her

> > disability issues, and so I believe she needs to do the same

with me whether

> > she gets it or not. Ah, sorry ramble on...

> >

> >

[Guest guest]

Thanks!

Not sure about the excess toxins thing but I sure feel good being here!

The show should be pretty wonderful. Our director is from the London company

and mounts the show world wide. Very excited.

I have my iodine with me and take it as needed!

Hope you are well!

AJ

**************Psssst...Have you heard the news? There's a new fashion blog,

plus the latest fall trends and hair styles at StyleList.com.

(http://www.stylelist.com/trends?ncid=aolsty00050000000014)