Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 Sounds like you did ok. After complaining about my right leg being numb, burning, like ice, etc, I was directed to a Neurosurgeon, or something like that. He checked me over and had me stay in the MRI machine for 1 1/2 hours! His brilliant conclusion was that I'm wearing my clothes too tight. I'll never go to him again. Hang in there, no matter how bad it is for you, others have had it worse. Dennis in eastexas On Thu, Oct 16, 2008 at 9:51 PM, savannahhipchick <lfriedman5@...>wrote: > Hi all, > > Thought by traveleing to a big city neurologist I'd get a real > answer about the pins and needles and numbness in my feet and legs. > Another weirdo. Walks in the room and tells me I have too many > diagnosis. Well okaaay. I didn't ask for them. Then he tells me I > have migraine and fibromyalgia. What? I've had only one bad > headache in my life. I assured him that I do have RA, elevated sed > and crp etc.. and have already lost two hips. He said " so what? " I > was feeling hostile at this point and he went on to say that many > people are put on RA meds that don't need them etc... > > If this man was going to suggest I give up my mtx and Remicade, I > was going to walk out. Plus, my hands are swollen and my rheummy is > very respected. Another doctor consult with no results. Actually 2 > MORE diagnosis and 2 more meds! Maybe I do have fibro but I think a > doctor who does not know me, has not seen my blood results or MRIs > has no business disputing a diagnosis given by Harvard and my local > rheummy. > > Grrr...had to vent. We are so alone in this disease. Sorry. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 Hi, What a terrible day for you! I would talk to my rheumy, and get some advice from him. Did he refer you to this neuro? There seems to be a bad apple in the bunch, there are some very good caring doctors, you just have to find them. I'm so very sorry, but don't give up. You can vent anytime, it always makes me feel better, Tawny:)I love to vent in the car, as long as no one rides along with me, or they would get their ears full. --- In , " savannahhipchick " <lfriedman5@...> wrote: > > Hi all, > > Thought by traveleing to a big city neurologist I'd get a real > answer about the pins and needles and numbness in my feet and legs. > Another weirdo. Walks in the room and tells me I have too many > diagnosis. Well okaaay. I didn't ask for them. Then he tells me I > have migraine and fibromyalgia. What? I've had only one bad > headache in my life. I assured him that I do have RA, elevated sed > and crp etc.. and have already lost two hips. He said " so what? " I > was feeling hostile at this point and he went on to say that many > people are put on RA meds that don't need them etc... > > If this man was going to suggest I give up my mtx and Remicade, I > was going to walk out. Plus, my hands are swollen and my rheummy is > very respected. Another doctor consult with no results. Actually 2 > MORE diagnosis and 2 more meds! Maybe I do have fibro but I think a > doctor who does not know me, has not seen my blood results or MRIs > has no business disputing a diagnosis given by Harvard and my local > rheummy. > > Grrr...had to vent. We are so alone in this disease. Sorry. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 I don't think that I would trust his diagnosis at all. I truly believe if you had miagrains it would be obvious to you. I have only had one and I knew exactly what it was. Personally, before I took anything he gave me, I would check with my rheummy. Sorry about your wasted time, energy and money. Shirley > > Hi all, > > Thought by traveleing to a big city neurologist I'd get a real > answer about the pins and needles and numbness in my feet and legs. > Another weirdo. Walks in the room and tells me I have too many > diagnosis. Well okaaay. I didn't ask for them. Then he tells me I > have migraine and fibromyalgia. What? I've had only one bad > headache in my life. I assured him that I do have RA, elevated sed > and crp etc.. and have already lost two hips. He said " so what? " I > was feeling hostile at this point and he went on to say that many > people are put on RA meds that don't need them etc... > > If this man was going to suggest I give up my mtx and Remicade, I > was going to walk out. Plus, my hands are swollen and my rheummy is > very respected. Another doctor consult with no results. Actually 2 > MORE diagnosis and 2 more meds! Maybe I do have fibro but I think a > doctor who does not know me, has not seen my blood results or MRIs > has no business disputing a diagnosis given by Harvard and my local > rheummy. > > Grrr...had to vent. We are so alone in this disease. Sorry. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 , That's horrible. What is wrong with some physcians? Why did he think you have migraines? Could the Remicade be responsible for the pins and needles and numbness in your feet and legs? Not an MD On Thu, Oct 16, 2008 at 9:51 PM, savannahhipchick <lfriedman5@...> wrote: > Hi all, > > Thought by traveleing to a big city neurologist I'd get a real > answer about the pins and needles and numbness in my feet and legs. > Another weirdo. Walks in the room and tells me I have too many > diagnosis. Well okaaay. I didn't ask for them. Then he tells me I > have migraine and fibromyalgia. What? I've had only one bad > headache in my life. I assured him that I do have RA, elevated sed > and crp etc.. and have already lost two hips. He said " so what? " I > was feeling hostile at this point and he went on to say that many > people are put on RA meds that don't need them etc... > > If this man was going to suggest I give up my mtx and Remicade, I > was going to walk out. Plus, my hands are swollen and my rheummy is > very respected. Another doctor consult with no results. Actually 2 > MORE diagnosis and 2 more meds! Maybe I do have fibro but I think a > doctor who does not know me, has not seen my blood results or MRIs > has no business disputing a diagnosis given by Harvard and my local > rheummy. > > Grrr...had to vent. We are so alone in this disease. Sorry. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 Savanna and group; I am so sorry hon you went through that with a doctor... I can't understand why a professional would say " SO WHAT. " How rude and mean of him... Don't give up the right rheumy is out there I promise... Venting is allowed lol... We have each other... gentle kind hugs Clora ************************************************************** > > Hi all, > > Thought by traveleing to a big city neurologist I'd get a real > answer about the pins and needles and numbness in my feet and legs. > Another weirdo. Walks in the room and tells me I have too many > diagnosis. Well okaaay. I didn't ask for them. Then he tells me I > have migraine and fibromyalgia. What? I've had only one bad > headache in my life. I assured him that I do have RA, elevated sed > and crp etc.. and have already lost two hips. He said " so what? " I > was feeling hostile at this point and he went on to say that many > people are put on RA meds that don't need them etc... > > If this man was going to suggest I give up my mtx and Remicade, I > was going to walk out. Plus, my hands are swollen and my rheummy is > very respected. Another doctor consult with no results. Actually 2 > MORE diagnosis and 2 more meds! Maybe I do have fibro but I think a > doctor who does not know me, has not seen my blood results or MRIs > has no business disputing a diagnosis given by Harvard and my local > rheummy. > > Grrr...had to vent. We are so alone in this disease. Sorry. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 You wrote: Grrr...had to vent. We are so alone in this disease. Sorry. You are not alone. You have YOU! I don't understand why you would let someone YOU ARE PAYING to speak to you with such disrespect and hostility? I would have " FLARED " right back: 'They teach you that in med school?' 'To be a heartless, hostile smartass?' 'Exactly what was the name of that class?' Then I would have proceeded to rip him a new one. Don't ever be afraid to put ANYONE in their place when they are being disrespectul, thougtless and rude. Remind him/her you have teenagers for that sort of sh*t and you came here to see a professional and not some smartass in a white coat. S/He'll be so shocked and mortified he'll either apologize or walk out....either way YOU'LL feel better about the situation and yourself for taking back CONTROL of your life. Just the way I do it. Good Luck, Shauna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 > > , > > That's horrible. What is wrong with some physcians? > > Why did he think you have migraines? > > Could the Remicade be responsible for the pins and needles and > numbness in your feet and legs? > > > > Not an MD > Personally having had a lot of personal experience with Migraines of all types, I think he probably was attributing the numbness and pins and needles to what's called the " Aura " affect of a migraine. Essentially some of us get symptoms in advance of a migraine before the pain sets in. It can set off different and strange reactions. I get blind spots or blotches in my vision and sometimes get shimmering in the vision, like looking through heat waves. Tingling sensation in the extremities isn't out of the question, but in my opinion he was really reaching a bit far to explain her symptoms considering the context of everything else going on. Good reason never to go back to this guy again. Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 SHAUNA AND GROUP; Walk a mile in my shoes thank you Clora > > You wrote: Grrr...had to vent. We are so alone in this disease. > Sorry. > > You are not alone. You have YOU! > > I don't understand why you would let someone YOU ARE PAYING > to speak to you with such disrespect and hostility? > > I would have " FLARED " right back: > > 'They teach you that in med school?' > 'To be a heartless, hostile smartass?' > 'Exactly what was the name of that class?' > > Then I would have proceeded to rip him a new one. > Don't ever be afraid to put ANYONE in their place > when they are being disrespectul, thougtless and rude. > > Remind him/her you have teenagers for that sort of sh*t > and you came here to see a professional and > not some smartass in a white coat. > > S/He'll be so shocked and mortified he'll either apologize > or walk out....either way YOU'LL feel better about the situation > and yourself for taking back CONTROL of your life. > > Just the way I do it. > Good Luck, > Shauna > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 Shauna - You go girl. I agree. The more we put up with this the more they think they can get away with it. Just to add to that, I'm waiting for the day when we can charge a doctor for OUR time for waiting in their waiting room well beyond the scheduled appointment. Then wait another half hour in the exam room until they finally see you. God forbid your 3 minutes late, though, you might lose your appointment. What happened to service and respect? <<off my soapbox>> Bob Grrr...had to vent. We are so alone in this disease. > Sorry. > > You are not alone. You have YOU! > > I don't understand why you would let someone YOU ARE PAYING > to speak to you with such disrespect and hostility? > > I would have " FLARED " right back: > > 'They teach you that in med school?' > 'To be a heartless, hostile smartass?' > 'Exactly what was the name of that class?' > > Then I would have proceeded to rip him a new one. > Don't ever be afraid to put ANYONE in their place > when they are being disrespectul, thougtless and rude. > > Remind him/her you have teenagers for that sort of sh*t > and you came here to see a professional and > not some smartass in a white coat. > > S/He'll be so shocked and mortified he'll either apologize > or walk out....either way YOU'LL feel better about the situation > and yourself for taking back CONTROL of your life. > > Just the way I do it. > Good Luck, > Shauna > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 I have to say that at my Rheumy's office, I have not waited more than 10 minutes to get in to see him (I've been going for 9 years now), I'm usually out in a half hour. They even have a sign posted saying that if you have been waiting for more than 20 minutes, please let the receptionist know. HOWEVER, my youngest son (21) goes to a top, top ENT guy downtown and an average appt is 4 hours long, 95% of that is waiting. But he's that good and they are hard to find. in PA -------------- Original message -------------- From: " fullwave2 " <w8nyy.1@...> Shauna - You go girl. I agree. The more we put up with this the more they think they can get away with it. Just to add to that, I'm waiting for the day when we can charge a doctor for OUR time for waiting in their waiting room well beyond the scheduled appointment. Then wait another half hour in the exam room until they finally see you. God forbid your 3 minutes late, though, you might lose your appointment. What happened to service and respect? <<off my soapbox>> Bob Grrr...had to vent. We are so alone in this disease. > Sorry. > > You are not alone. You have YOU! > > I don't understand why you would let someone YOU ARE PAYING > to speak to you with such disrespect and hostility? > > I would have " FLARED " right back: > > 'They teach you that in med school?' > 'To be a heartless, hostile smartass?' > 'Exactly what was the name of that class?' > > Then I would have proceeded to rip him a new one. > Don't ever be afraid to put ANYONE in their place > when they are being disrespectul, thougtless and rude. > > Remind him/her you have teenagers for that sort of sh*t > and you came here to see a professional and > not some smartass in a white coat. > > S/He'll be so shocked and mortified he'll either apologize > or walk out....either way YOU'LL feel better about the situation > and yourself for taking back CONTROL of your life. > > Just the way I do it. > Good Luck, > Shauna > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 and group; I had a rheumy I had to wait in the waiting room for 7 hours and I went to lunch took a nap and got back in time to see him.. Everyone had to wait even if they came in very early they still waited 5 to seven hours.... He gave lots of morphine and no treatment.. However he was very kind he gave me free steroid shots cause I couldn't pay for them... Why would any one wait that long???? Haaaaaaaaa narcotics... gentle hugs Clora ************************************************************ > I have to say that at my Rheumy's office, I have not waited more than 10 minutes to get in to see him (I've been going for 9 years now), I'm usually out in a half hour. They even have a sign posted saying that if you have been waiting for more than 20 minutes, please let the receptionist know. > > HOWEVER, my youngest son (21) goes to a top, top ENT guy downtown and an average appt is 4 hours long, 95% of that is waiting. But he's that good and they are hard to find. > > in PA > > -------------- Original message -------------- > From: " fullwave2 " <w8nyy.1@...> > Shauna - You go girl. I agree. The more we put up with this the more > they think they can get away with it. > Just to add to that, I'm waiting for the day when we can charge a > doctor for OUR time for waiting in their waiting room well beyond the > scheduled appointment. Then wait another half hour in the exam room > until they finally see you. God forbid your 3 minutes late, though, > you might lose your appointment. What happened to service and respect? > <<off my soapbox>> > Bob > > Grrr...had to vent. We are so alone in this disease. > > Sorry. > > > > You are not alone. You have YOU! > > > > I don't understand why you would let someone YOU ARE PAYING > > to speak to you with such disrespect and hostility? > > > > I would have " FLARED " right back: > > > > 'They teach you that in med school?' > > 'To be a heartless, hostile smartass?' > > 'Exactly what was the name of that class?' > > > > Then I would have proceeded to rip him a new one. > > Don't ever be afraid to put ANYONE in their place > > when they are being disrespectul, thougtless and rude. > > > > Remind him/her you have teenagers for that sort of sh*t > > and you came here to see a professional and > > not some smartass in a white coat. > > > > S/He'll be so shocked and mortified he'll either apologize > > or walk out....either way YOU'LL feel better about the situation > > and yourself for taking back CONTROL of your life. > > > > Just the way I do it. > > Good Luck, > > Shauna > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 Bob, I understand all too well what you are saying. I've suffered from migraines with aura since early childhood. I was assuming, perhaps incorrectly, that 's symptoms were occurring constantly, not periodically. Not an MD On Fri, Oct 17, 2008 at 10:12 AM, fullwave2 <w8nyy.1@...> wrote: > Personally having had a lot of personal experience with Migraines of > all types, I think he probably was attributing the numbness and pins > and needles to what's called the " Aura " affect of a migraine. > Essentially some of us get symptoms in advance of a migraine before > the pain sets in. It can set off different and strange reactions. I > get blind spots or blotches in my vision and sometimes get shimmering > in the vision, like looking through heat waves. Tingling sensation in > the extremities isn't out of the question, but in my opinion he was > really reaching a bit far to explain her symptoms considering the > context of everything else going on. Good reason never to go back to > this guy again. > Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 I hear you guys. I had the big black spot in my vision once and then everything went shimmery around the edges. I thought for sure I was having a stroke! Re: [ ] Re: creepy doctor visit Bob, I understand all too well what you are saying. I've suffered from migraines with aura since early childhood. I was assuming, perhaps incorrectly, that 's symptoms were occurring constantly, not periodically. Not an MD On Fri, Oct 17, 2008 at 10:12 AM, fullwave2 <w8nyy.1gmail (DOT) com> wrote: > Personally having had a lot of personal experience with Migraines of > all types, I think he probably was attributing the numbness and pins > and needles to what's called the " Aura " affect of a migraine. > Essentially some of us get symptoms in advance of a migraine before > the pain sets in. It can set off different and strange reactions. I > get blind spots or blotches in my vision and sometimes get shimmering > in the vision, like looking through heat waves. Tingling sensation in > the extremities isn't out of the question, but in my opinion he was > really reaching a bit far to explain her symptoms considering the > context of everything else going on. Good reason never to go back to > this guy again. > Bob __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 > > SHAUNA AND GROUP; > > Walk a mile in my shoes > > thank you > Clora > > ????????????????????? Sorry I don't follow.... what are you trying to say? Shauna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 Savannah..That must have been so frustrating with that doctor. I think I would not have been able to keep my trap shut.. I had a bone infection several years ago and was in treatment for almost a year..At the end when my leg healed, I said something to the dr about my insurance. He replied " If I would ahve known you had insurance, we could have treated you better . " I was so exasperated by him. My older daughter was with me and she really told him off. Actually, I thought the treatment was pretty good. Bob is right about 'aura' headaches though. Perhaps he was thinking that was it (dumb inconsiderate dr. he is).. My hubby went on day shift after being on nights for 37 years and suffered massively with aura headaches. He had all the symptoms Bob said without ever having a migraine or headache as we know them..Sometime look up 'aura headache' on the web. It was so interesting to learn some new things. I hope you get a great doctor who has answers soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 Yesterday, Betty and I went to the hospital for an appointment with an OB/GYN only for a pap smear. Finally 2 hours later after some sharp words, she got into the exam room. Another half hour in the exam room and we were both agitated. It won't be ignored. Dennis in eastexas On Fri, Oct 17, 2008 at 10:20 AM, fullwave2 <w8nyy.1@...> wrote: > Shauna - You go girl. I agree. The more we put up with this the more > they think they can get away with it. > Just to add to that, I'm waiting for the day when we can charge a > doctor for OUR time for waiting in their waiting room well beyond the > scheduled appointment. Then wait another half hour in the exam room > until they finally see you. God forbid your 3 minutes late, though, > you might lose your appointment. What happened to service and respect? > <<off my soapbox>> > Bob > > Grrr...had to vent. We are so alone in this disease. > > Sorry. > > > > You are not alone. You have YOU! > > > > I don't understand why you would let someone YOU ARE PAYING > > to speak to you with such disrespect and hostility? > > > > I would have " FLARED " right back: > > > > 'They teach you that in med school?' > > 'To be a heartless, hostile smartass?' > > 'Exactly what was the name of that class?' > > > > Then I would have proceeded to rip him a new one. > > Don't ever be afraid to put ANYONE in their place > > when they are being disrespectul, thougtless and rude. > > > > Remind him/her you have teenagers for that sort of sh*t > > and you came here to see a professional and > > not some smartass in a white coat. > > > > S/He'll be so shocked and mortified he'll either apologize > > or walk out....either way YOU'LL feel better about the situation > > and yourself for taking back CONTROL of your life. > > > > Just the way I do it. > > Good Luck, > > Shauna > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 I never got the aura with my migraines. The aura sounds like a lot more fun than the actual migraine, though. I understand that some people have the aura without the headache. Sue On Friday, October 17, 2008, at 11:30 AM, wrote: > Bob, I understand all too well what you are saying. I've suffered from > migraines with aura since early childhood. > > I was assuming, perhaps incorrectly, that 's symptoms were > occurring constantly, not periodically. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2008 Report Share Posted October 18, 2008 Hi Savannah - no need to apologize for venting. That's what we're all here for. I am floored about the attitude this " so-called doctor " had. Its probably a good thing your hands are swollen - only because I think I would have been tempted to deck the idiot..........Doreen --- In , " savannahhipchick " <lfriedman5@...> wrote: > > Hi all, > > Thought by traveleing to a big city neurologist I'd get a real > answer about the pins and needles and numbness in my feet and > legs. Another weirdo. Walks in the room and tells me I have too > many diagnosis. Well okaaay. I didn't ask for them. Then he > tells me I have migraine and fibromyalgia. What? I've had only > one bad headache in my life. I assured him that I do have RA, > elevated sed and crp etc.. and have already lost two hips. He said > " so what? " I was feeling hostile at this point and he went on to > say that many people are put on RA meds that don't need them etc... > > If this man was going to suggest I give up my mtx and Remicade, I > was going to walk out. Plus, my hands are swollen and my rheummy > is very respected. Another doctor consult with no results. > Actually 2 MORE diagnosis and 2 more meds! Maybe I do have fibro > but I think a doctor who does not know me, has not seen my blood > results or MRIs has no business disputing a diagnosis given by > Harvard and my local rheummy. > > Grrr...had to vent. We are so alone in this disease. Sorry. > Quote Link to comment Share on other sites More sharing options...
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