Re: Another diagnosis- Reynaud's

[Guest guest]

Now, Dennis, don't get any more diseases. I think you have more than

your share.

Sue

On Friday, August 15, 2008, at 01:55 PM, Dennis W wrote:

> During my last visit with the Rheumy, I talked about the seemingly

> peripheral neuropathy I was suffering from. When I walk or sit at the

> computer, my toes felt cold, hot, tingling, etc, so we decided that my

> problem was Reynaud's. I've already been diagnosed with RA, Fibro,

> DDD, and

> Sjogren's that I remember. I'd like to remove one or two but it's not

> possible so far. Life goes on...

[Guest guest]

Dennis, I have both peripheral neuropath (right leg) and Reynaud's. There's

a big difference in them.

I find, as most do, that the Reynaud's only kicks up when it's cold out or

even if I go into a supermarket frozen food department. The neuropathy

never goes away. Your description does not sound to me like common

Reynaud's and I think it would be worthwhile for you to see a neurologist.

I know it seems like all we ever do is hear that we have yet another

illness..it's depressing.

Dorothy

_____

From: [mailto: ] On

Behalf Of Dennis W

Sent: Friday, August 15, 2008 1:55 PM

Subject: [ ] Another diagnosis- Reynaud's

During my last visit with the Rheumy, I talked about the seemingly

peripheral neuropathy I was suffering from. When I walk or sit at the

computer, my toes felt cold, hot, tingling, etc, so we decided that my

problem was Reynaud's. I've already been diagnosed with RA, Fibro, DDD, and

Sjogren's that I remember. I'd like to remove one or two but it's not

possible so far. Life goes on...

Dennis in eastexas

[Guest guest]

I'm sitting here at the computer and the temp outside is in the lower 80's.

My toes feel cold and are tingling, not a condition to describe Reynaud's is

it?

Sue, I don't have enough letters after my name yet. That's the goal, isn't

it? The more we have, the more we get!

Dennis in eastexas

On Fri, Aug 15, 2008 at 3:16 PM, Dorothy <dorv@...> wrote:

> Dennis, I have both peripheral neuropath (right leg) and Reynaud's.

> There's

> a big difference in them.

>

> I find, as most do, that the Reynaud's only kicks up when it's cold out or

> even if I go into a supermarket frozen food department. The neuropathy

> never goes away. Your description does not sound to me like common

> Reynaud's and I think it would be worthwhile for you to see a neurologist.

>

> I know it seems like all we ever do is hear that we have yet another

> illness..it's depressing.

>

> Dorothy

>

> _____

>

> From: < %40> [mailto:

> < %40>] On

> Behalf Of Dennis W

> Sent: Friday, August 15, 2008 1:55 PM

>

> Subject: [ ] Another diagnosis- Reynaud's

>

>

> During my last visit with the Rheumy, I talked about the seemingly

> peripheral neuropathy I was suffering from. When I walk or sit at the

> computer, my toes felt cold, hot, tingling, etc, so we decided that my

> problem was Reynaud's. I've already been diagnosed with RA, Fibro, DDD, and

> Sjogren's that I remember. I'd like to remove one or two but it's not

> possible so far. Life goes on...

>

> Dennis in eastexas

>

>

[Guest guest]

Dennis in E.Texas and Group;

I have RA, IBS, Fibro, I noticed you said your feet get cold from

reynauds disease. I have that problem with my ears nose and feet. They

dont get like the picture I looked up on the net. I hope I dont have

reynauds. I got enough for a bunch of people. There is not much you

can do about it. I hope you feel better.

gentle hugs

Clora

[Guest guest]

Hi Clora,

I too have the cold feet,nose,ears,and even my hands,especially when

I'm on the computer.I have RA and FM and after reading your post,I

wonder if it's a FM thing or a RA thing.You know what maybe neither.Who

knows?!I wanted to tell you that I always enjoy reading your post.You

seem to be a very sweet lady.Hope you and the group are having a great

morning!

[Guest guest]

I'm not sure if I am typical, but I don't really get tingling with

Reynaud's. Perhaps a bit when the cold/numbness is going away. What I

first noticed was that my fingertips would turn bluish-white like all the

blood had drained from them. As they " warmed up, " there may be some slight

tingling.

In my case, the tingling would be more from neuropathy. I do want to point

out though that with my neuropathy, there are a number of sensations

(burning, stinging, numbness, jolts of pain, electric-type shocks, etc.) but

really no sensation of cold.

I do still think it's worth your while to see a neurologist to rule out

neuropathy.

My rheumy also told me that Reynaud's can develop into a horribly

disfiguring disease. During the winter, my fingers get very dry, chapped

and start to crack and bleed. In the worst cases, that becomes constant.

Dorothy

_____

From: [mailto: ] On

Behalf Of Dennis W

Sent: Friday, August 15, 2008 10:33 PM

Subject: Re: [ ] Another diagnosis- Reynaud's

I'm sitting here at the computer and the temp outside is in the lower 80's.

My toes feel cold and are tingling, not a condition to describe Reynaud's is

it?

Sue, I don't have enough letters after my name yet. That's the goal, isn't

it? The more we have, the more we get!

Dennis in eastexas

On Fri, Aug 15, 2008 at 3:16 PM, Dorothy <dorvoptonline (DOT)

<mailto:dorv%40optonline.net> net> wrote:

> Dennis, I have both peripheral neuropath (right leg) and Reynaud's.

> There's

> a big difference in them.

>

> I find, as most do, that the Reynaud's only kicks up when it's cold out or

> even if I go into a supermarket frozen food department. The neuropathy

> never goes away. Your description does not sound to me like common

> Reynaud's and I think it would be worthwhile for you to see a neurologist.

>

> I know it seems like all we ever do is hear that we have yet another

> illness..it's depressing.

>

> Dorothy

>

> _____

>

> From: @gro <mailto: %40> ups.com

< %40> [mailto:

> @gro <mailto: %40> ups.com

< %40>] On

> Behalf Of Dennis W

> Sent: Friday, August 15, 2008 1:55 PM

>

> Subject: [ ] Another diagnosis- Reynaud's

>

>

> During my last visit with the Rheumy, I talked about the seemingly

> peripheral neuropathy I was suffering from. When I walk or sit at the

> computer, my toes felt cold, hot, tingling, etc, so we decided that my

> problem was Reynaud's. I've already been diagnosed with RA, Fibro, DDD,

and

> Sjogren's that I remember. I'd like to remove one or two but it's not

> possible so far. Life goes on...

>

> Dennis in eastexas

>

>

[Guest guest]

and group;

Thanks , I appreciaite you telling me you like my post. Every

morning when I get on the computer. I hope I didnt write to much

stupid stuff on the post. I have always love to write. I love paper

work. Yes I love paper work. I hear people complain about their paper

work I tell them let me do it. They laugh and say wish I could let

you.

My hands would get so cold when I typed I would wear gloves with the

tips cut out. My daugheter would sweetly laugh and say mother you

seem to have everything wrong with you. Maybe I was meant for another

planet where the gravity isnt as strong haaaaaaaaa. And the weather

was warmer at the extremities and colder twoard the core lol. haaaa.

Yes I dont even complain anymore. I just find a way to cope, like

cutting holes in my gloves haaaaa. My family really loves me. The

furthest relatives thinks I am a hyperchonderact. Thats ok my closest

kin know I am genuine. I love everyone. I can't help it. After I got

saved Jesus came into my heart and showed me the love for mankind. He

also showed me to flee from evil. So I pretty much stayed away from

trouble makers. Ut o this is getting long let me close with God bless

you and take care.

gentle group hug

Clora

[Guest guest]

Dorthy and Group;

Thank you Dorthy. I probably have reynauds. I am not going to worry

about it till it gets bad. I have RA and Fibro. My feet are dry and

cracked and bleed sometimes. I pack it with vaseline and put socks

on, thats how I deal with it now. I will ask my rheumy about it when

I see her again.

I better start writing down what I need to ask her. Cause everytime I

see her I forget. I talk so much she has to repeat herself on

derections she gives me. My husband goes with me cause he takes care

of me and wants to hear what the doctor says. Good thing he did. I

have really botched a few directions up that he fixed.

gentle hugs

Clora

[Guest guest]

and group

Thanks for the information on raynauds

hugs everyone

Clora

[Guest guest]

Dorothy, the last time I went to a hot-shot Neurosurgeon was for the

numbness in my right leg. After 1 1/2 hours in the MRI machine, he concluded

that my pants were too tight! I think I'm going to work on the assumption

that it's not Reynaud's. I'm also starting to be convinced that I'm in

REMISSION! Won't that be nice???

Dennis in eastexas

On Fri, Aug 15, 2008 at 3:16 PM, Dorothy <dorv@...> wrote:

> Dennis, I have both peripheral neuropath (right leg) and Reynaud's.

> There's

> a big difference in them.

>

> I find, as most do, that the Reynaud's only kicks up when it's cold out or

> even if I go into a supermarket frozen food department. The neuropathy

> never goes away. Your description does not sound to me like common

> Reynaud's and I think it would be worthwhile for you to see a neurologist.

>

> I know it seems like all we ever do is hear that we have yet another

> illness..it's depressing.

>

> Dorothy

>

> _____

>

> From: < %40> [mailto:

> < %40>] On

> Behalf Of Dennis W

> Sent: Friday, August 15, 2008 1:55 PM

>

> Subject: [ ] Another diagnosis- Reynaud's

>

>

> During my last visit with the Rheumy, I talked about the seemingly

> peripheral neuropathy I was suffering from. When I walk or sit at the

> computer, my toes felt cold, hot, tingling, etc, so we decided that my

> problem was Reynaud's. I've already been diagnosed with RA, Fibro, DDD, and

> Sjogren's that I remember. I'd like to remove one or two but it's not

> possible so far. Life goes on...

>

> Dennis in eastexas

>

>

[Guest guest]

Well, if it were me, I'd see another not-so-hot neurologist.

Not sure which of the problems you mention are in remission, but more power

to you for healthy days :-)

Dorothy

_____

From: [mailto: ] On

Behalf Of Dennis W

Sent: Saturday, August 16, 2008 1:10 PM

Subject: Re: [ ] Another diagnosis- Reynaud's

Dorothy, the last time I went to a hot-shot Neurosurgeon was for the

numbness in my right leg. After 1 1/2 hours in the MRI machine, he concluded

that my pants were too tight! I think I'm going to work on the assumption

that it's not Reynaud's. I'm also starting to be convinced that I'm in

REMISSION! Won't that be nice???

Dennis in eastexas

On Fri, Aug 15, 2008 at 3:16 PM, Dorothy <dorvoptonline (DOT)

<mailto:dorv%40optonline.net> net> wrote:

> Dennis, I have both peripheral neuropath (right leg) and Reynaud's.

> There's

> a big difference in them.

>

> I find, as most do, that the Reynaud's only kicks up when it's cold out or

> even if I go into a supermarket frozen food department. The neuropathy

> never goes away. Your description does not sound to me like common

> Reynaud's and I think it would be worthwhile for you to see a neurologist.

>

> I know it seems like all we ever do is hear that we have yet another

> illness..it's depressing.

>

> Dorothy

>

> _____

>

> From: @gro <mailto: %40> ups.com

< %40> [mailto:

> @gro <mailto: %40> ups.com

< %40>] On

> Behalf Of Dennis W

> Sent: Friday, August 15, 2008 1:55 PM

>

> Subject: [ ] Another diagnosis- Reynaud's

>

>

> During my last visit with the Rheumy, I talked about the seemingly

> peripheral neuropathy I was suffering from. When I walk or sit at the

> computer, my toes felt cold, hot, tingling, etc, so we decided that my

> problem was Reynaud's. I've already been diagnosed with RA, Fibro, DDD,

and

> Sjogren's that I remember. I'd like to remove one or two but it's not

> possible so far. Life goes on...

>

> Dennis in eastexas

>

>

[Guest guest]

My bad, Clora. I was referring to the RA. Either I'm in remission or the

shots in my back are still working, but the back is starting to hurt again.

I woke up this morning with my feet on the floor and the rest of me on my

back in bed. My back was killing me when I tried to get all of me either on

the bed or on the floor, and the battle went on. I finally got myself

arranged, and shortly my back relaxed enough for me to get up. It's not as

bad as when I woke the first time but am still taking it easy 'cause I don't

want to hurt anything else.

Dennis in eastexas

On Sat, Aug 16, 2008 at 12:29 PM, Dorothy <dorv@...> wrote:

> Well, if it were me, I'd see another not-so-hot neurologist.

>

> Not sure which of the problems you mention are in remission, but more power

> to you for healthy days :-)

>

>

> Dorothy

>

> _____

>

> From: < %40> [mailto:

> < %40>] On

> Behalf Of Dennis W

> Sent: Saturday, August 16, 2008 1:10 PM

> < %40>

> Subject: Re: [ ] Another diagnosis- Reynaud's

>

> Dorothy, the last time I went to a hot-shot Neurosurgeon was for the

> numbness in my right leg. After 1 1/2 hours in the MRI machine, he

> concluded

> that my pants were too tight! I think I'm going to work on the assumption

> that it's not Reynaud's. I'm also starting to be convinced that I'm in

> REMISSION! Won't that be nice???

>

> Dennis in eastexas

>

> On Fri, Aug 15, 2008 at 3:16 PM, Dorothy <dorvoptonline (DOT)

> <mailto:dorv%40optonline.net <dorv%2540optonline.net>> net> wrote:

>

> > Dennis, I have both peripheral neuropath (right leg) and Reynaud's.

> > There's

> > a big difference in them.

> >

> > I find, as most do, that the Reynaud's only kicks up when it's cold out

> or

> > even if I go into a supermarket frozen food department. The neuropathy

> > never goes away. Your description does not sound to me like common

> > Reynaud's and I think it would be worthwhile for you to see a

> neurologist.

> >

> > I know it seems like all we ever do is hear that we have yet another

> > illness..it's depressing.

> >

> > Dorothy

> >

> > _____

> >

> > From: @gro

<mailto: %40< %2540>>

> ups.com

> < %40> [mailto:

> > @gro

<mailto: %40< %2540>>

> ups.com

> < %40>] On

> > Behalf Of Dennis W

> > Sent: Friday, August 15, 2008 1:55 PM

> >

> > Subject: [ ] Another diagnosis- Reynaud's

> >

> >

> > During my last visit with the Rheumy, I talked about the seemingly

> > peripheral neuropathy I was suffering from. When I walk or sit at the

> > computer, my toes felt cold, hot, tingling, etc, so we decided that my

> > problem was Reynaud's. I've already been diagnosed with RA, Fibro, DDD,

> and

> > Sjogren's that I remember. I'd like to remove one or two but it's not

> > possible so far. Life goes on...

> >

> > Dennis in eastexas

> >

> >

[Guest guest]

I have reynaulds too..I finally re addressed it again...My rheumy

prescribed a low dose norvasc to take at bedtime...I was scared about

starting it and had a discussion with my family doc..she encouraged me

to take it, it would help with circulation, especially with people

suffering with arthris..I have notice a great big difference..I feel my

limbs and body are warmer. I was always cold, couldnt get warm..Now

when im in contact with something cold, i start to feel the sensation

that caused my finger and toe turn blue, but it stops quickly...My

finger and toes are nice and pink...diane