Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Carla, To be honest, I think I need clarification on what I wrote too! I'm going for my follow up tomorrow w/ McLucas and will confirm what I now understand. Here's my story...sorry its so long: I am 32 yrs old, no children yet. My regular obgyn found my fibroids (5cm submucosal--this is the problem one, and another 3cm outside the uterous) in an ultrasound about 1 month ago when I was hospitalized for heavy bleeding, severe anemia. She tried treating the bleeding temporarily by upping my birth control dose to 3x a day. This worked for a couple days then BAM, back in the hospital again the following week for my 1st blood transfusion and an emergency d and c. I was back on the birth control and massive iron. I ended up in the ER again after another " bleeding episode " about 1 1/2 weeks later, and I received a Lupron shot to try to control the bleeding. During the next 10 days I had off and on bleeding episodes and major cramping and ended up in the doctors office almost every other day having my blood drawn to check my blood count after bleeding episodes. In yet another attempt to control the bleeding, my doctor put me on estrogen (was taking 4 premarin per day for a couple days). This worked for a couple days then BAM, another bleeding episode and my 4th ER visit last Wednesday. This is the day I was on the way to see Dr. McLucas for the 2nd opinion. The strange thing is I don't even feel like I got a proper 1st opinion from my current obgyn because every appointment I was " out of it " and it was disaster management. So, last Wednesday I ended up at Cedars, on the phone from the ER, and we figured out a plan of action that my family and I felt comfortable with (my current obgyn, the ER doctor, and Dr. McLucas were all involved in the decision). Because I was so anemic, Dr. McLucas and my current obgyn thought it best to 1st do the UAE to stop the bleeding. The next day after I had rested in the hospital and had an MRI, he did a Laproscopic surgery to biopsy the fibroids. He also lopped off the 3cm fibroid that was hanging outside the uterous. I guess this is sort of backwards but he said it was more important to make sure the bleeding was stopped 1st. It seems to have worked. Unfortunately, the Lupron seems to have finally kicked in now too so I am now in temporary menopause...owell. I feel better than I have in a LONG time. Hope this is info is helpful. Respectfully, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Carla, To be honest, I think I need clarification on what I wrote too! I'm going for my follow up tomorrow w/ McLucas and will confirm what I now understand. Here's my story...sorry its so long: I am 32 yrs old, no children yet. My regular obgyn found my fibroids (5cm submucosal--this is the problem one, and another 3cm outside the uterous) in an ultrasound about 1 month ago when I was hospitalized for heavy bleeding, severe anemia. She tried treating the bleeding temporarily by upping my birth control dose to 3x a day. This worked for a couple days then BAM, back in the hospital again the following week for my 1st blood transfusion and an emergency d and c. I was back on the birth control and massive iron. I ended up in the ER again after another " bleeding episode " about 1 1/2 weeks later, and I received a Lupron shot to try to control the bleeding. During the next 10 days I had off and on bleeding episodes and major cramping and ended up in the doctors office almost every other day having my blood drawn to check my blood count after bleeding episodes. In yet another attempt to control the bleeding, my doctor put me on estrogen (was taking 4 premarin per day for a couple days). This worked for a couple days then BAM, another bleeding episode and my 4th ER visit last Wednesday. This is the day I was on the way to see Dr. McLucas for the 2nd opinion. The strange thing is I don't even feel like I got a proper 1st opinion from my current obgyn because every appointment I was " out of it " and it was disaster management. So, last Wednesday I ended up at Cedars, on the phone from the ER, and we figured out a plan of action that my family and I felt comfortable with (my current obgyn, the ER doctor, and Dr. McLucas were all involved in the decision). Because I was so anemic, Dr. McLucas and my current obgyn thought it best to 1st do the UAE to stop the bleeding. The next day after I had rested in the hospital and had an MRI, he did a Laproscopic surgery to biopsy the fibroids. He also lopped off the 3cm fibroid that was hanging outside the uterous. I guess this is sort of backwards but he said it was more important to make sure the bleeding was stopped 1st. It seems to have worked. Unfortunately, the Lupron seems to have finally kicked in now too so I am now in temporary menopause...owell. I feel better than I have in a LONG time. Hope this is info is helpful. Respectfully, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Oh, that was Dr. Adler... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Oh, that was Dr. Adler... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 SWilli4608@... wrote: > From the ER at Cedars Sinai Med Center, I > got on the phone w/ Dr. McLucas and he arranged an " emergency procedure " to > be done that same afternoon. I found him to be much nicer than I expected and > felt he was genuinly interested in helping me feel better. The surgery went > really well and I'm feeling so much better. The bleeding has FINALLY stopped > and I hardly have any pain at all. , Need clarification on what occurred per what you wrote. Please tell me if I have the following correct: - You had a lupron shot 2 weeks ago to stem the tide of bleeding due to severe, unretractable bleeding episodes, which required a transfusion at one point not too long ago. - On the way to new gyn, Bruce McLucas, you had bleeding episode. (BTW, he's " at " UCLA not as staff, as teaching faculty, and his office is in the professional building adjacent to the campus. He is not part of UCLA's ob/gyn clinical staff.) - You went to Cedars Sinai ER. - You underwent embolization on Wednesday. - You underwent laparoscopic myomectomy on Thursday. Who did the embolization? Where was it done? Who did the myomectomy? Why was the myomectomy undertaken the day after the embolization? I'm not sure I understand the reasoning behind this and need some clarification. I'm happy to read that you feel that all went well, the bleeding has stopped, and you're now doing so much better. In the end, that is truly what counts. Rest. Take care of yourself. Creepy or not creepy...at least you're okay today and on your road to recovery. Best wishes, Carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 SWilli4608@... wrote: > From the ER at Cedars Sinai Med Center, I > got on the phone w/ Dr. McLucas and he arranged an " emergency procedure " to > be done that same afternoon. I found him to be much nicer than I expected and > felt he was genuinly interested in helping me feel better. The surgery went > really well and I'm feeling so much better. The bleeding has FINALLY stopped > and I hardly have any pain at all. , Need clarification on what occurred per what you wrote. Please tell me if I have the following correct: - You had a lupron shot 2 weeks ago to stem the tide of bleeding due to severe, unretractable bleeding episodes, which required a transfusion at one point not too long ago. - On the way to new gyn, Bruce McLucas, you had bleeding episode. (BTW, he's " at " UCLA not as staff, as teaching faculty, and his office is in the professional building adjacent to the campus. He is not part of UCLA's ob/gyn clinical staff.) - You went to Cedars Sinai ER. - You underwent embolization on Wednesday. - You underwent laparoscopic myomectomy on Thursday. Who did the embolization? Where was it done? Who did the myomectomy? Why was the myomectomy undertaken the day after the embolization? I'm not sure I understand the reasoning behind this and need some clarification. I'm happy to read that you feel that all went well, the bleeding has stopped, and you're now doing so much better. In the end, that is truly what counts. Rest. Take care of yourself. Creepy or not creepy...at least you're okay today and on your road to recovery. Best wishes, Carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Sorry for the incomplete email earlier... After my blood transfusion at Cedars I was transferred to Century City hospital. Dr. Adler (IR), performed the UAE (has done over 330 UAEs), Dr. McLucas was present during surgery. The following day, Dr. McLucas performed the laporoscopy, at Century City hospital. Hope that clears it up. Thanks for the input. -- P.S.-The day I arrived home after my surgery, your book " Sex, Lies, and the Truth about Uterine Fibroids " FINALLY arrived after UPS messed up the delivery. So now I'm finally getting all the good info. after my procedures have already been done, its all strange and backwards...owell. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Sorry for the incomplete email earlier... After my blood transfusion at Cedars I was transferred to Century City hospital. Dr. Adler (IR), performed the UAE (has done over 330 UAEs), Dr. McLucas was present during surgery. The following day, Dr. McLucas performed the laporoscopy, at Century City hospital. Hope that clears it up. Thanks for the input. -- P.S.-The day I arrived home after my surgery, your book " Sex, Lies, and the Truth about Uterine Fibroids " FINALLY arrived after UPS messed up the delivery. So now I'm finally getting all the good info. after my procedures have already been done, its all strange and backwards...owell. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 , But who did the UAE? Carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 , But who did the UAE? Carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 $$$$$$ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Oh Dr. Adler was the radiologist? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Oh Dr. Adler was the radiologist? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Oh Dr. Adler was the radiologist? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 SWilli4608@... wrote: > After my blood transfusion at Cedars I was transferred to Century City > hospital. Dr. Adler (IR), performed the UAE (has done over 330 UAEs), Was there something wrong with the IR at Cedars? Or, was he simply not consulted or considered? carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 Understandably, Dr. McLucas wanted to use his one of his IR's. He was squeezing me in as an emergency surgery that day. This was the closest, most available hospital for all of us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 Understandably, Dr. McLucas wanted to use his one of his IR's. He was squeezing me in as an emergency surgery that day. This was the closest, most available hospital for all of us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 Understandably, Dr. McLucas wanted to use his one of his IR's. He was squeezing me in as an emergency surgery that day. This was the closest, most available hospital for all of us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 Let me confirm the reason he didn't use the IR at Cedars and get back to you on that. Meanwhile, I'll attempt to answer your other questions: I need to reiterate that this all happened so quickly...there was a rapid progression of the bleeding symptoms making every doctor visit more about damage control than calmly discussing options. I was pretty weak, crampy each time I went in. I desperately wanted to have a couple days that I felt good to do research and get a 2nd opinion...didn't happen. I was really desperate and at wits end. Anyway, it was not known until my second ultrasound (hysterosonogram) was taken a few days after my first hospital visit, that the problem fibroid was known to be submucosal. The day following the hysterogram I ended up in the hospital for a blood transfusion--I didn't even make it to my doctor appt. to discuss results of hysterogram. About 1 week later I was given the Lupron in an attempt to stop the bleeding and shrink the fibroid. My doctor was hoping I wouldn't need surgery (myomectomy--not sure what type), but a myomectomy was discussed as a possible necessity/option if the Lupron didn't work. No one mentioned the risk of Lupron before surgery. Yikes. I made it a point to tell Dr. Adler, Dr. McLucas, and the anesthesiologist. No one seemed overly concerned...main concern was to stop the darn bleeding. I'm afraid to ask now but, what are the risks of Lupron in my system w/ the UAE? Thanks for your attention to my crazy story. I look forward to hearing from you. -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 Let me confirm the reason he didn't use the IR at Cedars and get back to you on that. Meanwhile, I'll attempt to answer your other questions: I need to reiterate that this all happened so quickly...there was a rapid progression of the bleeding symptoms making every doctor visit more about damage control than calmly discussing options. I was pretty weak, crampy each time I went in. I desperately wanted to have a couple days that I felt good to do research and get a 2nd opinion...didn't happen. I was really desperate and at wits end. Anyway, it was not known until my second ultrasound (hysterosonogram) was taken a few days after my first hospital visit, that the problem fibroid was known to be submucosal. The day following the hysterogram I ended up in the hospital for a blood transfusion--I didn't even make it to my doctor appt. to discuss results of hysterogram. About 1 week later I was given the Lupron in an attempt to stop the bleeding and shrink the fibroid. My doctor was hoping I wouldn't need surgery (myomectomy--not sure what type), but a myomectomy was discussed as a possible necessity/option if the Lupron didn't work. No one mentioned the risk of Lupron before surgery. Yikes. I made it a point to tell Dr. Adler, Dr. McLucas, and the anesthesiologist. No one seemed overly concerned...main concern was to stop the darn bleeding. I'm afraid to ask now but, what are the risks of Lupron in my system w/ the UAE? Thanks for your attention to my crazy story. I look forward to hearing from you. -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 Let me confirm the reason he didn't use the IR at Cedars and get back to you on that. Meanwhile, I'll attempt to answer your other questions: I need to reiterate that this all happened so quickly...there was a rapid progression of the bleeding symptoms making every doctor visit more about damage control than calmly discussing options. I was pretty weak, crampy each time I went in. I desperately wanted to have a couple days that I felt good to do research and get a 2nd opinion...didn't happen. I was really desperate and at wits end. Anyway, it was not known until my second ultrasound (hysterosonogram) was taken a few days after my first hospital visit, that the problem fibroid was known to be submucosal. The day following the hysterogram I ended up in the hospital for a blood transfusion--I didn't even make it to my doctor appt. to discuss results of hysterogram. About 1 week later I was given the Lupron in an attempt to stop the bleeding and shrink the fibroid. My doctor was hoping I wouldn't need surgery (myomectomy--not sure what type), but a myomectomy was discussed as a possible necessity/option if the Lupron didn't work. No one mentioned the risk of Lupron before surgery. Yikes. I made it a point to tell Dr. Adler, Dr. McLucas, and the anesthesiologist. No one seemed overly concerned...main concern was to stop the darn bleeding. I'm afraid to ask now but, what are the risks of Lupron in my system w/ the UAE? Thanks for your attention to my crazy story. I look forward to hearing from you. -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 Carla, I forgot to answer one important question you asked. No Dr. McLucas did not remove the fibroid he lopped off...definitely concerns me and seems slightly risky to leave that inside of me. Both he and my regular obgyn said that in most cases the body absorbs or passes the dead tissue in the 1st 6 months after surgery. Today my obgyn said there is a slight possibility I will have contractions for a short period of time before passing it...something to look forward to. Its scary to think both of these suckers (fibroids) are still inside of me... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 SWilli4608@... wrote: > Understandably, Dr. McLucas wanted to use his one of his IR's. He was > squeezing me in as an emergency surgery that day. This was the closest, most > available hospital for all of us. Okay. Now I'm confused again. I thought you were in Cedars' ER? also, choice of IR is YOUR choice, not his. there are IRs at every hospital in the LA region doing UAEs. including Cedars. what was wrong with the IR at Cedars? since you were there, why couldn't McLucas work with him? when you were initially given lupron by your prior gyn, was the idea to shrink the fibroid for an eventual hysteroscopic myomectomy? did anyone communicate to you, in all those prescribed doses of BC pills that you wrote about previously, that the submucosal fibroid was the culprit behind your bleeding and needed to come out? when McLucas did that laparoscopic myo the next day, did he combine it with hysteroscopic removal of that submucosal fibroid? did anyone communicate to you the risks/benefits of doing UAE with Lupron in your system? carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 SWilli4608@... wrote: > Understandably, Dr. McLucas wanted to use his one of his IR's. He was > squeezing me in as an emergency surgery that day. This was the closest, most > available hospital for all of us. Okay. Now I'm confused again. I thought you were in Cedars' ER? also, choice of IR is YOUR choice, not his. there are IRs at every hospital in the LA region doing UAEs. including Cedars. what was wrong with the IR at Cedars? since you were there, why couldn't McLucas work with him? when you were initially given lupron by your prior gyn, was the idea to shrink the fibroid for an eventual hysteroscopic myomectomy? did anyone communicate to you, in all those prescribed doses of BC pills that you wrote about previously, that the submucosal fibroid was the culprit behind your bleeding and needed to come out? when McLucas did that laparoscopic myo the next day, did he combine it with hysteroscopic removal of that submucosal fibroid? did anyone communicate to you the risks/benefits of doing UAE with Lupron in your system? carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 SWilli4608@... wrote: > Understandably, Dr. McLucas wanted to use his one of his IR's. He was > squeezing me in as an emergency surgery that day. This was the closest, most > available hospital for all of us. Okay. Now I'm confused again. I thought you were in Cedars' ER? also, choice of IR is YOUR choice, not his. there are IRs at every hospital in the LA region doing UAEs. including Cedars. what was wrong with the IR at Cedars? since you were there, why couldn't McLucas work with him? when you were initially given lupron by your prior gyn, was the idea to shrink the fibroid for an eventual hysteroscopic myomectomy? did anyone communicate to you, in all those prescribed doses of BC pills that you wrote about previously, that the submucosal fibroid was the culprit behind your bleeding and needed to come out? when McLucas did that laparoscopic myo the next day, did he combine it with hysteroscopic removal of that submucosal fibroid? did anyone communicate to you the risks/benefits of doing UAE with Lupron in your system? carla Quote Link to comment Share on other sites More sharing options...
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