Guest guest Posted August 14, 2008 Report Share Posted August 14, 2008 Dorthy and group; Omygosh Dorthy, I realize RA is horible. You have woke my brain cells reading that post what you have been through. Sweetheart that is so unfair it seems. I am so sorry what ra has put you through.. I have seen people die from cancer. I don't know what is worse. I only pray and ask God to help me and he answers on time every time. I sometimes say God this is a good time to answer my pleas hee hee. He knows I am making a joke cause I know my God is an on time God. Honey I am praying for miracles since I came to this group.. I read of others who are worse off than me. I dont feel like I have it so bad anymore. And when I told the group of my suffering they were all so symphatetic. God bless them all. They are the ones that made me want to go on. I pray for you to feel better. I pray for all of us to have pain free days. I have felt like you sometimes, but not went through what you have. Love you sweetheart. gentle hugs Clora > I got it at my library. There isn't a whole lot in there about the RA, but > she does have some references about how she seemingly got her health back. > She relates a story about how she ran into the wife of some well- known man > outside her daughter's private school in NYC & the woman saw her struggling. > The woman's child had juvenile RA and she immediately got Kathleen an > appointment with a doctor she recommended > > > > I do recommend the book. I've always liked her...she seemed like a real > spunky lady! When I Googled her, I found this which is an excerpt from the > book: > > > > Was it false pride, or stubbornness, or an inability to be vulnerable? Yes, > all of that. I was trying so hard to work at all, and I was terrified that > I'd never work again if anyone knew that I had a mysterious, scary illness. > > Sometimes, my feet blew up so badly that I couldn't walk on them. The skin > became so tightly stretched because of the fluid in my feet that it started > to crack. > > When that happened, my toes looked like little sausages and my feet didn't > look much like feet any more; they were just these huge things at the end of > my legs. Sometimes, they burst, exposing bone and muscle. > > Meanwhile, the joints in my hands were so swollen, I couldn't hold a pen. > Some days, I couldn't even hold a glass. > > Ironically, for years, the Press assumed that my puffiness was the result of > an alcohol problem - yet, back then, it wasn't. I didn't publicly refute > this. At least directors might still hire me if they thought I was a drunk. > > Then, one day, I tried to pick something up and realized I couldn't > straighten my left arm. > > There was a curious bump in it, as though my elbow had moved over to the > inside of my limb. > > Soon, I could no longer turn my head. By now - 1993 - I was almost a year > into the symptoms. I'd gone to the top doctor of every f***ing department of > medicine in one of the biggest cities in the goddamn world and they couldn't > help me. > > " All right, I'm dying, " I thought. " I have some terrible disease - I don't > think it's cancer, but I'm clearly dying. " > > It was at this point that my GP did some more blood tests. The results were > grim: I wasn't dying, but I had severe rheumatoid arthritis, a chronic, > incurable and crippling disease that destroys the lining of the joints. I > was told it could leave me in a wheelchair. > > That same day, I went to a parent-teacher conference at my daughter 's > kindergarten. There were all of three stairs up to the door, yet I struggled > to pull myself up, step by step. Inside, there were cute little chairs about > 12 inches off the floor. > > Well, I looked at those f***ing chairs and burst into tears because I knew > that even if I got into one, I'd never be able to get up again. A kind > teacher offered me her own chair, saying: " Oh, poor thing " . > > > > > > _____ > > From: [mailto:RA- SUPPORT ] On > Behalf Of Sue > Sent: Wednesday, August 13, 2008 10:20 PM > > Subject: Re: [ ] Progressive? > > > > > On Wednesday, August 13, 2008, at 09:08 PM, Dorothy wrote: > > > > After pancreatic cancer, I would rank brain tumors high on my list of > > worst > > although I believe there are advances in surgery so that many survive. > > I > > guess I hear more about those who had cancers that started elsewhere > > and > > usually when it spreads to the brain, the end is very close. I think > > that's > > why that scares me. > > One of my aunts had lung cancer that spread to her brain. Fortunately, > she was not in a great deal of pain until the very end. > > > I don't know why, but RA doesn't scare me even though I have suffered > > through some very hard times with it. I read most of Kathleen 's > > book, " Send Yourself Roses. " > > I knew that she had RA, but I didn't know that she'd written a book > about it. I'll have to see if I can find it in the library. > > Sue > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2008 Report Share Posted August 14, 2008 Clora...that was an excerpt from the book by Kathleen . That is not my personal story. Dorothy _____ From: [mailto: ] On Behalf Of CLORA Sent: Thursday, August 14, 2008 3:53 AM Subject: [ ] Re: Progressive? Dorthy and group; Omygosh Dorthy, I realize RA is horible. You have woke my brain cells reading that post what you have been through. Sweetheart that is so unfair it seems. I am so sorry what ra has put you through.. I have seen people die from cancer. I don't know what is worse. I only pray and ask God to help me and he answers on time every time. I sometimes say God this is a good time to answer my pleas hee hee. He knows I am making a joke cause I know my God is an on time God. Honey I am praying for miracles since I came to this group.. I read of others who are worse off than me. I dont feel like I have it so bad anymore. And when I told the group of my suffering they were all so symphatetic. God bless them all. They are the ones that made me want to go on. I pray for you to feel better. I pray for all of us to have pain free days. I have felt like you sometimes, but not went through what you have. Love you sweetheart. gentle hugs Clora > I got it at my library. There isn't a whole lot in there about the RA, but > she does have some references about how she seemingly got her health back. > She relates a story about how she ran into the wife of some well- known man > outside her daughter's private school in NYC & the woman saw her struggling. > The woman's child had juvenile RA and she immediately got Kathleen an > appointment with a doctor she recommended > > > > I do recommend the book. I've always liked her...she seemed like a real > spunky lady! When I Googled her, I found this which is an excerpt from the > book: > > > > Was it false pride, or stubbornness, or an inability to be vulnerable? Yes, > all of that. I was trying so hard to work at all, and I was terrified that > I'd never work again if anyone knew that I had a mysterious, scary illness. > > Sometimes, my feet blew up so badly that I couldn't walk on them. The skin > became so tightly stretched because of the fluid in my feet that it started > to crack. > > When that happened, my toes looked like little sausages and my feet didn't > look much like feet any more; they were just these huge things at the end of > my legs. Sometimes, they burst, exposing bone and muscle. > > Meanwhile, the joints in my hands were so swollen, I couldn't hold a pen. > Some days, I couldn't even hold a glass. > > Ironically, for years, the Press assumed that my puffiness was the result of > an alcohol problem - yet, back then, it wasn't. I didn't publicly refute > this. At least directors might still hire me if they thought I was a drunk. > > Then, one day, I tried to pick something up and realized I couldn't > straighten my left arm. > > There was a curious bump in it, as though my elbow had moved over to the > inside of my limb. > > Soon, I could no longer turn my head. By now - 1993 - I was almost a year > into the symptoms. I'd gone to the top doctor of every f***ing department of > medicine in one of the biggest cities in the goddamn world and they couldn't > help me. > > " All right, I'm dying, " I thought. " I have some terrible disease - I don't > think it's cancer, but I'm clearly dying. " > > It was at this point that my GP did some more blood tests. The results were > grim: I wasn't dying, but I had severe rheumatoid arthritis, a chronic, > incurable and crippling disease that destroys the lining of the joints. I > was told it could leave me in a wheelchair. > > That same day, I went to a parent-teacher conference at my daughter 's > kindergarten. There were all of three stairs up to the door, yet I struggled > to pull myself up, step by step. Inside, there were cute little chairs about > 12 inches off the floor. > > Well, I looked at those f***ing chairs and burst into tears because I knew > that even if I got into one, I'd never be able to get up again. A kind > teacher offered me her own chair, saying: " Oh, poor thing " . > > > > > > _____ > > From: @gro <mailto: %40> ups.com [mailto:RA- SUPPORT@groups <mailto:SUPPORT%40> .com] On > Behalf Of Sue > Sent: Wednesday, August 13, 2008 10:20 PM > @gro <mailto: %40> ups.com > Subject: Re: [ ] Progressive? > > > > > On Wednesday, August 13, 2008, at 09:08 PM, Dorothy wrote: > > > > After pancreatic cancer, I would rank brain tumors high on my list of > > worst > > although I believe there are advances in surgery so that many survive. > > I > > guess I hear more about those who had cancers that started elsewhere > > and > > usually when it spreads to the brain, the end is very close. I think > > that's > > why that scares me. > > One of my aunts had lung cancer that spread to her brain. Fortunately, > she was not in a great deal of pain until the very end. > > > I don't know why, but RA doesn't scare me even though I have suffered > > through some very hard times with it. I read most of Kathleen 's > > book, " Send Yourself Roses. " > > I knew that she had RA, but I didn't know that she'd written a book > about it. I'll have to see if I can find it in the library. > > Sue > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2008 Report Share Posted August 14, 2008 Clora, I do not have pancreatic cancer. Dorothy _____ From: [mailto: ] On Behalf Of CLORA Sent: Thursday, August 14, 2008 3:29 AM Subject: [ ] Re: Progressive? Omg there is my answer. I would have to agree. See I have something to be thankful for. Cancer is one of the dreaded words in the medical world. I am so sorry you have that. I hope its not a death sentence. I pray you will be alright. God bless you hon. Clora > Cancer - pancreatic > > > > > > _____ > > From: @gro <mailto: %40> ups.com [mailto:RA- SUPPORT@groups <mailto:SUPPORT%40> .com] On > Behalf Of Sue > Sent: Wednesday, August 13, 2008 8:34 PM > @gro <mailto: %40> ups.com > Subject: Re: [ ] Progressive? > > > > Just curious, Dorothy, which disease would you classify as the worst to > pick? > > Sue > > On Wednesday, August 13, 2008, at 05:10 PM, Dorothy wrote: > > > Stan, we all know that progress can be really, really slow many times! > > While RA can be a crippling disease, so many people are able to live > > very > > well through careful management of the disease. I can understand how > > you > > would be nervous, but if I had a choice of many diseases, this > > wouldn't be > > one of the worst to pick. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2008 Report Share Posted August 14, 2008 I think I've commented before that of all the diseases I have, diabetes is my favorite, LOL. That's because I can have some control over it by the way I eat. So you have osteo and RA, right? Because Humira would not help osteo. Enbrel does not help my osteo. Sue On Thursday, August 14, 2008, at 03:25 AM, CLORA wrote: > sue and group; > > I was wondering to what the worst was that she/he was talking > about. Cause out of all my illnesses ( and I have a lot) RA seem to > bother me the most. Also I read where RA was the worst arthritis to > get. I thought , " it figures since it was RA I had. " Found out last > visit I have Osteo. darn. lol. > > hugs gently > Clora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2008 Report Share Posted August 14, 2008 Sue and group; I think your refering to me about having osteo too. The predisone don't help the osteo either. You say humira won't help osteo. I start humira 2 weeks from now. The pain patches help the osteo some what. I put them on my lower lower back. Ok what can my rheumy do about my Osteo group. ANy one know??? Some diabetecs can't control it with what they eat. I think its a different type of diabetees. Of course they still cant eat sugar unless it goes down to fast. I think RA is pretty bad. Some diseases will kill ya, but if RA gets bad enough one wants to die anyway. At least I did. I am hopeful now since the prednisone helped. Gentle hugs everyone Clora > I think I've commented before that of all the diseases I have, diabetes > is my favorite, LOL. That's because I can have some control over it by > the way I eat. > > So you have osteo and RA, right? Because Humira would not help osteo. > Enbrel does not help my osteo. > > Sue > > On Thursday, August 14, 2008, at 03:25 AM, CLORA wrote: > > > sue and group; > > > > I was wondering to what the worst was that she/he was talking > > about. Cause out of all my illnesses ( and I have a lot) RA seem to > > bother me the most. Also I read where RA was the worst arthritis to > > get. I thought , " it figures since it was RA I had. " Found out last > > visit I have Osteo. darn. lol. > > > > hugs gently > > Clora > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2008 Report Share Posted August 14, 2008 I commented to my rheumy that there are better medications now for RA than there are for osteo, and he agreed. For osteo, you can take Tylenol or something like Advil or Motrin or Aleve, or pain killers such as Tramadol. I've been using some heat patches on my lower back, and the pain finally went away after a few days. It's sure to come back, though, when and why are hard to figure out. Type 1 diabetics cannot control with diet; they have to have insulin or else they would soon die. Of course some type 2's like you and me cannot control it with diet alone. In fact, I take two meds to help me with mine. Of course, diet can help us tremendously. Sue On Thursday, August 14, 2008, at 08:10 PM, CLORA wrote: > Sue and group; > > I think your refering to me about having osteo too. The predisone > don't help the osteo either. You say humira won't help osteo. I > start humira 2 weeks from now. The pain patches help the osteo some > what. I put them on my lower lower back. Ok what can my rheumy do > about my Osteo group. ANy one know??? > > Some diabetecs can't control it with what they eat. I think its a > different type of diabetees. Of course they still cant eat sugar > unless it goes down to fast. I think RA is pretty bad. Some > diseases will kill ya, but if RA gets bad enough one wants to die > anyway. At least I did. I am hopeful now since the prednisone > helped. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2008 Report Share Posted August 15, 2008 Clora, I took Celebrex for 12 years for osteo before I was diagnosed with RA. It really did help me. I kept complaining to the horrible gp that I had then, that it wasn't working anymore. Finally he tested me for RA. I don't know if it would work in addition to RA meds or not, but I have noticed some of our group listed it with their meds that they are taking. That makes me think that it would. I want to ask my rheummy about it. I'm glad you brought it up. Shirley > > Sue and group; > > I think your refering to me about having osteo too. The predisone > don't help the osteo either. You say humira won't help osteo. I > start humira 2 weeks from now. The pain patches help the osteo some > what. I put them on my lower lower back. Ok what can my rheumy do > about my Osteo group. ANy one know??? > > Some diabetecs can't control it with what they eat. I think its a > different type of diabetees. Of course they still cant eat sugar > unless it goes down to fast. I think RA is pretty bad. Some > diseases will kill ya, but if RA gets bad enough one wants to die > anyway. At least I did. I am hopeful now since the prednisone > helped. > > Gentle hugs everyone > Clora > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2008 Report Share Posted August 15, 2008 Sue and group; Thanks so much for that information Sue, I was afraid some one would say that about osteo. I will ask my rheumy about something for this osteo pain. The pain patches work pretty good. Exept getting them on I have to ask someone to put them on my back, I can't do it myself since I can't reach my back myself. My sister n law had diabetes type 1. She passed away from other long term illnesses a few years ago. She said it coulndnt be controlled by diet. She ate moderately, and nothing with sugar. hugs gently Clora gentle hugs Clora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2008 Report Share Posted August 15, 2008 Shirly; Thank you for the information Shirly on Osteo pain. gentle hugs Clora > Clora, > I took Celebrex for 12 years for osteo before I was diagnosed with > RA. It really did help me. I kept complaining to the horrible gp > that I had then, that it wasn't working anymore. Finally he tested > me for RA. I don't know if it would work in addition to RA meds or > not, but I have noticed some of our group listed it with their meds > that they are taking. That makes me think that it would. I want to > ask my rheummy about it. > I'm glad you brought it up. > Shirley > > > > > > Sue and group; > > > > I think your refering to me about having osteo too. The predisone > > don't help the osteo either. You say humira won't help osteo. I > > start humira 2 weeks from now. The pain patches help the osteo > some > > what. I put them on my lower lower back. Ok what can my rheumy do > > about my Osteo group. ANy one know??? > > > > Some diabetecs can't control it with what they eat. I think its a > > different type of diabetees. Of course they still cant eat sugar > > unless it goes down to fast. I think RA is pretty bad. Some > > diseases will kill ya, but if RA gets bad enough one wants to die > > anyway. At least I did. I am hopeful now since the prednisone > > helped. > > > > Gentle hugs everyone > > Clora > > > Quote Link to comment Share on other sites More sharing options...
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