Re: Enbrel OT

[Guest guest]

and my fav group;

I am going to start humira in 3 weeks, I been reading that sometimes

one has itcy area of shot. I will be using the pen not the syringe.

I can't wait. I am on prednisone till I get the humira. Everyone

that knows about humira shots, would you tell me how it is again????

lol. I read much over the weeks about it from our group. I got a

dvd to watch and a some lititure about it, I watched it.

Some of you it helped and some of you it didn't. I still would like

to know what to expect. I know lol, from reading our post the past

month the meds react differently with everyone.

My son came to see me last night, He lives in Bermingham Alabama. I

live in South Carolina, Him and his wife are in the Air Force. His

wife couldnt come cause she was taking exams in college. He was so

happy to see me doing so much better. He left a few hours ago. So

now I am back to my support group. I have about 27 post to go. I may

not finish tonight. I will get the rest tomorrow.

Barbara I am so glad your enjoying your holiday. Glad you get to

write us still. I am having a ball too. I was a little fatigue. I

became sore. LOL. I was in no great pain like I use to be in. I pray

it stays this way. I can handle a little fatigue and soreness.

God Bless you all.

Clora

> Hi :

> I just passed my one year anniv. on Enbrel. I can remember

> clearly...three days (they tell me that is pretty rare) on the

drug

> and my life was changed. I remember actually crying, it was all

so

> miraculous! As time has gone on, its less effective but still

> works...I know this for sure because I recently had to go off for

two

> weeks....inflamed lymph nodes....some unknown infection...had to

stop

> until antibiotics finished. I was in sheer agony during my time

> off...could hardly walk or turn my head. My RA is mostly in my

neck,

> tiny joints in toes (that attach to feet), making walking

difficult

> and more recently L hip and eventually knee.

> I swim everyday which is the only time I feel really good.

> I still love Enbrel but am considering talking to doc about

switching

> to another in the same class....recent studies show that switching

> from one to another, even in the same class, can help (when

> effectiveness with first is waning....not sure I am really there

> yet...)

> Anyway, couple of things to share...I find that shots in the belly

> are least uncomfortable. Also, I get REALLY itchy welts for a

couple

> of days after taking my shot....Triamcinalone cream works best for

me

> to beat the itch. OTC cortisone did noting. You may still have

good

> days and bad days (more pain, fatigue)....not sure why this is.

> Anyway, I take 600 ibuprofen with pretty good results. Last thing

is

> to make sure you don't let the shots get warm....I left one out

too

> long before taking once and there was a definite decrease in

> effectiveness. Actually, I would love it if I could take every 5

> days....I really think thats about how long the peak effects last.

> If you have any specific questions, I would be happy to discuss.

> Diane

>