Guest guest Posted August 12, 2008 Report Share Posted August 12, 2008 wrote " Honestly by looking at the lists of what everyone is taking, no > wonder everyone feels horrible. Almost every list has horrbile drug > interactions. That is really scary. Some of those interactions could > kill people. Additonally, all the multitude of side effects. Yikes " With respect , I don't think your comments are at all helpful. I don't believe any of us would take mtx, biologics etc if we didn't have to. However it is a balancing act between taking medications with possible side-effects and retaining some quality of life. I myself would be in a wheelchair by now (at 42) if not for methotrexate etc. Instead, the drugs have put me into remission 3 times now and I live an active life. In addition, comments like those you made can frighten new-comers to the group, so please don't criticise the meds we take any more. in NZ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2008 Report Share Posted August 13, 2008 I agree, . None of us goes to the doctor and says, " Please, please give me more medication! " While I try to keep researching the medications I take, I also put my trust in my doctors to prescribe only those meds that they feel will benefit me with the least amount of side effects. Comments about all the medications members of our group may take also does not take into account the specific condition and illnesses of that particular person. Suggesting that any one of us is over-medicated is both uncaring and ignorant. I think that everyone participating in this list is here to learn and share their own experiences. Making broad statements about fatal results of drug interactions is uncalled for and if such a condition exists, it should be specifically noted directly to the individual. Just my two cents :-) Dorothy _____ From: [mailto: ] On Behalf Of Harnett Sent: Tuesday, August 12, 2008 11:14 PM Subject: [ ] Re: List of meds - wrote " Honestly by looking at the lists of what everyone is taking, no > wonder everyone feels horrible. Almost every list has horrbile drug > interactions. That is really scary. Some of those interactions could > kill people. Additonally, all the multitude of side effects. Yikes " With respect , I don't think your comments are at all helpful. I don't believe any of us would take mtx, biologics etc if we didn't have to. However it is a balancing act between taking medications with possible side-effects and retaining some quality of life. I myself would be in a wheelchair by now (at 42) if not for methotrexate etc. Instead, the drugs have put me into remission 3 times now and I live an active life. In addition, comments like those you made can frighten new-comers to the group, so please don't criticise the meds we take any more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2008 Report Share Posted August 13, 2008 My appolgies but I was not refering to the RA meds, like Mtx, biologics etc. I was referring to the mix of several types of pain medications along with antidepresants etc. For some reason everyone listed ALL the medications they were on rather than just the ones for RA. And I have to say that I was rather surprised by the length of the lists. I find that the more meds I take the worse I feel. I am not speaking to RA meds, but for other conditions. I was not meaning to offend anyone. I only take 2-3 pills a day and just those two interact, and cause me to be drowsy. So I can't IMAGINE how someone on such a long list of drugs would feel. Sometimes I think doctors overprescribe. A good example was a post that some stated they were on Ultram and Ultracet, those are the same medicine, just one has tylenol. Why would a doctor prescribe both? I think patients need to be more aware, thats all. > > wrote " Honestly by looking at the lists of what everyone is taking, > no > > wonder everyone feels horrible. Almost every list has horrbile drug > > interactions. That is really scary. Some of those interactions could > > kill people. Additonally, all the multitude of side effects. Yikes " > > > With respect , I don't think your comments are at all helpful. I don't > believe any of us would take mtx, biologics etc if we didn't have to. > However it is a balancing act between taking medications with possible > side-effects and retaining some quality of life. I myself would be in a > wheelchair by now (at 42) if not for methotrexate etc. Instead, the drugs > have put me into remission 3 times now and I live an active life. > > In addition, comments like those you made can frighten new-comers to the > group, so please don't criticise the meds we take any more. > > in NZ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2008 Report Share Posted August 13, 2008 Oh and thanks for editing my original post. > > wrote " Honestly by looking at the lists of what everyone is taking, > no > > wonder everyone feels horrible. Almost every list has horrbile drug > > interactions. That is really scary. Some of those interactions could > > kill people. Additonally, all the multitude of side effects. Yikes " > > > With respect , I don't think your comments are at all helpful. I don't > believe any of us would take mtx, biologics etc if we didn't have to. > However it is a balancing act between taking medications with possible > side-effects and retaining some quality of life. I myself would be in a > wheelchair by now (at 42) if not for methotrexate etc. Instead, the drugs > have put me into remission 3 times now and I live an active life. > > In addition, comments like those you made can frighten new-comers to the > group, so please don't criticise the meds we take any more. > > in NZ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2008 Report Share Posted August 13, 2008 , I certainly did not mean to attack you by my post. I do object, however, to your statement that " Almost every list has horrible drug interactions. " And you continue to say, " Some of those interactions could kill people. " If you believe that, I think it's important for you to be more specific so that someone who might be in danger could voice their concern to either their doctor(s) or pharmacist. You jumped on someone taking Ultram and Ultracet I think. I have taken both Vicoprofen and Vicoden within close timeframes, but know that they are similar with the same purpose and know the difference between them. I don't think you should take any criticism so personally...everyone here is trying to support each other. I don't know anything about your job search that you mention. I have only recently become more involved with the list. I hope that if you are looking for work that you find it an easy search. If you've just started a new job, I wish you the best. Now..if there is someone that you feel is threatened by the medications they are taking, please speak up. Dorothy _____ From: [mailto: ] On Behalf Of laurenrosepeters Sent: Wednesday, August 13, 2008 9:20 PM Subject: [ ] Re: List of meds - Oh and thanks for editing my original post. > > wrote " Honestly by looking at the lists of what everyone is taking, > no > > wonder everyone feels horrible. Almost every list has horrbile drug > > interactions. That is really scary. Some of those interactions could > > kill people. Additonally, all the multitude of side effects. Yikes " > > > With respect , I don't think your comments are at all helpful. I don't > believe any of us would take mtx, biologics etc if we didn't have to. > However it is a balancing act between taking medications with possible > side-effects and retaining some quality of life. I myself would be in a > wheelchair by now (at 42) if not for methotrexate etc. Instead, the drugs > have put me into remission 3 times now and I live an active life. > > In addition, comments like those you made can frighten new-comers to the > group, so please don't criticise the meds we take any more. > > in NZ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2008 Report Share Posted August 13, 2008 , I often miss posts in our group b/c of my spam filter, and I imagine other members might too. At least once/week I have to go hunting for messages b/c I'm confused what the group is chatting about. I'm sorry you had hurt feelings about a lack of response. If you're hurting and thinking people are ignoring you intentionally, I think it's fair to check in about that, but try not to rush to assumptions. People here are so compassionate, I really don't think they'd intentionally fail to respond to a person in need. I couldn't say it better than Dorothy's post below, but I agree with her. Any medicine has side effects and some can be serious. People have had allergic reactions to things as tame as immodium and ibuprofen. If any of us want to be freaked out, you can google s Syndrome and lose plenty of sleep. There are no 100% safe drugs. Life is often about risk and a cost-benefit analysis. We should be careful not to scare people, especially the newly diagnosed who can be intimidated by the world of RA drugs. Personally, I'm willing to risk side effects to be able to run, play with my children, work full time, and enjoy my life and health for as long as I have it. I enjoy your posts and I hope you're feeling better, best, Kate [ ] Re: List of meds - Oh and thanks for editing my original post. > > wrote " Honestly by looking at the lists of what everyone is taking, > no > > wonder everyone feels horrible. Almost every list has horrbile drug > > interactions. That is really scary. Some of those interactions could > > kill people. Additonally, all the multitude of side effects. Yikes " > > > With respect , I don't think your comments are at all helpful. I don't > believe any of us would take mtx, biologics etc if we didn't have to. > However it is a balancing act between taking medications with possible > side-effects and retaining some quality of life. I myself would be in a > wheelchair by now (at 42) if not for methotrexate etc. Instead, the drugs > have put me into remission 3 times now and I live an active life. > > In addition, comments like those you made can frighten new-comers to the > group, so please don't criticise the meds we take any more. > > in NZ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2008 Report Share Posted August 13, 2008 : As a medical professional, I feel the need to point out something to you. I'm sorry if you take this as a personal attack, for it is not meant as one. Yet I feel it would be remiss of me not to point this out. Yes, you are correct that there are interactions especially in the classes of drugs you mentioned. I would even go so far as to agree with you that many doctors overprescribe. But there is something you are forgetting, and that is what we call benefit versus risk. This means does the benefit of taking the meds together, even with possible interaction, outweigh the risk? If so, then the combination should be tried. I take Demerol injections, Morphine injections, Fentanyl injections, Dilaudid tablets, Methadone tablets, Oxycontin tablets, and MSContin tablets. Now, those are all narcotics with a lot of possible interactions, especially when you add Valium, Soma, Zanaflex and the rest of my meds on top. Still, the person I am off all those meds is a non-functional one... With my meds, I can function. In other words, the benefit to me far outweighs the risks. I am not dead because of my meds, I am alive because of them. -- Dodge An optimist thinks that this is the best possible world. A pessimist fears that this is true. Read my blog at: http://jumpthis.wordpress.com ---- laurenrosepeters <laurenrosepeters@...> wrote: ============= My appolgies but I was not refering to the RA meds, like Mtx, biologics etc. I was referring to the mix of several types of pain medications along with antidepresants etc. For some reason everyone listed ALL the medications they were on rather than just the ones for RA. And I have to say that I was rather surprised by the length of the lists. I find that the more meds I take the worse I feel. I am not speaking to RA meds, but for other conditions. I was not meaning to offend anyone. I only take 2-3 pills a day and just those two interact, and cause me to be drowsy. So I can't IMAGINE how someone on such a long list of drugs would feel. Sometimes I think doctors overprescribe. A good example was a post that some stated they were on Ultram and Ultracet, those are the same medicine, just one has tylenol. Why would a doctor prescribe both? I think patients need to be more aware, thats all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2008 Report Share Posted August 14, 2008 and group; I didnt read what the first post was regarding what meds we took. I saw people was posting their meds, so I joined the group. I was happy to see what everyone was taking. I saw a lot of the RA meds that I tried first and didnt work. I think its really strange a RA med will work for one and not the other. I need all my meds. I see a diff doctor for each condition and all of them send reports to my primary doctor. If I don't take my meds I wouldnt live very long. I see a palmonary dr, a cardiologist, rheumatologist, a dermatologist, mental health doctor, A primary doctor who get all the info from the other doctors. I don't have a problem taking my meds at all. I spent 5 days in the hospital for a breathing problem. My primary doctor was able to adjust my meds, since I got a check on my vitals every 4 hours in the hospital. And a blood stick for diabetes. I believe in my doctors and I think my pramary doctor is very concerned for me for I have seen it in his face as we discuss my health problems. I gladly take my meds. I even have a special pill holder that alarms each time through the day when its med time. Got it for a christmas present. A lot of times when I take my meds I thank God that the doctors have the technology to help me to live, however; Doctors are human and can make a mistake, so I read and check all my meds, and I question each doctor. THis is a support group and we let each other in on our lives, meds, hopes and dreams. Don't worry about whether the question was answered right or wrong, we are here for each other. I hope you got what information you need also. I feel the same, I have a long list of meds. Only thing I feel is I have to use the bathroom more. That is because of the diaurectics I take and I most deffinatelay need those. If anything, the affects cancel each other out haaaaaaaaa. I don't feel high or drugged. And the affects dont mean it will all happen. I do get very thirst, so I suck on a piece of candy so I don't drink a lot of fluids to swell my feet up more. And different pain meds is for certain types of pain. For instance I read and find it true that aspirin is good for head pain. Like a head ache, tooth ache , ear ache etc... . As some one said, let people make their own decisions about their meds with their doctors approval also of course, I tend to agree. I was not affended. I just seem to go with the flow. Others just look out for us thats all. Oh If anyone got in trouble for writing a mistake it was me haaaaaaaaa. I was not surprised since I post long letters. The group was really nice to me about my mistake and I learned what to write and not write. I guess I am still learning. I forgive you and I love to read your post. please continue in the group you got a good response about meds God bless you hon. gentle hugs Clora > My appolgies but I was not refering to the RA meds, like Mtx, > biologics etc. I was referring to the mix of several types of pain > medications along with antidepresants etc. For some reason everyone > listed ALL the medications they were on rather than just the ones for > RA. And I have to say that I was rather surprised by the length of > the lists. I find that the more meds I take the worse I feel. I am > not speaking to RA meds, but for other conditions. > I was not meaning to offend anyone. > I only take 2-3 pills a day and just those two interact, and cause me > to be drowsy. So I can't IMAGINE how someone on such a long list of > drugs would feel. Sometimes I think doctors overprescribe. A good > example was a post that some stated they were on Ultram and Ultracet, > those are the same medicine, just one has tylenol. Why would a doctor > prescribe both? > I think patients need to be more aware, thats all. > > > > > > wrote " Honestly by looking at the lists of what everyone is > taking, > > no > > > wonder everyone feels horrible. Almost every list has horrbile > drug > > > interactions. That is really scary. Some of those interactions > could > > > kill people. Additonally, all the multitude of side effects. > Yikes " > > > > > > With respect , I don't think your comments are at all > helpful. I don't > > believe any of us would take mtx, biologics etc if we didn't have > to. > > However it is a balancing act between taking medications with > possible > > side-effects and retaining some quality of life. I myself would be > in a > > wheelchair by now (at 42) if not for methotrexate etc. Instead, the > drugs > > have put me into remission 3 times now and I live an active life. > > > > In addition, comments like those you made can frighten new- comers > to the > > group, so please don't criticise the meds we take any more. > > > > in NZ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2008 Report Share Posted August 14, 2008 Hello . Hope you don't mind me writing this from the perspective of a retired doc) Yes, I am sure like every one on this great group you had no intention to offend or worry anyone. But it does go to show that this forum is not the place to make judgements on other people's meds, even with best of intentions,except with extreme caution. It is worth realising that the drug info you requested , and was so generously offered here, is really very personal, and most are not privy to what meds are taken by folk just to keep them getting up each morning, due to their often 'hidden' illnesses.Probably only their physicians and pharmacists, and close family members perhaps. The swallowing , dosing,injecting, will usually be very unobtrusively done, and you can be sure they would not be taking the meds if they felt they could safely get by without them.It is indeed an extra 'chore' at the very least, even if it becomes part of the daily routine. You seem to have been surprised by the pain and 'antidepressant' meds listed particularly, so perhaps I can explain a little here. In this group for RA and other arthritis support,particularly those with fibromyalgia type symptoms, various types of severe incapacitating different pains occur, along with disordered sleep and extreme fatigue on an ongoing basis. Individuals will often, after a lot of trial and error with their physician,find that a particular drug combo works for them to help live with this. Pain management has to be a crucial part of RA management and can't be separated off! The antidepressants are often being used here for their specific role in combatting neuropathic pain. (a severe type of pain similar to that that can occur from the nerve damage after shingles) so not just treating the mental state in this scenario. Best wishes and goood luck,, and keep reading and posting. This is such a caring site, UK, friend of RA sufferer ,no computer From: laurenrosepeters <laurenrosepeters@...> Subject: [ ] Re: List of meds - Date: Thursday, 14 August, 2008, 1:29 AM My appolgies but I was not refering to the RA meds, like Mtx, biologics etc. I was referring to the mix of several types of pain medications along with antidepresants etc. For some reason everyone listed ALL the medications they were on rather than just the ones for RA. And I have to say that I was rather surprised by the length of the lists. I find that the more meds I take the worse I feel. I am not speaking to RA meds, but for other conditions. I was not meaning to offend anyone. I only take 2-3 pills a day and just those two interact, and cause me to be drowsy. So I can't IMAGINE how someone on such a long list of drugs would feel. Sometimes I think doctors overprescribe. A good example was a post that some stated they were on Ultram and Ultracet, those are the same medicine, just one has tylenol. Why would a doctor prescribe both? I think patients need to be more aware, thats all. > > wrote " Honestly by looking at the lists of what everyone is taking, > no > > wonder everyone feels horrible. Almost every list has horrbile drug > > interactions. That is really scary. Some of those interactions could > > kill people. Additonally, all the multitude of side effects. Yikes " > > > With respect , I don't think your comments are at all helpful. I don't > believe any of us would take mtx, biologics etc if we didn't have to. > However it is a balancing act between taking medications with possible > side-effects and retaining some quality of life. I myself would be in a > wheelchair by now (at 42) if not for methotrexate etc. Instead, the drugs > have put me into remission 3 times now and I live an active life. > > In addition, comments like those you made can frighten new-comers to the > group, so please don't criticise the meds we take any more. > > in NZ > Send instant messages to your online friends http://uk.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2008 Report Share Posted August 14, 2008 Dorthy and and Group; Dorthy let it go hon. When I read your post I could see you was very concerned. was only explaining what she meant. I know I should just keep quiet but It has gone on long enough. please let it go too. You both are very caring and sweet peoples. The air we breath has side effects haaaaaa. The water is a concern that we drink. I dont even read side affects. I was in so much pain if they gave me arsnic I wouldnt of cared haaaaaaaa. I think I explained about why we take so much pills. Love one another we love you both group hugs now. Lets keep saying nice things. Be the first to let it go. gentle hugs Clora > , I certainly did not mean to attack you by my post. I do object, > however, to your statement that " Almost every list has horrible drug > interactions. " And you continue to say, " Some of those interactions could > kill people. " > > > > If you believe that, I think it's important for you to be more specific so > that someone who might be in danger could voice their concern to either > their doctor(s) or pharmacist. > > > > You jumped on someone taking Ultram and Ultracet I think. I have taken both > Vicoprofen and Vicoden within close timeframes, but know that they are > similar with the same purpose and know the difference between them. > > > > I don't think you should take any criticism so personally...everyone here is > trying to support each other. I don't know anything about your job search > that you mention. I have only recently become more involved with the list. > I hope that if you are looking for work that you find it an easy search. If > you've just started a new job, I wish you the best. > > > > Now..if there is someone that you feel is threatened by the medications they > are taking, please speak up. > > > > Dorothy > > > > _____ > > From: [mailto:RA- SUPPORT ] On > Behalf Of laurenrosepeters > Sent: Wednesday, August 13, 2008 9:20 PM > > Subject: [ ] Re: List of meds - > > > > Oh and thanks for editing my original post. > > > > > wrote " Honestly by looking at the lists of what everyone is > taking, > > no > > > wonder everyone feels horrible. Almost every list has horrbile > drug > > > interactions. That is really scary. Some of those interactions > could > > > kill people. Additonally, all the multitude of side effects. > Yikes " > > > > > > With respect , I don't think your comments are at all > helpful. I don't > > believe any of us would take mtx, biologics etc if we didn't have > to. > > However it is a balancing act between taking medications with > possible > > side-effects and retaining some quality of life. I myself would be > in a > > wheelchair by now (at 42) if not for methotrexate etc. Instead, the > drugs > > have put me into remission 3 times now and I live an active life. > > > > In addition, comments like those you made can frighten new- comers > to the > > group, so please don't criticise the meds we take any more. > > > > in NZ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2008 Report Share Posted August 14, 2008 Clora, I agree. We all know that the purpose of this group is to share information. Each of us is different, has different needs, and may experience different effects from the same medications. It's so informative to be able to read the experiences of others since it helps us make smarter choices for ourselves. The people on this list are truly wonderful! While we don't know one another face-to-face, we " know " one another sometimes more intimately than we know members of our own family or our closest friends. I just want to mention that you say: I do get very thirst, so I suck on a piece of candy so I don't drink a lot of fluids to swell my feet up more. Drinking water will help flush out the water. So many people don't realize that! If you limit your fluid intake, your body will actually retain the fluid. Please start drinking more water!! _____ From: [mailto: ] On Behalf Of CLORA Sent: Thursday, August 14, 2008 3:21 AM Subject: [ ] Re: List of meds - and group; I didnt read what the first post was regarding what meds we took. I saw people was posting their meds, so I joined the group. I was happy to see what everyone was taking. I saw a lot of the RA meds that I tried first and didnt work. I think its really strange a RA med will work for one and not the other. I need all my meds. I see a diff doctor for each condition and all of them send reports to my primary doctor. If I don't take my meds I wouldnt live very long. I see a palmonary dr, a cardiologist, rheumatologist, a dermatologist, mental health doctor, A primary doctor who get all the info from the other doctors. I don't have a problem taking my meds at all. I spent 5 days in the hospital for a breathing problem. My primary doctor was able to adjust my meds, since I got a check on my vitals every 4 hours in the hospital. And a blood stick for diabetes. I believe in my doctors and I think my pramary doctor is very concerned for me for I have seen it in his face as we discuss my health problems. I gladly take my meds. I even have a special pill holder that alarms each time through the day when its med time. Got it for a christmas present. A lot of times when I take my meds I thank God that the doctors have the technology to help me to live, however; Doctors are human and can make a mistake, so I read and check all my meds, and I question each doctor. THis is a support group and we let each other in on our lives, meds, hopes and dreams. Don't worry about whether the question was answered right or wrong, we are here for each other. I hope you got what information you need also. I feel the same, I have a long list of meds. Only thing I feel is I have to use the bathroom more. That is because of the diaurectics I take and I most deffinatelay need those. If anything, the affects cancel each other out haaaaaaaaa. I don't feel high or drugged. And the affects dont mean it will all happen. I do get very thirst, so I suck on a piece of candy so I don't drink a lot of fluids to swell my feet up more. And different pain meds is for certain types of pain. For instance I read and find it true that aspirin is good for head pain. Like a head ache, tooth ache , ear ache etc... . As some one said, let people make their own decisions about their meds with their doctors approval also of course, I tend to agree. I was not affended. I just seem to go with the flow. Others just look out for us thats all. Oh If anyone got in trouble for writing a mistake it was me haaaaaaaaa. I was not surprised since I post long letters. The group was really nice to me about my mistake and I learned what to write and not write. I guess I am still learning. I forgive you and I love to read your post. please continue in the group you got a good response about meds God bless you hon. gentle hugs Clora > My appolgies but I was not refering to the RA meds, like Mtx, > biologics etc. I was referring to the mix of several types of pain > medications along with antidepresants etc. For some reason everyone > listed ALL the medications they were on rather than just the ones for > RA. And I have to say that I was rather surprised by the length of > the lists. I find that the more meds I take the worse I feel. I am > not speaking to RA meds, but for other conditions. > I was not meaning to offend anyone. > I only take 2-3 pills a day and just those two interact, and cause me > to be drowsy. So I can't IMAGINE how someone on such a long list of > drugs would feel. Sometimes I think doctors overprescribe. A good > example was a post that some stated they were on Ultram and Ultracet, > those are the same medicine, just one has tylenol. Why would a doctor > prescribe both? > I think patients need to be more aware, thats all. > > > > > > wrote " Honestly by looking at the lists of what everyone is > taking, > > no > > > wonder everyone feels horrible. Almost every list has horrbile > drug > > > interactions. That is really scary. Some of those interactions > could > > > kill people. Additonally, all the multitude of side effects. > Yikes " > > > > > > With respect , I don't think your comments are at all > helpful. I don't > > believe any of us would take mtx, biologics etc if we didn't have > to. > > However it is a balancing act between taking medications with > possible > > side-effects and retaining some quality of life. I myself would be > in a > > wheelchair by now (at 42) if not for methotrexate etc. Instead, the > drugs > > have put me into remission 3 times now and I live an active life. > > > > In addition, comments like those you made can frighten new- comers > to the > > group, so please don't criticise the meds we take any more. > > > > in NZ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2008 Report Share Posted August 14, 2008 Dorthy and group; Omg I wish so much to drink drink drink water, With congestive heart failure my doctor limits my fluid intake to 2 litres per day. I don't know how to explain it to you. I can't drink a lot of fluids because my heart sends the excess fluids to my feet. My doctor gives me lasix and tells me to drink no more than 2 litres of any kind of fluids. I didnt mean to explain the purpose of the support group. I just wanted to make peace. It seems to me some one is being a know it all haaaaaaaaaa. I hope it's not me. I tend to babble on. If I sound like that please forgive me. One cant say we all know something. One can say what he/she knows something. haaaaaaaa. I think that dont make sense at all. Anyway, THe nurses say suck on candy. My doctor says to suck on sugar free candy. I complain I get to thirsty. Is there someone here that can explain to Dorthy why I cant drink a lot of fluids. I have CHF and enlarged right ventrical. I think thats what its called. And as far as our meds is concerned. I was only telling what my meds do to me. I didnt make a refferance to anyone elses meds. At least I hope I didnt. I think I said it's strange how some meds help others and the same will not help others. Omg you put in my exact words about my feet swelling. Goodness gracious, the way I explained it don't sound like proper grammar. I don't want to feel bad or make anyone feel bad. Your post made me feel like a twit. Thats ok you probably just want to help. Sorry I can't drink a lot of water. My doctor would have a fit if he heard you say that. Haaaaaaaa everytime I go into his office cause of my feet swelling he knows I been drinking to much water. I should of just stayed oout of what ever is going on and let the moderator handle this. I will let it go. hee hee. try to laugh at this please cause I am ROFL. if I could that is. hugs gently Clora > Clora, I agree. We all know that the purpose of this group is to share > information. Each of us is different, has different needs, and may > experience different effects from the same medications. It's so informative > to be able to read the experiences of others since it helps us make smarter > choices for ourselves. The people on this list are truly wonderful! While > we don't know one another face-to-face, we " know " one another sometimes more > intimately than we know members of our own family or our closest friends. > > > > I just want to mention that you say: > > > > I do get very thirst, so > I suck on a piece of candy so I don't drink a lot of fluids to swell > my feet up more. > > > > Drinking water will help flush out the water. So many people don't realize > that! If you limit your fluid intake, your body will actually retain the > fluid. Please start drinking more water!! > > > > _____ > > From: [mailto:RA- SUPPORT ] On > Behalf Of CLORA > Sent: Thursday, August 14, 2008 3:21 AM > > Subject: [ ] Re: List of meds - > > > > and group; > > I didnt read what the first post was regarding what meds we took. I > saw people was posting their meds, so I joined the group. I was > happy to see what everyone was taking. I saw a lot of the RA meds > that I tried first and didnt work. I think its really strange a RA > med will work for one and not the other. > > I need all my meds. I see a diff doctor for each condition and all > of them send reports to my primary doctor. If I don't take my meds > I wouldnt live very long. I see a palmonary dr, a cardiologist, > rheumatologist, a dermatologist, mental health doctor, A primary > doctor who get all the info from the other doctors. > > I don't have a problem taking my meds at all. I spent 5 days in > the hospital for a breathing problem. My primary doctor was able to > adjust my meds, since I got a check on my vitals every 4 hours in > the hospital. And a blood stick for diabetes. I believe in my > doctors and I think my pramary doctor is very concerned for me for I > have seen it in his face as we discuss my health problems. I gladly > take my meds. I even have a special pill holder that alarms each > time through the day when its med time. Got it for a christmas > present. > > A lot of times when I take my meds I thank God that the doctors have > the technology to help me to live, however; Doctors are human and > can make a mistake, so I read and check all my meds, and I question > each doctor. THis is a support group and we let each other in on our > lives, meds, hopes and dreams. Don't worry about whether the > question was answered right or wrong, we are here for each other. I > hope you got what information you need also. > > I feel the same, I have a long list of meds. Only thing I feel is I > have to use the bathroom more. That is because of the diaurectics I > take and I most deffinatelay need those. If anything, the affects > cancel each other out haaaaaaaaa. I don't feel high or drugged. And > the affects dont mean it will all happen. I do get very thirst, so > I suck on a piece of candy so I don't drink a lot of fluids to swell > my feet up more. > > And different pain meds is for certain types of pain. For instance > I read and find it true that aspirin is good for head pain. Like a > head ache, tooth ache , ear ache etc... . As some one said, let > people make their own decisions about their meds with their doctors > approval also of course, I tend to agree. I was not affended. I > just seem to go with the flow. Others just look out for us thats > all. Oh If anyone got in trouble for writing a mistake it was me > haaaaaaaaa. I was not surprised since I post long letters. The > group was really nice to me about my mistake and I learned what to > write and not write. I guess I am still learning. I forgive you and > I love to read your post. please continue in the group you got a > good response about meds God bless you hon. > > gentle hugs > Clora > > > My appolgies but I was not refering to the RA meds, like Mtx, > > biologics etc. I was referring to the mix of several types of pain > > medications along with antidepresants etc. For some reason > everyone > > listed ALL the medications they were on rather than just the ones > for > > RA. And I have to say that I was rather surprised by the length of > > the lists. I find that the more meds I take the worse I feel. I am > > not speaking to RA meds, but for other conditions. > > I was not meaning to offend anyone. > > I only take 2-3 pills a day and just those two interact, and cause > me > > to be drowsy. So I can't IMAGINE how someone on such a long list > of > > drugs would feel. Sometimes I think doctors overprescribe. A good > > example was a post that some stated they were on Ultram and > Ultracet, > > those are the same medicine, just one has tylenol. Why would a > doctor > > prescribe both? > > I think patients need to be more aware, thats all. > > > > > > > > > > wrote " Honestly by looking at the lists of what everyone > is > > taking, > > > no > > > > wonder everyone feels horrible. Almost every list has horrbile > > drug > > > > interactions. That is really scary. Some of those interactions > > could > > > > kill people. Additonally, all the multitude of side effects. > > Yikes " > > > > > > > > > With respect , I don't think your comments are at all > > helpful. I don't > > > believe any of us would take mtx, biologics etc if we didn't > have > > to. > > > However it is a balancing act between taking medications with > > possible > > > side-effects and retaining some quality of life. I myself would > be > > in a > > > wheelchair by now (at 42) if not for methotrexate etc. Instead, > the > > drugs > > > have put me into remission 3 times now and I live an active life. > > > > > > In addition, comments like those you made can frighten new- > comers > > to the > > > group, so please don't criticise the meds we take any more. > > > > > > in NZ > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2008 Report Share Posted August 14, 2008 I didn't realize there were special circumstances, Clora. Best of health to you!! Dorothy _____ From: [mailto: ] On Behalf Of CLORA Sent: Thursday, August 14, 2008 10:05 AM Subject: [ ] Re: List of meds - Dorthy and group; Omg I wish so much to drink drink drink water, With congestive heart failure my doctor limits my fluid intake to 2 litres per day. I don't know how to explain it to you. I can't drink a lot of fluids because my heart sends the excess fluids to my feet. My doctor gives me lasix and tells me to drink no more than 2 litres of any kind of fluids. I didnt mean to explain the purpose of the support group. I just wanted to make peace. It seems to me some one is being a know it all haaaaaaaaaa. I hope it's not me. I tend to babble on. If I sound like that please forgive me. One cant say we all know something. One can say what he/she knows something. haaaaaaaa. I think that dont make sense at all. Anyway, THe nurses say suck on candy. My doctor says to suck on sugar free candy. I complain I get to thirsty. Is there someone here that can explain to Dorthy why I cant drink a lot of fluids. I have CHF and enlarged right ventrical. I think thats what its called. And as far as our meds is concerned. I was only telling what my meds do to me. I didnt make a refferance to anyone elses meds. At least I hope I didnt. I think I said it's strange how some meds help others and the same will not help others. Omg you put in my exact words about my feet swelling. Goodness gracious, the way I explained it don't sound like proper grammar. I don't want to feel bad or make anyone feel bad. Your post made me feel like a twit. Thats ok you probably just want to help. Sorry I can't drink a lot of water. My doctor would have a fit if he heard you say that. Haaaaaaaa everytime I go into his office cause of my feet swelling he knows I been drinking to much water. I should of just stayed oout of what ever is going on and let the moderator handle this. I will let it go. hee hee. try to laugh at this please cause I am ROFL. if I could that is. hugs gently Clora > Clora, I agree. We all know that the purpose of this group is to share > information. Each of us is different, has different needs, and may > experience different effects from the same medications. It's so informative > to be able to read the experiences of others since it helps us make smarter > choices for ourselves. The people on this list are truly wonderful! While > we don't know one another face-to-face, we " know " one another sometimes more > intimately than we know members of our own family or our closest friends. > > > > I just want to mention that you say: > > > > I do get very thirst, so > I suck on a piece of candy so I don't drink a lot of fluids to swell > my feet up more. > > > > Drinking water will help flush out the water. So many people don't realize > that! If you limit your fluid intake, your body will actually retain the > fluid. Please start drinking more water!! > > > > _____ > > From: @gro <mailto: %40> ups.com [mailto:RA- SUPPORT@groups <mailto:SUPPORT%40> .com] On > Behalf Of CLORA > Sent: Thursday, August 14, 2008 3:21 AM > @gro <mailto: %40> ups.com > Subject: [ ] Re: List of meds - > > > > and group; > > I didnt read what the first post was regarding what meds we took. I > saw people was posting their meds, so I joined the group. I was > happy to see what everyone was taking. I saw a lot of the RA meds > that I tried first and didnt work. I think its really strange a RA > med will work for one and not the other. > > I need all my meds. I see a diff doctor for each condition and all > of them send reports to my primary doctor. If I don't take my meds > I wouldnt live very long. I see a palmonary dr, a cardiologist, > rheumatologist, a dermatologist, mental health doctor, A primary > doctor who get all the info from the other doctors. > > I don't have a problem taking my meds at all. I spent 5 days in > the hospital for a breathing problem. My primary doctor was able to > adjust my meds, since I got a check on my vitals every 4 hours in > the hospital. And a blood stick for diabetes. I believe in my > doctors and I think my pramary doctor is very concerned for me for I > have seen it in his face as we discuss my health problems. I gladly > take my meds. I even have a special pill holder that alarms each > time through the day when its med time. Got it for a christmas > present. > > A lot of times when I take my meds I thank God that the doctors have > the technology to help me to live, however; Doctors are human and > can make a mistake, so I read and check all my meds, and I question > each doctor. THis is a support group and we let each other in on our > lives, meds, hopes and dreams. Don't worry about whether the > question was answered right or wrong, we are here for each other. I > hope you got what information you need also. > > I feel the same, I have a long list of meds. Only thing I feel is I > have to use the bathroom more. That is because of the diaurectics I > take and I most deffinatelay need those. If anything, the affects > cancel each other out haaaaaaaaa. I don't feel high or drugged. And > the affects dont mean it will all happen. I do get very thirst, so > I suck on a piece of candy so I don't drink a lot of fluids to swell > my feet up more. > > And different pain meds is for certain types of pain. For instance > I read and find it true that aspirin is good for head pain. Like a > head ache, tooth ache , ear ache etc... . As some one said, let > people make their own decisions about their meds with their doctors > approval also of course, I tend to agree. I was not affended. I > just seem to go with the flow. Others just look out for us thats > all. Oh If anyone got in trouble for writing a mistake it was me > haaaaaaaaa. I was not surprised since I post long letters. The > group was really nice to me about my mistake and I learned what to > write and not write. I guess I am still learning. I forgive you and > I love to read your post. please continue in the group you got a > good response about meds God bless you hon. > > gentle hugs > Clora > > > My appolgies but I was not refering to the RA meds, like Mtx, > > biologics etc. I was referring to the mix of several types of pain > > medications along with antidepresants etc. For some reason > everyone > > listed ALL the medications they were on rather than just the ones > for > > RA. And I have to say that I was rather surprised by the length of > > the lists. I find that the more meds I take the worse I feel. I am > > not speaking to RA meds, but for other conditions. > > I was not meaning to offend anyone. > > I only take 2-3 pills a day and just those two interact, and cause > me > > to be drowsy. So I can't IMAGINE how someone on such a long list > of > > drugs would feel. Sometimes I think doctors overprescribe. A good > > example was a post that some stated they were on Ultram and > Ultracet, > > those are the same medicine, just one has tylenol. Why would a > doctor > > prescribe both? > > I think patients need to be more aware, thats all. > > > > > > > > > > wrote " Honestly by looking at the lists of what everyone > is > > taking, > > > no > > > > wonder everyone feels horrible. Almost every list has horrbile > > drug > > > > interactions. That is really scary. Some of those interactions > > could > > > > kill people. Additonally, all the multitude of side effects. > > Yikes " > > > > > > > > > With respect , I don't think your comments are at all > > helpful. I don't > > > believe any of us would take mtx, biologics etc if we didn't > have > > to. > > > However it is a balancing act between taking medications with > > possible > > > side-effects and retaining some quality of life. I myself would > be > > in a > > > wheelchair by now (at 42) if not for methotrexate etc. Instead, > the > > drugs > > > have put me into remission 3 times now and I live an active life. > > > > > > In addition, comments like those you made can frighten new- > comers > > to the > > > group, so please don't criticise the meds we take any more. > > > > > > in NZ > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2008 Report Share Posted August 15, 2008 I feel I need to clarify an earlier post about meds since some people seem to be confused about me being prescribed Ultram and Ultracet.I am assuming they are not a physician,because of the statement that was made,therefore,let me try and clear this up.I am to alternate Ultracet and Percocet for pain.(AS NEEDED).The Ultram is to be taken two hours before bedtime.Clearly,I am not taking all these drugs at once and all day long.I have RA and FMS and my rheumatologist is treating me for this.She is a physician and so is the previous rheumatologist,and so is my primary physician.Now I hope this subject on the Ultram and Ultracet is cleared up.Thank You Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2008 Report Share Posted August 15, 2008 Oh my!!! I sent a post directed to about two similiar drugs that she made a specific remark about,that was referring to my post.I had no idea how big this subject had gotten.As I continued to read the post,I couldn't believe what I was seeing.Maybe,I should try to read each day.First,let me say to the entire group that I'm sorry I ever asked for a list of everyones meds.I was curious about what everyone was taking,and yes I was asking for a list of everything(not just RA meds).Secondly, is a great moderator and she was simply let us voice our opinions.Lastly,this is supposed to be a SUPPORT group and I always look forward to hearing how everyone is doing when it relates to our everyday lives.I hope everyone has a great day and an awesome weekend!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2008 Report Share Posted August 15, 2008 and group; Thanks for clearing that up about ultracet. I figured it was something like that. My doctors have done some real un orthadox things lately. I should have said something in case you didnt know why you was taking that. but I didnt know they were even related lol. Thanks for clearing it up anyway. My RA has been so painful, I don't even ask about the side effects anyway. I can't take this pain anymore. I am on prednisone. Even after the love hate relationship we have for it someone said, I didnt even ask what the hate was. It stoped the pain I know what the love is lol. Gentle hugs Clora > I feel I need to clarify an earlier post about meds since some people > seem to be confused about me being prescribed Ultram and Ultracet.I am > assuming they are not a physician,because of the statement that was > made,therefore,let me try and clear this up.I am to alternate Ultracet > and Percocet for pain.(AS NEEDED).The Ultram is to be taken two hours > before bedtime.Clearly,I am not taking all these drugs at once and all > day long.I have RA and FMS and my rheumatologist is treating me for > this.She is a physician and so is the previous rheumatologist,and so is > my primary physician.Now I hope this subject on the Ultram and Ultracet > is cleared up.Thank You > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2008 Report Share Posted August 15, 2008 Actually, I was the one that pointed out the ultram and ultracet issue. I was not bashing or telling anyone anything bad in the first post. Just pointing out they are similar drugs. Sorry if it got taken the wrong way. Its just that its easy to have run into serious problems when you need to take so many meds to try to be functional. So my apologies if I offended you Toni .. **************Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos. (http://autos.aol.com/cars-Volkswagen-Jetta-2009/expert-review?ncid=aolaut000300\ 00000007 ) Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.