Guest guest Posted August 15, 2008 Report Share Posted August 15, 2008 I used to be a nurse... years ago. Life got busy with my children, I quit work to be with them. I spent time in classrooms, I created a childrens music group, I loved all of it. I even spent some time educating my children myself. I now have two University students, they have done very well for themselves. Scholarships, etc. One is an English major, one is a music major. I still have 3 kids still at home, I am just as dedicated to them... I'm there mommy and I want to continue giving them my all, like I did my other two. Nursing is a flexible career.... but with my RA, well you know. Immunosuppressant drugs.... being exposed to things isn't a good idea. Not to mention... some days I feel almost okay! Most days.... I can do things for a while but then I am exhausted and achy... and I just hurt. Most days my hands are just stiff... others days they hurt. Once or twice a week, I feel sick enough I need to be in bed for part to all of the day. I was on Sulfasalazine and Hydroxychloroquin, but my tests were never normal. They discontinued it... being off of it I discovered that the pain was so horrible.. and the RA has spread to my hips and shoulders now. My hips always hurt. So now I am on mtx injections, and I have started Embrel. It has been a week.... the first day after the shot I felt HORRIBLE. It has gotten better... I need to give it a few weeks. Back to my career.... I don't think nursing is an option for me. I need something flexible. I thought of teaching... English and History are a passion of mine. I also do genealogy.... it is a hobby that I just love. I have helped others with theirs, too, and enjoyed it. I have discovered that our university here has a BA in it, as well as several other certifications. I can do this!!!! It is perfect.... flexibility, I can make some money to help my kids in school, I can work with people again, I can do something I love. But funding... I don't have the money. I was asking my doctor about this today, she thinks I would qualify for some sort of disabilty. I have NEVER thought of myself as disabled yet. I can still walk when I am on my drugs. Though, taking stairs is interesting! I have to lean against the wall and sliiiiiiide down the wall to make it downstairs, or to even take the one step off my porch when leaving my house! My sons like to " help " me down them, making me laugh all the way! Do I apply? What does " disability " mean? What does it take to " qualify " Does the fact that my illness makes it so I sometimes can't work? (How DOES one insert an NG tube, or even start an IV, when their hands don't work? What if I feel so sick, or suddenly start hurting so much I can't finish a shift?) But our Dodge here, he does it.... Anyway, any thoughts out there? Any one else been at this place? Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2008 Report Share Posted August 16, 2008 , I recently won my Social Security Disability case. First, I suggest you find an attorney that handles these cases almost exclusively. They will get a portion of your award, but they get nothing if you lose. Second, make sure that you have the support of your doctors. You can't win without a good medical history...or should I say, a " bad " medical history. Third, there are specific requirements and you can read about these at http://www.ssa.gov/disability/ and also take a look at <http://www.disabilitysecrets.com/> http://www.disabilitysecrets.com/ for more information. You need to have worked for specific periods of time so if you haven't worked in many years, check that first. I belong to an on-line group regarding the subject and there was just a discussion about those on SSDI going back to school. It's a sort of touchy issue since if you are well enough to go to school, study, do homework, etc., then perhaps you are well enough to be working and are not entitled to SSDI. And just because you can't insert a tube into someone doesn't mean that they wouldn't consider you able to do some sort of other work. One man said that he was actually told that he should apply for a job sitting in front of a security monitor all day. I've heard some unbelievable stories! I was very fortunate that I won my case quickly..I was totally shocked that I did. I saw the attorney in February and my decision just came through at the beginning of August. A very large percentage of people do not win on the application and have to appeal. My attorney told me that if I lost, an appeal would take about 18 months. There are people that have been trying for years. It is, however, retroactive so if and when you do win, you get all the back benefits. I am sure I am not the only one here with experience with SSDI, but if there are any specific questions you have, I'll be glad to " chat " with you off-list. Dorothy dorv@... From: [mailto: ] On Behalf Of brendabennion Sent: Saturday, August 16, 2008 1:11 AM Subject: [ ] Advice... I am thinking of changing careers, going back to school.... LONG! I used to be a nurse... years ago. Life got busy with my children, I quit work to be with them. I spent time in classrooms, I created a childrens music group, I loved all of it. I even spent some time educating my children myself. I now have two University students, they have done very well for themselves. Scholarships, etc. One is an English major, one is a music major. I still have 3 kids still at home, I am just as dedicated to them... I'm there mommy and I want to continue giving them my all, like I did my other two. Nursing is a flexible career.... but with my RA, well you know. Immunosuppressant drugs.... being exposed to things isn't a good idea. Not to mention... some days I feel almost okay! Most days.... I can do things for a while but then I am exhausted and achy... and I just hurt. Most days my hands are just stiff... others days they hurt. Once or twice a week, I feel sick enough I need to be in bed for part to all of the day. I was on Sulfasalazine and Hydroxychloroquin, but my tests were never normal. They discontinued it... being off of it I discovered that the pain was so horrible.. and the RA has spread to my hips and shoulders now. My hips always hurt. So now I am on mtx injections, and I have started Embrel. It has been a week.... the first day after the shot I felt HORRIBLE. It has gotten better... I need to give it a few weeks. Back to my career.... I don't think nursing is an option for me. I need something flexible. I thought of teaching... English and History are a passion of mine. I also do genealogy.... it is a hobby that I just love. I have helped others with theirs, too, and enjoyed it. I have discovered that our university here has a BA in it, as well as several other certifications. I can do this!!!! It is perfect.... flexibility, I can make some money to help my kids in school, I can work with people again, I can do something I love. But funding... I don't have the money. I was asking my doctor about this today, she thinks I would qualify for some sort of disabilty. I have NEVER thought of myself as disabled yet. I can still walk when I am on my drugs. Though, taking stairs is interesting! I have to lean against the wall and sliiiiiiide down the wall to make it downstairs, or to even take the one step off my porch when leaving my house! My sons like to " help " me down them, making me laugh all the way! Do I apply? What does " disability " mean? What does it take to " qualify " Does the fact that my illness makes it so I sometimes can't work? (How DOES one insert an NG tube, or even start an IV, when their hands don't work? What if I feel so sick, or suddenly start hurting so much I can't finish a shift?) But our Dodge here, he does it.... Anyway, any thoughts out there? Any one else been at this place? Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2008 Report Share Posted August 16, 2008 and Group; Hon sounds like your having a real hard time. When one gets feeling so bad they have to go to bed, they will not do very well on a job. I know. I worked for a lot of years disabled and didnt even realize how disabled I was. You can't compare yourself to anyone in a support group. We only know what each other do by a letter. Dodge has a on the job injury and that requires his job to find him a place in the work place to work with in reason. He will be the first to tell you himself. If you think you can work partime or do something else like a sit down job by all means look for it. You sound disabled to me. Like you said how can you insert a tube when your hurts are hurting. Maybe you can teach. I can't say what your able to do, only you know. My son n law waited to get on disability for 3 years. He didnt get a lawyer. He couldnt walk. except to the bathroom is as far as he could go. I think one needs a lawyer for disability from my experience watching people sign up. First of all the interviewers for the state made me feel like I was an imposter. My son n law had a quadrouple by pass and they still turned him down. He died before he could get disability. My sister was bipolar. She got disability in 6 months. She was able to run around the block. I can tell you about 4 other people who signed up for disability. If you do decide to sign up, get a lawyer. You sound like the type of person that really worked in life and now RA is making it hard for you to be in the work force. I hope what ever your decision is you have an understanding about the sign up process and how hard it is for some and how easy it was for others. The Social Securtity disability is a little confused and a lawyer does not mean your faking. A lawyer knows all the answers we don't. lots of luck. gentle hugs everyone Clora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2008 Report Share Posted August 16, 2008 Thank you so much, Dorothy. Those links will be more helpful than you know. I appreciate your wise knowledge! >From: Dorothy <dorv@...> >Reply- > >Subject: RE: [ ] Advice... I am thinking of changing careers, >going back to school.... LONG! >Date: Sat, 16 Aug 2008 08:24:40 -0400 >MIME-Version: 1.0 >X-Originating-IP: 167.206.4.200 >X-Sender: dorv@... >Received: from n32c.bullet.scd. ([66.94.237.10]) by >bay0-mc12-f20.bay0.hotmail.com with Microsoft SMTPSVC(6.0.3790.2668); Sat, >16 Aug 2008 05:24:49 -0700 >Received: from [66.218.69.2] by n32.bullet.scd. with NNFMP; 16 Aug >2008 12:24:49 -0000 >Received: from [66.218.67.114] by t2.bullet.scd. with NNFMP; 16 >Aug 2008 12:24:49 -0000 >X-Message-Delivery: Vj0zLjQuMDt1cz0wO2w9MDthPTA= >X-Message-Info: >R00BdL5giqqNZZptD/37SSsDkv7KaBU5O2thjKQ7C6xlseDydJl7B6+VAQ6n8vgF4VfnltFNvcCo3y5\ QCrMYGgoClW6lpEmV >Comment: DomainKeys? See http://antispam./domainkeys >DomainKey-Signature: a=rsa-sha1; q=dns; c=nofws; s=lima; >d=;b=F9s/IxN2GwdzKaoCNs9TPZSWDcdO01vzeO7yKhI5hiWMSDeo8bFw0ExFB5R\ LCLY/g//XRKjTOx1e24F5ocvFen+ZyVu1rGNj9PyK39ADmgeSuyhdesdCZ3gUWRO1zYmd; >X--Newman-Id: 101478-m117104 >X-Apparently- >X-Received: (qmail 42200 invoked from network); 16 Aug 2008 12:24:46 -0000 >X-Received: from unknown (66.218.67.97) by m46.grp.scd. with >QMQP; 16 Aug 2008 12:24:46 -0000 >X-Received: from unknown (HELO mta5.srv.hcvlny.cv.net) (167.206.4.200) by >mta18.grp.scd. with SMTP; 16 Aug 2008 12:24:46 -0000 >X-Received: from Dorothy (ool-18bf18d3.dyn.optonline.net [24.191.24.211]) >by mta5.srv.hcvlny.cv.net (Sun Java System Messaging Server 6.2-8.04 (built >Feb 28 2007)) with ESMTP id <0K5P00JVJ1566TM0@...> for > ; Sat, 16 Aug 2008 08:24:43 -0400 (EDT) >X-MIMEOLE: Produced By Microsoft MimeOLE V6.00.2900.3350 >X-Mailer: Microsoft Office Outlook 11 >Thread-index: Acj/mMhCVUgfKliFQp+Biu3PTexTOAAAHuCA >References: <g85nh7+10f9leGroups> >X-eGroups-Msg-Info: 1:12:0:0:0 >X--Profile: dabbvaccaro >Mailing-List: list ; contact > -owner >Delivered-mailing list >List-Id: < .> >Precedence: bulk >List-Unsubscribe: <mailto: -unsubscribe > >X--Newman-Property: groups-email-ff-m >Return-Path: >sentto-101478-117104-1218889488-bennion8=msn.com@... >X-OriginalArrivalTime: 16 Aug 2008 12:24:49.0440 (UTC) >FILETIME=[13A12200:01C8FF9B] > >, I recently won my Social Security Disability case. > > > >First, I suggest you find an attorney that handles these cases almost >exclusively. They will get a portion of your award, but they get nothing >if >you lose. > > > >Second, make sure that you have the support of your doctors. You can't win >without a good medical history...or should I say, a " bad " medical history. > > > >Third, there are specific requirements and you can read about these at >http://www.ssa.gov/disability/ and also take a look at ><http://www.disabilitysecrets.com/> http://www.disabilitysecrets.com/ for >more information. You need to have worked for specific periods of time so >if you haven't worked in many years, check that first. > > > >I belong to an on-line group regarding the subject and there was just a >discussion about those on SSDI going back to school. It's a sort of touchy >issue since if you are well enough to go to school, study, do homework, >etc., then perhaps you are well enough to be working and are not entitled >to >SSDI. > > > >And just because you can't insert a tube into someone doesn't mean that >they >wouldn't consider you able to do some sort of other work. One man said >that >he was actually told that he should apply for a job sitting in front of a >security monitor all day. I've heard some unbelievable stories! > > > >I was very fortunate that I won my case quickly..I was totally shocked that >I did. I saw the attorney in February and my decision just came through at >the beginning of August. A very large percentage of people do not win on >the application and have to appeal. My attorney told me that if I lost, an >appeal would take about 18 months. There are people that have been trying >for years. It is, however, retroactive so if and when you do win, you get >all the back benefits. > > > >I am sure I am not the only one here with experience with SSDI, but if >there >are any specific questions you have, I'll be glad to " chat " with you >off-list. > > > >Dorothy > >dorv@... > > > > > >From: [mailto: ] On >Behalf Of brendabennion >Sent: Saturday, August 16, 2008 1:11 AM > >Subject: [ ] Advice... I am thinking of changing careers, going >back to school.... LONG! > > > >I used to be a nurse... years ago. Life got busy with my children, I >quit work to be with them. I spent time in classrooms, I created a >childrens music group, I loved all of it. I even spent some time >educating my children myself. I now have two University students, >they have done very well for themselves. Scholarships, etc. One is an >English major, one is a music major. I still have 3 kids still at >home, I am just as dedicated to them... I'm there mommy and I want to >continue giving them my all, like I did my other two. > >Nursing is a flexible career.... but with my RA, well you know. >Immunosuppressant drugs.... being exposed to things isn't a good >idea. Not to mention... some days I feel almost okay! Most days.... I >can do things for a while but then I am exhausted and achy... and I >just hurt. Most days my hands are just stiff... others days they >hurt. Once or twice a week, I feel sick enough I need to be in bed >for part to all of the day. I was on Sulfasalazine and >Hydroxychloroquin, but my tests were never normal. They discontinued >it... being off of it I discovered that the pain was so horrible.. >and the RA has spread to my hips and shoulders now. My hips always >hurt. So now I am on mtx injections, and I have started Embrel. It >has been a week.... the first day after the shot I felt HORRIBLE. It >has gotten better... I need to give it a few weeks. > >Back to my career.... I don't think nursing is an option for me. I >need something flexible. I thought of teaching... English and History >are a passion of mine. > >I also do genealogy.... it is a hobby that I just love. I have helped >others with theirs, too, and enjoyed it. I have discovered that our >university here has a BA in it, as well as several other >certifications. I can do this!!!! It is perfect.... flexibility, I >can make some money to help my kids in school, I can work with people >again, I can do something I love. > >But funding... I don't have the money. I was asking my doctor about >this today, she thinks I would qualify for some sort of disabilty. I >have NEVER thought of myself as disabled yet. I can still walk when I >am on my drugs. Though, taking stairs is interesting! I have to lean >against the wall and sliiiiiiide down the wall to make it downstairs, >or to even take the one step off my porch when leaving my house! My >sons like to " help " me down them, making me laugh all the way! > >Do I apply? What does " disability " mean? What does it take >to " qualify " Does the fact that my illness makes it so I sometimes >can't work? (How DOES one insert an NG tube, or even start an IV, >when their hands don't work? What if I feel so sick, or suddenly >start hurting so much I can't finish a shift?) But our Dodge here, he >does it.... > >Anyway, any thoughts out there? Any one else been at this place? > >Thanks. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2008 Report Share Posted August 16, 2008 Clora, You are so sweet and kind! I appreciate your sharing those experiences as there is value in learning from others. I need to hear these things. though I am limited in what I can do, I still don't know that I really " qualify " . I am going to check and read Dorothy's links. I am also going to go up to the school this week. We are having a garage sale today, and I was out sorting clothes. I made the mistake of sitting on the ground to catagorize clothes. Ohhh, my hips hurt and I could not get up again! My hubby giggled when he had to help me up! My hands hurt, too. But that is the course of things, isn't it? I keep thinking of my mother with this, and my Aunt. My mother was divorced, and she had spent and devoted all her time when married to raising my brother and I. I believe she developed this RA at the same time I did... late 30s to early 40s. She divorced when I left home for college, then had to go to work. She did not have an education.... but she did okay. She worlked retail in a hardware store. By her mid 50s she could not work anymore... she went on disability. I think of moms hands, her ankles, and I look at me and think, " I'm not here yet. Mom worked at the point I am at so what is my deal? " Mom was an incredible woman and I miss her! ANyway, thank you for your kind thoughts. You are such a gem! >From: " CLORA " <clora4jesus@...> >Reply- > >Subject: [ ] Re: Advice... I am thinking of changing careers, >going back to school.... LONG! >Date: Sat, 16 Aug 2008 13:10:05 -0000 >MIME-Version: 1.0 >X-Originating-IP: 69.147.64.217 >X-Sender: clora4jesus@... >Received: from n17.bullet.sp1. ([69.147.64.214]) by >bay0-mc6-f3.bay0.hotmail.com with Microsoft SMTPSVC(6.0.3790.2668); Sat, 16 >Aug 2008 06:12:50 -0700 >Received: from [216.252.122.217] by n17.bullet.sp1. with NNFMP; 16 >Aug 2008 13:12:49 -0000 >Received: from [209.73.164.86] by t2.bullet.sp1. with NNFMP; 16 >Aug 2008 13:12:49 -0000 >Received: from [66.218.67.114] by t8.bullet.scd. with NNFMP; 16 >Aug 2008 13:12:49 -0000 >Received: (qmail 55571 invoked from network); 16 Aug 2008 13:12:48 -0000 >Received: from unknown (66.218.67.96) by m46.grp.scd. with QMQP; >16 Aug 2008 13:12:48 -0000 >Received: from unknown (HELO n11b.bullet.sp1.) 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See http://antispam./domainkeys >DomainKey-Signature: a=rsa-sha1; q=dns; c=nofws; s=lima; >d=;b=uXa/7B4w9Jdl7Y4jdW+U1sKQdwOcQd6T+VkbYUfqPIygauOEoTEzpMiYRzk\ EpVt/CWifE5UWmyyYrK5DQ6EvBbXGhYvmnH3W495er3P9XLqHJ/Y6B4rFfonFZPdNIG2Y; >X--Newman-Id: 101478-m117107 >X-Apparently- >X-Received: (qmail 66198 invoked from network); 16 Aug 2008 13:10:09 -0000 >X-Received: from unknown (66.218.67.96) by m52.grp.scd. with >QMQP; 16 Aug 2008 13:10:09 -0000 >X-Received: from unknown (HELO n20.bullet.sp1.) (69.147.64.217) >by mta17.grp.scd. with SMTP; 16 Aug 2008 13:10:09 -0000 >X-Received: from [216.252.122.216] by n20.bullet.sp1. with NNFMP; >16 Aug 2008 13:10:06 -0000 >X-Received: from [209.73.164.83] by t1.bullet.sp1. with NNFMP; 16 >Aug 2008 13:10:06 -0000 >X-Received: from [66.218.66.81] by t7.bullet.scd. with NNFMP; 16 >Aug 2008 13:10:06 -0000 >User-Agent: eGroups-EW/0.82 >X-Mailer: Message Poster >X-eGroups-Msg-Info: 1:6:0:0:0 >X--Post-IP: 66.169.41.62 >X--Profile: clora4jesus >X-eGroups-Approved-By: gina_nmi_walker ><Rheumatoid.Arthritis.Support@...> via web; 16 Aug 2008 13:12:47 >-0000 >Mailing-List: list ; contact > -owner >Delivered-mailing list >List-Id: < .> >Precedence: bulk >List-Unsubscribe: <mailto: -unsubscribe > >X--Newman-Property: groups-email-ff-m >Return-Path: >sentto-101478-117107-1218892369-bennion8=msn.com@... >X-OriginalArrivalTime: 16 Aug 2008 13:12:50.0293 (UTC) >FILETIME=[C8C06A50:01C8FFA1] > > and Group; > >Hon sounds like your having a real hard time. When one gets feeling >so bad they have to go to bed, they will not do very well on a job. >I know. I worked for a lot of years disabled and didnt even realize >how disabled I was. You can't compare yourself to anyone in a >support group. We only know what each other do by a letter. Dodge >has a on the job injury and that requires his job to find him a >place in the work place to work with in reason. He will be the >first to tell you himself. > >If you think you can work partime or do something else like a sit >down job by all means look for it. You sound disabled to me. Like >you said how can you insert a tube when your hurts are hurting. >Maybe you can teach. I can't say what your able to do, only you >know. > >My son n law waited to get on disability for 3 years. He didnt get >a lawyer. He couldnt walk. except to the bathroom is as far as he >could go. I think one needs a lawyer for disability from my >experience watching people sign up. First of all the interviewers >for the state made me feel like I was an imposter. My son n law had >a quadrouple by pass and they still turned him down. He died before >he could get disability. > >My sister was bipolar. She got disability in 6 months. She was able >to run around the block. I can tell you about 4 other people who >signed up for disability. If you do decide to sign up, get a >lawyer. You sound like the type of person that really worked in >life and now RA is making it hard for you to be in the work force. >I hope what ever your decision is you have an understanding about >the sign up process and how hard it is for some and how easy it was >for others. The Social Securtity disability is a little confused >and a lawyer does not mean your faking. A lawyer knows all the >answers we don't. > >lots of luck. >gentle hugs everyone >Clora > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2008 Report Share Posted August 16, 2008 and group; Your very welcome . I love to send post to our group and chat with others. I hope you find out what you need. I know one needs doctors to agree with the patient on disability. I didnt even ask my doctor I just took her and him the papers my lawyer gave me. I feel to weak to go anywhere except grocery shopping or to the drug store and a lot of times my husband takes care of these things. My pain level goes up and down right now. My rheumy is working with me. I feel much better than I was a few weeks ago. Lots of luck on your garage sale. My dad had arthritis, his knees hurt for many years and his feet hurt since I was a kid. I know how you miss your mom, cause I miss my daddy so much. He passed away in 99. Dad like your mom worked and raised all his kids. Dad couldnt even read very good, mom filled out his job application. He worked for Ford motor company for 30 years and retired. I dont know what kind of arthritis he had but the last few years he hurt pretty bad. His primary doctor gave him darvocets. I don't think he even knew there was more help out there for him. Daddy didnt like to complain. It was after he passed away that I found out he couldnt read very well, and how bad he hurt. I think we have to learn how to communicate how we feel to our doctors. As I said before they don't know till we tell them. I was in constant pain and didnt tell my rheumy it was really bad. I don't know why, but I told her I hurt, that was it. I finally let her know I was in constand horrible pain. She is having me take humira injections in a couple weeks. gentle hugs Clora Quote Link to comment Share on other sites More sharing options...
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