Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 and group; Welcome to our humble group . We are a caring group as you will see. I am sorry about your family not understanding, It's a common problem with most of us. My family thinks its a weight problem. They tell me to exercise and lose weight and I will be fine. I have fibro and RA. I know if I lose weight and could exercise I would take a little pain off, but I would still have RA and fibro. I am so sorry to hear about your pain. What are the doctors going to do about your pain? We see they ruled out what it might be, so what are they going to do about the pain? You are obvious in extreme pain and need relief. I was in a lot of pain than I started this support group, as I read the post I begin to learn there is help. We need to voice our pain, just as you did here. Keep complaining to the doctors untill they help you. Your in pain and need something for it. There is so much they can do, they know they can help but you got to keep telling them it hurts. Or tell another doctor. Thats what I did for many years till I found a doctor who would listen and find something wrong. One doctor told me it was all in my head. Thats ok I found a doctor whom could help the pain. My family didnt support me either . In a way they still don't. My husband does now. I hurt so bad. I take prednisone and it helps a lot. I will go off prednisone and start humira in 10 days. I was in pain for many years . They could find nothing wrong with me. Just because they dont find it in a blood test dont mean you don't hurt and nothing is wrong. You hurt. Thats the bottom line is YOU HURT. Maybe you have fibromyalgia. There is no blood test for that. If you could see a rheumatologist they can find out the problem. It was a rheumotologist that diagnosed fibromaligia on me. We are here for ya . You will hear from a lot of the group. I hope you find your relief. I pray you get help. I know you hurt and I wish I could say or do something to ease the pain. Family will be in denial, they dont understand pain like we do, unless they are suffering. Today people think if they can't find what is wrong than your fine. Than when one has a condition, medical science will take care of it. Just like medicine commercials says take kapsasin and your arthritis pain will go away. What false advertising. I wish I could take it and get rid of my pain. There is help I just pray you can get it and someone will show you emphathy for your pain. God bless you sweetheart. gentle hugs everyone] Clora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 Hi ! I am sorry to hear of your situation and your pain. There are so many amazing people in this support group and you will get a lot of understanding from us! My official diagnosis is a generic one..poly something arthritis. I don't even remember anymore, but I do know I hurt. I still work, like someone else said, to keep my mind off of my aches. Also, I wanted to tell you that I am jealous of you. You live in Greece, the one place I want to visit but have not had a chance to! My father in law lives in Greece (Cephalonia..I know that is spelled wrong). Anyway, welcome to the group! <engeorgiadou@...> wrote: Hello to everyone! My name is & I live in Greece! Recently, I have visited my doctor, since I was complaining for severe pain in my wrists & hands for some time. After the necessary blood tests, he concluded that I suffer from hypothyroidism and as a result, I have tennis elbow & other symptoms of RA. But he was sure that it's not RA (the RA factor was negative in the blood test and the protein responsible for RA was 5.7 / 6.0)!!!! Another doctor said that it's carpal tunnel syndrome. However, since that time (2 months now) the symptoms of RA are getting worse & now my elbows, shoulders, knees, angles & toes are affected. My family doesnot support me since they believe it's only a thyroid problem. I feel helpless sometimes, because here I am with severe pain all over my body, no pain releiver, noone to understand me and more important with no doctor to be by my side ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 Hi , Sorry about your diagnosis. I have had Ra and Fibromyalgia for about 6 years now. It is a terrible thing being in pain all the time. I take lots of painkillers and try to live a normal life...(as best I can). Have you went to a different doctor for a second opinion? Corinne wrote: > > Hello to everyone! My name is & I live in Greece! Recently, I > have visited my doctor, since I was complaining for severe pain in my > wrists & hands for some time. After the necessary blood tests, he > concluded that I suffer from hypothyroidism and as a result, I have > tennis elbow & other symptoms of RA. But he was sure that it's not RA > (the RA factor was negative in the blood test and the protein > responsible for RA was 5.7 / 6.0)!!!! Another doctor said that it's > carpal tunnel syndrome. However, since that time (2 months now) the > symptoms of RA are getting worse & now my elbows, shoulders, knees, > angles & toes are affected. My family doesnot support me since they > believe it's only a thyroid problem. I feel helpless sometimes, because > here I am with severe pain all over my body, no pain releiver, noone to > understand me and more important with no doctor to be by my side ! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 Hi I too am fairly new to the group, but after reading your message i just wanted to say this is exactly how i started. I complained of pain in my hands and wrists which was initially put down to repetitive strain as my job is pc orientated, roughly 18 months later i started to have problems with my other joints, my initial blood tests also showed no rheumatoid factor, but after i kept on complaining (and beleive me you will learn you must keep on the case and stress your point) they refered me to a rheumatologist and due to my family history (my dad has RA) they agreed it was probably the onset of RA. 2 years on im still trying to find medication to control it, but i do believe they will get there and reading this groups posts do help, and things have got a lot worse before they are getting better. There are days when its hard to be positive and days when its ok to cover the pain by laughing at the state of myself. I doubt your family are as unnsupportive as you think i often feel that about mine but on the days when we have good honest chats my mum admits its difficult to watch her child in pain or to stiff to use cutlery at meal times sometimes we forget we are not the only ones suffering. I am mainly a lurker and have only made one post to this group but the replies i got and the support i get from logging on here every night is enough to see me through tomorrow Good luck and i hope you get to the bottom of things Sharon xx [ ] IS IT RA ? Hello to everyone! My name is & I live in Greece! Recently, I have visited my doctor, since I was complaining for severe pain in my wrists & hands for some time. After the necessary blood tests, he concluded that I suffer from hypothyroidism and as a result, I have tennis elbow & other symptoms of RA. But he was sure that it's not RA (the RA factor was negative in the blood test and the protein responsible for RA was 5.7 / 6.0)!!!! Another doctor said that it's carpal tunnel syndrome. However, since that time (2 months now) the symptoms of RA are getting worse & now my elbows, shoulders, knees, angles & toes are affected. My family doesnot support me since they believe it's only a thyroid problem. I feel helpless sometimes, because here I am with severe pain all over my body, no pain releiver, noone to understand me and more important with no doctor to be by my side ! Send instant messages to your online friends http://uk.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Same here! New, lurker, and started with wrist, thumb pain for 2 yrs then all joints- now dx with RA & seeing the rheumatologist, but all blood work still is negetive! crazy- pain got better at first with sulfazine and prednisone, but now getting worse again- ugh- This is a great place for support & info- welcome! Beth --- In , Sharon Turtnbull <rupertsmum@...> wrote: > > Hi > > I too am fairly new to the group, but after reading your message i just wanted to say this is exactly how i started. I complained of pain in my hands and wrists which was initially put down to repetitive strain as my job is pc orientated, roughly 18 months later i started to have problems with my other joints, my initial blood tests also showed no rheumatoid factor, but after i kept on complaining (and beleive me you will learn you must keep on the case and stress your point) they refered me to a rheumatologist and due to my family history (my dad has RA) they agreed it was probably the onset of RA. > > 2 years on im still trying to find medication to control it, but i do believe they will get there and reading this groups posts do help, and things have got a lot worse before they are getting better. There are days when its hard to be positive and days when its ok to cover the pain by laughing at the state of myself. I doubt your family are as unnsupportive as you think i often feel that about mine but on the days when we have good honest chats my mum admits its difficult to watch her child in pain or to stiff to use cutlery at meal times sometimes we forget we are not the only ones suffering. > > I am mainly a lurker and have only made one post to this group but the replies i got and the support i get from logging on here every night is enough to see me through tomorrow > > Good luck and i hope you get to the bottom of things > > Sharon xx > > > > [ ] IS IT RA ? > > > Hello to everyone! My name is & I live in Greece! Recently, I > have visited my doctor, since I was complaining for severe pain in my > wrists & hands for some time. After the necessary blood tests, he > concluded that I suffer from hypothyroidism and as a result, I have > tennis elbow & other symptoms of RA. But he was sure that it's not RA > (the RA factor was negative in the blood test and the protein > responsible for RA was 5.7 / 6.0)!!!! Another doctor said that it's > carpal tunnel syndrome. However, since that time (2 months now) the > symptoms of RA are getting worse & now my elbows, shoulders, knees, > angles & toes are affected. My family doesnot support me since they > believe it's only a thyroid problem. I feel helpless sometimes, because > here I am with severe pain all over my body, no pain releiver, noone to > understand me and more important with no doctor to be by my side ! > > > > Send instant messages to your online friends http://uk.messenger. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Hello everyone, As are the rest of you, I too am new to this group. This is my first time posting/visiting, so please bear with me. I started having symptoms about 3-3 1/2 years ago. It started in my wrist with a lot of pain/swelling. Then went to my knee which swelled horribly. I got to the point where I could hardly walk. In the job I was doing at the time, I was on my feet for 8-15 hours per day. I kept complaining to my doctor but he thought I was faking so he just kept putting me off saying it was this or that when it wasn't. He did do blood tests on me, but always came back negative for R/A. Finally the nurse practitioner in his office stood up for me told him to send to a rheumatologist. After 8 months of messing around with him I was finally diagnosed with R/A. My R/A is still not under control, but it's at least manageable now. A year ago, I could barely walk, and now I can do minor exercise on a treadmill. I know how you must be feeling . I had my family/friends around to support me, but I still felt alone. No one I ever knew had this. They could empathize, but not truly understand what was wrong with me. I have R/A in most all of the joints in my arms and legs and am on my third R/A medicine. (that doesn't count all of the other pills and such that's associated with this disease.) It's wonderful to finally connect with others who understand what I'm going through. Please forgive my long post. I truly didn't intend for it to be this long, but once I get going.........lol! > > > > Hi > > > > I too am fairly new to the group, but after reading your message i > just wanted to say this is exactly how i started. I complained of > pain in my hands and wrists which was initially put down to > repetitive strain as my job is pc orientated, roughly 18 months later > i started to have problems with my other joints, my initial blood > tests also showed no rheumatoid factor, but after i kept on > complaining (and beleive me you will learn you must keep on the case > and stress your point) they refered me to a rheumatologist and due to > my family history (my dad has RA) they agreed it was probably the > onset of RA. > > > > 2 years on im still trying to find medication to control it, but i > do believe they will get there and reading this groups posts do help, > and things have got a lot worse before they are getting better. There > are days when its hard to be positive and days when its ok to cover > the pain by laughing at the state of myself. I doubt your family are > as unnsupportive as you think i often feel that about mine but on the > days when we have good honest chats my mum admits its difficult to > watch her child in pain or to stiff to use cutlery at meal times > sometimes we forget we are not the only ones suffering. > > > > I am mainly a lurker and have only made one post to this group but > the replies i got and the support i get from logging on here every > night is enough to see me through tomorrow > > > > Good luck and i hope you get to the bottom of things > > > > Sharon xx > > > > > > > > [ ] IS IT RA ? > > > > > > Hello to everyone! My name is & I live in Greece! > Recently, I > > have visited my doctor, since I was complaining for severe pain in > my > > wrists & hands for some time. After the necessary blood tests, he > > concluded that I suffer from hypothyroidism and as a result, I have > > tennis elbow & other symptoms of RA. But he was sure that it's not > RA > > (the RA factor was negative in the blood test and the protein > > responsible for RA was 5.7 / 6.0)!!!! Another doctor said that it's > > carpal tunnel syndrome. However, since that time (2 months now) the > > symptoms of RA are getting worse & now my elbows, shoulders, knees, > > angles & toes are affected. My family doesnot support me since they > > believe it's only a thyroid problem. I feel helpless sometimes, > because > > here I am with severe pain all over my body, no pain releiver, > noone to > > understand me and more important with no doctor to be by my side ! > > > > > > > > Send instant messages to your online friends > http://uk.messenger. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 , I am sorry that you are experiencing so much pain. I encourage you to keep a journal with all of your symptoms and present it to you doctor. Hopefully it isn't the case for you, but sometimes we have to stress to the doctor how bad things are. I hope get a correct diagnosis for all that is bothering you and that you are feeling better soon. Shirley --- In , " " <engeorgiadou@...> wrote: > > Hello to everyone! My name is & I live in Greece! Recently, I > have visited my doctor, since I was complaining for severe pain in my > wrists & hands for some time. After the necessary blood tests, he > concluded that I suffer from hypothyroidism and as a result, I have > tennis elbow & other symptoms of RA. But he was sure that it's not RA > (the RA factor was negative in the blood test and the protein > responsible for RA was 5.7 / 6.0)!!!! Another doctor said that it's > carpal tunnel syndrome. However, since that time (2 months now) the > symptoms of RA are getting worse & now my elbows, shoulders, knees, > angles & toes are affected. My family doesnot support me since they > believe it's only a thyroid problem. I feel helpless sometimes, because > here I am with severe pain all over my body, no pain releiver, noone to > understand me and more important with no doctor to be by my side ! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Hi and welcome to the group. I'm glad to hear you are seeing a rheumatologist now. Our RA " cocktails " seem to all have varied ingredients with some being very effective and others still searching for the right combination (Me!). No apologies necessary for the length of any post you write. That's what we're all here for - to say as much as needs to be said. It is good to connect with others who are going through the same thing as us. Take care....Doreen > > Hello everyone, > > As are the rest of you, I too am new to this group. This is my > first time posting/visiting, so please bear with me. > I started having symptoms about 3-3 1/2 years ago. It started in > my wrist with a lot of pain/swelling. Then went to my knee which > swelled horribly. I got to the point where I could hardly walk. > In the job I was doing at the time, I was on my feet for 8-15 hours > per day. I kept complaining to my doctor but he thought I was > faking so he just kept putting me off saying it was this or that > when it wasn't. He did do blood tests on me, but always came back > negative for R/A. Finally the nurse practitioner in his office > stood up for me told him to send to a rheumatologist. After 8 > months of messing around with him I was finally diagnosed with > R/A. > > My R/A is still not under control, but it's at least manageable > now. A year ago, I could barely walk, and now I can do minor > exercise on a treadmill. I know how you must be feeling > . I had my family/friends around to support me, but I > still felt alone. No one I ever knew had this. They could > empathize, but not truly understand what was wrong with me. I have > R/A in most all of the joints in my arms and legs and am on my > third R/A medicine. (that doesn't count all of the other pills and > such that's associated with this disease.) It's wonderful to > finally connect with others who understand what I'm going through. > Please forgive my long post. I truly didn't intend for it to be > this long, but once I get going.........lol! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 Will because we look like normal people they think were fine...I have constant pain...people cant feel your pain or see it...I have had people ask me are you in pain now and seem fine...I always say yes all the time , some times are better than others....Just make sure you go to a rheumy and if your still not satisfied go to another until your problem is addressed....hang in there...diane Quote Link to comment Share on other sites More sharing options...
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