Re: muscle spasms gone CRAZY!!!!

[Guest guest]

Jane and Group;

Oh my darling how you have suffered and still suffering. You have

discribed my life to a T. I have suffered my entire adult life. I

have taken so many pain pills over the years. I am so sorry you are

suffering like this.

My periods was like giving birth, till finally I was able to have a

hysterectomy. I have fibro, RA, Osteo and lot other diseases. None

was documented untill about 5 years ago. I have went to sleep at

work. Just sat down on a couch for a few minutes and fell full

asleep and snored. I was told on and was in the bosses office for

it. Sleep apnea caused that.

Maybe writing it down have made you able to see what suffering you

are in. When you see a doctor document everything that takes place

you will need it for your lawyer when you get on disability. I

heard a doctor say in workmans comp across the room. There is

nothing wrong with her. Referring to me. I could of cried I was so

hurt. I was in constant pain and no one knew how to find it. I

went to a dozen doctors in my life. One doctor gently told me my

pain was in my head. Off course it is thats where all the messages

are sent. I knew better.

Finally I was diagnossed with Fibromyalgia. Of course no wonder all

the other doctors and nurses couldnt find it. There was no such

thing untill the last 10 years. and there is no test except for

talking to the patient for fibromyalgia.

I get spasms to. What the heck is that from?? I told the doctor,

I asked for muscle relaxers for it. She wants to wait. Wait for

what??? I get headaches so bad I have to lay in a darkend room. I

got them since my early 20s. I would fall asleep with my head

killing me. One doctor ask me how can you go to sleep with a

headache that bad. Duh, your the doctor!! Don't you know?

I know how you feel darling, keep telling God about it, he will not

pur more on you than you can bare. And you have to tell the doctors

how bad the pain is. One doctor will see it if you keep telling

it. THere are so many out there that just like to get high or to

lazy to breath ( good thing breathing is an autonaughtic process)

When we try to get help they mess it up for us. You being so young

also makes it hard to make a doctor see our pain.

I suffered a year trying to show my rheumy how bad I feel. Its our

dumb pride that messes us up sometimes. Let them know how bad you

feel. Its no loss off their backs. And maybe these lazy people aint

lazy mabe they are in pain. And they don't know unless you explain

it.

If you can find a rheumatologist they are well trained in most

severe pain problems. It was a rheumatologist who diagnosed my

fibromyalgia. Which I heard of but had no idea I had it. I believe

I had it for 35 years.

Everyone help me get pain pills, my family and my friends. Talking

about it to people never helped cause if they don't have the pain

they don't understand. Oh God, I have suffered so much. I can tell

you are to sweety. I pray that you can get some help. My heart

aches for you. I know how it is baby doll. I am 54 now and I hate

the thought of anyone suffering like I have. You even sound worse

off than I was when I started my suffering.

Yes your book was excellant. Now you can read my book lol. I will

tell you what helps when your writing a book. Most of my posts looks

like a book. said long post are welcome.

Make paragraphs, the monerator mentioned that to me one time. I

don't know where to exactly make the paragraphs in my post. I just

take a wild guess lol. I hope I have helped you some . Also I

hope you find the right doctor to help your pain. I pray you don't

keep suffering.

Please keep us up to date on your progress with a doctor. I just

can't believe someone else is suffering as young as I was. Your the

first person I met that started out young. I was about 23 when I

begin to suffer. My feet has never stopped hurting. I have worked

at stand up jobs in horrible pain. God bless you sweety. I better

stop or it will be a double book. haaaaaaaa. Also I love reading

everones post. Its the first thing I start in the morning its the

last thing I do at night.

gentle hugs everyone

Clora

[Guest guest]

Are you on any meds for cholesterol? My husband had a very similar thing

happen to him and it came down to a combination of Crestor and dehydration.

He was told never to take cholesterol meds again and he has to stay very

hydrated. He had to drink Gatorade for weeks after his episode like you

described. Now he just makes sure he drinks whatever- all the time - to stay

hydrated.

[ ] muscle spasms gone CRAZY!!!!

Hi everyone!

I haven't posted in several months, but I've had one of those

FUN *rolls eyes* (I use sarcasm and humor as partial coping methods)

new developments. Wednesday night, I had basically full body muscle

spasms, with the ENTIRE left side of my body being MUCH more intense

than the right side. I was COMPLETELY concious the WHOLE time. It

lasted about 2-3 hours, and since my fibro had been acting up almost

all day, I can honestly say that at that time, it was the WORST pain

I had EVER experienced in my life.

No longer true :-( It finally calmed down enough for my

fiancee to get me to bed around 2am, and I managed to get maybe a

couple of hours of " sleep " (I don't really call what I did sleeping,

more like laying w/ my eyes closed praying for sleep to come & then

passing out from exhaustion only to be woken up (still exhausted) by

a frantic fiancee, b/c the power went out during the night and we

were an hour late to work). My entire left side still hurt (during

spasms, pain=10, when I woke up, pain=8), but I had to go to work

(started new job on 5/5/08 & probation doesn't end until 11/5/08), so

I got up and took a shower and got ready and went to work. Within an

hour of waking up, my entire left arm (shoulder dowm to finger tips,

incl. muscle under left boob, whatever that is) started spasming (not

sure that's the right word). The muscles kept tightening and

flexing, arm was shaking, almost shivering, wrist and fingers were

tightened to the point of turning red with white splotches with

swelling (to the point that several of my less observant coworkers

said " why's your hand all swollen? " ) and bluish purple under the

fingernails. The whole arm would make the little movements that

changed the position of the arm, for a while it would be bent, then

straight, then bent and almost touching the opposite shoulder. The

wrist got stuck at odd angles, and the fingers were horribly

contorted, my hand resembled a claw for most of yesterday (thurs).

It was during this time that I discovered my new " pain level 10 " . My

left side was already hurting so bad from its " activities " the night

before and the fibro, that I would just stop and think " Please God,

make it stop hurting, do something! Make it go away! Please have

mercy, and if I have to hurt like this for the rest of my life, then

please take me home to be with you, because I honestly don't think I

can take this anymore!! "

I have endometriosis, migraines, fibro, cfs, ovarian cysts,

pcos, and more (fog is acting up & can't remember the rest), so I am

by no means a stranger to pain. One doc told me that EVERY period I

have, puts me through more pain than childbirth (I wouldn't know, not

a mom, but I trust her opinion). I'm just saying that I never

thought that I would use the phrase " level 10 pain " , so the fact that

I am using that phrase should probably tell ya something.

Anyway, last night, Greg (fiancee) and I went to Walmart and

got me a sling, and my arm kept up like that until this (Fri)

morning. It's been doing the same thing periodically all day, but

thank God that it hasn't been constant. This is the second time that

I have experienced full body muscle spasms, although I tend to

experience more " normal " muscle spasms several times a week to almost

daily. The more " normal " muscle spasms can occur ANYWHERE on my

body, but some of the more frequent ones are the arch of my foot, my

eye or the area just under my eye twitching, my hand/wrist, my knee,

and my ankle. The spasms can occur on either side of my body. They

also tend to be twitching, tightening, or freezing, meaning that they

don't normally tend to contort the affected body part into odd

shapes.

I am currently (and have been since like Christmas) taking

5mg (half pill) Baclofen 3x/day, 5-325 Percocet 2x/day (as needed),

15mg mobic 1x/day, and 5mg (half pill) amitryptilline 1x/night.

Yesterday, I tried taking my meds like normal in the morning: 5mg

Baclofen, 5-325 Percocet, 15mg mobic, and singulair

(allergies/asthma) at 8am. Then, after that did little to nothing, I

tried taking my next dose of Percocet just like normal: 5-325

Percocet at 2pm, but instead of taking the normal dosage of Baclofen,

I took a whole pill (10mg). I was hoping, that since it's a muscle

relaxer, that it would help the muscle relax and stop spasming (or

whatever the word is for what happened to my arm). It helped a

LITTLE (it took the pain down from 10 to about 9.4 for about 30

minutes, then it went right back up to 10!!!). And, of course, I

skipped my nighttime dose of baclofen, since I had taken my day's

worth (15mg) by then and I didn't want to risk od-ing. I'm still

wearing my sling.

Yesterday and today both, I didn't have the option of slowing

down at work. I work at a genealogical and research library, so I

had to shelve microfilms and books, go get microfilms and books, fix

microfilm machines, fix printers, work 11 hours on Thursday (w/out a

sling), work 8 hours on Friday (with the sling), answer phones, look

up obituaries, run errands, try to please and entertain irate patrons

who were upset because our microfilm machines weren't working, get

yelled at by patrons for same reason, try to carry my luncg tray at

the cafeteria, and not get to sit down for more than 5 minutes

(except for lunch), all with one hand, while in that much pain and

trying to be nice and polite and keep a smile on my face.

I didn't go to the ER, b/c last time I had the full body

muscle spasms, I went to the ER, and they told me that there was

nothing wrong, that I just needed to relax my muscles, and to learn

that an emergency room is for TRUE EMERGENCIES and not just for

attention-seeking hypochondriacs. That happened during my senior

year of high school, 2005. Earlier in my senior year, 08/2004, I was

dx'd w/ migraines. I had my first laparoscopy for the endometriosis

in 06/2005, and my second in 12/2005 (was dx'd with late stage

II/early stage III endo). Then, I was dx'd w/ ovarian cysts in

09/2006. Dx'd w. polycystic ovarian syndrome (PCOS) in 11/2006.

Then, I was just dx'd w/ fibromyalgia, cfs, myofacial, & tmj in

11/2007. Also dx'd w/ vertigo on 12/26/2007.

It seems like stuff just keeps piling on, so I can only

ask, " What's happening to me now?? " I looked on webmd, and my

symptoms seem to closely follow those of Paroxysmal Dystonia &

possibly the dyskinesia. Obviously, I don't know if that's what it

is or not, and it looked like it's supposed to be rather rare. I'm

not sure if I should even mention it as a possibility to my doctor.

Although, it does seem to be somehow related to parkinson's, and both

grandpa's, plus a great-grandma had/have parkinson's. I just don't

know what to do. My gyno said that he thinks I have an autoimmune

disorder.

Have any of you experienced anything like this before? Do

any of you have dystonia? What meds are you guys on? Do the meds

that I'm on sound like what is normally prescribed for this stuff?

Mainly they're prescribed for fibro, except for the singulair. Do

any of you have vertigo and/or motion sickness? Right now, I take

25mg Meclazine (non-drowsy dramamine) 1x/day for this, as needed.

It's not helping much. They tried apem (Vallium), but I'm

allergic to it. What do you take for that? Also, if any of you

experience almost daily nausea, what do you take for that?

In case it matters, I'm only 21. Oh, and the fave phrase at

work is, " You're too young for all these problems. " It's said in a

disbelieving voice, as if to say, " Now that I've told you that, stop

this act and look like you feel better! " They only say this when

they can actually SEE/NOTICE that I feel like cr*p (in other words,

pain is worse than an 8.5 or so). This is like 4 times a month. AND

I've NEVER missed a day of work! They call in when they get a

headache or they're tired or their throat hurts, etc. They have each

called in about 2-5 days PER MONTH!!! At least I go to work each day

and work as hard as I can, and usually end up doing their work too

(b/c they tell me to, but then they get mad, b/c I'm " showing them

up " ), all while dealing w/ this cr*p! Since around September 2007, I

haven't had a single day with less than level 6 pain! Unfortunately,

I stress about things if they're my responsibility at work and they

don't get done, so I tend to work harder than I should. I push my

body, and then I'm usually paying for it before, during, and after

work and on the weekends. So, I don't get much time to relax. :-(

Well, now that I've typed this only using my right hand, and it now

hurts, I think I'll go ahead and post this message. Sorry for

writing a book!

Thanks for being here and listening to my rants, complaints, &

worries!

------------------------------------

[Guest guest]

Wow, - sounds like you have a horrible amount of stuff going

on with you. If I may make a suggestion - don't try to diagnose

yourself. IMHO, you need to see a neurologist. I have a thought as

to what you are experiencing, but I don't want to cloud up what a

neurologist would tell you and I'm not an MD. Keep us posted. I

pray with the right doctor, you will have a proper

diagnosis....Doreen

>

> Hi everyone!

>I haven't posted in several months, but I've had one of those

> FUN *rolls eyes* (I use sarcasm and humor as partial coping

> methods) new developments. Wednesday night, I had basically full

> body muscle spasms, with the ENTIRE left side of my body being MUCH

> more intense than the right side. I was COMPLETELY concious the

> WHOLE time. It

> lasted about 2-3 hours, and since my fibro had been acting up

almost

> all day, I can honestly say that at that time, it was the WORST

pain

> I had EVER experienced in my life.

> No longer true :-( It finally calmed down enough for my

> fiancee to get me to bed around 2am, and I managed to get maybe a

> couple of hours of " sleep " (I don't really call what I did

sleeping,

> more like laying w/ my eyes closed praying for sleep to come & then

> passing out from exhaustion only to be woken up (still exhausted)

by

> a frantic fiancee, b/c the power went out during the night and we

> were an hour late to work). My entire left side still hurt (during

> spasms, pain=10, when I woke up, pain=8), but I had to go to work

> (started new job on 5/5/08 & probation doesn't end until 11/5/08),

so

> I got up and took a shower and got ready and went to work. Within

an

> hour of waking up, my entire left arm (shoulder dowm to finger

tips,

> incl. muscle under left boob, whatever that is) started spasming

(not

> sure that's the right word). The muscles kept tightening and

> flexing, arm was shaking, almost shivering, wrist and fingers were

> tightened to the point of turning red with white splotches with

> swelling (to the point that several of my less observant coworkers

> said " why's your hand all swollen? " ) and bluish purple under the

> fingernails. The whole arm would make the little movements that

> changed the position of the arm, for a while it would be bent, then

> straight, then bent and almost touching the opposite shoulder. The

> wrist got stuck at odd angles, and the fingers were horribly

> contorted, my hand resembled a claw for most of yesterday (thurs).

> It was during this time that I discovered my new " pain level 10 " .

My

> left side was already hurting so bad from its " activities " the

night

> before and the fibro, that I would just stop and think " Please God,

> make it stop hurting, do something! Make it go away! Please have

> mercy, and if I have to hurt like this for the rest of my life,

then

> please take me home to be with you, because I honestly don't think

I

> can take this anymore!! "

> I have endometriosis, migraines, fibro, cfs, ovarian cysts,

> pcos, and more (fog is acting up & can't remember the rest), so I

am

> by no means a stranger to pain. One doc told me that EVERY period

I

> have, puts me through more pain than childbirth (I wouldn't know,

not

> a mom, but I trust her opinion). I'm just saying that I never

> thought that I would use the phrase " level 10 pain " , so the fact

that

> I am using that phrase should probably tell ya something.

> Anyway, last night, Greg (fiancee) and I went to Walmart and

> got me a sling, and my arm kept up like that until this (Fri)

> morning. It's been doing the same thing periodically all day, but

> thank God that it hasn't been constant. This is the second time

that

> I have experienced full body muscle spasms, although I tend to

> experience more " normal " muscle spasms several times a week to

almost

> daily. The more " normal " muscle spasms can occur ANYWHERE on my

> body, but some of the more frequent ones are the arch of my foot,

my

> eye or the area just under my eye twitching, my hand/wrist, my

knee,

> and my ankle. The spasms can occur on either side of my body.

They

> also tend to be twitching, tightening, or freezing, meaning that

they

> don't normally tend to contort the affected body part into odd

> shapes.

> I am currently (and have been since like Christmas) taking

> 5mg (half pill) Baclofen 3x/day, 5-325 Percocet 2x/day (as needed),

> 15mg mobic 1x/day, and 5mg (half pill) amitryptilline 1x/night.

> Yesterday, I tried taking my meds like normal in the morning: 5mg

> Baclofen, 5-325 Percocet, 15mg mobic, and singulair

> (allergies/asthma) at 8am. Then, after that did little to nothing,

I

> tried taking my next dose of Percocet just like normal: 5-325

> Percocet at 2pm, but instead of taking the normal dosage of

Baclofen,

> I took a whole pill (10mg). I was hoping, that since it's a muscle

> relaxer, that it would help the muscle relax and stop spasming (or

> whatever the word is for what happened to my arm). It helped a

> LITTLE (it took the pain down from 10 to about 9.4 for about 30

> minutes, then it went right back up to 10!!!). And, of course, I

> skipped my nighttime dose of baclofen, since I had taken my day's

> worth (15mg) by then and I didn't want to risk od-ing. I'm still

> wearing my sling.

> Yesterday and today both, I didn't have the option of slowing

> down at work. I work at a genealogical and research library, so I

> had to shelve microfilms and books, go get microfilms and books,

fix

> microfilm machines, fix printers, work 11 hours on Thursday (w/out

a

> sling), work 8 hours on Friday (with the sling), answer phones,

look

> up obituaries, run errands, try to please and entertain irate

patrons

> who were upset because our microfilm machines weren't working, get

> yelled at by patrons for same reason, try to carry my luncg tray at

> the cafeteria, and not get to sit down for more than 5 minutes

> (except for lunch), all with one hand, while in that much pain and

> trying to be nice and polite and keep a smile on my face.

> I didn't go to the ER, b/c last time I had the full body

> muscle spasms, I went to the ER, and they told me that there was

> nothing wrong, that I just needed to relax my muscles, and to learn

> that an emergency room is for TRUE EMERGENCIES and not just for

> attention-seeking hypochondriacs. That happened during my senior

> year of high school, 2005. Earlier in my senior year, 08/2004, I

was

> dx'd w/ migraines. I had my first laparoscopy for the

endometriosis

> in 06/2005, and my second in 12/2005 (was dx'd with late stage

> II/early stage III endo). Then, I was dx'd w/ ovarian cysts in

> 09/2006. Dx'd w. polycystic ovarian syndrome (PCOS) in 11/2006.

> Then, I was just dx'd w/ fibromyalgia, cfs, myofacial, & tmj in

> 11/2007. Also dx'd w/ vertigo on 12/26/2007.

> It seems like stuff just keeps piling on, so I can only

> ask, " What's happening to me now?? " I looked on webmd, and my

> symptoms seem to closely follow those of Paroxysmal Dystonia &

> possibly the dyskinesia. Obviously, I don't know if that's what it

> is or not, and it looked like it's supposed to be rather rare. I'm

> not sure if I should even mention it as a possibility to my

doctor.

> Although, it does seem to be somehow related to parkinson's, and

both

> grandpa's, plus a great-grandma had/have parkinson's. I just don't

> know what to do. My gyno said that he thinks I have an autoimmune

> disorder.

> Have any of you experienced anything like this before? Do

> any of you have dystonia? What meds are you guys on? Do the meds

> that I'm on sound like what is normally prescribed for this stuff?

> Mainly they're prescribed for fibro, except for the singulair. Do

> any of you have vertigo and/or motion sickness? Right now, I take

> 25mg Meclazine (non-drowsy dramamine) 1x/day for this, as needed.

> It's not helping much. They tried apem (Vallium), but I'm

> allergic to it. What do you take for that? Also, if any of you

> experience almost daily nausea, what do you take for that?

> In case it matters, I'm only 21. Oh, and the fave phrase at

> work is, " You're too young for all these problems. " It's said in a

> disbelieving voice, as if to say, " Now that I've told you that,

stop

> this act and look like you feel better! " They only say this when

> they can actually SEE/NOTICE that I feel like cr*p (in other words,

> pain is worse than an 8.5 or so). This is like 4 times a month.

AND

> I've NEVER missed a day of work! They call in when they get a

> headache or they're tired or their throat hurts, etc. They have

each

> called in about 2-5 days PER MONTH!!! At least I go to work each

day

> and work as hard as I can, and usually end up doing their work too

> (b/c they tell me to, but then they get mad, b/c I'm " showing them

> up " ), all while dealing w/ this cr*p! Since around September 2007,

I

> haven't had a single day with less than level 6 pain!

Unfortunately,

> I stress about things if they're my responsibility at work and they

> don't get done, so I tend to work harder than I should. I push my

> body, and then I'm usually paying for it before, during, and after

> work and on the weekends. So, I don't get much time to relax. :-

(

> Well, now that I've typed this only using my right hand, and it now

> hurts, I think I'll go ahead and post this message. Sorry for

> writing a book!

>

> Thanks for being here and listening to my rants, complaints, &

> worries!

>

>

[Guest guest]

,

What a nightmare! Honey, I pray that you get better really quick. I

don't know about the muscle spasms. I have never experienced

anything like that. Sorry to say that I am no help.

I do know the pain of ovarian cyst and endometriosis though. I had

one ovary removed because it was consummed by a cyst and within 4

months the other one had developed a cyst. The evening before that

surgery, (working O.T. and alone), I was trying to throw phone wire

through a high rafted ceiling. I just kept praying, " Dear God,

please let this be a good throw " . I finally had a radical

hystorectomy the next year. I probably had 3 or 4 days a month

without bleeding. Annual surgery got old quickly.

I also know about showing up sick and in pain to only have someone

elses load added because they reported out. You can't help be feel

angry. I try not to be personal about it because I don't know what

they are really going through.

Please, get in touch with your doctor and stress how bad this is.

You deffinately need attention and the sooner the better. No one can

continue for a very long time with pain at that level.

Please, let us know how you are doing.

Shirley

>

> >

> > Hi everyone!

> >I haven't posted in several months, but I've had one of those

> > FUN *rolls eyes* (I use sarcasm and humor as partial coping

> > methods) new developments. Wednesday night, I had basically

full

> > body muscle spasms, with the ENTIRE left side of my body being

MUCH

> > more intense than the right side. I was COMPLETELY concious the

> > WHOLE time. It

> > lasted about 2-3 hours, and since my fibro had been acting up

> almost

> > all day, I can honestly say that at that time, it was the WORST

> pain

> > I had EVER experienced in my life.

> > No longer true :-( It finally calmed down enough for my

> > fiancee to get me to bed around 2am, and I managed to get maybe

a

> > couple of hours of " sleep " (I don't really call what I did

> sleeping,

> > more like laying w/ my eyes closed praying for sleep to come &

then

> > passing out from exhaustion only to be woken up (still

exhausted)

> by

> > a frantic fiancee, b/c the power went out during the night and

we

> > were an hour late to work). My entire left side still hurt

(during

> > spasms, pain=10, when I woke up, pain=8), but I had to go to

work

> > (started new job on 5/5/08 & probation doesn't end until

11/5/08),

> so

> > I got up and took a shower and got ready and went to work.

Within

> an

> > hour of waking up, my entire left arm (shoulder dowm to finger

> tips,

> > incl. muscle under left boob, whatever that is) started spasming

> (not

> > sure that's the right word). The muscles kept tightening and

> > flexing, arm was shaking, almost shivering, wrist and fingers

were

> > tightened to the point of turning red with white splotches with

> > swelling (to the point that several of my less observant

coworkers

> > said " why's your hand all swollen? " ) and bluish purple under the

> > fingernails. The whole arm would make the little movements that

> > changed the position of the arm, for a while it would be bent,

then

> > straight, then bent and almost touching the opposite shoulder.

The

> > wrist got stuck at odd angles, and the fingers were horribly

> > contorted, my hand resembled a claw for most of yesterday

(thurs).

> > It was during this time that I discovered my new " pain level

10 " .

> My

> > left side was already hurting so bad from its " activities " the

> night

> > before and the fibro, that I would just stop and think " Please

God,

> > make it stop hurting, do something! Make it go away! Please

have

> > mercy, and if I have to hurt like this for the rest of my life,

> then

> > please take me home to be with you, because I honestly don't

think

> I

> > can take this anymore!! "

> > I have endometriosis, migraines, fibro, cfs, ovarian cysts,

> > pcos, and more (fog is acting up & can't remember the rest), so

I

> am

> > by no means a stranger to pain. One doc told me that EVERY

period

> I

> > have, puts me through more pain than childbirth (I wouldn't

know,

> not

> > a mom, but I trust her opinion). I'm just saying that I never

> > thought that I would use the phrase " level 10 pain " , so the fact

> that

> > I am using that phrase should probably tell ya something.

> > Anyway, last night, Greg (fiancee) and I went to Walmart and

> > got me a sling, and my arm kept up like that until this (Fri)

> > morning. It's been doing the same thing periodically all day,

but

> > thank God that it hasn't been constant. This is the second time

> that

> > I have experienced full body muscle spasms, although I tend to

> > experience more " normal " muscle spasms several times a week to

> almost

> > daily. The more " normal " muscle spasms can occur ANYWHERE on my

> > body, but some of the more frequent ones are the arch of my

foot,

> my

> > eye or the area just under my eye twitching, my hand/wrist, my

> knee,

> > and my ankle. The spasms can occur on either side of my body.

> They

> > also tend to be twitching, tightening, or freezing, meaning that

> they

> > don't normally tend to contort the affected body part into odd

> > shapes.

> > I am currently (and have been since like Christmas) taking

> > 5mg (half pill) Baclofen 3x/day, 5-325 Percocet 2x/day (as

needed),

> > 15mg mobic 1x/day, and 5mg (half pill) amitryptilline 1x/night.

> > Yesterday, I tried taking my meds like normal in the morning:

5mg

> > Baclofen, 5-325 Percocet, 15mg mobic, and singulair

> > (allergies/asthma) at 8am. Then, after that did little to

nothing,

> I

> > tried taking my next dose of Percocet just like normal: 5-325

> > Percocet at 2pm, but instead of taking the normal dosage of

> Baclofen,

> > I took a whole pill (10mg). I was hoping, that since it's a

muscle

> > relaxer, that it would help the muscle relax and stop spasming

(or

> > whatever the word is for what happened to my arm). It helped a

> > LITTLE (it took the pain down from 10 to about 9.4 for about 30

> > minutes, then it went right back up to 10!!!). And, of course,

I

> > skipped my nighttime dose of baclofen, since I had taken my

day's

> > worth (15mg) by then and I didn't want to risk od-ing. I'm

still

> > wearing my sling.

> > Yesterday and today both, I didn't have the option of

slowing

> > down at work. I work at a genealogical and research library, so

I

> > had to shelve microfilms and books, go get microfilms and books,

> fix

> > microfilm machines, fix printers, work 11 hours on Thursday

(w/out

> a

> > sling), work 8 hours on Friday (with the sling), answer phones,

> look

> > up obituaries, run errands, try to please and entertain irate

> patrons

> > who were upset because our microfilm machines weren't working,

get

> > yelled at by patrons for same reason, try to carry my luncg tray

at

> > the cafeteria, and not get to sit down for more than 5 minutes

> > (except for lunch), all with one hand, while in that much pain

and

> > trying to be nice and polite and keep a smile on my face.

> > I didn't go to the ER, b/c last time I had the full body

> > muscle spasms, I went to the ER, and they told me that there was

> > nothing wrong, that I just needed to relax my muscles, and to

learn

> > that an emergency room is for TRUE EMERGENCIES and not just for

> > attention-seeking hypochondriacs. That happened during my

senior

> > year of high school, 2005. Earlier in my senior year, 08/2004,

I

> was

> > dx'd w/ migraines. I had my first laparoscopy for the

> endometriosis

> > in 06/2005, and my second in 12/2005 (was dx'd with late stage

> > II/early stage III endo). Then, I was dx'd w/ ovarian cysts in

> > 09/2006. Dx'd w. polycystic ovarian syndrome (PCOS) in

11/2006.

> > Then, I was just dx'd w/ fibromyalgia, cfs, myofacial, & tmj in

> > 11/2007. Also dx'd w/ vertigo on 12/26/2007.

> > It seems like stuff just keeps piling on, so I can only

> > ask, " What's happening to me now?? " I looked on webmd, and my

> > symptoms seem to closely follow those of Paroxysmal Dystonia &

> > possibly the dyskinesia. Obviously, I don't know if that's what

it

> > is or not, and it looked like it's supposed to be rather rare.

I'm

> > not sure if I should even mention it as a possibility to my

> doctor.

> > Although, it does seem to be somehow related to parkinson's, and

> both

> > grandpa's, plus a great-grandma had/have parkinson's. I just

don't

> > know what to do. My gyno said that he thinks I have an

autoimmune

> > disorder.

> > Have any of you experienced anything like this before? Do

> > any of you have dystonia? What meds are you guys on? Do the

meds

> > that I'm on sound like what is normally prescribed for this

stuff?

> > Mainly they're prescribed for fibro, except for the singulair.

Do

> > any of you have vertigo and/or motion sickness? Right now, I

take

> > 25mg Meclazine (non-drowsy dramamine) 1x/day for this, as

needed.

> > It's not helping much. They tried apem (Vallium), but I'm

> > allergic to it. What do you take for that? Also, if any of you

> > experience almost daily nausea, what do you take for that?

> > In case it matters, I'm only 21. Oh, and the fave phrase at

> > work is, " You're too young for all these problems. " It's said

in a

> > disbelieving voice, as if to say, " Now that I've told you that,

> stop

> > this act and look like you feel better! " They only say this

when

> > they can actually SEE/NOTICE that I feel like cr*p (in other

words,

> > pain is worse than an 8.5 or so). This is like 4 times a

month.

> AND

> > I've NEVER missed a day of work! They call in when they get a

> > headache or they're tired or their throat hurts, etc. They have

> each

> > called in about 2-5 days PER MONTH!!! At least I go to work

each

> day

> > and work as hard as I can, and usually end up doing their work

too

> > (b/c they tell me to, but then they get mad, b/c I'm " showing

them

> > up " ), all while dealing w/ this cr*p! Since around September

2007,

> I

> > haven't had a single day with less than level 6 pain!

> Unfortunately,

> > I stress about things if they're my responsibility at work and

they

> > don't get done, so I tend to work harder than I should. I push

my

> > body, and then I'm usually paying for it before, during, and

after

> > work and on the weekends. So, I don't get much time to

relax. :-

> (

> > Well, now that I've typed this only using my right hand, and it

now

> > hurts, I think I'll go ahead and post this message. Sorry for

> > writing a book!

> >

> > Thanks for being here and listening to my rants, complaints, &

> > worries!

> >

> >

>

[Guest guest]

,

 

Sorry to hear you are having terrible pain; I hope your doctor can find relief

and answers for you.  I just wrote to sympathize with the library situation.  I

work in a public library, and people always think I have a cushy job where I sit

around reading Jane Austen.  As you know, that is hysterical!  Library work is

extremely physically demanding.  I have been able to keep working, but only part

time, so I do get a break.  BUT I also really enjoy the work (with the exception

of irate patrons), and if I didn't work there, I would spend more time thinking

about being sick.  Just wanted to lend support, librarian to librarian.  Take

good care of yourself.

 

Meg in PA

[Guest guest]

thank you all for your replies, i'll be back on again tomorrow

hopefully.... so tired

amanda